Author Archives: Audacity2speak

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About Audacity2speak

Young blogger and creative thinker.

Wonderful Wednesdays: Opportunities to Speak Up Across Ohio!

This blog is about opportunities to add your input to various surveys on the National, State, and Local levels with various organizations, agencies and groups across Ohio.

  • 📋The Coalition On Homelessness and Housing in Ohio is conducting its annual stakeholder survey to gather valuable feedback that helps show the needs, priorities, and experiences of those they serve and partner with. By participating, you can play a direct role in strengthening our programs and advancing our shared mission.
    ⏱️Please take a few minutes to complete this short survey. The survey will close after Wednesday, Dec. 3. Survey Link
  • Ohio DD Council Seeks Public Input on Draft 5-Year Plan on Developmental Disabilities
    The Ohio Developmental Disabilities Council has approved a draft 5-Year Plan on Developmental Disabilities at their October meeting. The Council now seeks public feedback on the Goals and Objectives the Council has created for 2027-2031. Additionally, the Council is proposing to provide funding for 19 different grant projects. Each of the proposed projects, along with goals and objectives, can be found at this link: https://ddc.ohio.gov/projects-and-grants/five-year-state-plan/five-year-state-plan
    The Council began working on the draft plan in 2024 when it published a public survey seeking input on the needs in Ohio. More than 1,000 survey responses were received from Ohioans with developmental disabilities, family members and system stakeholders. Starting in early 2025, Council began evaluating the needs identified by Ohioans in the survey and developing goals and objectives to address those needs.
    Now, the Council seeks feedback on the plan it has created. Anyone can submit comments or feedback on the draft plan by submitting a completed survey. Surveys can be found by this link: https://form.jotform.com/253015784369060
    The deadline for all surveys is Wednesday, December 31, 2025.
  • The Ohio Department of Developmental Disabilities (DODD) invites waiver participants and their families to take part in this self-direction survey (https://www.surveymonkey.com/r/FLSQ5FH). The survey will help DODD learn what you know about self-directed waiver services. The survey is open until December 12, 2025.
  • Transportation Needs Survey Do you live in Defiance, Fulton, Henry, Paulding, or Williams counties and have opinions on transportation in our counties? Take our survey by January 18 , 2026 to have your voice heard! Take the survey here: https://forms.gle/rmihWtCXSJStHSoy6
  • Lorain County Transit Launches Community Survey to Shape the Future of Local Transportation
    Lorain County, OH – Lorain County Transit (LCT) is seeking residents’ input to help shape the future of public transportation. As part of the county’s Transportation Development Plan, LCT is gathering feedback to improve routes, expand service, and better meet the needs of riders across the community. Please find survey at this link
  • Survey Invitation: Parents and Family Members of Ohio Adults with IDD
    You are invited to take part in a research study about how families make decisions with and for an adult family member who has an intellectual or developmental disability (IDD).
    Adults with IDD are also welcome to participate and share their own experiences.
    Each survey takes about 10–20 minutes. Anyone who completes a survey may choose to enter a raffle for a $50 digital gift card to Walmart or Amazon.
    Survey for parents/family members:
    https://bit.ly/Parent_Decisions
    Survey for adults with IDD:
    https://bit.ly/DecisionsSurvey
    See the flyers for additional details. Sharing your experiences can help improve the guidance and resources available to families across Ohio.
    This study is being conducted by Jeanne Novak, a professor at Bowling Green State University. Please contact her at jnovak@bgsu.edu with any questions.
  • Survey Closing This Week – Help shape the future for Ohio families! Your family’s experiences matter more than ever. Your input can change the future for families like yours. Take a few minutes today to share what matters most. https://www.surveymonkey.com/r/96JM7ZQ
  • The Mental Health & Recovery Services Board of Lucas County:Community Feedback Survey Link
  • Sharing on behalf of a student at Ohio State University conducting a study on the Mental Health Care Deaf individuals receive.
    Link to survey: https://osu.az1.qualtrics.com/jfe/form/SV_6QiDg9SxUXtABWm?Q_CHL=qr
    any questions email henderson.1246@buckeyemail.osu.edu.
  • 🚒 📣Help Shape the Future Location of Harrison’s New Fire Station!
    The City of Harrison is asking for your input on potential locations for a new fire station. Community feedback is an important part of this planning process, and your perspective will help guide the next phase of this project.
    Please take a few minutes to review the options and share your thoughts. The survey is open to everyone who lives or works in Harrison.
    👉 Take the survey here: https://www.surveymonkey.com/r/HMZBWFZ
  • The City of Geneva is looking for feedback as they continue to plan for the future of our city. If you’d like to have input please take a moment to fill out the survey.
    https://www.surveymonkey.com/r/DGZD8LR
  • Here is a survey from What’s Next Nelsonville, Ohio If you live in , work in, or just care about Nelsonville, please take it click link for survey .
  • 🌈 Help strengthen LGBTQ+ health in Central Ohio!
    Pickaway County Public Health is helping spread the word about the Greater Columbus LGBTQ+ Community Health Needs Assessment, led by The Ohio State University, Columbus Public Health, and Franklin County Public Health.
    If you are:
    ✔️ 18 or older
    ✔️ Identify as LGBTQ+
    ✔️ Live or work in the greater Columbus area (Franklin + 6 surrounding counties)
    You’re invited to share your voice in a confidential 30-minute online survey.
    📝 Why participate?
    Your insight will help shape better health programs, services, and resources for LGBTQ+ people in our region. This is Central Ohio’s first-ever LGBTQ+ CHNA — your story matters!
    🎁 Participants can enter a raffle to win a $20, $50, or $100 gift card
    (1 in 4 chances of being selected!)
    📲 Learn more & take the survey:
    👉 Scan the QR code on the flyer or visit:
    https://u.osu.edu/greatercolumbusinsight/
    Let’s work together to make Central Ohio safer, healthier, and more inclusive for everyone
  • Mental Health America of Ohio (MHAOhio) is inviting Peer Recovery Supporters (PRS) across the Central Ohio area (Franklin, Delaware, Fairfield, Licking, Madison, Pickaway, Union Counties) to share some basic information about your PRS certification status and where you’re currently working.
    This short, voluntary survey helps us understand the current landscape of PRS roles — where people are placed, what kinds of settings they’re working in, and what support might be needed.
    🎁 Peers who complete the survey by December 31st will be entered to win a prize! Winners announced by email at the beginning of each month. (Must include full name and email in survey and be in the Central Ohio area to be entered into the raffle)
    Your input will help us strengthen and grow the PRS network within Central Ohio. It takes less than 5 minutes! We appreciate all the hard work you are doing and thank you for your time in taking this survey.
    Take the survey here: https://forms.office.com/Pages/ResponsePage.aspx?id=9BKPu8AWb02SOFel-WVEVdve6mB1ldxAuylao0zVL6pUNVpZSU9ZOTVLWU1GUEZHUE5OSVRaUUZKSS4u
  • The Delaware County Workforce Alliance (DCWA) is conducting a community survey about childcare needs and we need your input! Lack of access to quality, affordable childcare can be an impediment for those seeking good jobs and for those looking to hire good employees! The DCWA — a working group of local educators, businesses, public officials and nonprofits — is coordinated by the Delaware County Office of Economic Development and is dedicated to finding solutions. Click here to take the survey: https://docs.google.com/forms/d/e/1FAIpQLSdxhUD_ceoV3yQ50Jjs6Wm-sq2Cs3mX0uXUY3Ls509h8y6b8w/viewform
  • Help Shape the Future of Sandusky County!
    Sandusky County is updating its comprehensive plan, which serves as a roadmap for our community’s future. This plan helps guide decisions on community growth, revitalization, quality of life, and public projects.
    We need your voice! Your input is crucial to ensure this plan reflects the public’s interests. We invite all residents, business owners, and community stakeholders to participate by completing a brief online survey.
    The survey asks for your feedback on community growth, local priorities, and your overall quality of life in Sandusky County.
    Your feedback will directly help elected officials coordinate projects, allocate resources, and develop services that matter most to you.
    You can also find the survey link on the public notices page of the county’s website at https://loom.ly/jQSBThw
    Thank you for helping to shape the future of Sandusky County!
  • Worthington neighbors, we need your voice. 🗣️
    Community Choices is your chance to help shape the future of our city in a way that works for your life, your family, and your busy schedule.
    We’re checking in to make sure we heard you correctly. Jump in, rate and refine the draft principles based on what the community has already shared, and help choose the look and vibe of the places you care about most.
    It only takes a few minutes and you can do it anytime before December 19, 2025. Quick, easy, and genuinely impactful.
    ➡️ Make your voice count at: https://worthingtontogether.org/community-choices/
    WorthingtonOhio #WorthingtonTogether #Survey

The Pulse: What’s going on around Ohio November 10th, 2025 to November 15th, 2025

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • The city of Cincinnati has Survey for residents to complete. Please participate if you are in Cincinnati. This is a good way to speak up!
  • OCALI and the Ohio Interagency Work Group on Autism (IWGA) want to hear what’s working, what’s not, and what matters most to you. That’s how we know we are building resources, trainings, and community connections that make a difference.  
    Take a few minutes today to help shape tomorrow click link for survey.
  • Ohio DD Council Seeks Public Input on Draft 5-Year Plan on Developmental Disabilities
    The Ohio Developmental Disabilities Council has approved a draft 5-Year Plan on Developmental Disabilities at their October meeting. The Council now seeks public feedback on the Goals and Objectives the Council has created for 2027-2031. Additionally, the Council is proposing to provide funding for 19 different grant projects. Each of the proposed projects, along with goals and objectives, can be found at this link: https://ddc.ohio.gov/projects-and-grants/five-year-state-plan/five-year-state-plan
    The Council began working on the draft plan in 2024 when it published a public survey seeking input on the needs in Ohio. More than 1,000 survey responses were received from Ohioans with developmental disabilities, family members and system stakeholders. Starting in early 2025, Council began evaluating the needs identified by Ohioans in the survey and developing goals and objectives to address those needs.
    Now, the Council seeks feedback on the plan it has created. Anyone can submit comments or feedback on the draft plan by submitting a completed survey. Surveys can be found by this link: https://form.jotform.com/253015784369060
    The deadline for all surveys is Wednesday, December 31, 2025.

Events around Ohio to For November 10th, 2025 to November 15th, 2025

Tuesday November 11th, 2025

Veterans Day!

  • DON’T FORGET! Save the Date for Tomorrow — November 11th!
    Brain Injury Association of Ohio, featuring our very own Just In Time Adaptive Wellness founder, Dana Spradling!
    We’ll be sharing insights and real-life experiences about shifting from managing the overwhelm of diagnosis to encouraging recovery through wellness — helping families move from “Now what?” to “We’ve got this.”
    Time: 6:00 – 7:00 PM
    Location: Online Webinar (Free to Attend!)
    Register here: https://zoom.us/meeting/register/eV2X5kHMR1mNDTmC_oOvaw
  • Town Hall Solutions for Mental Health in Ohio/ Congressional Candidate Adam Miller 100 S Grant Ave, Columbus, OH 43215-4702, United States Meeting Room 2B at the Main Library
    We are hosting a Town Hall to listen, share with each other and hone our plan of action for improved federal support of Mental Health and Wellness. We are FOR:
    Young people with special needs and their families, Teens battling anxiety and depression
    Families impacted by substance abuse Adults struggling with heavy demands and fraying social ties
    Veterans who are losing access to mental health care
    Seniors living with loneliness or dementia
    https://adammillerforcongress.org/solutions-for-mental-health-in-ohio-event/
  • Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com

Wednesday November 12th 2025

  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • UCCEDD Youth Transition Expo at Sharonville Convention Center 9am-3pm
  • Supported Decision Making Network of Ohio 12:00-1:30pm This is for anyone who is interested in knowing more about supported decision making. https://www.sdmno.org please check out their Facebook page for meeting information. Zoom link for this months meeting

Thursday November 13th 2025

  • OSDA Creative Changemakers, Thursday, Nov 13 only will hold two meetings one from 1-2pm and 4:30–5:30 PM, Repeats every month on the second Thursday. Its a group of peers/self-advocates who meet once a month to hang out and talk about issues facing people with disabilities in Ohio This group supported by the Ohio Self-Determination Association. Change Makers was created by and is run by people with disabilities because they wanted to extend their advocacy conversations beyond the COOL meetings. Please Contact one of the emails listed clareschloemer.osda@gmail.com
    nrichards@clearwatercog.org
    osda2011@gmail.com
  • Butler County Board of DD Board Meeting, Thursday, Nov 13 · 6–8 PM, Repeats every month on the second Thursday 282 N Fair Ave, Hamilton, OH 45011-4222, United States Our regularly scheduled board meeting is at the Janet Clemmons Center at 282 N. Fair Avenue, Hamilton, OH 45013.
    To download the agenda, click this link: https://www.butlerdd.org/events/board-meetings/

Friday November 14th, 2025

  • Brunch4Brains – Ohio, Friday, Nov 14 · 11 AM–2 PM Dayton Convention Center, 22 E 5th St, Dayton, OH 45402 Join us for a powerful and heartwarming event hosted by Epilepsy Foundation Ohio! Enjoy brunch, connect with the community, and help us shine a light on epilepsy awareness and support.
    Source › https://facebook.com/events/s/brunch4brains-ohio/1352744433160315/
  • We Thrive Together Advocacy Army 4:00pm-5:00pm click this link to join.

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • 2026 Managed Care Healthcare Comparison Guide
    It provides an overview of the services that all managed care plans offer as well as the specific value-added services available from each individual plan.
  • Emergency Preparedness for Individuals with Rare Diseases
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA.
  • Did you know Summit County has a special database to help reunite lost individuals with communication difficulties with their families? The Take Me Home program is a countywide initiative that supports individuals with disabilities that impact their ability to communicate.
    How it works:
    📝 Families register their loved one’s information in a secure database
    👮‍♀️ Only law enforcement personnel can access the information
    🔍 Officers can search by name, phone number, or physical characteristics
    🤝 Quick identification helps reunite families safely
    You can learn more at: https://bit.ly/4mjbiMQ
    Thanks to the partnership between the Elliot Kolkovich, Summit County Prosecutor and Summit County Sheriff’s Office we have this vital safety net.
    TakeMeHomeProgram #SummitCounty #AutismSafety

November Awareness Month

  • American Diabetes Month
  • Lung Cancer Awareness Month
  • National Family Caregivers Month
  • National Family Literacy Month
  • Long Term Care Awareness Month
  • National Home Care & Hospice Month
  • Epilepsy Awareness Month

Participate in Public Comment on Policy on Passport Waiver Amendments

Did you know you can participate in public comment on policy issues in Ohio that affect you? Our state has a public notices page through Ohio Department of Medicaid where they post waiver amendment updates for anyone who wants to participate in public comment on changes to important policies that make or shape our systems of care.

People can also sign up for emails that alert them of proposed legislation or public comment opportunities.

This is an example of what an email looks like when it comes from the public notices alerts. It tells you what the amendment is and how long the comment period is for. It will link you directly to the landing page of the notice where documents are located on amendment changes. When you go there it will tell you how to participate and submit public comment.

Proposed Amendment to the PASSPORT HCBS Waiver Program

Greetings, 

The Ohio Department of Medicaid’s Home and Community-Based Services Policy Section is seeking public comment on proposed amendments to the PASSPORT Waiver.  Prior to submission to the Centers for Medicare and Medicaid (CMS), a 30-day public comment period is open and will run November 6, 2025 through December 5, 2025. 

Thank you in advance for your review. ODM looks forward to reviewing your feedback on the proposed amendments. 

Detailed documents may be found on our Public Notices page. 

Once you click links above it will take you to public notices page. There you click on the passport waiver amendment. it takes you to the official notice.

Please note that many of documents linked to the site may or may not be accessible to people who are low Vision or visually impaired. It is important to know to request an accommodation. This is link to all the State Department ADA Coordinators. Send an email to waiver feedback email asking for an accommodations under the Americans with Disabilities Act and include the AdA person for that department on the email. These policies can be available in alternative formats. It is important to speak up for your needs when you do public comment on.

Public Notice and Request for Comment

Pursuant to the provision of title 42 Sections 441.301 and 441.304 of the Code of Federal Regulations, public notices are required for any of the following: new 1915(c) waiver, new 1915(i) state plan amendment, renewal of a 1915(c) waiver, and any amendment to a 1915(c) waiver that includes one or more substantive changes.

Public Notice: PASSPORT Waiver Amendment

Post DateNovember 6, 2025End DateDecember 5, 2025Purpose

Pursuant to 42 CFR 441.301 and 441.304, the director of the Ohio Department of Medicaid (department) gives notice of the department’s intent to amend the HCBS waiver programs. 

Changes are being proposed to the PASSPORT waiver programs, as a result of the above, to be effective March 1, 2026.  Initiative/AmendmentPASSPORT Waiver Amendments.SummarySummaryDetailDetail

Comments must be submitted by midnight of the comment period end date using one of the following options: 

  • E-mail: Waiverfeedback@age.ohio.gov
     
  • Written comments sent to:
    Attn: PASSPORT Waiver Amendment
    Ohio Department of Aging – Division for Community Living
    30 E Broad St, 22nd Floor
    Columbus, OH 43215
     
  • FAX:(614) 466-5741 (Please include Attn: PASSPORT Waiver Amendmentin the subject line)
     
  • Call toll-free to leave a voicemail message 1 (855) 926-0994
     
  • Courier or in-person submission to:
    Attn: PASSPORT Waiver Amendment
    Ohio Department of Aging – Division for Community Living
    30 E Broad St, 22nd Floor
    Columbus OH 43215

This is just one example of current opportunity to engage in public comment. Please participate if you can and share this with others. Sign up for alerts in your inbox to stay active in policy discussions and public comment opportunities in Ohio.

Friday Resource Round Up!

Every Friday we have decided to now share 5-10 resources that we came upon this week to people with disabilities, families and caregivers across Ohio.

This week wewanted to share some important information with everyone!

Friday Resource Round Up!

Every Friday we have decided to now share 5-10 resources that we came upon this week to people with disabilities, families and caregivers across Ohio.

This week wewanted to share some important information with everyone!

What is a Proxy Form for a Food Pantry and How Can It Help?

Did you know in Ohio if you are disabled or a senior citizen that if you can’t get out to a food pantry on your own that you can designate someone to go for you ?

In Ohio, you can designate a proxy to pick up food for you from a food pantry by providing a Letter of Proxy or a signed, handwritten note. Some Food pantries have their own forms as well.

Most food pantries still require photo identification identification even if another person is picking up for for you . They would require your ID and photo ID for the person picking up your food. It is best practices to call or email the food pantry to confirm their policies.

Some food pantries like Dayton Food Bank, Second Harvest Food Bank , Mid Ohio Food Collective and the Free Store Food Bank all have their own forms.

A lot of smaller pantries will allow for a letter from the person that needs food.

The letter should include

  • Your first and last name.
  • Your full home address.
  • The first and last name of the person you designate as your proxy.
  • The reason you cannot pick up the food yourself (e.g., illness, disability, scheduling conflict).
  • Your signature and the date.

The Akron Canton Regional Food Pantry actually provides an example of sample proxy letter that could be submitted for someone else to pick up food.

Some people don’t have access to a car and they see all these drive up food panties did you know In Ohio if you are on a waiver and have managed care Medicaid that your managed care plan will provide you a ride to a food pantry.

A couple years ago I was really struggling I was able to use my waiver transportation to go to a food pantry to get food . The transportation company waited on me and helped me even carry the groceries to my door. This is another option if you want to go your self in person and need a ride.

Even you don’t need a proxy now if you do visit a food pantry in the near future you can always ask about their policies pick up a proxy form in case this is needed for future use.

Friday Resource Round Up Special Edition : Food Pantries Around Ohio by County

We are compiling a list of food pantries and resources to help others in need in these times of government shut down. **** This will be updated as we find more resources.

Allen County

  • Only Believe Lima Community Meal
    1365. West St., Lima, OH 45801
    Sunday’s Meal Served at 5:30:00 PM
    937.693.3554
  • Salvation Army Food Pantry & Afterschool
    Program
    614 E. Market St., Lima, OH
    45804
    Monday through Friday, 9:00 am –
    12:00 pm & 1:00 pm – 2:45 pm &
    Appointment Only
    419.224.9055
  • St Vincent DePaul Society
    928 S. Main St., Lima, OH 45804
    Open after the 10th of the Month, M-W-F 1:00 pm – 3:00 pm
    419.224.3570

Ashland County

  • Associated Charities of Ashland County Food Assistance click this link to learn more.
  • Matthew 25 Outreach Center free produce for Ashland, Medina and Richland Counties click this link to learn more .

Belmont County

This link goes to pantry list for Belmont County, Ohio.

Cuyahoga County

  • The City of Maple Heights and
    St. Andrew Eastern Orthodox Church
    in cooperation with the Greater Cleveland Food Bank will continue to have the Mobile Food Pantry on the third Thursday of each month in 2025!
    We will be open on the following Thursdays:
    | November 20th | December 18th
    The Maple Heights Mobile Food Pantry will be at the St. Andrew Eastern Orthodox Church
    16029 Maple Park Drive
    Maple Heights, Ohio 44137
    9:30 – 11:30 AM
    We will continue to provide a drive-thru service.
    Please remember to clear your back seat or trunk to make room for the box of produce.
    Please be sure to remain in your cars.
  • Greater Cleveland
    Food Bank
    Mobile Food Pantry at
    Redeemer Lutheran Church
    6151 Smith Road
    2025 Distribution
    10AM to Noon
    Third Saturdays of the Month
    November 15th
    The Greater Cleveland Food Bank MOBILE FOOD PANTRY offers participants a choice of food, usually including fresh pro-duce. Participants must “self-proclaim” their household’s need by completing and signing an eligibility form that is collected at the distribution. The Greater Cleveland Food bank serves Cuyahoga, Ashtabula, Geauga, Lake Ashland and Richland Counties. The Redeemer Lutheran Church of Brook Park is hosting this program with the support of many community part-ners. It is a collaborative Brook Park community event!
  • Mobile Food Pantry
    October 24
    December 26
    Fresh Produce For Those
    Starts at Noon
    Who Qualify
    3096 Scranton Rd. Cleveland, Ohio 44113
    216- 623-7060
  • The Salvation Army Cleveland Temple
    Monday-Thursday
    9AM – 11:30AM
    TWO visits allowed per month
    17625 Grovewood Ave
    Cleveland, Ohio 44119
    216-692-1388

Erie County

  • CAC of Erie, Huron, and Richland Counties
    Address:
    908 Seavers Way, Sandusky, OH 44870
    Phone:(419) 626-4320
    Web:cacehr.org
    Hours: M-F 8a-4:30p
    Eligibility:
    Photo ID, proof of income, social security card, utility bills
    Bus Stop:Hayes & Pierce
    Info:Provides emergency groceries once within 30 days period
  • Care & Share of Erie County
    Address:241 Jackson Street, Sandusky, OH 44870
    Phone:(419) 624-1411
    Web:CareandShareErieCo.org
    Hours:M, Th 9-10:45 a.m., 1-2:45 p.m. T. 9-10:45., 5-6:45
    Closed on Wednesday & Friday.
    Eligibility:
    Picture ID and proof of address required.
    Bus Line:
    Blue Line (view map); Red Line (view map)
    Bus Stop:Jackson & Washington
    Info:Care & Share serves qualifying residents of Erie County, Ohio fairly and with dignity. The agency provides supplemental and emergency food (once per month) through the food pantry, clothing, linens, and housewares as available. Please visit during operating hours for additional information. 
  • For additional Erie County, Ohio food resources click this link here.

Franklin County

Hamilton County

  • Free Store
  • Sem Pantry (delivers to some parts of Anderson township )

Hardin County

  • Hardin County
Hardin County
Food Distribution
OhioHealth Hardin Memorial Hospital in partnership with the West Ohio Food Bank will be providing a monthly food distribution event the fourth Tuesday of every month. Below are the dates for 2025:
HARDIN COUNTY FOOD DISTRIBUTION
October 28
November 25
December 16 (3d Tuesday due to the holiday)
Where: Home Run Memorial Park; 13625 OH-292; Kenton
Time: Noon to 2 pm
No touch, drive thru distribution.
Please have your trunks or truck beds cleaned out.
We will not be able to move items to load your food.
We are not responsible for any damages to items inside vehicles.
Open to any Hardin County residents in need!
QUALIFICATIONS TO RECEIVE FOOD
MUST BE 18 YEARS OF AGE OR OLDER
HAVE A VALID PHOTO I.D. and PROOF OF RESIDENCY
BE AT OR BELOW 200% OF THE FEDERAL POVERTY GUIDELINES
CHECK-IN OR SIGN AN ELIGIBILITY TO TAKE FOOD HOME FORM
West Ohio
Food Bank

Huron County

  • Norwalk Alliance Church
  • Norwalk Salvation Army
  • New London Salvation Army

Jackson County

  • This link goes to food pantries in Vinton and Jackson Counties.

Licking County

  • Grouped by city.
    Updated 8. 19.2025 by AWCinc.org
    APPLE CREEK UNITED METHODIST CHURCH
    (330) 698-3101
    269 W. Main St. Apple Creek 44606
    3*° Saturdays of the month, 9:30-11:00 AM
    Southeast Local residents only. Call ahead 330-698-3101
  • ST. PETER’S UNITED CHURCH OF CHRIST
    (330) 698-2661
    68 W. Main St. Apple Creek 44606
    Fridays of the month, 11:00-12:30 PM
    Not income based. Available to everyone.
  • CRESTON COMMUNITY CHURCH/ SALVATION ARMY
    (330) 435-4485
    111 Sterling St. Creston 44217
    1″, 3%, and 5** Saturdays, 10:00-11:00 AM
    No geographic restrictions
  • CRESTON CANAAN UNITED METHODIST CHURCH
    (330) 435-4701
    166 S. Main St. Creston 44217
    2″* and 4th Thursdays, 5:00-6:00 PM
    Also, Grab & Go Pantry Cupboard on property.
    No eligibility requirements
  • DALTON BAPTIST CHURCH
    (330) 828-8302
    400 Lincoln way Dr. Dalton 44618
    Mondays, 10:00-10:30 AM
    Photo ID; any county; 200% poverty level or below
  • DOYLESTOWN UNITED METHODIST CHURCH
    (330) 658-2224
    153 Church St. Doylestown 44230
    4th Saturday, 8:30-11:30 AM or by appointment For Chippewa Township; Photo I.D. and utility bill
  • AUSBURG LUTHERAN CHURCH
    (330) 682-2581
    140 W. Water St. Orrville 44667
    Tuesdays during School Year, 12:00-1:00 PM Sack lunch
    No proof of income
    Not in operation Second week June – End of August
  • CHRIST CHURCH FRIENDSHIP MEALS
    Friendshipmealsinc@gmail.com
    301 N. Main St. Orrville 44667
    29, 3″, 4*, and 5** Thursdays, 5:15-6:30 PM
  • FIVE VOICES FOOD PANTRY
    516 W. High St. Orrville 44667
    Fivevoicesorrville.org
    3d Saturday of month, 10:00 AM-12:00 PM
  • ORRVILLE CHRISTIAN CHURCH
    (330) 682-3686
    925 N Elm St. Orrville 44667
    Last Monday of month, 5:30-7 PM,
    May, Nov, and Dec call office for details Wayne County residents. Photo I.D. and income eligible
  • ORRVILLE MENNONITE CHURCH
    (330) 682-5801
    1305 W. Market St. Orrville 44667
    Mondays, 5:30-6:30, No requirements
  • ORRVILLE SALVATION ARMY
    (330) 683-3138
    401 W. High St. Orrville 44667
    Call office to arrange pick-up time
    Monday – Friday, 8:30 AM-3:30 PM.
    Proof of Orrville, Dalton, Kidron, N. Lawrence, Marshallville residence; Photo ID
  • COMMUNITY ACTION WAYNE/MEDINA – RITTMAN
    (330) 927-1871
    88 N. Main St., Suite 201 Rittman 44270
    Thursdays, 8:00 AM-5:00 PM, closed 12-1
    Photo ID and Proof of income;Wayne County or Medina County SS card or birth certificate for all household members
  • CROWN HILL MENNONITE CHURCH
    (330) 927-1716
    9693 Benner Rd. Rittman 44270
    Last Thursday of month, 2-5 PM; Last Friday of month, 10 AM-1 PM
    Photo ID and Proof of income
  • EASTERN ROAD RELIEF CENTER
    (330) 927-0448
    2600 Eastern Rd. Rittman 44270
    Tuesdays and Saturdays 9:00 AM – 12:00 PM food pantry
    Photo ID and Income guidelines
  • RITTMAN UNITED METHODIST CHURCH
    (330) 925-4015
    211 N. Metzger Ave. Rittman 44270
    3rd Wednesday of month, 4-5:30 PM
    Food Pantry and Community Dinner
    Rittman residents only; Photo ID
  • THE SERVER
    51 N. Main St. Rittman 44270
    Mondays-Fridays, 9:00 AM-2:00 PM, no requirements
  • SHREVE COMMUNITY CHURCH
    (330) 567-2051
    430 N. Main St. Shreve 44676
    Food Pantry Wednesdays, 9:00-11:00 AM
    Meal offered 3’* Wednesday of the month 5:30-6:30 PM
    Proof of Shreve or close resident
  • STERLING UNITED METHODIST CHURCH
    (330) 939-2751
    13584 Kauffman Ave. Sterling 44276
    Last Sunday of the month, 5:00-5:30 PM
    For Norwayne School District
  • MOHICAN CHURCH
    (419) 846-3932
    7759 N. Elyria Rd. West Salem 44287
    3’d Thursday of each month, 5:30 PM-7:00 PM
    Grocery bag distribution
    Anyone in need is welcome
  • WEST SALEM ST. STEPHEN CATHOLIC CHURCH
    (330) 853-4946
    44 Britton St, West Salem 44287
    Wednesdays, 5:30 PM
  • WEST SALEM OUTREACH & FOOD PANTRY
    (419) 853-4588
    99 E. Buckeye St. West Salem 44287
    1st Friday of month, 10:30 AM- 12:00 PM & 5:00-5:30 PM
    Greater West Salem area & NW School District
  • FPN Market at LMHS
    131 McMillen Dr, 43055
    Mon.- Fri.: 11am – 4pm
    Market
  • Waters Edge in Buckeye Lake
    4894 Walnut Rd 43008
    Mon., Weds., Fri.: 12pm – 1pmChoice
  • FPN Market on Brice St
    1025 Brice St,43055
    Mon. & Thurs.: 2pm – 5:30pm
    Tues. & Sat.: 9am – 12pm
    Market
  • Buckeye Lake LEADS
    41 First St, 43008
    Tues. & Thurs.: 9am – 12pm
    Choice
  • Seventh Day Adventist
    122 East Main St, 43055
    Tues. – Thurs.: 9:30am – 11:30am
    Choice
  • Jacksontown UMC
    9350 Jacksontown Rd, 43030
    Weds.: 10 am-12pm & 6-7pm
    Choice
    & Produce
  • Last Call Ministries
    310 Everett Ave, 43055
    Mon. & Fri.: 10am – 1pm
    Choice
    Pataskala LEADS
    12536 Adams Lane SW, 43062
    Mon. & Weds.: 10am – 12pm
    Choice
  • St. Vincent DePaul Society
    135 Wilson St, 43055
    Tues.: 6:30pm – 8pm
    Sat.: 9am – 11am
    Choice
  • Pataskala UMC (April-Nov.)
    458 South Main St., 43062
    Tues.: 11:30am-12:30pm
    Produce
  • Market Street Pantry
    37 1/2 South 4th St, 43055
    Weds. & Sat.: 8:30am – 11:30am
    Choice
  • Kirkersville UMC (March-Nov.)
    108 East Main St., 43033
    Weds.: 9am – 9:30am
    Produce
  • Family of Faith Church
    975 Mt. Vernon Rd, 43055
    Weds.: 4:30pm – 6:30pm
    Choice
  • Alexandria UMC (March-Nov)
    72 Church St., 43001
    Thurs.: 9:30am – 11am
    Produce
  • Salvation Army
    250 East Main St, 43055
    Mon. & Weds.: 1pm – 3pm
    Choice
  • St. Alban’s Fire Dept (Nov-March)
    25 East Main St., 43001
  • Second Presbyterian Church
    42 East Church St., 43055
    Tues. & Thurs.: 10 am – 12pm
    Choice
  • Christ Ev Luth Church (Easter-Thanksgiving)
    732 Hebron Rd., 43056
    Fri.: 9:30am – 11am
    Produce
  • Newark Nazarene Church
    71 Maholm St, 43055
    Tues. & Thurs.: 10 am – 12pm
    Choice
    Heath Fire Dept (Thanksgiving-Easter)

    Christ Cornerstone Church
    69 King Avenue, 43055
    Weds.: 4:30pm – 6pm
    Drive Thru
  • Croton Church of Christ
    40 S. Main St, 43013
    Mon.: 10am – 12pm
    Choice
  • Marne Church
    1019 Licking Valley Rd, 43055
    Tues. & Thurs.: 10am – 12pm
    Drive Thru
  • Faithcare Food Pantry in Johnstown
    140 Pratt St, 43031
    Thurs.: 10am – 12pm
    Choice & Produce
  • Wright Memorial Methodist
    735 Mt. Vernon Road, 43055
    Tues. & Thurs.: 10:30am – 12:30pm
    (visit once a month)
    Baby Pantry
  • Utica LEADS
    308 North Main St, 43080
    Thurs.: 3:30pm – 5:30pm
    Drive Thru
    & Produce

Lucus County

  • LUTHERAN SOCIAL SERVICES
    of Northwestern Ohio
    Strengthening People in Body, Mind and Spirit
    Choice Food Pantry
    Call Today For An Appointment for Tuesday or Thursday
    419.243.9178

Mahoning County

  • Second Harvest
    Food Bank of the Mahoning Valley
    2805 Salt Springs Road. Youngstown
    ОН 44509
    330-792-5522
    mahoning salvationarmyg
    Serves Columbiana, Mahoning &
    Trumbull counties.
    Referral hub for food-pantries.
  • The Salvation Army
    – Mahoning County
    Area Services
    1501 Glenwood
    Avenue,
    Youngstown OH
    easternusa. salvationarmy org

Medina County

  • Brunswick Food Pantry
    1255 N. Carpenter
    Brunswick
    330-220-8299
  • Brunswick United Methodist
    Church
    1359 Pearl Rd
    Brunswick
    330-225-3179
  • Buckeye Christian Assembly
    3159 Columbia Rd
    Medina
    330-764-4099
  • Community Action Wayne/Medina
    110 South Main St
    Rittman
    330-264-8677
  • Comm. Services Center (7th Day)
    655 North Broadway|
    Medina
    330-725-4690
  • Feeding Medina County
    650 W. Smith Rd; C-8
    Medina
    330-421-4816
  • First Baptist Church
    3646 Medina Rd
    Medina
    330-725-5853
  • Helping Hands- Northside Christian
    Church
    7615 Ridge Rd
    Wadsworth
    330-336-4622
  • Holy Martyrs
    3100 Old Weymouth
    Rd
    Medina
    330-635-4989
  • Sacred Heart/SVDP
    260 Broad Street
    Wadsworth
    330-336-3049
  • Lafayette United Methodist Church
    6201 Lafayette Rd
    Medina
    330 725-6176
  • Life Spring Community Church
    1638 Lester Rd
    Valley City
    330-483-4774
  • Living Hope Church
    6288 Wooster Pike
    Medina
    330-725-7730
  • Lodi Family Center
    301 Mill Street
    Lodi
    330-302-4182
  • Lodi United Methodist Church
    320 Medina Street
    Lodi
    330-948-1593
  • Oaks Family Care Center
    4196 Center Road
    Brunswick
    330-220-7777
  • Our Lady Help of Christians
    9608 Norwalk Rd
    Litchfield
    330-722-1180
  • Salvation Army
    425 W. Liberty St
    Medina
    330-722-6488
  • Second Baptist Church-Medina
    451 Bronson Street
    Medina
    330-952-2055
  • Seville Community Food Pantry
    74 W Main Street
    Seville
    330-769-2836
  • St. Francis Xavier Catholic Church
    606 E. Washington
    Medina
    330-725-4968
  • St. Paul Lutheran Church
    Medina United Methodist Church
    6462 Ridge Road
    4747 Foote Road
  • Sharon Ctr
    Medina
    330-239-1340
    330-725-4943
  • York United Methodist Church
    6566 Norwalk Rd
    Medina
    330-725-8147

Miami County

  • First Place Food Pantry 1100 Wayne St; Troy
    M/1pm-3pm & 5pm-6:30pm: T/8:30am-10:30am: W&F/ 1pm-3pm
  • Piqua Bistro Food Pantry 1874 Commerce Dr; Piqua T/3:00pm-4:30pm: W/2:00pm-3:30pm
  • Tipp City Choice Pantry. 7695 S County Rd 25 A; Tipp City
    M/ 6:00pm-7:30pm:T&TH/ 2:00pm-3:00pm
  • Bethany Center 339 South St; Piqua
    W&TH/ 1:00pm-3:00pm
  • New Path 339 South St; Piqua (Inside Bethany Center)
    T/ 2:00pm-4:00pm

Portage County

Richland County

  • Mount Sinai Baptist Church
    275 Grace Street Mansfield, Ohio 44905
    Dr. Larry Rawls (Pastor). Phone: (419) 775-5238
    Food Pantry/Clothes Closet
    Our food pantry serves everyone
    Low Income Families.
    Unemployed
    Single Parents.
    Disabled Veterans
    Senior Citizens,
    Working Families/Individuals
    And Many Others.
    Services provided to our community include:
    – Food to meet basic nutritional needs.
    Our food pantry is open every 3rd Saturday from 1:00 PM – 3:00 PM
    2025 Schedule
    November 15.
    December 20
    Pantry will be issue from 1:00 PM – 3:00 PM on the Schedule days.
    While weather permits.
    Clothes Closet: Free used clothes available during this dates and times.
    Emergency Food and Clothes Appointments can be
    Schedule by calling 211

Summit County

  • HEART 4 THE CITY
    954 EASTLAND AVE
    1ST THURSDAY OF THE MONTH
    9AM – 11AM
    ALL OTHER THURSDAYS
    5PM – 6:30PM
    H4TC
    HOPE Begins Here
    PLEASE BRING BACK YOUR BOX!
  • New Hope Baptist Church
    Food Pantry
    Pick Up
    Come inside and shop for your groceries
    FOR FREE!!
    BRING YOUR OWN BAGS &
    CARTS
    BRING YOUR ID
    New Hope Baptist Church
    1706 S. Hawkins Ave.
    Akron, O 44320
    Every 4″ Saturday
    12 pm – 1 pm
    (Except November & December)
  • For additional List of food pantries, soup kitchens and other community resources check out this link for the Akron Street Card.

Trumbull County

  • St. Vincent de
    Paul – Trumbull
    County
    Eastwood Mall (behind Target/Olies)
    Niles OH
    rustcity churc outreach
    Emergency food pantry by appointment. Useful if immediate help is needed.
  • The Salvation Army
    – Warren (Trumbull
    270 Franklin St.SE
    Warren OH 44483
    234-223-2333
    svdpneo.org
    Big Reach
    Center of Hope
    11767 Lisbon Road
    Greenford OH
    44422
    330-533-3278
    brcoh.org
    Food & clothing distribution.
    Thurs.days 9 AM PM
  • Trumbull Community Action Program
    611 Main Avenue
    SW, Warren OH
    44483
    330-393-2507
    tcaphelps.org
    While fecused more broadly on client & family services, a key local resourcee fonlow-income tWS in
    Need help finding a pantry or other resource? Call 211 or text

Tuscarawas County

  • Twin City Christian Service Center
    109 North Water Street
    Uhrichsville, Ohio 44683
    Phone: 740-922-6276 Monday, Tuesday and Thursday 10 a.m. to 12:45 p.m. and Wednesday 6 p.m. to 7:45 p.m.
    • Photo ID is required
  • Uhrichsville First Methodist Church
    225 N Dawson St
    Uhrichsville, Ohio 44683
    Phone: 740-922-3881 3rd Saturday of each month provides a free meal to anyone from 11:30 a.m. to 1:00 p.m.
  • Moravian Church of Uhrichsville
    315 N Water Street
    Uhrichsville, Ohio 44683
    Phone: 740-922-0886 2nd and 4th Tuesday of each month provides a free meal to anyone at 5:00 p.m.
  • WAYNESBURG
    Sandy Valley Area Food Pantry
    126 S. Main Street
    Waynesburg, Ohio 44688
    Phone: 330-866-2005
    Email: hhn2005@att.net
    Website: the helpinghandsnetwork.org
    NOTE: We also offer FREE clothing to ANYONE in need. Tuesday, Wednesday
    9 a.m. to 11:30 a.m. and 1 p.m. to 2:30 p.m.
    may receive groceries twice per month
    Must live in or on the border of Sandy Valley Local
    School District
    囗 Must meet income guidelines set forth by the ODJFS and USDA
  • Journey’s End Ministries
    503 River Street
    Newcomerstown, Ohio 43832
    Phone: 740-498-5772 Mondays, Wednesdays
    9 to 11 a.m. and 3 to 5 p.m.
  • Brownsville Church
    32530 Moravian Trail Rd
    Tippecanoe
    Phone: 330-303-8260 10 a.m. to 12 p.m.

Vinton County

  • This link goes to food pantries in Vinton and Jackson Counties

Wayne County

Wood County

  • Moms Mobile Mission
    Food Distribution
    We would like to invite you to join us each month for our food distribution,
    When: Every third Thursday of each month
    Time: 5:30 pm – 6:30 pm
    Where: Perrysburg Heights Community
    Center
    12282 Jefferson Street
    Perrysburg, Ohio 43551
    This distribution is open to those in need in Perrysburg Ohio and the surrounding areas who are in need
    Please bring your ID and a Utility Bill
    *** WHILE SUPPLIES LAST ***
    We would like to thank PHCA. Due to our partnership this is possible.
    Check us out on Facebook@ Moms Mobile Mission

National Disability Employment Awareness Month

October is National Disability Employment Awareness Month. It is annual observance to shine light on disability employment.

It celebrates the many contributions of workers with disabilities and serves to raise awareness about the importance of disability inclusion in the workplace.

This began initially in 1945 to celebrate those with physical disabilities in the workplace . In 1988 Congress made it to include more people with disabilities. To read more about the history check out U.S. Department of Labor website about it.

Each year people hold celebrations and discussions on disability employment around the United States. This year’s theme is Celebrating Value and Talent to highlight the achievements of Americans with Disabilities Past and Present.

According to The Arc of the United States only 37% of people with disabilities are employed. The Arc of the United States shares about barriers to employment and how many people with intellectual and developmental disabilities are excluded in the hiring process and encourage companies to prioritize inclusive workplaces and hiring practices .

Some of the challenges and barriers to employment are due to a lack of employment supports, lack of access to social determinants of health, and finding employers that will hire people with disabilities.

  • Lack of Employment Supports
    • Many people need job coaches for employment these services can be costly and often hard to get. Job coaches assist many people on the job helping them to learn skills, focus and also how to be the best in their jobs.
    • Many people need assisted technology to work this also is a barrier to some types of employment. Tools like Dragon, Jaws and Speech Generating Tools often cost a lot of money and this cost is often placed on the person with a disability creating access barriers for employment.
  • Social Determinants of Health
    • Lack of access to transportation is a barrier for employment. For a person in a wheelchair lack of access to wheelchair accessible transportation limits employement opportunities.

Anyone who enters the workplace has their own unique needs to help them obtain employment and to maintain that employment.

Companies should have policies that align with the Americans with Disabilities Act including anti bias trainings and have recruiting and training practices that promote inclusion in the workplace.

While disability discrimination is illegal in the United States employment is still difficult for people with disabilities applying for jobs and requesting job accommodations in the workplace .

We must help by sharing opportunities for employment including sharing and promoting companies have the best inclusive hiring practices.

Ohio has tools for employers to learn more about being inclusive including a whole kit set up to learn the best practices for recruiting, hiring and long term retention of employees with disabilities across our state.

Opportunities for Ohioans with Disabilities has a wide variety of information as well to help both people with disabilities to know their rights in employment to information for employers to understand what job accommodations are and how to make sure people with disabilities have full access to employment.

Each year in Ohio we celebrate our Inclusive Employers to highlight the work they do to make employment inclusive for all people with disabilities.

Ohio is an Employment First State. Ohio believes that people with disabilities should have opportunities to work in their communities.

We also need to be a more inclusive state when it comes to promoting diversity in the type of jobs people with disabilities can work. We need to include practices around Employment First that include opportunities for entrepreneurship and disabled owned businesses. I don’t feel as though Ohio does enough to support small business owners with disabilities.

I also believe Ohio should end sub minimum wage. If a person can put pieces and parts together in a workshop why can’t they create something on their own as a business with the help and support of others. I understand workshops provide community for some people but at the same time paying people Pennies for employment is wrong. All people with disabilities deserve to be paid at least minimum wage like any other American.

My experiences with employment in Ohio have been difficult. With the amount of supports I need for daily life; I cannot work traditional employment. I know I am not alone. Between medical appointments and managing my disabilities and the care I need to live my life the same opportunities to work at job site 4-8 hours a day isn’t realistic for many people life myself or others.

I have found self employment opportunities for myself. The challenge for me is all the administrative challenges that come with being self employed. There are zero supports for people who are self employed if you cannot get thru the grueling self employment paperwork that Opportunities for Ohioans with Disabilities makes a person go through.

I have found that the lack of supports in self employment have challenged my ability to keep consistent and long term employment opportunities.

I have skills and abilities but I need support to work. Self employment is a model that has worked for me even then a Representative Payee manages my employment related income. This is because there are zero supports to help a person with whose employment activities involve self employment under money management services though the Ohio Department of Developmental Disabilities.

Money Management Services don’t include supports for employment opportunities they only seek to restrict your ability to be independent. For so long I was asking for what didn’t exist. It’s like Ohio is saying you can work as a disabled person but we won’t support you in a long term endeavor to make something of yourself. It is both insulting and disrespectful. It also still segregates and gate keeps on the type of employment that a person with a disability can do.

I commend Ohio for the hard work of promoting Employment First Initiatives. I also like to see more support for people with developmental disabilities who want to have their own businesses or want to remain self employed as Artists, Authors and Musicians in Ohio. I believe that the investment in the arts should be access for all including disability employment opportunities in the arts for everyone.

National Disability Employment Awareness Month to me is highlighting the gifts and talents people with disabilities have that help them have meaningful opportunities in employment and recognizing that employment looks different for everyone and in Ohio we should support and create opportunities for all disabled people to be employed both thru traditional employment and self employment opportunities.

The Pulse: What’s going on around Ohio October 13th, 2025 to October 31st 2025

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Developmental Disability Office Website Usage Survey
    The University at Albany is working on a research project to better understand how people with developmental disabilities use their state’s developmental disability services website. The goal is to improve access to information and ensure these online tools meet the needs of the community. Individuals who are 18 years or older, have a developmental disability, use services from their state’s developmental disability office, can read, and are able to speak in a one-hour Zoom interview may be eligible to participate.
    Contact jmanganello@albany.edu for more information on how to participate.
    Eligibility requirements are listed: must be an adult 18 or older, have a developmental disability, use services from the state developmental disability office, be able to talk in a Zoom interview for about an hour, and be able to read. Family members are also welcome to participate. A purple button says “Contact us for more information” with an email address below: jmanganello@albany.edu
  • Ohioans can take the Ohio Department of Aging Statewide Needs Assessment Survey to enable the department to better understand what matters most to older Ohioans, adults with disabilities, and their caregivers. Feedback from those digital surveys will be used to further bolster the 2027-2030 State Plan on Aging. Click this link to do the survey.
  • The 2026 Accessible Expressions Ohio Call for Art is officially OPEN!
    What is Accessible Expressions Ohio?
    Accessible Expressions Ohio is a statewide adjudicated exhibition featuring art from artists with disabilities from across the state. Artists can enter in the youth, emerging, or professional categories, and enter under a special theme category. Cash prizes are awarded in each category, including a Best in Show.
    Who can apply?
    Any Ohio artist living with a disability may apply.
    How do I apply?
    You can find the application link here: https://airtable.com/appdTSVjgoroKqru3/shrKexgk1FzKsHyMZ
    Upon request, applications are available both by email or mail.
    Have any questions?
    Contact Lina Stavrova at lina@ArtPossibleOhio.org

Events around Ohio to For October 13th, 2025 to October 31st, 2025

Monday October 13th 2025

  • Understanding Ohio’s DD Waivers Virtual Workshop on October 13th from our friends at Autism Society of Greater Akron. Do you support someone with developmental disabilities and want to better understand Ohio’s Medicaid waivers? This free virtual lunch-and-learn session will walk you through the basics of the three DD waivers offered in Ohio: the SELF Waiver, Level One Waiver, and Individual Options (IO) Waiver. Learn more and Register HERE — https://autismakron.org/waivers2025/
  • Ashtabula County Board of Developmental Disabilities REMINDER:
    Curious about working in the community and how it might impact your Social Security benefits? Join us for our Benefits Analysis Information Meetings to get the answers you need!
    Virtual Meetings are Monday, October 13th 10:00-11:00 AM & 2:00-3:00PM: https://tinyurl.com/49r56tc9
    In-Person Meetings are Tuesday, October 14th 11:00 AM – 12:00 PM & 5:00-6:00PM: https://tinyurl.com/yw8s6fsu
    EmploymentSupport #DisabilityServices #CommunityEmployment

Tuesday October 14th, 2025

  • Early Childhood Open Play 10:45am-11:45am Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
    Sign up through this link
  • Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com
  • Parents Only Special Needs Support Event 7-8pm 408 S Main St, Findlay, OH 45840-3210, United States Join Pierce’s Crew Foundation for our monthly Support Events.🥰 Visiting this time is a special guest from Awakening Minds.
    Come meet and connect with other community families just like yours. These events will be a safe and supportive space to play, chat and learn. Support events are open to all special needs families at no charge. Check our website and socials for any updates or changes. Check out there facebook event link for more information.

Wednesday October 15th 2025

  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • Developmental Disabilities Job and Resource Fair & Hiring Event on is coming up on October 15 from 11:00 AM to 12:30 PM at the Mentor Public Schools – Paradigm. We hope to see you there! #EmpowerEngageEnrich #NDEAM #StriveToThrive2025
  • Tech Fest, Wednesday, Oct 15 · 10 AM–1 PM Camden Falls Reception and Conference Center
    2460 OH-231, Tiffin, OH 44883, USA Tech Fest 2025 is coming!
    Join us for an exciting day dedicated to exploring supportive technology that helps you Live, Work, and Connect!
    🗓 Date: October 15, 2025
    🕙 Time: 10:00 AM – 1:00 PM
    📍 Location: Camden Falls Conference Center
    2460 OH-231, Tiffin, OH 44883
    This event is free and open to people of all abilities. Accommodations are available upon request.
    Brought to you by the Ohio Self Determination Association (OSDA) and Clearwater COG.
  • Butler County Board of Developmental Disabilities Board Meeting 10am-12pm Join us for our regular provider meetings so you can stay up to date on the latest information.
    Meetings are currently all via Zoom. You can request the link by emailing Cathy Borders at cmborders@butlerdd.org
  • People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They meet 6:30-8pm They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday October 16th 2025

  • 💻✨ Discover the power of technology!
    Join us at the Assistive Technology Fair, hosted by Stark County Board of Developmental Disabilities (Stark DD), to explore tools and resources that support individuals with disabilities in communication, daily living, education, and beyond.
    Families, caregivers, and professionals are invited to attend and learn about the latest innovations making independence possible.
    📅 October 16th | 11 AM – 1 PM
    📍 Belden Village Mall
    👉 Learn more and register here: https://bit.ly/46ZYLIH
    ASGA #Autism #AssistiveTechnology #Fair
  • Lunch & Learn: Social Security What You Need to Know 12:00pm-1:00pm 452 Washington Jackson Rd, Eaton, OH 45320-8699, United States 🥗 check out the link About the Event:
    Join us for an engaging Lunch & Learn on Social Security: What You Need to Know!
    Enjoy a complimentary lunch while you learn the latest updates on Social Security and how to make the most of your benefits.
    🌟 In this packed hour, you’ll learn:
    The latest news on Social Security
    Whether Social Security is viable for the future
    The best time to start collecting benefits
    How to optimize your benefits
    Whether you’ve exercised all of your available benefits
    Our guest speaker, Jim Chronister, Registered Social Security Analyst (RSSA), has specialized training to help individuals and families make informed retirement decisions.
    💲 Cost:
    💵 $10 for Members
    💵 $20 for Non-Members
    🍽️ Lunch is provided!
    PrebleCountyChamber #LunchAndLearn #SocialSecurity #EdisonState #CommunityConnections #PrebleCountyEvents
  • Disability Voters Forum at The Ability Center, Thursday, Oct 16 · 7:10–8:10 PM The Ability Center of Greater Toledo
    5605 Monroe St, Sylvania, OH 43560, USA
  • Join us on October 16 for our next Coffee & Conversations Event with our CEO, Ariel Simms. The topic is “The Importance of Training on Disability Inclusion in the Workplace.” The session will highlight why disability inclusion training is essential for building stronger, more equitable workplaces. Participants will learn how education programs that center lived experience help organizations move beyond compliance to build cultures of respect and belonging. The event is capped to 40 registrants, so secure your spot today: https://us02web.zoom.us/meeting/register/7dlpu3EDRJuYqkB6R–hLw

Friday October 17th, 2025

  • ASL Community Connections Event, Friday, Oct 17 · 12–4 PM Owens Community College, 30335 Oregon Rd, Perrysburg, OH 43551
  • We Thrive Together Advocacy Army 4:00pm-5:00pm click this link to join.

Saturday October 18th 2025

  • NATIONAL FEDERATION
    OF THE BLIND
    OHIO
    Live the life you want.
    SinteE Akon Chapter of the National Federation
    Presents:
    White cane awareness day as part of BEAM
    (Blind Equality Achievement Month)
    When: Saturday October 18, 2025
    Time: open House1 – 3:30 P.M.
    Where: cuyahoga Falls Public Library, Chambers Room, lower level (LL) , cuyahoga Falls, OH 44221
    Prizes, games, blindness technology showcase, and learn about the white cane.
    Come experience and learn how blind people navigate the world on a daily basis.
  • ReelAbilities Film Festival—Cleveland is on October 18 and 21.
    This festival promotes awareness of the lives, stories, and artistic expressions of people with diverse abilities through films created by and about individuals with disabilities.
    Learn more about the two events scheduled this month on our Facebook events section.
    ReelAbilities #CLE
    check out their event link on Facebook.
  • Register for the next More than Down Syndrome Workshop on 10-18 from 9:30-11am Central time. It is hosted by National Association for Adult Down Syndrome and the Adult Down Syndrome Center. MTDS is a free seminar for parents/family/caregivers of a person (any age) with a dual diagnosis of Down syndrome plus Autism Spectrum Disorder. http://weblink.donorperfect.com/MTDSOCT18

Monday October 20th 2025

  • Early Childhood Open Play 10:45am-11:45am Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
    Sign up through this link
  • Why Is Reading So Hard? 6:30pm at Willoughby Eastlake Library 35150 Lake Shore Blvd
    Eastlake, OH 44095
    United States to learn more about the event check out this link on Facebook .
  • 🚨 Emergency Preparedness & Autism
    Join ASGA and Ohio’s Mass Care Coordinator, Matt Sturgeon, for a virtual session on making Ohio’s emergency response systems more inclusive for the Autism community.
    📅 October 20, 2025
    🕡 6:30–7:30 PM
    💻 Online – Registration Required
    Learn how disaster response works in Ohio, how to support access and functional needs, and how you can get involved.
    📌 Register by clicking here: https://bit.ly/4gWUkTq
    Questions? Call 330-940-1441 x1
    ASGA #EmergencyPreparedness #Resources #Training
  • ReelAbilities Film Festival—Cleveland is on October 18 and 21.
    This festival promotes awareness of the lives, stories, and artistic expressions of people with diverse abilities through films created by and about individuals with disabilities.
    Learn more about the two events scheduled this month on our Facebook events section.
    ReelAbilities #CLE check out their event link on Facebook. The event is 10am-12pm
  • Wandering Workshop 6:00-7:00pm 🚨 Wandering, also known as elopement, is a serious safety concern for many individuals with Autism and their families.
    Join ASGA and the Medina County Board of Developmental Disabilities for a special workshop on Elopement & Safety, where we’ll share strategies, resources, and community supports to help keep loved ones safe. Families, caregivers, and professionals are all welcome to attend this important session.
    ✅ Registration is required: https://bit.ly/46H4cvU
    ASGA #Autism #Workshop

Tuesday October 21 2025

  • We Thrive Together Tech Talk: Microsoft Word 11:00am-12:00pm click this link to join.

Wednesday October 22nd 2025

  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • Sign up for the next Opportunities for Ohioans with Disabilities Employer Training webinar. This free webinar will offer actionable steps for businesses to attract and be inclusive of applicants with disabilities who are seeking employment.
    What: Employer Training for Disability-Inclusive Workplaces: Attracting Diverse Talent
    When: Wednesday, October 22, 10:00 AM – 11:00 AM ET
    Where: Virtual (Microsoft Teams link will be sent upon registration)
    Registration is required to attend. Click here to sign up: https://bit.ly/43ux4WL

Thursday October 23rd 2025

  • Join National Disability Institute’s benefits experts for a free webinar:
    Applying with Confidence: Your SSDI and SSI Roadmap
    Thursday, October 23, 2025 | 11:00 AM – 12:00 PM ET
    Applying for SSI (Supplemental Security Income) or SSDI (Social Security Disability Insurance) can feel overwhelming. These programs are vital sources of monthly financial support for millions of people and families nationwide.
    In this session, our experts will share practical guidance to help you understand and navigate the application process confidently.
    Topics include:
    SSA disability benefit programs
    Medicare and Medicaid
    Disability evaluation
    How to apply for benefits
    Expediting the application process
    Don’t miss this opportunity to learn how SSI and SSDI can strengthen your family’s financial health.
    Register today: https://us02web.zoom.us/webinar/register/WN_OQQuL9BnQbGlab48dCEP9w
    Benefits #DisabilityBenefits #SSI #SSDI #DisabilityInclusion #FinancialWellness

Friday October 24th 2025

  • 10th Annual Accessibility Symposium, Friday, Oct 24 · 8 AM–3:30 PM Shriver Center, 701 E Spring St, Oxford, OH 45056 Accessibility plays an essential role in creating inclusive experiences and removing barriers. The annual Access for All: Accessibility Symposium highlights current issues and trends in accessibility, …
    Source › https://events.miamioh.edu/event/10th-annual-accessibility-symposium

Sunday October 26th 2025

  • 5th Annual All Disabilities Fall Festival 1-5pm J H Ross Community Center, 907 Lexington Ave, Columbus, OH 43201

Monday October 27th 2025

  • All-Abilities Adventure, Monday, Oct 27 · 11 AM–12 PM Dayton Metro Library – Miamisburg Branch, 545 E Linden Ave, Miamisburg, OH 45342 Embark on an exciting journey with our All-Abilities Adventure program, where inclusivity, creativity, and community thrive. This adventure is designed for adults of all abilities.
    Source › https://dayton.bibliocommons.com/events/68324c278c90718765548832
  • Ohio Family to Family’s next virtual information session:
    Reducing Barriers to Advocacy in Education, Tips for Families
    October 27, 2025
    6-7pm
    Register: https://lp.constantcontactpages.com/ev/reg/e8r7f3q
    Questions? Contact Jena.Wells@cchmc.org

Tuesday October 28th 2025

  • The National Federation of the Blind posted this on their social media Are you a blind jobseeker ready for your next career opportunity? Sign up for our virtual career fair on October 28 from 1:00 to 4:00 p.m. Connect and network with employers.
    Register by Tuesday, October 14 at https://buff.ly/5jQ0fQO
  • Southwest Ohio Advocacy Group, Tuesday, Oct 28 · 6–8 PM, Repeats every month on the fourth Tuesday 4623 Wesley Ave
    Cincinnati, OH 45212, USA Southwest Ohio Advocacy Group sponsored by The Arc of Ohio. Contact this email for more information or to RSVP to attend jen.powersalge@thearcofohio.org
  • With the recent changes in workplace culture and DEI-related federal guidance, many companies are uncertain about the legal implications of investing in diversity within their work environments. On October 28th at 1 p.m. ET, join Craig Leen, a partner at K&L Gates, and Ariel Simms, President and CEO of Disability Belongs™, for a discussion that encourages employers to reinvest their DEI funds specifically in disability inclusion and accessibility efforts, rather than repurposing them.
    Learn more and register: https://www.disabilitybelongs.org/2025/09/evolving-landscape-workplace-diversity-conversation/

Wednesday October 29th 2025

  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • EmpowerYOUth October NDEAM Event, Wednesday, Oct 29 · 6–7:30 PM Columbus Metropolitan Library, 96 S Grant Ave, Columbus, OH 43215

Thursday October 30th 2025

  • Special Needs Family Build Night 6-8pm 5519 Bigger Rd, Dayton, OH 45440-2612, United States LAST ONE OF THE YEAR!!! (Will start back up in Jan 2026.)
    Our Special Need Family Build Night is a time designed for special needs families to come build LEGO in our Dayton Brick Shop Community Room. It’s a great opportunity for kids to work on social skills all while building their own masterpiece!
    LAST THURSDAY OF EVERY MONTH FROM 6-8pm through Oct 2025. Will start back up in Jan 2026.
    Upon arrival, there will be multiple tables with bulk Lego on each table, giving the kids space to build but also socialize.
    And, siblings can interact with other siblings who may have a special brother or sister of their own too!
    Our building is wheelchair accessible.
    Unfortunately, we do not have a way to dim or cover the lights.
    If you’d like to take your masterpiece home with you, it will only be $1 an ounce. Otherwise, we will just toss the Lego back into the bins to be sanitized!
    Also, your family is always welcome to our other FAMILY BUILD NIGHT that is available to all ages is always on the 2nd Thursday of the month from 6-8pm!
    https://facebook.com/events/s/special-needs-family-build-nig/25495341933388649/

Friday October 31st 2025

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Emergency Preparedness for Individuals with Rare Diseases
  • Ohio Department of Aging sent out an updated Memo about the Long Term Care Navigator Site how it Now includes assisted living facilities and our Care Quiz, the Long-Term Care Quality Navigator can help you or a loved-one explore the state’s long-term care options.
    Use the Navigator: http://aging.ohio.gov/navigator
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA.
  • Cleveland Sight Center Radio Network (CSCN) is now available on Alexa devices! This radio station is dedicated to providing information, news and entertainment to the blind and visually impaired community. To play it, say “Alexa, open Cleveland Sight Center Network skill.” Don’t forget to say skill at the end, or else a different news broadcast will open. Happy listening!
  • Did you know Summit County has a special database to help reunite lost individuals with communication difficulties with their families? The Take Me Home program is a countywide initiative that supports individuals with disabilities that impact their ability to communicate.
    How it works:
    📝 Families register their loved one’s information in a secure database
    👮‍♀️ Only law enforcement personnel can access the information
    🔍 Officers can search by name, phone number, or physical characteristics
    🤝 Quick identification helps reunite families safely
    You can learn more at: https://bit.ly/4mjbiMQ
    Thanks to the partnership between the Elliot Kolkovich, Summit County Prosecutor and Summit County Sheriff’s Office we have this vital safety net.
    TakeMeHomeProgram #SummitCounty #AutismSafety

October Awareness Month

  • AAC Awareness Month (Augmentative Alternative Communication)
  • Gaucher Awareness Month
  • Dysautonomia Awareness Month
  • Blind Equality Achievement Month
  • Breast Cancer Awareness Month
  • National Disability Employment Awareness Month
  • Down Syndrome Awareness Month
  • National ADHD Awareness Month
  • Spina Bifida Awareness Month
  • Learning Disabilities Awareness Month
  • Sudden Infant Death Syndrome (SIDS.) Awareness Month
  • National Rett Syndrome Awareness Month
  • Dyslexia Awareness Month
  • Dwarfism Awareness Month
  • Oct. 19-25. Invisibile Disabilities Week

The Pulse: What’s going on around Ohio September 29th, 2025 to October 11th 2025

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Developmental Disability Office Website Usage Survey
    The University at Albany is working on a research project to better understand how people with developmental disabilities use their state’s developmental disability services website. The goal is to improve access to information and ensure these online tools meet the needs of the community. Individuals who are 18 years or older, have a developmental disability, use services from their state’s developmental disability office, can read, and are able to speak in a one-hour Zoom interview may be eligible to participate.
    Contact jmanganello@albany.edu for more information on how to participate.
    Image Description: A purple and white flyer from the University at Albany with the logo and text at the top. The heading reads: “Do you use services from your state developmental disability office?” A banner below notes that participants will receive a $40 Amazon card. The flyer explains that researchers want to hear about experiences using state websites to learn about services. Eligibility requirements are listed: must be an adult 18 or older, have a developmental disability, use services from the state developmental disability office, be able to talk in a Zoom interview for about an hour, and be able to read. Family members are also welcome to participate. A purple button says “Contact us for more information” with an email address below: jmanganello@albany.edu
  • Ohioans can take the Ohio Department of Aging Statewide Needs Assessment Survey to enable the department to better understand what matters most to older Ohioans, adults with disabilities, and their caregivers. Feedback from those digital surveys will be used to further bolster the 2027-2030 State Plan on Aging. Click this link to do the survey.
  • The 2026 Accessible Expressions Ohio Call for Art is officially OPEN!
    What is Accessible Expressions Ohio?
    Accessible Expressions Ohio is a statewide adjudicated exhibition featuring art from artists with disabilities from across the state. Artists can enter in the youth, emerging, or professional categories, and enter under a special theme category. Cash prizes are awarded in each category, including a Best in Show.
    Who can apply?
    Any Ohio artist living with a disability may apply.
    How do I apply?
    You can find the application link here: https://airtable.com/appdTSVjgoroKqru3/shrKexgk1FzKsHyMZ
    Upon request, applications are available both by email or mail.
    Have any questions?
    Contact Lina Stavrova at lina@ArtPossibleOhio.org
  • PhD candidate Rahsaan DeLain is seeking volunteers to share their experience for a research study. Participants must identify as Black or African American and male, reside in Erie or Niagara County, and have a biological, adopted, or step child with autism under 18 years old. For those interested in participating, you can fill out a questionnaire at this link

Events around Ohio to For September 30th 2025, to October 11th 2025

Monday September 29th 2025

  • Autism Parent/Caregiver Support Group 6-9pm Lake Erie College in Painesville, Ohio sign up through this link here.
  • We Thrive Together Relationships Class: Being Respectful 3:00pm-4:00pm click this link to join.
  • ✨ Calling all Stark County caregivers! ✨
    We’re excited to host our 2nd Caregiver Café on September 29th, designed just for families of children with Autism. Join us and connect with other parents, share experiences, and gain valuable insights.
    📅 September 29
    ⏰ 5–7 PM
    📍 Early Childhood Resource Center, Canton, OH
    Each session is limited to 25 participants — don’t wait to secure your spot! Register today and join us for meaningful conversation and community: https://bit.ly/3Vbuz83
    ASGAParentCafe #CaregiverSupport #FamilyConnection #CantonOH

Tuesday September 30th 2025

Wednesday October 1st 2025

  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • Synergy Conference in Sandusky, Ohio
  • Ohio Olmsted Taskforce 1pm contact ohioolmstead@gmail.com to ask for meeting link.

Thursday October 2nd 2025

  • Cincinnati Blue Ash Senior Lifestyle, Health and Home Expo 10am-1pm check out this link for more information
  • Promoting Self-Determination: Building Community Supports
    October 02, 2025 11:00 AM – 12:00 PM check out this link to learn more. The purpose of this AAIDD webinar is to build upon the ideas presented in the new book 𝘗𝘳𝘰𝘮𝘰𝘵𝘪𝘯𝘨 𝘚𝘦𝘭𝘧-𝘋𝘦𝘵𝘦𝘳𝘮𝘪𝘯𝘢𝘵𝘪𝘰𝘯: 𝘉𝘶𝘪𝘭𝘥𝘪𝘯𝘨 𝘊𝘰𝘮𝘮𝘶𝘯𝘪𝘵𝘺 𝘚𝘶𝘱𝘱𝘰𝘳𝘵𝘴⁣ by Karrie A. Shogren and Evan E. Dean and highlight key community supports for promoting self-determination.
  • Synergy Conference in Sandusky, Ohio
  • Mahoning County Board of Developmental Disabilities is holding a Transition Fair 10am-1 & 4-6pm WHAT IS IT?
    If you are age 14 to 22 and have a disability, this INCLUSIVE EVENT is for YOU, your families, caregivers and teachers. It is open to ANYONE in the tri-county area!
    WHAT IS OFFERED?
    Learn about and gather information about what is available to you as you prepare for the next stage in life.
    WHO WILL BE THERE?
    Providers of services and agencies across the Mahoning Valley will be there to share information and connect you and your family to supports that can help you move from teenage years to adulthood.
    NEW THIS YEAR!
    Employers will be there, too, with applications and information about job opportunities in the community!
    For more info call Kim MCBDD at 330-799-3193 or go to kimberlee.jeswald@mahoningcountyoh.gov

Friday October 3rd 2025

  • Synergy Conference In Sandusky, Ohio
  • We Thrive Together Advocacy Army 4:00pm-5:00pm click this link to join.

Saturday October 4th 2025

  • 🎤🎶 Blind Equality Achievement Month Celebration 🎶🎤
    Presented by the National Federation of the Blind of Cleveland
    Join us for an evening of fun, music, and empowerment!
    Celebrate Blind Equality Achievement Month with karaoke, fellowship, and community spirit—while learning how you can make a difference.
    📅 Date: October 4, 2025
    🕒 Time: 2:00 PM to 4:00PM EST.
    📍 Location: Martin Luther King Jr. Cuyahoga County Public Library
    10601 Euclid, Ave, Cleveland History Centerd Ohio
    The Table Of Brotherhood, First floor
    What to Expect:
    ● 🎵 Karaoke and entertainment
    ● 🤝 Meet and connect with NFB members
    ● 🌟 Learn about blind equality and advocacy
    ● 📢 Discover how YOU can join the movement
    Our Mission
    The National Federation of the Blind knows that blindness is not the characteristic that defines you or your future. Every day, we raise expectations so that blind people can live the lives we want.
    Why Join the NFB?
    ● Be part of a strong, supportive community
    ● Access resources, programs, and services
    ● Advocate for equality and opportunity
    ● Share your voice and help shape the future
    TOGETHER, WE CAN TRANSFORM DREAMS INTO REALITY.
    📞 FOR MORE INFORMATION, CONTACT: SUZANNE TURNER, PRESIDENT
    SMTurner.234@gmail.com
    (216) 990-6199
  • L’Arche Rock the Boat 5K & 1 Mile Walk, Saturday, Oct 4 · 9 AM–1 PM sign up for the Walk through this link it is at the Edgewater Upper Pavilion, Upper Edgewater Dr, Cleveland, OH 44102

Sunday October 5th 2025

  • No Known Events

Monday October 6th 2025

  • We Thrive Together Wellness Group: Hobbies 11:00am- 12:00pm Click this link to join.
  • We Thrive Together Relationships Class: Individual Well Being 3:00pm-4:00pm click this link to join.

Tuesday October 7th 2025

  • We Thrive Together Tech Talk: Microsoft Word 11:00am-12:00pm click this link to join.

Wednesday October 8th 2025

  • Supported Decision Making Network of Ohio Meeting, Wednesday, Oct 8 · 12–1:30 PM, Repeats every month on the second Wednesday This is for anyone who is interested in knowing more about supported decision making. https://www.sdmno.org
  • OSDA at We Thrive Together 11:00-12:00pm click this link to join

Thursday October 9th 2025

  • New Directions in Disability Studies Conference 2025 at University of Cincinnati
  • Inclusion Seekers Summit 2025, Thursday, Oct 9 · 8:30 AM–3:30 PM Cincinnati Art Museum, 953 Eden Park Dr, Cincinnati, OH 45202
  • Basketball Season is right around the corner! Ottawa County Special Olympics will be hosting a basketball sign-up day on Thursday October 9th!
    Any athlete interested in playing on either the traditional or skills teams must attend to sign their sports contracts and paperwork for the season. Questions? Call Ray at 567-262-3119.
    Stop by OCBDD anytime from 4:30-7:30.

Friday October 10th 2025

  • #EveryoneCommunicates Art Show 6:00-9:00pm at Box Elder Community Room 4573 Hamilton Avenue Cincinnati, Ohio 45223 Disabled Artist Alicia Hopkins will be sharing art about different ways people communicate. This show benefits the Supported Decision Making Network of Ohio.
  • New Directions in Disability Studies Conference 2025 at University of Cincinnati

Saturday October 11 2025

  • New Directions in Disability Studies Conference 2025 at University of Cincinnati

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Emergency Preparedness for Individuals with Rare Diseases
  • Families: Does your loved one need a nurse, home health aide, or home care? PCG Match can help connect you!
    PCG Match is a secure, web-based platform designed to help connect individuals receiving Ohio Home Care or MyCare Ohio Waiver services and/or Medicaid State Plan services with providers who may be able to support individuals’ service needs. PCG Match does not replace any existing processes used to vet and/or authorize providers prior to rendering services.
    Individuals receiving Ohio Home Care or MyCare Ohio Waiver services and/or Medicaid State Plan services and case managers who support them can easily post jobs and use the online provider search to find care.
    Find out more here: https://ohiohcbs.pcgus.com/pcg-match
  • News Highlight: Bridging Aging and Disability Networks (BADN) Explains How to Better Support Aging Adults with IDD and Their Caregivers
    A new article called “Bridging Aging and Disability Networks to Support Aging Adults With Intellectual and Developmental Disabilities and Family Caregivers” was published in the Public Policy and Aging Report by the Gerontological Society of America.
    The article explains that people with intellectual and developmental disabilities (IDD) are living longer, and their needs — along with those of their aging family caregivers — are getting more complicated. Most still live at home with support from aging parents or relatives. Even though they have many of the same needs as other older adults, they are often overlooked because aging and disability services don’t always work together.
    You can read the full BADN article in the latest edition of NACDD’s Insight: https://nacdd.org/nacdd-insight-july-2025/#badn
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA.
  • Cleveland Sight Center Radio Network (CSCN) is now available on Alexa devices! This radio station is dedicated to providing information, news and entertainment to the blind and visually impaired community. To play it, say “Alexa, open Cleveland Sight Center Network skill.” Don’t forget to say skill at the end, or else a different news broadcast will open. Happy listening!
  • Did you know Summit County has a special database to help reunite lost individuals with communication difficulties with their families? The Take Me Home program is a countywide initiative that supports individuals with disabilities that impact their ability to communicate.
    How it works:
    📝 Families register their loved one’s information in a secure database
    👮‍♀️ Only law enforcement personnel can access the information
    🔍 Officers can search by name, phone number, or physical characteristics
    🤝 Quick identification helps reunite families safely
    You can learn more at: https://bit.ly/4mjbiMQ
    Thanks to the partnership between the Elliot Kolkovich, Summit County Prosecutor and Summit County Sheriff’s Office we have this vital safety net.
    TakeMeHomeProgram #SummitCounty #AutismSafety

October Awareness Month

  • AAC Awareness Month (Augmentative Alternative Communication)
  • Gaucher Awareness Month
  • Dysautonomia Awareness Month
  • Blind Equality Achievement Month
  • Breast Cancer Awareness Month
  • National Disability Employment Awareness Month
  • Down Syndrome Awareness Month
  • National ADHD Awareness Month
  • Spina Bifida Awareness Month
  • Learning Disabilities Awareness Month
  • Sudden Infant Death Syndrome (SIDS.) Awareness Month
  • National Rett Syndrome Awareness Month
  • Dyslexia Awareness Month
  • Dwarfism Awareness Month
  • Oct. 2. World Cerebral Palsy Day
  • Oct. 5. American Veterans Disabled For Life Awareness Day
  • Oct. 9. World Sight/blind Day
  • Oct. 5-11. Mental Awareness Week
  • Oct. 19-25. Invisibile Disabilities Week

Friday Resource Round Up!

Every Friday we have decided to now share 5-10 resources that we came upon this week to people with disabilities, families and caregivers across Ohio.

Health Related Resources

  • Did you know that Lorain County Public Health partners with local libraries to offer home blood pressure kits? Use the kit at the library or check it out like a book! Don’t hesitate to reach out and borrow a kit today!Visit https://www.loraincountyhealth.com/bloodpressure#Locator for more information.

Mental Health Resources

Self Advocacy Took Kits

Grants

The Community Fund Grant

This grant helps people with disabilities who need to cover durable medical equipment or medical expenses that aren’t covered by insurance. They have bigger grants for people receive Medicaid and other forms of government assistance. They have grants for people smaller that don’t receive government assistance. The forms are on their website. Next Deadline is September 30th, 2025.

Assistance Programs

Cool Phone Apps

Let Me Do It App

This is app for people who use Supported Decision Making. It allows people to invite people to help them complete steps in a decision they want to make.

To Good to Go

This is an app that helps save food. It basically lets people buy that restaurants have at the end of the day for a lower price to not waste food.

Augmentative and Alternative Communication (AAC Resources)

  1. Picto4Me – Create and Share Picture Exchange Communication Board
  2. Ohio Developmental Disabilities Communication Boards

Low Cost Things to Do

Museums 4 All

“Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,500 museums throughout the United States simply by presenting their EBT card and a photo ID.”

Ohio Specific Programs

  • The Ohio Digital Library is a collaborative effort involving libraries across the state of Ohio. Through this initiative, Ohio residents with a valid library card from a participating library can access and borrow ebooks, audiobooks, and magazines for free. Check out more through this link here.
  • The State Library of Ohio provides access to reading materials to individuals with disabilities through several programs.
    The State Library, along with the Cleveland Public Library and the National Library Service for the Blind and Print Disabled, provides audio, braille, and downloadable books to eligible residents. In addition, the State Library and the Ohio School for the Deaf partner to provide the Deafness Outreach Collection maintained at the State Library. Find more information through this link
  • Ohio Housing Locator Tool can be used to find shelters, emergency housing and apartments.
  • Opportunities to volunteer in Ohio https://ohio.gov/residents/topic-hubs/home-and-community/volunteer/volunteer
  • Ohio has a database that helps fund training that people need in order to work or maintain a job. Read more through this link
  • Central Ohio Area on Aging Respite Guide

Resources for Making Events Accessible

  • Akron Accessibility Library is a community resource for making events accessible from adaptive equipment like portable ramps to a wheelchair you can rent to sensory equipment to even making your programs available in Braille. This resource is free to the community please use this link to check it out!

Resources for the Blind Community

  • Free literacy program for blind and low-vision children 0-8 years old. Families receive free Braille books, activities, birthday cards, and more. Fill out an application and learn about other resources from National Federation of the Blind online.
    200 East Wells Street, Baltimore, Maryland 21230
    (410) 659-9314
    nfb.org/programs-services/early-childhood-initiatives
  • National Federation of the Blind Free Braille Slate and Stylus Program https://nfb.org/programs-services/free-slate-and-stylus-program
  • Hadley Helps Founded in 1920 by William Hadley, an educator who lost his eyesight later in life, Hadley offers practical help, connection and support free of charge to anyone with a visual impairment, their families and professionals supporting them. With Hadley, you can discover new ways to do things that have become more difficult due to vision loss and connect with a network of peers who “get it.” And you don’t need to come to Hadley. Hadley’s help comes to you; online, on the phone or through the mail

Miscellaneous Resources

  • Expertise LLC
    1525 4th Avenue Suite #700, Seattle, WA 98101
    Expertise.com researched and developed a pretty comprehensive resource for people living with disabilities.  The guide aims to help make the federal grants available to seniors, veterans, and disabled people much easier to understand and take advantage of, particularly for remodeling homes for accessibility.
    For many people, owning and maintaining a home is one of the most significant investments they ever make.  But for individuals and veterans living with disabilities or special needs, or seniors aging in place, the fact that much of the world outside is not built to accommodate their needs magnifies the value of a comfortable home.  It’s vital they and their loved ones have access to the best resources about how to make their homes livable and enjoyable.

How using Assisted Technology in Medical Care Makes a Difference by Alicia

Ohio is a technology first state and encourages people to use technology to be more independent. It is importantly to have discussions on how people use technology to communicate and advocate for their every day needs including how people use technology to speak up in healthcare.

I have a developmental disability and I use an Augmentative Alternative Communication Device (AAC) intermittently to communicate my needs in my heathcare mainly in emergency care. I am able to use this technology to communicate my symptoms, share my pain levels and let people know how I feel overall.

It helps me get what I need without being forced to go thru unnecessary medical care.

I also use it to communicate choices about food and nutrition. I have special needs around food and I use picture exchange communication cards and AAC to tell people what I want and don’t want around food.

One of the ways I have used it the most is to communicate my needs for emergency medication with my disabilities. I have an AAC program I use called Prologue 2 Go and I can program the names and photos of my specific emergency medications into my AAC device and when I can’t speak I can push a button to tell someone I need I need that medication.

I can push a button to say I need my inhaler or my epi pen or my emergency Dystonia medication.

Today in an appointment with my allergy doctor I was able to show my doctor the AAC program that I use to communicate. He was amazed about how technology is being used to communicate in an emergency. If you think about it technology can be used to save lives.

I also have picture exchange communication cards for when the power goes out or my device loses battery that tell people I need my epi pen or I need a specific medication.

It is important for me to use technology to drive my care.

I also use phone apps to track my Dystonia symptoms, seizures and blood pressure.

I use a lot of technology in my every day life. Assisted Technology isn’t just the computer, smart phone or iPad in front of you.

Some people are using assisted technology to help them at home like google or Amazon’s Echo device to help them live at home independently with smart device access for lights and other products.

Some people use assisted technology like remote monitoring to keep them safe when they can’t access in person care providers . A lot of people with disabilities use this form of technology to be independent in their homes.

Assisted technology is a broad category of technology. In my life I consider my power wheelchair and a portable oxygen to be forms of assisted technology that support me in every day life.

My power wheelchair raises up and allows me to reach cabinets in my kitchen and spaces that I wouldn’t be able to access without it. It also has given me a safe way to tilt back and get dental care when I couldn’t access it be before due to inaccessible dental spaces for people in wheelchairs. I get my care while remaining in my wheelchair .

My portable oxygen device gives me life saving oxygen during emergencies while in the community and keeps me out of the emergency room and helps me improve health outcomes.

All around access to assisted technology has changed my life, it can be life changing for people who need to use it to be more independent.

To have a device or piece of equipment or phone or iPad application that allows me to have a voice in my care when I can’t speak through my natural voice has given me opportunities to be a part of decision making and sharing my care needs with providers .

This technology isn’t cheap and advocates are trying to change this. As Ohio promotes technology for independent living we should unite together to advocate for better accessibility in accessing these services and supports.

There is an Ohio Senator from Hudson, Ohio area who is promoting a right to communicate bill for coverage of AAC devices for children with disabilities on Medicaid .

We should also advocate for state wide initiatives that support access to assisted technology to improve one’s quality of life. Being a person who uses an AAC device intermittently I was not able to go through insurance or any grants or assistance programs for my devices or programs. I had to come up with several hundred dollars to access this technology to improve my health outcomes. People with disabilities and families often cannot afford these major expenses. We need to discuss this in our communities so people can access this critical technology to change health outcomes just as I have.

The Pulse: What’s going on around Ohio September 22 2025 to September 30th 2025

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • There’s only two more weeks to submit to Issue 8 of Imagine the World as One: A Disability Lifestyle Magazine! Please send us your articles about
    “Submit articles at http://www.imaginetheworldasonemagazine.com or email them to imaginetheworldasonemagazine@gmail.com Fashion Employment Product reviews Money Accessibility Dating Relationships Advocacy Art Between 2000-3000 Words Please send us your articles about disability and…. Submit your article at imaginetheworldasonemagazine.com Due September 30, 2025
  • Ohioans can take the Ohio Department of Aging Statewide Needs Assessment Survey to enable the department to better understand what matters most to older Ohioans, adults with disabilities, and their caregivers. Feedback from those digital surveys will be used to further bolster the 2027-2030 State Plan on Aging. Click this link to do the survey.
  • Clermont County Board of DD is doing a survey to understand the challenges individuals face in achieving self-sufficiency, maintaining health, and ensuring safety. The information gathered will help inform programs and services designed to address these barriers in the community. Your responses are confidential and will be used only for the purposes of improving services.
    https://forms.office.com/g/GnZ6Uw35dz
  • The 2026 Accessible Expressions Ohio Call for Art is officially OPEN!
    What is Accessible Expressions Ohio?
    Accessible Expressions Ohio is a statewide adjudicated exhibition featuring art from artists with disabilities from across the state. Artists can enter in the youth, emerging, or professional categories, and enter under a special theme category. Cash prizes are awarded in each category, including a Best in Show.
    Who can apply?
    Any Ohio artist living with a disability may apply.
    How do I apply?
    You can find the application link here: https://airtable.com/appdTSVjgoroKqru3/shrKexgk1FzKsHyMZ
    Upon request, applications are available both by email or mail.
    Have any questions?
    Contact Lina Stavrova at lina@ArtPossibleOhio.org

Events around Ohio to For September 22nd September 30 2025

Monday September 22nd 2025

  • Trumbull County Board of DD Board Meeting 5pm at 45 North Bend Road Niles, Ohio 44446

Tuesday September 23 2025

  • Early Childhood Open Play, Tuesday, Sep 23 · 10:45–11:45 AM, Repeats weekly Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
    Sign up here: https://forms.office.com/Pages/ResponsePage.aspx?id=XVWFGg_k5k-kGn4tsvCQmtmZ9AEFDiZHtLlPpU9yYnBUOEtVS0JTWjdHVkhDWFRLREFLWElCMzFaNC4u
  • Cuyahoga County Advocacy Connections Group, Tuesday, Sep 23 · 10 AM–12 PM You’re invited to Advocacy Series: Health Connections!
    A medical advocacy event for people with developmental disabilities.
    At the event, you’ll hear from peers and medical professionals to learn:
    Why training for medical professionals makes a difference in your care
    Importance of speaking up for yourself in medical settings
    Tips on how to navigate healthcare
    Accessing Medicaid provided benefits
    And more!
    Snacks and a universal changing table will be provided. The event is free, registration is needed, and space is limited. Once we fill all the spots, a waitlist will open.
    Register at http://surveymonkey.com/r/6X22YTS
  • Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com
  • FAMILY UNIVERSITY
    FOR DEAF, HARD OF HEARING, DEAFBLIND
    Topic: Welcome to the Community
    Date: September 23, 2025
    Time: 6:30 to 7:30 pm
    Join us this month for a welcoming opportunity to connect, and discover topics of interest and resources for communication, language, lEPs, and more. Celebrate your family’s strengths while building community and exploring supports together!
    JOIN US
    Family University is an opportunity for families of children that are Deaf, Hard of Hearing or Deafblind (DHH/DB) to meet virtually with other families. Register here
    Email white@osdb.oh.gov with questions

Wednesday September 24th 2025

  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • Delaware County Board of Developmental Disabilities Family Forum Help With Strategic Plan 6-7pm 1740 US-23, Delaware, OH 43015-2726, United States

Thursday September 25th 2025

  • We’re thrilled to invite you to the Ability Matters Open House on Thursday, September 25th from 4:00 PM to 6:00 PM at our Dublin location!
    425 Metro Place North, Suite 100, Dublin, OH 43017
    This is a wonderful opportunity to:
    Meet our dedicated team
    Explore our services and programs
    Tour our new space
    Connect with other families and community members
    Whether you’re already part of the Ability Matters family or simply curious to learn more, we’d love to have you join us. Come celebrate the amazing individuals we serve—and see firsthand what makes our community so special!
    No RSVP needed—just stop by! See you there!
  • 🌟 Join Autism Society Of Greater Akron at the Interactive Tech Expo! Discover the latest assistive technology, resources, and tools that support individuals with developmental disabilities and their families.
    📅 Date: September 25th
    📍 Location: Summit Mall
    Learn more: https://bit.ly/4pDjpqL
    ASGA will have a table at the event — stop by to learn more about our programs, resources, and how we’re working to support the Autism community in Greater Akron.
    Free and open to the public
    Hands-on demonstrations
    Expert exhibitors
    This event is presented by the Summit County Developmental Disabilities Board and Medina County Board of Developmental Disabilities. We hope to see you there!
    TechExpo #AssistiveTechnology #CommunityResources #AkronEvent

Friday September 26th 2025

  • No known events

Saturday September 27th 2025

  • Sensory Saturday Saturday, September 27, 9:30–11:30 a.m. This is at the Cincinnati Art Museum. FREE. Registration not required. This program is designed for families with children who have autism or other developmental disabilities.
  • Envision’s Go the Extra Mile Walk/Roll, Saturday, Sep 27 · 11 AM–1 PM Winton Woods Kestrel Shelter.
    Envision’s Go the Extra Mile Walk- Run-Roll is a free community event that encourages individuals with disabilities while raising funding for our vital support services. Envision’s Go the Extra Mile Walk 2025 will be held on Saturday, September 27, from 10-1 at Winton Woods park, Kestrel Shelter in Cincinnati. The walk brings together local corporate teams, clients, staff, friends, family, neighbors, donors and community members to enjoy a scenic stroll (or optional 5K) around the lake followed by a small festival with games, activities, food, music, raffle baskets, mini therapy horses to pet, and a small vendor fair, a fantastic DJ, inflatable obstacle courses, and lunch by Outback Steakhouse.
    Proceeds from the walk are used help fund services that support over 600 kids and adults with developmental disabilities in Greater Cincinnati. Our services include group homes, family support, independent individual support, foster care, mental health care, CITE on site children’s therapies and support, and an adult day program.
    Check out Facebook link for sneak peeks into our fun new activities planned for the 2025 event!

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Emergency Preparedness for Individuals with Rare Diseases
  • Sheriff Smith and the Athens County Sheriff’s Office would like to introduce the Peaceful Encounter Program (PEP); a new, voluntary and confidential program designed to help law enforcement respond more effectively and compassionately to individuals with mental or behavioral health conditions.
    This program allows individuals or their caregivers to share important information ahead of time (such as communication needs, known triggers, calming techniques, or other helpful notes) so that deputies are better prepared if a crisis should arise.
    Who can enroll?
    Anyone in Athens County living with: Autism Spectrum Disorder, PTSD, Anxiety, OCD, Schizophrenia, Bipolar Disorder, or any condition where advanced knowledge could improve our response.
    All information is kept private and is only accessed by law enforcement during calls involving the registered individual.
    How to sign up:
    Visit http://www.athenssheriff.com/pep and complete the questionnaire. It’s quick and secure!
    If you have questions or concerns about the program, please contact Deputy Zayne Preston at 740-566-4356 or zpreston@athenssheriff.com
    Let’s work together to promote safety, understanding, and peaceful outcomes for everyone in our community.
  • News Highlight: Bridging Aging and Disability Networks (BADN) Explains How to Better Support Aging Adults with IDD and Their Caregivers
    A new article called “Bridging Aging and Disability Networks to Support Aging Adults With Intellectual and Developmental Disabilities and Family Caregivers” was published in the Public Policy and Aging Report by the Gerontological Society of America.
    The article explains that people with intellectual and developmental disabilities (IDD) are living longer, and their needs — along with those of their aging family caregivers — are getting more complicated. Most still live at home with support from aging parents or relatives. Even though they have many of the same needs as other older adults, they are often overlooked because aging and disability services don’t always work together.
    You can read the full BADN article in the latest edition of NACDD’s Insight: https://nacdd.org/nacdd-insight-july-2025/#badn
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA.
  • Supported Decision Making Network of Ohio shares a tool kit about supported decision making through their Facebook page. Please check it out!
  • Families: Check out this new resource from OCALI:
    First Concerns About Child Development and Learning (Ages 3-21):
    What Parents Need To Know
    https://ocali.org/storage/ocali-ims-sites/ocali-ims-ocali/documents/What_Parents_Need_to_Know.pdf
  • Cleveland Sight Center Radio Network (CSCN) is now available on Alexa devices! This radio station is dedicated to providing information, news and entertainment to the blind and visually impaired community. To play it, say “Alexa, open Cleveland Sight Center Network skill.” Don’t forget to say skill at the end, or else a different news broadcast will open. Happy listening!
  • Cassel Care LLC put out this Facebook post ! 𝐖𝐚𝐭𝐜𝐡 𝐃𝐢𝐬𝐚𝐛𝐢𝐥𝐢𝐭𝐢𝐞𝐬: 𝐓𝐡𝐫𝐨𝐮𝐠𝐡 𝐚𝐧 𝐀𝐮𝐭𝐡𝐞𝐧𝐭𝐢𝐜 𝐋𝐞𝐧𝐬
    The extended version is also available on our YouTube Channel —click the link below to watch! 🎥
    https://youtu.be/7Z21aad0Jks
    Be part of the movement for disability inclusion by sharing this video and helping us amplify voices that matter.
  • Lawrence County Board of Developmental Disabilities has put out a letter about their Contingency Plan that is must read on their social media.
  • 📅 September is Fetal Alcohol Spectrum Disorder (FASD) Awareness Month.
    Did you know that up to 1 in 20 school-age children may have FASD? If you’re pregnant or planning to be, avoid alcohol. FASDs are 100% preventable by staying alcohol-free during pregnancy.
    Explore FASD resources here: https://bit.ly/41lK6Wq

September Awareness Month

  • Dystonia Awareness Month
  • Self Care Awareness Month
  • National Suicide Prevention Awareness Month
  • September 1st-6th is National Migraine Awareness Month
  • Childhood Cancer Awareness Month
  • September 6th is National Read a Book Day
  • National Spinal Cord Injury Awareness Month
  • National Library Card Sign Up Month

#EveryoneCommunicates How AAC has helped me Make Decisions and Advocate in Supported Decision Making

Supported Decision Making is a good resource for people with disabilities. It provides a way to have support to decide on simple or complex decisions about life.

I have a supported decision making team of people. They help me in a number of areas of my life. My team understands me when I speak and also they make space for me to use AAC which is Augmentative Alternative Communication when I need to.

I have Autism I also have other complex disabilities. One of my disabilities is Dystonia and September is Dystonia Awareness Month.

Dystonia impacts my speech, vision, my muscle and my mobility. Sometimes it looks like I am having a stroke because my speech patterns are not consistent and my AAC is an active voice for me when people might misunderstand me or maybe they don’t understand where my base line is. I have a way to use technology to communicate my needs.

When a person has a supported decision making team it’s always important that they know how the person communicates so that the person can always be heard and remain the ultimate decision maker on everything.

People may partner with a person to help them have support to make decisions and also bring ideas to the table to help a person improve their communication in decision making. Ultimately the person can take the idea or suggestions and decide for themselves if they want to use the tools or resources to improve how they communicate .

I needed a way to communicate better about nutrition and food and my team offered me some suggestions on ways I could better communicate. Ultimately I was the one who decided to put some new ways to communicate into practice.

I use picture exchange communication cards and AAC to communicate my needs around food and nutrition to my staff and my whole team.

PECS cards are picture cards that have photos of food or other objects. Sometimes they have words or pictures and sometimes both.

Communication is important and it’s important to meet people where they are and let people communicate in best way they can. When people have the right tools and support they can communicate. It is important to give people time to communicate their needs.

Supported Decision making isn’t just for people who speak by their natural voice. It also exists for people who use assisted technology, ASL, Braille and other means of communication. We have to recognize in society that communication isn’t a scripted formality. People who use other forms of communication should be included in making decisions about their life.

It shouldn’t be that because of a lack of resources people are appointed a decision maker. It is important to recognize that when given the right tools and supports a person likely can communicate and act in their own best interest.

You must understand that SDM exists in way that allows for people to have autonomy and remain their own person and advocate in way they can best do so and it means that every person can express opinions and be supported to make their own decisions.

It changes history and the idea that someone must do it for us or another person and shifts it to the idea that every person is competent when given the right tools and supports. The United Nations is moving away from this idea of substitute decision maker and moving towards supported decision making.

When people communicate in other ways than spoken word often they are still capable of making decisions . It important to acknowledge that we need more resources in our communities for people who use alternative forms of communication about supported decision making.

The right to a reasonable accommodation under the Americans with Disabilities Act is very clear. It is often that people don’t take the effort to make space for people that have a need for accommodations in communication and care planning. The right of the use of ASL interpreter or to have Braille information is a persons right so they can be included in decisions and care planning, it is the same for a person who wants to use AAC or use visual communication like pictures or words to communicate. It is the right to accommodations that make it so a person can communicate that must be made clear to anyone who is supporting a person with a disability in decision making.

This message is across the board. When people are provided the right tools and supports they can be active participants of their community, the supports and services they have and also choose who helps them or supports them in every day life.

Supported Decision Making is for anyone that wants to make decisions with the support of others . They still remain in control of their own lives. It is an alternative to guardianship for people who need support. It helps people have a seat at the table in their planning. Some people have also used it alongside guardianship to give a person the opportunity to make choices.

It is important to recognize that Supported Decision Making looks different for everyone! In a blog by Disability Voices United they literally talk about how Supported Decision Making is extra time to discuss choices and plain language or video or audio content meaning information in a way the person can understand it.

All around SDM is about choice, having control and choosing the direction you want to go in life.

The resources that exist for AAC users are very limited at the current time.

This resource is from SDM Pennsylvania because Ohio is still lacking in their discussion around this important topic.

There are limited resources for other communities as well including deaf /blind communities. One of the biggest struggles around the nation is making content accessible for the blind community.

#EveryoneCommunicates and the right to communicate should be considered in every facet of disability culture and life.

Supported decision making is for everyone and in saying that our communities that share about SDM must be inclusive and accessible. This includes putting out content that is accessible to everyone.

When posting videos they need captions and ASL when possible. Posting photos on social media requires the use of image description or alternative text to let people know content that is posted in the form of image.

There are little things that can be done in to make things more accessible. Anyone that owns an iPhone can copy and paste content into a note then save a document as a txt file to make content more accessible.

We as a community want people to understand this supported decision making content but as community we have to take the time to make content that helps people understand just as basis of SDM is about having information in a way a person can understand and Making a space for people to communicate in the best way they can.

Supported Decision Making is only possible when people are able to access and communicate their needs, interests, feelings , likes and dislikes and understand their choices.

We must find ways to include more people and be accessible so more people can be the decision maker and be in the drivers seat of their life.

As I use AAC intermittently I want people to interact with me with my AAC so I can be in same page with people who support me and my team can understand my needs. Even on my days I use AAC I am still apart of my team I am still the sole decision maker.

AAC drives my care especially in emergencies with it i can let people know what I need and how to support me and be able to process what people are communicating to me . This it’s important in all aspects of my care.

With my supported decision making team I have learned to use visual resources and picture exchange communication cards to communicate my needs on food. I also use AAC to communicate my likes and dislikes on food. My team adapts to what I need that day, that moment and it helps me make best decisions for my life.

I have been able to change health outcomes with using AAC to communicate and make decisions. One way I do it every day is by using AAC and some speaking and art to communicate my nutrition needs with my team.

My staff and I worked on some cool set menus for my nutrition and we worked alongside my supported design making team and my nutritionist to help me decide foods I want to eat.

It important to recognize everyone communicates and my support and your support are different. At the end of day having access to information about the choices I make and people being able to interact with me in way I chose to communicate really makes the most difference. It keeps me in control of my life and allows me to direct my services and supports.

Speaking is a Privilege: Dystonia Awareness and AAC Advocacy in the Disability Community in Ohio.

September is Dystonia Awareness Month. As a person living with Dystonia I find it difficult to exist in many of my advocacy circles on the state level in Ohio.

It seems as though my National Advocacy groups accept me as I am but in Ohio it is lot different.

I thought a blog might help raise awareness and shine light on the fact that there are people use (AAC) Augmentative Alternative Communication to communicate intermittently and how we should be more inclusive as a community.

When someone uses a communication device it takes time to communicate and people should be given time to be heard thru their communication device.

When someone speaks but also uses AAC people should just respect them regardless of if they speak or use an assisted technology to communicate.

Ohio advocacy spaces aren’t truly inclusive. I find myself in a daily struggle whether to log on an advocacy group or to just skip a group because of lack of understanding. It is a privilege to speak. Often there are things people take for granted. We often don’t wait and give people time to speak. There is a lot ableism and lack of understanding about disability challenges that people face and especially for those who have speech or language based disabilities. It is difficult to be heard when someone’s speech might be great one day and the next it isn’t great.

This past week I found that some people don’t even know what AAC is. If you don’t use your voice in normal way people just don’t hear you. It is a struggle to be included.

I believe when people have the right tools and supports they can communicate and be active in their communities. That participation sometimes is affected by the communities that exist understanding and making way for a different way to communicate.

We advocate for technology and Ohio is a technology first state in promoting independence. At the same time, how many people do you meet in your advocacy groups who are actively using technology to help them speak or be heard in an advocacy space?

In my situation, people are also used to my strong advocacy voice that they don’t even recognize my computer generated voice even though I am the same person with same message. On days where my disability affects me more I am excluded.

My disabilities aren’t obvious. I have Autism I also have Dystonia a very complicated disability and the symptoms when I am In a full blown attack look like I am having a stroke. People have actually mistaken me in those moments. I have used AAC to advocate for my needs. I have had to fight to also keep my day going. Things people don’t realize. This being my day is not cancelled when I use my AAC to communicate.

Dystonia is a neurological condition that causes involuntary, uncontrolled muscle contractions/ movements.

This can result in repetitive twisting motions, tremors, and unusual, often painful, body postures. It affects speech and sometimes choking and vision issues. These symptoms happen because of bad signals from the brain, which affects how muscles are supposed to move.

These symptoms can happen at any time and I use AAC as my back up default way to communicate.

I have been patient but often my silence is just this mindset if you don’t speak up then you must not have anything to say.

I have a lot to say. Often it gets missed. My AAC device can help me send texts or copy text and paste to a chats on zoom or teams. I sometimes type in the chat to participate when I can type. My active voice in communities is often not there unless I raise my hand and try push my self to speak. The pause sometimes makes people uncomfortable or they think I am not there or they think the connection is bad. I want to be heard when I use my AAC too. I need time to push a button takes literally seconds. I don’t raise my hand until I can generate my communication to help people. Still then that 3 seconds of silence usually makes people move on.

It would be helpful if people recognize that there are AAC users among them that the 3 second pause is necessary for communication.

Not everyday is the same. My AAC device is my voice it is way of communicating when I don’t have physical words.

September is Dystonia Awareness Month. I chose to raise awareness to change outcomes in hopes my advocacy spaces will be more inclusive and accessible to me.

If you want to read more about Dystonia check out these resources

Cleveland Clinic

Dystonia Medical Research Foundation

National Organization on Rare Diseases

This is the only plain language resource I could locate from Care Pathways on Dystonia so much information out there but not very much in plain language.

All around Dystonia is treatable and for me 40 years of symptoms and I am finally on right pathway for treatment. Finding spaces that are going to be accessible for me to be included when my symptoms are intense is problem.

We should want to be a community welcomes anyone with any disability and in anyway that anyone communicates.

Being able to speak is a privilege that many people take for granted. Losing my ability to speak with my own voice has been a lot of struggle and the need to be included is important to me.

As someone who is a national advocate, I want to be included in state wide advocacy too. #EveryoneCommunicates and as a disability community we should be willing to learn about other disabilities and ways people communicate to make space for more people to be at the table.

To the person reading this who uses AAC all the time your voice is valuable at the tables of advocacy . Just as I don’t plan to stop communicating please don’t stop. Everyone has a seat in advocacy just Ohio must be more open to being a space that makes room for anyone to communicate and speak up!

The Pulse: What’s going on around Ohio September 15th 2025 to September 21st 2025

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • There’s only two more weeks to submit to Issue 8 of Imagine the World as One: A Disability Lifestyle Magazine! Please send us your articles about
    “Submit articles at http://www.imaginetheworldasonemagazine.com or email them to imaginetheworldasonemagazine@gmail.com Fashion Employment Product reviews Money Accessibility Dating Relationships Advocacy Art Between 2000-3000 Words Please send us your articles about disability and…. Submit your article at imaginetheworldasonemagazine.com Due September 30, 2025

Events around Ohio to For September 15th -September 20th 2025

Monday September 15th 2025

  • All-Abilities Adventure, Monday, Sep 15 · 11 AM–12 PM Dayton Metro Library – Miamisburg Branch, 545 E Linden Ave, Miamisburg, OH 45342
  • Advocating for your child with Autism means being a proactive, informed, and compassionate voice in ensuring they receive the support, services, and understanding they need to thrive—especially in educational settings.
    But – You don’t know what you don’t know!
    Join ASGA for the September VOICE Session with Marjorie Cook, OCFPS-Supervisor | PEERS Program Manager at Greenleaf Family Center.
    REGISTER NOW: https://tinyurl.com/fjcucubv

Tuesday September 16th 2025

  • Special Needs Social Hour, Tuesday, Sep 16 · 12–1 PM Medina County District Library, 210 S Broadway St, Medina, OH 44256
  • Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com
  • IEPs & 504s Empowered by an Advocate! 6-7pm Parents get Empowered! Looks like a great virtual webinar to learn more about IEPs and 504s. If you have an autistic child you need to be knowledgeable on basic educational rights. Thank you ASPIES for hosting! Register HERE — https://docs.google.com/forms/d/e/1FAIpQLSeQYixoD1fof4jQZ8hhiuhPcCqrjx8b77z0e6ohT5RsmoyQSA/viewform

Wednesday September 17th 2025

  • Healthy Aging Expo 10am-2pm 🌟 Get ready — the 513Relief Bus Healthy Aging Remix is making its return! 693 FRESNO RD. 45240
    link to more information.
  • Sign up for the next Opportunities for Ohioans with Disabilities Employer Training webinar. This free webinar will provide organizational leadership best practices for creating a workplace inclusive of individuals with disabilities.
    What: Employer Training: Disability-Inclusive Workplaces: Inclusive Leadership
    When: Wednesday, September 17th 10:00 AM – 11:00 AM ET
    Where: Virtual (Microsoft Teams link will be sent upon registration)
    Registration is required to attend. Click here to sign up: https://bit.ly/43ux4WL
  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • 🚔 Calling all Summit County Law Enforcement! 🚔
    Join us for the Safety on the Spectrum™ Training – essential education for first responders working with the Autism community. Two upcoming sessions available:
    📅 September 17th
    📅 November 12th
    In this training, you’ll learn:
    ✅ The Stop. Assess. Support. framework
    ✅ Common characteristics of Autism
    ✅ How to offer Autism-informed support
    ✅ Critical safety information about wandering and drowning risks
    You can learn more or register for one of the sessions at: https://bit.ly/48gOgmv
    SafetyOnTheSpectrum #LawEnforcementTraining #AutismAwareness #FirstResponders #SummitCounty
  • Butler County Board DD provider Meeting, Wednesday, Sep 17 · 10 AM–12 PM, Repeats every month on the third Wednesday Join us for our regular provider meetings so you can stay up to date on the latest information. Meetings are currently all via Zoom. You can request the link by emailing Cathy Borders at cmborders@butlerdd.org
  • Save the Date for the Inclusive Opporunity Fair on Wednesday, September 17th from 6–8 PM at the Westerville Community Center. 350 N. Cleveland Ave.
    This is a free event and no registration is required. Various local organizations will provide information about opportunities, products and programs for individuals with developmental, physical or invisible disabilities.
  • Special Needs Family Support Event, Wednesday, Sep 17 · 6–7 PM Children’s Museum of Findlay, 1800 Tiffin Ave # 201, Findlay, OH 45840 Join Pierce’s Crew Foundation for our monthly Support Events.🥰 (SUBJECT TO CHANGE DUE TO THEIR MOVE) Come meet and connect with other community families just like yours. These events will be a safe and supportive space to play, chat and learn. Support events are open to all special needs families.
  • People First of Northeast Ohio, Wednesday, Sep 17 · 6:30–8 PM, Repeats every month on the third Wednesday People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday September 18th 2025

  • No known Events

Friday September 19th 2025

  • Silent Sensory Lab, Friday, Sep 19 · 9:30–10:30 AM Troy-Miami County Public Library, 419 W Main St, Troy, OH 45373

Saturday September 20th 2025

  • 4th Annual March for Access, Saturday, Sep 20 · 10 AM–12:30 PM Join NOCDO for our 4th annual March for Access!
    The March for Access will take place from 10 am – 12:30 pm on Saturday, September 20, (rain or shine). This is a FREE event.
    March theme and purpose:
    Accessible and inclusive transportation options. This is to honor and build on the 40th anniversary of the Cleveland Transportation Protests.
    Schedule:
    Saturday, September 20, 2025
    10:00 am: Visit resource tables and make posters
    11:00 am: Rally and March
    12:00 pm: March photo and resource tables Accessibility:
    Masking encouraged
    Captioning and ASL interpretation of rally
    Wheelchair accessible restrooms and route
    Wheelchair charging station
    Location and Transportation:
    Rally location: 127 Public Square, Cleveland
    From 9:45 – 12:45 pm: Free parking and ADA shuttle transportation provided by Youth Challenge between County Board of Developmental Disability Lakeside parking lot and Public Square.
    CCBDD parking lot address: 1275 Lakeside Avenue East, Cleveland OH 44114
  • Drive Through BBQ Fundraiser 11 am 950 Webster St, Defiance, OH 43512-1682, United States DASH will be holding its 3rd annual Drive-Thru BBQ Fundraiser @St. Johns UCC on September 20th from 11am-1pm. All proceeds help those living with disabilities.
    Choice of hamburger or hotdog: with chips, macaroni salad and a dessert.
    FREE WILL DONATION check out facebook event link here.

Sunday September 21 2025

  • Step Up to Prevent Suicide Community Walk, Sunday, Sep 21 · 8–9 AM Medina Public Square Historic District, Public Square, Medina, OH 44256

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Emergency Preparedness for Individuals with Rare Diseases
  • Sheriff Smith and the Athens County Sheriff’s Office would like to introduce the Peaceful Encounter Program (PEP); a new, voluntary and confidential program designed to help law enforcement respond more effectively and compassionately to individuals with mental or behavioral health conditions.
    This program allows individuals or their caregivers to share important information ahead of time (such as communication needs, known triggers, calming techniques, or other helpful notes) so that deputies are better prepared if a crisis should arise.
    Who can enroll?
    Anyone in Athens County living with: Autism Spectrum Disorder, PTSD, Anxiety, OCD, Schizophrenia, Bipolar Disorder, or any condition where advanced knowledge could improve our response.
    All information is kept private and is only accessed by law enforcement during calls involving the registered individual.
    How to sign up:
    Visit http://www.athenssheriff.com/pep and complete the questionnaire. It’s quick and secure!
    If you have questions or concerns about the program, please contact Deputy Zayne Preston at 740-566-4356 or zpreston@athenssheriff.com
    Let’s work together to promote safety, understanding, and peaceful outcomes for everyone in our community.
  • News Highlight: Bridging Aging and Disability Networks (BADN) Explains How to Better Support Aging Adults with IDD and Their Caregivers
    A new article called “Bridging Aging and Disability Networks to Support Aging Adults With Intellectual and Developmental Disabilities and Family Caregivers” was published in the Public Policy and Aging Report by the Gerontological Society of America.
    The article explains that people with intellectual and developmental disabilities (IDD) are living longer, and their needs — along with those of their aging family caregivers — are getting more complicated. Most still live at home with support from aging parents or relatives. Even though they have many of the same needs as other older adults, they are often overlooked because aging and disability services don’t always work together.
    You can read the full BADN article in the latest edition of NACDD’s Insight: https://nacdd.org/nacdd-insight-july-2025/#badn
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA.
  • Supported Decision Making Network of Ohio shares a tool kit about supported decision making through their Facebook page. Please check it out!
  • Families: Check out this new resource from OCALI:
    First Concerns About Child Development and Learning (Ages 3-21):
    What Parents Need To Know
    https://ocali.org/storage/ocali-ims-sites/ocali-ims-ocali/documents/What_Parents_Need_to_Know.pdf
  • Cleveland Sight Center Radio Network (CSCN) is now available on Alexa devices! This radio station is dedicated to providing information, news and entertainment to the blind and visually impaired community. To play it, say “Alexa, open Cleveland Sight Center Network skill.” Don’t forget to say skill at the end, or else a different news broadcast will open. Happy listening!

September Awareness Month

  • Dystonia Awareness Month
  • Self Care Awareness Month
  • National Suicide Prevention Awareness Month
  • September 1st-6th is National Migraine Awareness Month
  • Childhood Cancer Awareness Month
  • September 6th is National Read a Book Day
  • National Spinal Cord Injury Awareness Month
  • National Library Card Sign Up Month

Friday Resource Round Up!

Every Friday we have decided to now share 5-10 resources that we came upon this week to people with disabilities, families and caregivers across Ohio.

Mental Health Resources

Self Advocacy Took Kits

Grants

The Community Fund Grant

This grant helps people with disabilities who need to cover durable medical equipment or medical expenses that aren’t covered by insurance. They have bigger grants for people receive Medicaid and other forms of government assistance. They have grants for people smaller that don’t receive government assistance. The forms are on their website. Next Deadline is September 30th, 2025.

Assistance Programs

Cool Phone Apps

Let Me Do It App

This is app for people who use Supported Decision Making. It allows people to invite people to help them complete steps in a decision they want to make.

To Good to Go

This is an app that helps save food. It basically lets people buy that restaurants have at the end of the day for a lower price to not waste food.

Augmentative and Alternative Communication (AAC Resources)

  1. Picto4Me – Create and Share Picture Exchange Communication Board
  2. Ohio Developmental Disabilities Communication Boards

Low Cost Things to Do

Museums 4 All

“Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,500 museums throughout the United States simply by presenting their EBT card and a photo ID.”

Ohio Specific Programs

  • The Ohio Digital Library is a collaborative effort involving libraries across the state of Ohio. Through this initiative, Ohio residents with a valid library card from a participating library can access and borrow ebooks, audiobooks, and magazines for free. Check out more through this link here.
  • The State Library of Ohio provides access to reading materials to individuals with disabilities through several programs.
    The State Library, along with the Cleveland Public Library and the National Library Service for the Blind and Print Disabled, provides audio, braille, and downloadable books to eligible residents. In addition, the State Library and the Ohio School for the Deaf partner to provide the Deafness Outreach Collection maintained at the State Library. Find more information through this link
  • Ohio Housing Locator Tool can be used to find shelters, emergency housing and apartments.
  • Opportunities to volunteer in Ohio https://ohio.gov/residents/topic-hubs/home-and-community/volunteer/volunteer
  • Ohio has a database that helps fund training that people need in order to work or maintain a job. Read more through this link
  • Central Ohio Area on Aging Respite Guide

Resources for the Blind Community

  • Free literacy program for blind and low-vision children 0-8 years old. Families receive free Braille books, activities, birthday cards, and more. Fill out an application and learn about other resources from National Federation of the Blind online.
    200 East Wells Street, Baltimore, Maryland 21230
    (410) 659-9314
    nfb.org/programs-services/early-childhood-initiatives
  • National Federation of the Blind Free Braille Slate and Stylus Program https://nfb.org/programs-services/free-slate-and-stylus-program
  • Hadley Helps Founded in 1920 by William Hadley, an educator who lost his eyesight later in life, Hadley offers practical help, connection and support free of charge to anyone with a visual impairment, their families and professionals supporting them. With Hadley, you can discover new ways to do things that have become more difficult due to vision loss and connect with a network of peers who “get it.” And you don’t need to come to Hadley. Hadley’s help comes to you; online, on the phone or through the mail

Miscellaneous Resources

  • Expertise LLC
    1525 4th Avenue Suite #700, Seattle, WA 98101
    Expertise.com researched and developed a pretty comprehensive resource for people living with disabilities.  The guide aims to help make the federal grants available to seniors, veterans, and disabled people much easier to understand and take advantage of, particularly for remodeling homes for accessibility.
    For many people, owning and maintaining a home is one of the most significant investments they ever make.  But for individuals and veterans living with disabilities or special needs, or seniors aging in place, the fact that much of the world outside is not built to accommodate their needs magnifies the value of a comfortable home.  It’s vital they and their loved ones have access to the best resources about how to make their homes livable and enjoyable.

September 6th is National Read A Book Day

September 6th is National Read A Book Day! For this hallmark day we want to share some books by Ohio Authors and Self Advocates for you to check out.

OHID what is it and why is it important?

OHID is the online portal for accessing all of Ohio benefits and state agencies. OHID gives you a single, secure account to log into State of Ohio websites and services. To learn more about it and why it is important check out this link.

If you once used the online benefits portal on its own you need to listen up! The new system requires you to create an OHID account then log in and search the App Store within the portal. It requires you to link your Ohio Benefits Portal to your OHID to access the application portal for benefits such as Ohio Medicaid, SNAP, and other assistance programs.

This is critical information especially if you file or report changes for your Medicaid or SNAP interim reports or yearly renewal of benefits. Don’t lose access! Create an OHID account today and Log in today to connect these critical apps and portals so you can stay connected to your services, supports and Medicaid benefits,

The Pulse: What’s going on around Ohio September 1st 2025 to September 6th 2025

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Participate in Public Comment is for background check rules for employment for Ohio Developmental Disabilities Services Providers read more through this link to learn how to participate in public comment.
  • Research participants wanted for The Lurie Institute for Disability Policy.
    The study is about the sexual and reproductive health needs and experiences of young people with disabilities.
    To participate, people must:
    Have been born in the United States
    Live in the United States
    Be between 15 and 25 years old
    Have a health condition or disability, such as a vision, hearing, physical, intellectual, or developmental disability.
    Be able to talk in English, Spanish, or American Sign Language over a Zoom call
    Participants will be asked to do a 1-hour Zoom call to talk about their experiences. American Sign Language interpretation and accommodations will be provided on request.
    Why is this study important? Why should you care or share this information?
    People do not know a lot about young people with disabilities’ experiences with sexual and reproductive health.
    The study will help the researchers create a website for young people with disabilities that will teach them about taking care of their sexual and reproductive health.
    Our findings could be used to help advocate for youth with disabilities.
    Why should participants tell their story?
    They get a $50 gift card.
    Their stories will help us create a website that will teach people with disabilities about sexual health.
    Their voice will help inform and add to the little research on this important topic.
    Contact information
    Anyone who is interested can email YouthStudy@Brandeis.edu or call Janelle Mills, at 781-736-3928. More information is on our website.
  • Brandeis University is conducting a research study focused on the experiences of disabled people of color transitioning from institutions back into the community. They’re seeking staff from health plans, aging care organizations, providers, state agencies, CILs, and other support organizations to participate in a 90-minute virtual focus group.
    Participants will receive a $50 gift card. Insights will help shape future policy.
    Sign up: https://buff.ly/QMEn889
    Questions: hcbsaccess@brandeis.edu
  • Do you have an intellectual disability and identify as obese?
    We want to hear from you!
    Deakin University is running a research project about how relationships impact weight and physical activity for people with intellectual disability.
    You’ll be invited to take part in 1–2 interviews using art to help us communicate.
    You’ll receive a $50 gift voucher for taking part. Co-designed with people with intellectual disability and their supporters.
    Interested? Contact Sam Lilly: slilly@deakin.edu.au
  • The Yale Disability Research Lab is recruiting US adults (age 18 or older) who identify as Black/African American and part of the disability community to participate in a research study.
    Participants will be asked to share their experiences of racism, ableism, and other daily life challenges in an interview. This information will help them to develop a questionnaire measure which we will use to capture the experiences of Black people with disabilities.
    This questionnaire will be an important tool to help us understand how the unique lived experiences of Black people with disabilities might impact their health and well-being.
    You might be eligible to participate:
    18 years or older
    Self-identify as Black/African American with a disability
    Fluent in English
    Reliable access to the Internet and videoconferencing equipment (i.e., a computer, tablet, or smartphone with webcam and microphone)
    https://medicine.yale.edu/ycci/clinicaltrials/trial/exemption-intersectional-stigma-measure-development/
    Image Description: AAHD logo and Yale logo. Outline background image of people silhouettes in different colors with and without disabilities. Text overlaid says “Seeking Research Participants! Do you have a disability? Do you identify as Black/African American?

Events around Ohio to For September 1st -September 6th 2025

Monday September 1st 2025

  • 3rd Annual Mental Health Matters 5K 8am-9am The Rotary Club of Cambridge is hosting their 3rd annual Menthal Health Matters 5k walk/run on Monday, September 1st at the Cambridge City Park sign up for run
  • We Thrive Together History of Labor Day Event 11:00-12;00pm click this link to join.
  • Adaptive Pickleball, Tuesday, Sep 2 · 5–6:30 PM Athens Community Center, 701 E State St, Athens, OH 45701

Tuesday September 2nd 2025

  • Early Childhood Open Play, Tuesday, Sep 2 · 10:45–11:45 AM, Repeats weekly Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend. Sign up here:
  • We Thrive Together Tech Talk 11:00am-12:00pm click this link to join.
  • Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com
  • Neighbors in Action : A self Advocacy group out of Hamilton County meets virtually at 4pm. Click on this link to learn more.
  • SALT TALKS Topic: Transition Planning 101 6:00-7:00pm click this link to learn more.

Wednesday September 3rd 2025

  • Domestic Violence Advocacy Fundamentals (DVAF) for Seasoned Advocates, Wednesday, Sep 3 · 9:00 AM–4:00 PM (Pre Registration required) in Columbus, Ohio
  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • Parents and Caregivers Join for a Discussion about Disability Services in Ohio. 10:00-2:00pm at Herbert Wescot Memorial Library 120 N Market street MCArthur, Ohio. To register please call 740-384-6245 extension 2107
  • Ohio Olmstead Taskforce Meets 1pm virtually please contact ohioolmstead@gmail.com for zoom link to the meeting.
  • Raising Our Kids w/ Disabilities to Lead Bright, Happy Lives, Wednesday, Sep 3 · 7:00-8:00pm at Beachwood Branch, 25501 Shaker Blvd, Beachwood, OH 44122
  • NAMI: Hearts+Minds, Wednesday, Sep 3 at 10:00 AM –
    Wednesday, Oct 1 at 11:30 AM SourcePoint, 800 Cheshire Rd, Delaware, OH 43015

Thursday September 4th 2025

  • The Alphabet Soup of SSI & SSDI Webinar Registration, Thursday, Sep 4 · 12:00-1:00 PM Virtual Workshop
    Thursday, September 4
    12:00 pm – 1:00 pm
    What’s the difference between SSDI and SSI? Can you receive both? Do you need a lawyer to apply? How does Medicare fit into the picture—and what happens when a parent retires? Navigating the world of Social Security disability benefits can feel overwhelming—but you’re not alone. Join the ASGA community for a special lunchtime session that breaks down the differences between SSI and SSDI and answers the big questions families often face:
    Does a parent’s income affect eligibility?
    What changes when a parent retires and begins collecting Social Security themselves?
    How do we ensure that benefits continue if something happens to the caregiver?
    Whether your individual is currently receiving benefits or you’re just beginning to explore your options, this session will equip you with the foundational knowledge to make informed decisions.
    WHAT TO EXPECT
    During this session, you’ll learn how to: Understand the key differences between Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI)
    Determine who qualifies for each program and how parental income and assets may impact eligibility
    Learn what happens to your child’s benefits when you retire, become disabled, or pass away
    Navigate the application process—and decide if legal assistance is necessary
    Understand how Medicare and Medicaid interact with disability benefits
    Access helpful SSA resources and starter kits for both children and adults
    WHO SHOULD ATTEND
    Parents and caregivers of individuals with disabilities
    Families preparing for future transitions, such as retirement, estate planning, or guardianship
    Anyone looking for clear, practical guidance on maintaining and protecting Social Security benefits
    DO I HAVE TO REGISTER?
    Registration is required to receive the virtual meeting link.

    QUESTIONS
    If you have questions or need additional assistance, contact Theresa Maier, ASGA Support Specialist 330-940-1441 ext 1
  • Mind/Body/Art, Thursday, Sep 4 · 6–7 PM at Cincinnati Art Museum Cincinnati, Ohio

Friday September 5th 2025

  • Little Hands Sensory Group at Perry Cook Memorial Public Library in Mt Gilead, Ohio from 10:00-11:00 am Join us for Little Hands Sensory Group, provided by the YWCA Child Care Resource and Referral Department. Little Hands Sensory Group is designed for families with children 3-10 years of age.
  • We Thrive Together Advocacy Army 4:00-5:00pm click this link to join
  • The Big Living Room 6-9pm The Big Love Living Room is a sensory-inclusive space that has soft music, seats, crafts, and healthy snacks. Sponsored by The Big Love Network, Akron’s environmental health equity organization. Kenmore Branch Library, 969 Kenmore Blvd, Akron, OH 44314

Saturday September 6th 2025

  • Blind, Deaf, and DeafBlind Accessibility Day, Saturday, Sep 6 · 8:00 -8:00 Pm Columbus Zoo and Aquarium, 4850 W Powell Rd, Powell, OH 43065
  • Empowering Epilepsy, 23500 Mercantile Rd suite d, Beachwood, OH 44122 1-3pm
  • Ability Censer Family Fun Day, Saturday, Sep 6 · 12–3 PM REGISTRATION IS OPEN!!! 🥳
    We’re thrilled to announce that registration is now open for our 4th Annual Family Fun Day! Join us on Saturday, September 6th, from noon to 3pm on our campus at 5605 Monroe Street for a fun, inclusive, and accessible event designed for the whole community.
    From FREE food and inflatables to adaptive sports, games and crafts, this beloved event is a highlight of the year. It’s highly anticipated by past attendees and is sure to create lasting memories for you and your family.
    Mark your calendars and register for FREE today:
    This event is proudly sponsored in part by the Toledo Mud Hens Helping Hens Foundation
  • Art Show for Mental Health Awareness featuring Original Artwork, Live Artists and Local Music, Saturday, Sep 6 · 4:00-8:00pm Artspace Hamilton Lofts and The Strauss Gallery, Hamilton Center, 222 High St, Hamilton, OH 45011

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • CITY OF
    • CHILLICOTHE
    TRANSIT SYSTEM
    Coming September Ist
    ADA PARATRANSIT SERVICE
    In accordance with ODOT compliance and under ADA guidelines, Chillicothe Transit System is implementing Complementary ADA Paratransit Service.
    Individuals who are unable to use the fixed route service because of disability will be provided with complementary ADA paratransit service that is comparable to the fixed route service in service availability and quality. Complementary ADA paratransit service will be available Monday through Friday between the hours of 7am and 6pm.
    To obtain eligibility for the service, the passenger must submit a properly filled out ADA Paratransit Eligibility Application. Applications will be reviewed and eligibility status determined within 21 days of submission. Beginning September st
    *, 2025, in order to schedule a ride for the ADA Complementary
    Service, eligible passengers will have an ID card issued to them by CTS.
    The ADA Paratransit Policy and a fillable PDF
    ADA Paratransit Application with instructions are available at http://www.chillicotheoh.gov by navigating to the Transit page, then the ADA Paratransit menu, or scan the QR code below.
    Applications may also be picked up from the Transit Hub at 575 E. 71h St.
  • Emergency Preparedness for Individuals with Rare Diseases
  • Cuyahoga Board of Developmental Disabilities Serves Get your exercise on at an inclusive event in the community.
    Visit link to find an event in our Online Resource Guide.
  • INTRODUCING THE ‘BURG BUS
    For Reynoldsburg Residents 65+ and Individuals with Disabilities Enjoy free, door-to-door rides to your favorite spots around the city!
    Whether it’s shopping, dining, medical appointments, entertainment, parks, or places of worship – the Burg Bus will get you there safely and comfortably.
    HOW TO RIDE
    Call 833-742-7333 Opt. 1
    RIDES AVAILABLE
    Hours of operation
    M-F 9 a.m – 4 p.m.
    WHERE YOU CAN RIDE?
    Anywhere within Reynoldsburg!
    Let us take you to:
    Medical Appointments
    Grocery Stores & Shopping Centers
    Restaurants & Entertainment
    Parks & Recreation Areas
    …and more!
    Call to schedule
    M-F 8:30 a.m – 4 p.m.
    BENEFITS OF RIDING THE BURG BUS
    The rides are free.
    Vehicles are wheelchair accessible.
    Drivers are licensed professionals.
    Share rides with your friends to your favorite places around town.
    And sharing rides is good for the environment!
    ReynoIdsburg, 0H
  • News Highlight: Bridging Aging and Disability Networks (BADN) Explains How to Better Support Aging Adults with IDD and Their Caregivers
    A new article called “Bridging Aging and Disability Networks to Support Aging Adults With Intellectual and Developmental Disabilities and Family Caregivers” was published in the Public Policy and Aging Report by the Gerontological Society of America.
    The article explains that people with intellectual and developmental disabilities (IDD) are living longer, and their needs — along with those of their aging family caregivers — are getting more complicated. Most still live at home with support from aging parents or relatives. Even though they have many of the same needs as other older adults, they are often overlooked because aging and disability services don’t always work together.
    You can read the full BADN article in the latest edition of NACDD’s Insight: https://nacdd.org/nacdd-insight-july-2025/#badn
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA
  • Guide to Employment for People with Disabilities 2025

September Awareness Month

  • Self Care Awareness Month
  • National Suicide Prevention Awareness Month
  • September 1st-6th is National Migraine Awareness Month
  • Childhood Cancer Awareness Month
  • September 6th is National Read a Book Day
  • National Spinal Cord Injury Awareness Month
  • National Library Card Sign Up Month

Friday Resource Round Up!

Every Friday we have decided to now share 5-10 resources that we came upon this week to people with disabilities, families and caregivers across Ohio.

Grants

The Community Fund Grant

This grant helps people with disabilities who need to cover durable medical equipment or medical expenses that aren’t covered by insurance. They have bigger grants for people receive Medicaid and other forms of government assistance. They have grants for people smaller that don’t receive government assistance. The forms are on their website. Next Deadline is September 30th, 2025.

Assistance Programs

Cool Phone Apps

Let Me Do It App

This is app for people who use Supported Decision Making. It allows people to invite people to help them complete steps in a decision they want to make.

Augmentative and Alternative Communication (AAC Resources)

  1. Picto4Me – Create and Share Picture Exchange Communication Board
  2. Ohio Developmental Disabilities Communication Boards

Low Cost Things to Do

Museums 4 All

“Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,500 museums throughout the United States simply by presenting their EBT card and a photo ID.”

Ohio Specific Programs

  • The Ohio Digital Library is a collaborative effort involving libraries across the state of Ohio. Through this initiative, Ohio residents with a valid library card from a participating library can access and borrow ebooks, audiobooks, and magazines for free. Check out more through this link here.
  • The State Library of Ohio provides access to reading materials to individuals with disabilities through several programs.
    The State Library, along with the Cleveland Public Library and the National Library Service for the Blind and Print Disabled, provides audio, braille, and downloadable books to eligible residents. In addition, the State Library and the Ohio School for the Deaf partner to provide the Deafness Outreach Collection maintained at the State Library. Find more information through this link
  • Ohio Housing Locator Tool can be used to find shelters, emergency housing and apartments.
  • Opportunities to volunteer in Ohio https://ohio.gov/residents/topic-hubs/home-and-community/volunteer/volunteer
  • Ohio has a database that helps fund training that people need in order to work or maintain a job. Read more through this link

Resources for the Blind Community

  • Free literacy program for blind and low-vision children 0-8 years old. Families receive free Braille books, activities, birthday cards, and more. Fill out an application and learn about other resources from National Federation of the Blind online.
    200 East Wells Street, Baltimore, Maryland 21230
    (410) 659-9314
    nfb.org/programs-services/early-childhood-initiatives
  • National Federation of the Blind Free Braille Slate and Stylus Program https://nfb.org/programs-services/free-slate-and-stylus-program
  • Hadley Helps Founded in 1920 by William Hadley, an educator who lost his eyesight later in life, Hadley offers practical help, connection and support free of charge to anyone with a visual impairment, their families and professionals supporting them. With Hadley, you can discover new ways to do things that have become more difficult due to vision loss and connect with a network of peers who “get it.” And you don’t need to come to Hadley. Hadley’s help comes to you; online, on the phone or through the mail

Miscellaneous Resources

  • Expertise LLC
    1525 4th Avenue Suite #700, Seattle, WA 98101
    Expertise.com researched and developed a pretty comprehensive resource for people living with disabilities.  The guide aims to help make the federal grants available to seniors, veterans, and disabled people much easier to understand and take advantage of, particularly for remodeling homes for accessibility.
    For many people, owning and maintaining a home is one of the most significant investments they ever make.  But for individuals and veterans living with disabilities or special needs, or seniors aging in place, the fact that much of the world outside is not built to accommodate their needs magnifies the value of a comfortable home.  It’s vital they and their loved ones have access to the best resources about how to make their homes livable and enjoyable.

Friday Resource Round Up!

Every Friday we have decided to now share 5-10 resources that we came upon this week to people with disabilities, families and caregivers across Ohio.

Grants

The Community Fund Grant

1. This grant helps people with disabilities who need to cover durable medical equipment or medical expenses that aren’t covered by insurance. They have bigger grants for people receive Medicaid and other forms of government assistance. They have grants for people smaller that don’t receive government assistance. The forms are on their website. Next Deadline is September 30th, 2025.

Phone Apps

Let Me Do It App

This is app for people who use Supported Decision Making. It allows people to invite people to help them complete steps in a decision they want to make.

Augmentative and Alternative Communication (AAC Resources)

  1. Picto4Me – Create and Share Picture Exchange Communication Board
  2. Ohio Developmental Disabilities Communication Boards

Low Cost Things to Do

Museums 4 All

“Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,500 museums throughout the United States simply by presenting their EBT card and a photo ID.”

Resources for the Blind Community

Hadley Helps
Founded in 1920 by William Hadley, an educator who lost his eyesight later in life, Hadley offers practical help, connection and support free of charge to anyone with a visual impairment, their families and professionals supporting them. With Hadley, you can discover new ways to do things that have become more difficult due to vision loss and connect with a network of peers who “get it.” And you don’t need to come to Hadley. Hadley’s help comes to you; online, on the phone or through the mail.

Miscellaneous Resources

Build your own family health portrait.

The Pulse: What’s going on around Ohio August 11th 2025 to August 30th 2025

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Are you unavailable for our town halls this month? We’ve got another way for you to participate.
    By spending 10 minutes taking our Statewide Needs Assessment survey, you can help guide programs and services for Ohio’s older adults.
    Take the survey: https://www.surveymonkey.com/r/ODANeedsAssessment

Events around Ohio to For August 13th-August 31st 2025

Tuesday August 12th 2025

  • Early Childhood Open Play, Tuesday, Aug 12 · 10:45–11:45 AM, Repeats weekly Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend. Click this link to sign up .
  • We Thrive Together will be hosting a tech talk on internet basics from 11 AM. to noon. You can use the link to Join the event.
  • Breakingaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com

Wednesday August 13th 2025

  • OSDA at We Thrive Together 11:00-12:00pm
  • Supported Decision Making Network of Ohio 12:00pm-1:30pm This is for anyone who is interested in knowing more about supported decision making. https://www.sdmno.org
  • Map to Adulthood, Wednesday, Aug 13 · 1:00-4:00 PM 3325 Shawnee Rd
    Lima, OH 45806, USA for more information check out this link on Facebook.
  • Webinar: Medicaid Cuts in H.R.1 – Updates for Aging Advocates, Wednesday, Aug 13 · 3:00-4:00pm For more information and Link to register .

Thursday August 14th 2025

  • The 2025 Accessible Ohio Conference and Expo will take place on Thursday, Aug 14, 2025 from 8 AM. to 4 PM. at 2400 Olentangy River Rd, Columbus, OH 43210 USA
  • We Thrive Together will be hosting a tech talk on the social media app X, formerly known as Twitter from 11 Am. to noon. To join, click the link to Join Event.
  • OSDA Creative Changemakers will take place on Thursday, Aug 14, 2025 from 4:30 PM. to 5:30 PM. Notes Its a group of peers/self-advocates who meet once a month to hang out and talk about issues facing people with disabilities in Ohio This group supported by the Ohio Self-Determination Association. Change Makers was created by and is run by people with disabilities because they wanted to extend their advocacy conversations beyond the COOL meetings. Please Contact one of the emails listed   clareschloemer.osda@gmail.com 
      nrichards@clearwatercog.org 
     osda2011@gmail.com
  • Butler County Board of DD Board Meeting, Thursday, Aug 14 · 6–8 PM, Repeats every month on the second Thursday 282 N Fair Ave, Hamilton, OH 45011-4222, United States Our regularly scheduled board meeting is at the Janet Clemmons Center at 282 N. Fair Avenue, Hamilton, OH 45013. To download the agenda, click this link: https://www.butlerdd.org/events/board-meetings/
  • Disability Rights Peer Support Group, Thursday, Aug 14 · 6:00-7:30pm Independence Alliance hosts a virtual gathering once a month called the Disability Rights Peer Support Group. This group is for all ages and all disability types.
    Every meeting will focus on a different topic relating to disability and advocacy, such as housing rights, transportations rights, rights for students, rights as an employee, and more! Learn how to advocate for yourself and others on the topic of disability. Get your questions answered about reasonable accommodations, self-advocacy, and your rights under the law. Meet people in your community and work together to make the world more accessible. Hope to have you there!
    contact info@independence alliance.org
  • Join us for our first Accessibility & Brews on Thursday, August 14th from 6:00-7:30pm at Esoteric Brewing in Walnut Hills. We will have an open discussion about what accessibility issues you have experienced in Greater Cincinnati and how we can take action to make things better! We will also take note of our venue and what sort of accessibility features it has and doesn’t have.
    This is a great opportunity to share your experiences in a safe group of people and to learn ways to advocate for more accessibility! Independence Alliance will provide some appetizers for the group, but drinks must be purchased separately by attendees.
    Register here to get on the email list with updates on where we are meeting each month: https://forms.office.com/Pages/ResponsePage.aspx?id=mybgU_FvS0-ZdLqaI4xa79cPgwHYPSRLtOj7bmI35nZUMUpTMlhDM1JIWkhYMEFVV1lBR1ZUWkVPVi4u
    Information on the Venue for 8/14:
    Address: 918 E McMillan St, Cincinnati, OH 45206
    Parking: Street parking available as well as a paid lot behind the venue. Pay using the kiosk or parking app.
    Public Transit: There are four bus stops nearby the venue.

Saturday August 16th 2025

  • Things that Go Touch a Truck Event, Saturday, Aug 16 · 12–2 PM

Wednesday August 20th 2025

  • OSDA at We Thrive Together 11:00-12:00pm Wethrivetogether.org
  • 👀 ➡ People First of Northeast Ohio invites you to join them Wednesday, August 20th at 6:30pm for an interactive workshop on AI and ChatGPT designed specifically for self-advocates (allies also welcome)!
    click link for the event .
    Questions? Contact Amy at Amy.Mordaunt@thearcofohio.org

Thursday August 21st 2025

  • 🚗 Mahoning County: Let’s Talk Transportation!
    Do you rely on public transit—or help others who do? Your voice matters. Join us for the Coordinated Transportation Plan Public Meeting to share your experiences and help shape future services for seniors, people with disabilities, and all riders.
    📅 Thursday, August 21, 2025
    🕐 1 PM–3 PM
    📍 Eastgate Regional Council of Governments
    100 E. Federal St., Youngstown, OH 44503
    Accessible location. Language interpretation available—just ask!
    Questions? Contact Mirta Reyes-Chapman at mreyes-chapman@eastgatecog.org or (234) 254-1516.
    MahoningCounty

Monday August 25th 2025

  • Waiver Modernization – interRAI Rollout for People Served and Families, Monday, Aug 25 · 12–1 AM for more information and to register click this link here.

Tuesday August 26th 2025

  • Early Childhood Open Play, Tuesday, Aug 26 · 10:45–11:45 AM, Repeats weekly Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
    Sign up here:
  • ASPE State Policy Coffee Talk, Tuesday, Aug 26 · 3–4 PM, Repeats every month on the last Tuesday
  • Southwest Ohio Advocacy Group, Tuesday, Aug 26 · 6–8 PM, Repeats every month on the fourth Tuesday this month it is virtual please contact jen.powersalge@thearcofohio.org

Wednesday August 27th 2025

  • OSDA at We Thrive Together 11:00-12:00pm Wethrivetogether.org
  • Essentials for the Solo Ager: Navigating Housing Options, Wednesday, Aug 27 · 5:00-7:00pm check out this link for more information.
  • 🎖️ Learn How to Better Serve Those Who Served Us — Register Now!
    Join us for the Introduction to Veterans Benefits & Services — a comprehensive, two-day virtual workshop designed to equip professionals with the tools and knowledge to support veterans and their families.
    August 27 & 28
    9:00 AM – 12:00 PM (both days)
    Live on Zoom
    Earn 5.5 CEUs (Social Workers & Nurses) 130 – CEUs included
    This course covers:
    State Veterans Affairs programs & eligibility
    Health & mental health services for veterans
    Navigating the benefits application process
    Community resources to assist veterans
    Don’t miss this opportunity — register now and enhance your ability to support veterans in your community:
  • 📢 Attention Providers and County Boards!
    DODD invites you to attend an informational webinar about the upcoming switch to the interRAI assessment tool!
    In the session, you’ll learn how this transition will:
    ☑️ Improve assessments
    ☑️ Better match services to your needs
    ☑️ Strengthen Ohio’s waiver program
    📅 Webinar Dates:
    Providers- August 27 at 11 AM
    County Boards- September 2 at noon
    ASL (American Sign Language) and CART (Communication Access Real-time Translation) will be provided, and sessions will be recorded.
    Don’t miss these important updates! Register now: https://bit.ly/425ZkOS
  • Warren County board of developmental disabilities is holding an event that is a great way to come together to learn and support one another. It will take place Wednesday August 27th from 3:00pm-4:00pm.
    Click the link below to register:
    https://osu.zoom.us/meeting/register/tJYkc-mtqD4rE9PyI6bcXb9k8TstfixpVHvS#/registration

Thursday August 28th 2025

  • LifeCourseConnect Webinar, Thursday, Aug 28 · 3:00-4:00pm Join DODD for a webinar on Thursday, on Thursday, August 28, at 3 PM to learn about Ohio LifeCourseConnect (LCC), a project that helps people with developmental disabilities make a life plan based on what matters most to a project that helps people with developmental disabilities make a life plan based on what matters most to them. This project was created with the help of DODD and uses Charting the LifeCourse planning tools. In this webinar, DODD will share what the department learned from a pilot project that included 63 people and their supporters from 29 counties in Ohio, between September 2024 and June 2025.
    You’ll hear how the project helped people build life plans focusing on their real goals, dreams, relationships, and support.
    If you need an accommodation, please email
    stacy.collins@dodd.ohio.gov
    Use the link to Register for the Session :
  • Burlington House Healthcare Center will be hosting a Dementia Support Group on August 28th. The event is open to all and will be facilitated by Licensed Social Worker, Grace Hissett. Light refreshments and snacks will also be provided! 💜
    📆 Thursday, August 28 | 5:30 to 7 p.m.
    📍 2222 Springdale Road, Cincinnati, OH 45231

Friday August 29th 2025

  • Sparkle for a Cause- A Kendra Scott Fundraiser Benefiting Positivity Spectrum check out more information through there Facebook link online.

Saturday August 30th 2025

Sunday August 31st 2025

Helpful Information by National, State and County Agencies and Organizations for People to Read

Open Housing List and Opportunities

  • The Portage Metropolitan Housing Authority in Ohio is closing the Housing Choice Voucher Program on August 31, 2025. Go to the link and click “Apply On Agency Website” to apply.

August Awareness Causes

Children’s Eye Health And Safety Month

Spinal Muscular Atrophy Awareness (SMA.) Month

Autoinflammatory Awareness Month

Psioriasis Action Month

Bone Marrow Stem Cell Donation And Leukemia Awareness Month

National Wellness Month

Organ And Tissue Donor Month

Digestion And Destigive Tract Paralysis Awareness Month

World Cancer Support Awareness Month

Awareness Days:

Aug. 1. World Lung Cancer Day

Aug. 7. National Purple Heart Day

Aug. 7. World Periventricular Nodular Heterotopia Disorder Day

Aug. 17. National Nonprofit Day

Aug. 19. World Humanitarian Day

Aug. 20. National Accessible Air Travel Day

Aug. 21. National Senior Citizens Day

Aug. 26. Women’s Day Of Equality

Aug. 30. International Overdose Awareness Day 

Aug. 30. National Grief Awareness Day

August Awareness Weeks:

• First Week Of August: National WIC. Breastfeeding Week 

• First Week Of August: World Breastfeeding Awareness Week

• National Wellness Week

• International Assistance Dog Week

• National Ecizema Week

• National Health Center Week

• International Assistance Dog Week

• Aug. 24th through Aug. 30th. Black Breastfeeding Week  

Anniversary of The Americans with Disabilities Act !

Today marks the 35th anniversary of the signing of the Americans with Disabilities Act (ADA).

This landmark legislation protects people with disabilities from discrimination in all areas of public life, including employment, education, transportation, and access to public and private spaces open to the general public. The ADA was enacted to ensure that people with disabilities enjoy the same rights and opportunities as everyone else.

Learn more about the ADA and its continued impact here: https://adata.org/learn-about-ada

Please read the ADA Proclamation put out by Ohio Governor.

In the Name and by the Authority of
THE STATE OF OHIO
WHEREAS, the Americans with Disabilities Act (ADA) was signed into law on July 26, 1990, to ensure the civil rights and equal opportunity for people with disabilities; and
WHEREAS, this year marks the 35* anniversary of the ADA; and
WHEREAS, the ADA has been instrumental in protecting people with disabilities in many areas of everyday life; and
WHEREAS, as a member of the U.S. House of Representatives, Mike DeWine had the honor of voting for this critical legislation; and
WHEREAS, about 42 million Americans have a disability, including more than 1.6 million Ohioans; and
WHEREAS, the FY 24-25 state operating budget signed by Governor Mike DeWine and supported by the Ohio Department of Developmental Disabilities and Opportunities for Ohioans with Disabilities included language to encourage more community engagement by increasing funding for universal changing tables in public places, reserving a seat on county board of developmental disabilities for people who receive services, and launching Accessible Ohio which creates the first-ever coordinated effort in Ohio to support cities, counties, state agencies, attractions, and venues to be accessible and inclusive.
WHEREAS, the ADA has expanded opportunities for Americans with disabilities by changing perceptions and increasing full participation in community life; and
WHEREAS, one of Mike DeWine’s first acts as Governor was to sign an executive order establishing Ohio as a Disability Inclusion State and Model Employer of Individuals with Disabilities; and
WHEREAS, Ohio has invested the most funds in the nation for universal changing tables in public places, reserves a seat on county boards of developmental disabilities for people who receive services, and launched Accessible Ohio which creates the first-ever coordinated effort in Ohio to support cities, counties, state agencies, attractions, and venues to be accessible and inclusive; and
NOW, THEREFORE, we, Mike DeWine and Jim Tressel, Governor and Lieutenant Governor of the State of Ohio, do hereby recognize the 35* Anniversary of
AMERICANS WITH DISABILITIES ACT
on this 11″ of July 2025;
Mike DeWine Governor

Image description
In the Name and by the Authority of
THE STATE OF OHIO
WHEREAS, the Americans with Disabilities Act (ADA) was signed into law on July 26, 1990, to ensure the civil rights and equal opportunity for people with disabilities; and
WHEREAS, this year marks the 35* anniversary of the ADA; and
WHEREAS, the ADA has been instrumental in protecting people with disabilities in many areas of everyday life; and
WHEREAS, as a member of the U.S. House of Representatives, Mike DeWine had the honor of voting for this critical legislation; and
WHEREAS, about 42 million Americans have a disability, including more than 1.6 million Ohioans; and
WHEREAS, the FY 24-25 state operating budget signed by Governor Mike DeWine and supported by the Ohio Department of Developmental Disabilities and Opportunities for Ohioans with Disabilities included language to encourage more community engagement by increasing funding for universal changing tables in public places, reserving a seat on county board of developmental disabilities for people who receive services, and launching Accessible Ohio which creates the first-ever coordinated effort in Ohio to support cities, counties, state agencies, attractions, and venues to be accessible and inclusive.
WHEREAS, the ADA has expanded opportunities for Americans with disabilities by changing perceptions and increasing full participation in community life; and
WHEREAS, one of Mike DeWine’s first acts as Governor was to sign an executive order establishing Ohio as a Disability Inclusion State and Model Employer of Individuals with Disabilities; and
WHEREAS, Ohio has invested the most funds in the nation for universal changing tables in public places, reserves a seat on county boards of developmental disabilities for people who receive services, and launched Accessible Ohio which creates the first-ever coordinated effort in Ohio to support cities, counties, state agencies, attractions, and venues to be accessible and inclusive; and
NOW, THEREFORE, we, Mike DeWine and Jim Tressel, Governor and Lieutenant Governor of the State of Ohio, do hereby recognize the 35* Anniversary of
AMERICANS WITH DISABILITIES ACT
on this 11″ of July 2025;
Mile
Mike DeWine
Governor

The Pulse: What’s going on around Ohio July 14 to July 19th

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • The Synergy Committee is seeking nominations for several awards that will be given out at the SYNERGY Conference in October. This is YOUR chance to nominate ANYONE who is making a difference! It is important to take the time to recognize outstanding people that go above and beyond. Who can be nominated in each of the award categories? EVERYONE! It can be an advocate, family member, person served, local partner, a provider or DSP, a county board staff person, a teacher, legislator, a community member, an employer, or anyone else who you think is deserving of one of these awards. DEADLINE FOR ALL NOMINATIONS IS JULY 31st.
    SUBMIT YOUR NOMINATION USING THE LINK BELOW:
    https://conta.cc/4jM40QK y.
  • The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
    This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
    To SIGN UP: Call 1-833-678-7782
  • Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.

Events around Ohio to check out week of July 14 2025 to July 19th 2025

Monday July 14th 2025

  • There will be a wellness workshop from We Thrive Together on coping with stress and change from 11 AM. to noon. If you want to attend, click the link below:
    Join Event
  • We Thrive Together will also be hosting a relationships workshop on laughter from 3-4 PM. Click the link below if you wish to astend.
    Join Event

Tuesday July 15th

  • There will be an Early Child Playdate from 10:45 AM to 11:45 AM. 
    Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
    Sign up here
  • We Thrive Together will host a life skills on shopping and discounts from 4-5 PM. You can click the following link to attend:
    Join Event
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday July 16th 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • The Basics of Advocacy, Tuesday, Jul 8 · 2:30–3:30 PM Join us and our partners at the Ohio Developmental Disabilities Council and Ohio Statewide Independent Living Council for a three part Advocacy Training Series.
    We hope to see you at one or all three! Register here⬇️
    3️⃣ – July 16 – Engaging with Policymakers: https://bit.ly/ats3ewp
  • Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
  • Synergy Accessibility Committee 1215- 1:45pm
  • The Butler County Board Of DD. will be having an annual provider meeting from 10 AM. to noon.

    Notes Join us for our regular provider meetings so you can stay up to date on the latest information.

    Meetings are currently all via Zoom. You can request the link by emailing Cathy Borders at  cmborders@butlerdd.org 
  • NWD Webinar on Supporting Patients With Chronic Illness Across Care Settings, Wednesday, Jul 16 · 3–4 PM Registration: link https://lewin.zoom.us/meeting/register/NwwjO_u6TFK5UoVDBHM_Uw#/registration?os=ipad
  • People First of Northeast Ohio, Wednesday, Jul 16 · 6:30–8 PM, Repeats every month on the third Wednesday People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday 17th 2025

  • Carnival of Abilities, Thursday, Jul 17 · 10 AM–1 PM Easterseals Redwood’s Carnival of Abilities celebrating Disability Pride month. Games, food, music, and a visit from the Gapper and Mr. Redleg’s. 2901 Gilbert Ave Cinti. 45206
  • Clermont County Superintendent Forum, Thursday, Jul 17 · 12–1 PM Register here: https://www.surveymonkey.com/r/2025ClermontDDSuperintendentForum

Friday July 18th 2025

No events known

Saturday July 19th 2025

No events known

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • ⛑️ Emergency and safety preparedness saves lives – and plans must include everyone.
    For people with disabilities, children, and older adults, accessible preparedness is critical. The United States Department of Justice outlines three key phases of emergency management: preparation, response, and recovery – and all must be accessible.
    ✅ Safety plans should clearly outline procedures.
    ✅ Use multiple alert formats (visual, tactile, etc.).
    ✅ Install accessible alarms and equipment.
    ✅ Train staff in disability etiquette and safety roles.
    ✅ Ensure service animals can evacuate with their owners.
    Tools like stair-climbing wheelchairs and communication aids can make all the difference. Together, we can build a culture of preparedness that protects everyone.
    ➡️ For more info, check out the #AccessibleOhio Safety & Emergency Management resource: link
    AllAboutAccessibility #SafetyFirst
  • Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
    Read: http://aging.ohio.gov/AdultDayOhio
  • Know Your Rights: Communication Disability Law
    People with a medically diagnosed communication disability can voluntarily enroll in a database linked to Ohio’s Law Enforcement Agencies Data System (LEADS). 
    This helps notify officers during traffic stops that someone in the vehicle may have difficulty communicating, promoting safer, more informed interactions. It’s free, optional, and designed to reduce misunderstandings. 
    Learn more about the Communication Disability Law and download the Communication Visor Card here.
  • 📢 Thanks to recent grants awarded to Council on Aging, our home52 Transportation service is now offering no-cost rides for medical and other purposes to disabled Hamilton County residents age 18+ who meet income guidelines.
    home52 Transportation provides door-through-door services utilizing specialized vehicles and trained providers to ensure safe rides for adults with varying needs. 🚗
    Review requirements to qualify for this grant-funded transportation and download a registration form: https://bit.ly/3FmqyJF.
    Those who aren’t eligible for grant-funded rides may pay privately. Call our coordination center to get pricing for your ride at (855) 546-6352..
  • Veterans who need nursing home care but prefer living at home can enroll in the Veterans Directed Care Program at WRAAA. This program lets veterans hire personal direct-care workers, giving them more control over their long-term care. More details here: https://bit.ly/3XcvbMT
    MDA held webinars in May to support assessors with completing the WLA on the new assessment platform. A recording of these webinars can be found on the current and immediate needs webpage. Click hereto access the recording.
     
    For questions, please email WLA@dodd.ohio.gov
  • Ohio has announced its 2025 sales tax holiday, which will run for two weeks this year. https://nbc4i.co/43yipK1?utm_medium=social&utm_source=facebook_NBC4
  • The Family Caregiver Support Program (FCSP) supports family and informal caregivers in caring for loved ones at home. You’re a family caregiver if you help care for an older relative, spouse, or loved one. For free information and referrals for in-home care, respite, adult day programs, and more, go to: https://bit.ly/3NN8Joa or give us a call at 216-586-3441.
  • The 2025 WRAAA Five-County Transportation Guide helps older adults, individuals living with disabilities, and caregivers find transportation options for individuals from Cuyahoga, Geauga, Lake, Lorain and Medina counties. Order or download free copies today through this link .
  • Here’s a video about a tool kit on supported decision making.
  • Caring for a child with complex needs is 24/7. Respite care can make a difference. 💙
    Here is a fact sheet with helpful information.
    If you need help finding respite care for your child, please reach out to us at Ohio Family to Family.
    Email: Ohiof2f@cchmc.org
    Intake Form
  • Want to Help Create Positive Change for Ohioans with Developmental Disabilities?
    Apply to Become an ODDC Council Member!
    ODDC wants members who have personal experience with DD and who understand the needs of their communities. As a Council member appointed by Ohio’s Governor, you will help plan advocacy efforts, support community programs, and work on changes that improve the lives of people with DD and their families.
    Learn more and apply here:
  • Did you know you that 24/7 medical support provided by StationMD is a covered service for Ohioans enrolled in the Individual Options, SELF, or Level One waiver?
    StationMD has provided telehealth care for the I/DD community across 22 states since 2016. Their services ensure immediate, expert care without a trip to the ER. All clinicians are trained and specialized in the nuances of working with people with I/DD, including communication differences and co-occurring conditions.
    “They are respectful and value what the person is saying, regardless of how they’re saying it,” said StationMD Account Executive Sarah Davies. “They go the extra mile.”
    Read more about StationMD and the services available in our most recent newsletter: https://bit.ly/4g5ZRqc

This Month in Awareness

  • Disability Pride Month
  • National Cleft And Craniofacial Awareness And Prevention Month
  • National Fragile X Syndrome Awareness Month
  • Sarcoma Research Awareness Month
  • National Minority Mental Health Awareness Month
  • UV. Safety Month
  • Juvenile Arthritis Awareness Month
  • Blood Cord Awareness Month
  • Healthy Vision Month
  • National Wheelchair Beautification Awareness Month


For more events check out our main website OhioAdvocacyHeartbeat.com

The Pulse: Special Edition What’s going on around Ohio June 30th to July 13th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • The Synergy Committee is seeking nominations for several awards that will be given out at the SYNERGY Conference in October. This is YOUR chance to nominate ANYONE who is making a difference! It is important to take the time to recognize outstanding people that go above and beyond. Who can be nominated in each of the award categories? EVERYONE! It can be an advocate, family member, person served, local partner, a provider or DSP, a county board staff person, a teacher, legislator, a community member, an employer, or anyone else who you think is deserving of one of these awards. DEADLINE FOR ALL NOMINATIONS IS JULY 31st.
    SUBMIT YOUR NOMINATION USING THE LINK BELOW:
    https://conta.cc/4jM40QK
  • Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
  • Ohio Department of Developmental Disabilities is asking people to take a survey on self direction for waiver participants. Click on this link to do the survey.
  • The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
  • The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
    This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
    To SIGN UP: Call 1-833-678-7782
  • 2025 Disability/Deaf and Abuse Survey
    This national survey seeks to enhance our understanding of the prevalence of abuse— including sexual abuse, physical assault, coercion, harassment, and exploitation—among individuals with disabilities, as well as those who are Deaf, Hard of Hearing, or Deaf-Blind.
    Your experience matters. The findings will help us develop research, interventions, and policy recommendations to advocate for strengthening protections against abuse and improving support for survivors. Click this link to take the survey.
  • Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
  • 5 Minutes. 3 Actions. 1 Voice for Disability Rights.
    Speak Up Now: Protect Disability Access Rights!
    https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
    There are TWO public comment opportunities that need the attention of the disability community.
    🌟 Public Comment One: Protect Disability Access Rights! – The U.S. Department of Energy is trying to eliminate important disability protections. The department is trying to change part of Section 504 of the Rehabilitation Act that ensures new buildings are accessible to people with disabilities. This move could set a dangerous precedent. If they succeed, other federal agencies might try to do the same. This will weaken protections that millions rely on.
    🌟 Public Comment Two: Direct final rule on nondiscrimination – The U.S. Department of Energy (DOE) wants to remove 12 civil rights rules. Part of these 12 are disability access protections. They say the rules are “unnecessary,” “outdated,” or not supported by law. They are using a fast-track process called a “direct final rule.”
    This is urgent! If thousands do not make comments, the rule will take effect July 15, 2025.
    The deadline to submit your comment(s) is Monday, June 16th at 11:59 PM EDT.
    Take Action Now!
    It only takes a few seconds: https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/

Events around Ohio to check out week of June 30th 2025 to July 13th 2025

Monday June 30th 2025

  • DODD Announces Keeping Families Together: Stories of Family Resiliency Webinar, Monday, Jun 30th 12:00pm-1:00pm DODD Announces Keeping Families Together: Stories of Family Resiliency Webinar 
    Attention: County Boards, Councils of Government, Systems of Care Partners
    Learn more about how Governor DeWine’s ‘Keeping Families Together’ (KFT) initiative has impacted communities across Ohio through innovative solutions. Join DODD virtually on June 30 at noon to hear from local leadership and their creative partnerships with DODD. 

    Join the Teams meeting 
    Meeting ID: 239 306 445 048 0 
    Passcode: SU2Kv9Bg 

    Dial in by phone 
    +1 614-721-2972,,646450878# 
    Phone conference ID: 646 450 878# 

    Join on a video conferencing device
    Tenant key: 682042763@t.plcm.vc
    Video ID: 111 212 697 1
  • Mental Health Round Table 4:00-6:00pm 611 Walnut St
    Martins Ferry, OH 43935, USA

Tuesday June 1 2025

  • Disability Pride Flag Raising, Tuesday, Jul 1 · 11:00 AM–12:00 PM Join the City of Cincinnati as we proudly kick off Disability Pride Month with the Disability Pride Flag Raising Ceremony on Tuesday, July 1, 2025, from 11:00 a.m. to 12:00 p.m. at Cincinnati City Hall (801 Plum Street, Cincinnati, OH
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.
  • Neighbors in Action a group for people with disabilities in Hamilton County, Ohio will meet 4:00-5:00 pm they have a special guest Alex Lomicka from Ohio Association of County Boards of DD click this link to join the meeting.

Wednesday July 2 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
  • Synergy Accessibility Committee 1215- 1:45pm

July 3-6th

  • No Known Events

Monday July 7th 2025

  • Careers with Peers Council 6:00-7:30pm 776 N Main St
    Springboro, OH 45066, USA Join us for Careers with Peers Council at Doubleday’s in Springboro on Monday, July 7, from 6 to 7:30 p.m. for a conversation about Professionalism!
    To RSVP, contact Cheri Cummings at (513) 806-8591 or careerswithpeerscouncil@warrencountydd.org
  • Mental Health Round Table 4:00-6:00pm 130 Fair Street Barnesville, OH 43713

Tuesday July 8th 2025

  • The Basics of Advocacy, Tuesday, Jul 8 · 2:30–3:30 PM Join us and our partners at the Ohio Developmental Disabilities Council and Ohio Statewide Independent Living Council for a three part Advocacy Training Series.
    We hope to see you at one or all three! Register here⬇️
    1️⃣ – July 8 – The Basics of Advocacy: https://bit.ly/ats1basics
    2️⃣ – July 9 – The Legislative Process: https://bit.ly/ats2leg
    3️⃣ – July 16 – Engaging with Policymakers: https://bit.ly/ats3ewp
  • Celebrating the Americans with Disabilities Act (ADA): How Assistive Technology (AT) Supports Daily Life and Work, Tuesday, Jul 8 · 3:00-4:00PM DescriptionJoin the Disability Employment Technical Assistance Center (DETAC) for a special webinar in honor of the 35th anniversary of the Americans with Disabilities Act (ADA), with a focus on how technology is shaping the future of accessibility. The ADA affirms a simple but powerful principle: Individuals with disabilities who want to work should be able to work. In today’s fast-paced technology-driven world, there have been advancements made with tools to increase accessibility. At the same time, there are basic assistive technology (AT) tools that continue to be overlooked as a solution. The webinar panel from the Assistive Technology Act Technical Assistance and Training Center (AT3 Center) will focus on increasing access to and acquisition of AT tools across the lifespan. The panel will share examples of how AT is that critical bridge to helping break down barriers and provide innovative approaches for one to be more independent within the workplace and the broader community.
    Register through this link for the event.
  • SARTEC Plain Language Webinar, Tuesday, Jul 8 · 4:00-5:00pm This is a Webinar for Government and Non-Profits Agencies. Plain language writing makes your work better — and it’s more accessible for people with disabilities and English language learners. Learn the ins and outs of plain language in this webinar. Click on the link to register.
  • Disability Q*mmunity, Tuesday, Jul 8 · 6:00- 7:30 PM contact Independence Alliance for more information.

Wednesday July 9th 2025

  • Ohio Domestic Violence Network is offering a workshop called Beyond Shelter: Advancing Housing Advocacy for Survivors, Wednesday, Jul 9 · 9:30 AM–3:30 PM please click this link to learn more. There is a fee for the workshop .
  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • Supported Decision Making Network of Ohio 12:00-1:30pm click this link to join the meeting
  • Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
  • The Legislative Process, Wednesday, Jul 9 · 4:00-5:00pm (See links from previous day. )
  • Mental Health Round Table 4-6pm 11:30-1:00pm 155 Clark St.
    Powhatan Point, OH 43942

Thursday July 10th 2025

  • First Annual Youth/Young Adults with Disabilities – One Day Event, Thursday, Jul 10 · 12:30–4:00pm Ritter Public Library, 5680 Liberty Ave, Vermilion, OH 44089
  • OSDA Creative Changemakers, Thursday, Jul 10 · 4:30–5:30 PM, Repeats every month on the second Thursday ts a group of peers/self-advocates who meet once a month to hang out and talk about issues facing people with disabilities in Ohio This group supported by the Ohio Self-Determination Association. Change Makers was created by and is run by people with disabilities because they wanted to extend their advocacy conversations beyond the COOL meetings. Please Contact one of the emails listed clareschloemer.osda@gmail.com
    nrichards@clearwatercog.org
    osda2011@gmail.com
  • Neurodiversity Social for Adults, Thursday, Jul 10 · 4:00 -6:00 PM 519 Wall St
    Cairo, OH 45820, USA
  • Disability Rights Peer Support Group, Thursday, Jul 10 · 6:00-7:30 PM contact Independence Alliance for more information.

Friday July 11th 20245

  • 35th Anniversary Celebration
    of the Americans with Disabilities Act, Friday, Jul 11 · 6:00-9:00pm Columbus Museum of Art
    480 E Broad St, Columbus, OH 43215, USA SAVE THE DATE
    35th Anniversary Celebration
    of the Americans with Disabilities Act Friday July 11, 2025, 6:00-9PM
    The Columbus Museum of Art,
    480 E. Broad St., Columbus 43215
    Drinks and Hors d’oeuvres
    All are welcome.
    There is no charge for attending this event,however, registration will be required.
    Keynote Speaker:
    Rebecca Cokley,
    Program Officer
    Ford Foundation’s first-ever
    U.S. Disability Rights program
    Link to full bio:

Saturday July 12th 2025

  • First Annual Disability Pride Month Picnic, Saturday, Jul 12 · 12:00pm-4:00pm Lake Shore Park
    Lakeshore Dr, Ashtabula, OH 44004, USA
  • SALUTE Storytellers Live!, Saturday, Jul 12 · 2:00- 3:00 PM The University of Toledo, 2801 Bancroft St, Toledo, OH 43606
  • You’re invited to MAKE ‘m SMILE Ohio – the BIGGEST party celebrating kids and adults with disabilities… our VIPs! – and the people who love them!
    ✅ Free fun for the whole family
    ✅ Games, characters, activities, and more
    ✅ Resources, giveaways, and smiles for days!
    📍 Location: Hartville Memorial Park (Hartville, OH)
    📅 Date: Saturday, July 12
    🕘 Time: 11 AM – 3 PM
    Don’t miss this unforgettable day of fun and resources!
    Register your VIP family today: https://nathanielshope.org/our-programs/make-m-smile/ohio/

Sunday July 13th

  • 11th Annual All Disabilities Festival, Sunday, Jul 13 · 1:00-5:00pm Columbus, Ohio check out this link to learn more.

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • ⛑️ Emergency and safety preparedness saves lives – and plans must include everyone.
    For people with disabilities, children, and older adults, accessible preparedness is critical. The United States Department of Justice outlines three key phases of emergency management: preparation, response, and recovery – and all must be accessible.
    ✅ Safety plans should clearly outline procedures.
    ✅ Use multiple alert formats (visual, tactile, etc.).
    ✅ Install accessible alarms and equipment.
    ✅ Train staff in disability etiquette and safety roles.
    ✅ Ensure service animals can evacuate with their owners.
    Tools like stair-climbing wheelchairs and communication aids can make all the difference. Together, we can build a culture of preparedness that protects everyone.
    ➡️ For more info, check out the #AccessibleOhio Safety & Emergency Management resource: link
    AllAboutAccessibility #SafetyFirst
  • Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
    Read: http://aging.ohio.gov/AdultDayOhio
  • Know Your Rights: Communication Disability Law
    People with a medically diagnosed communication disability can voluntarily enroll in a database linked to Ohio’s Law Enforcement Agencies Data System (LEADS). 
    This helps notify officers during traffic stops that someone in the vehicle may have difficulty communicating, promoting safer, more informed interactions. It’s free, optional, and designed to reduce misunderstandings. 
    Learn more about the Communication Disability Law and download the Communication Visor Card here.
  • 📢 Thanks to recent grants awarded to Council on Aging, our home52 Transportation service is now offering no-cost rides for medical and other purposes to disabled Hamilton County residents age 18+ who meet income guidelines.
    home52 Transportation provides door-through-door services utilizing specialized vehicles and trained providers to ensure safe rides for adults with varying needs. 🚗
    Review requirements to qualify for this grant-funded transportation and download a registration form: https://bit.ly/3FmqyJF.
    Those who aren’t eligible for grant-funded rides may pay privately. Call our coordination center to get pricing for your ride at (855) 546-6352..
  • Veterans who need nursing home care but prefer living at home can enroll in the Veterans Directed Care Program at WRAAA. This program lets veterans hire personal direct-care workers, giving them more control over their long-term care. More details here: https://bit.ly/3XcvbMT
  • Updates to the Waiting List Assessment Rule
    Attention: All County Boards, Service and Support Administrators, Councils of Governments
    The DODD Medicaid Development and Administration (MDA) division has updated the Comprehensive Guide for Waiting List Assessmentto coordinate with updates to the waiting list assessment rule (OAC 5123-9-04). These updates will be effective July 1, 2025. 
     
    MDA held webinars in May to support assessors with completing the WLA on the new assessment platform. A recording of these webinars can be found on the current and immediate needs webpage. Click hereto access the recording.
     
    For questions, please email WLA@dodd.ohio.gov
  • Ohio has announced its 2025 sales tax holiday, which will run for two weeks this year. https://nbc4i.co/43yipK1?utm_medium=social&utm_source=facebook_NBC4
  • The Family Caregiver Support Program (FCSP) supports family and informal caregivers in caring for loved ones at home. You’re a family caregiver if you help care for an older relative, spouse, or loved one. For free information and referrals for in-home care, respite, adult day programs, and more, go to: https://bit.ly/3NN8Joa or give us a call at 216-586-3441.
  • The 2025 WRAAA Five-County Transportation Guide helps older adults, individuals living with disabilities, and caregivers find transportation options for individuals from Cuyahoga, Geauga, Lake, Lorain and Medina counties. Order or download free copies today through this link .
  • Here’s a video about a tool kit on supported decision making.
  • Caring for a child with complex needs is 24/7. Respite care can make a difference. 💙
    Here is a fact sheet with helpful information.
    If you need help finding respite care for your child, please reach out to us at Ohio Family to Family.
    Email: Ohiof2f@cchmc.org
    Intake Form
  • Want to Help Create Positive Change for Ohioans with Developmental Disabilities?
    Apply to Become an ODDC Council Member!
    ODDC wants members who have personal experience with DD and who understand the needs of their communities. As a Council member appointed by Ohio’s Governor, you will help plan advocacy efforts, support community programs, and work on changes that improve the lives of people with DD and their families.
    Learn more and apply here:
  • Did you know you that 24/7 medical support provided by StationMD is a covered service for Ohioans enrolled in the Individual Options, SELF, or Level One waiver?
    StationMD has provided telehealth care for the I/DD community across 22 states since 2016. Their services ensure immediate, expert care without a trip to the ER. All clinicians are trained and specialized in the nuances of working with people with I/DD, including communication differences and co-occurring conditions.
    “They are respectful and value what the person is saying, regardless of how they’re saying it,” said StationMD Account Executive Sarah Davies. “They go the extra mile.”
    Read more about StationMD and the services available in our most recent newsletter: https://bit.ly/4g5ZRqc

This Month in Awareness

  • Disability Pride Month
  • National Cleft And Craniofacial Awareness And Prevention Month
  • National Fragile X Syndrome Awareness Month
  • Sarcoma Research Awareness Month
  • National Minority Mental Health Awareness Month
  • UV. Safety Month
  • Juvenile Arthritis Awareness Month
  • Blood Cord Awareness Month
  • Healthy Vision Month
  • National Wheelchair Beautification Awareness Month


For more events check out our main website OhioAdvocacyHeartbeat.com

Ohio Advocacy Communities and the State of Accessibility: A Challenge to Do Better!

All around me is this world that is inaccessible. It is a common practice in Ohio for people and advocacy groups to ignore the accessibility needs of their own community.

No one needs another meeting about this topic. It’s time to get it right and put out content that is accessible and inclusive.

When was the last time that your organization created a .txt file for someone who is blind to be able to participate and understand the content of your group? When was the last time you added an image description for the text content in your flyer when sending it out to others. Often people send out flyers on social media posts or constant contact emails to list servs without making sure that links are clickable or images have descriptions.

Most often people and organizations are sending out inaccessible content and when people speak up there is a lot of confusion around how to fix these issues or who is responsible to provide accessible information. Sometimes even there have been groups that want to argue and fight with individuals in the disability community about requests for accommodations or making their content accessible.

I have heard it all… Honestly I am tired of it. People have to stop saying it’s better to put out content to get content out then to take the time to make better content that is more accessible.. It is not okay to put content out just to put it there. When your organization puts out content there must be a pathway for someone to request an accommodation to view the content in an accessible way.

I understand accessibility might cost money. At the same time there are a lot of ways to improve accessibility without spending any money at all. It just takes additional time to be more accessible. People and organizations should not use the excuse of well this organization is volunteer run. That’s not an excuse to be inaccessible. Any government organization or non profit that holds a 501(c)3 except churches are required by the Americans with Disabilities Act to put out accessible content.

This blog offers some helpful resources to understand accessibility and ways you can make your content more accessible and inclusive to all.

The time is now Ohio to get it together because people want to be included and it is time people sit down and truly work to be more inclusive…

  1. Creating an Accessibility Statement and Accommodations Request

Every organization should have an accessibility statement. This tells people who to contact if something isn’t accessible and how to ask for accommodations when needed. It shows people you care about accessibility and are committed to putting out accessible content and to work on improving content. This should be visible and easy to find. For more information about creating accessibility statements here is a good resource to check out from the Web Accessibility Initiative.

2. Captions verses Image Descriptions

A caption is often a funny description about a picture. This isn’t the same as an image description. It also doesn’t tell people who might be blind or low vision or screen readers what is in the photo.

An image description simply describes all the content in the picture including a words, text, dates emails and links to websites. It also may describe shapes, colors, symbols or background logistics.

  • An image description should always include text specifically including links and email addresses. This description should also be put into a social media post and under Alternative text or Alt Text.
  • On facebook when you add a photo to a post, there are three dots that you hover or click on and drop down menu says “edit alt text” click on that l. Then it provides an opportunity for you to describe your picture. It is really important that any text in photo goes here.
  • Some people don’t like it when there is a lot of extra words with a post. To clean up the clutter you may also add email addresses or websites in a comment under the post is made. It it’s important to not put a period after an email address even if it’s at the end of sentence.

3. Add Captions to your Meetings or Video Content

4. Learn how to create a .txt File

A lot of people make this common mistake with PDF files around accessibility. An organization has purchased an upgraded version of Adobe that allows you to make PDF files accessible for screen readers. The problem is that people who receive these documents may not have access to Adobe or are able to afford Adobe so the content still becomes inaccessible for them. We need organizations to create both PDF and .Txt files because not everyone who is blind has access to a screen reader or enhanced software to be able to see the text in document. It is also important when possible to include audio descriptions of images as well.

It is also important to make alternative options for accessibility when sharing meeting minutes, meeting content, feedback surveys and organization content. If you put out an FAQ document about an important disability policy up in a .PDF or Word File. it’s important to let people know that the document can be Available upon request in other formats.

  • If anyone owns an apple phone or iPad or Mac you can easily create a .txt file by opening the “Note” app on apple and copying text into it and saving to your phone. It will automatically save as .txt file.
  • If you use Microsoft Word you can also save documents as a .RTF file or .Doc file and also will help with some accessibility challenges.

5. Plain Language

Plain language is super important for people to understand your content. Information should be below a six grade reading level. It should be free of acronyms. For more information about plain language visit this website .

6. Acronyms

It it’s important to limit the use of Acronyms. It makes it more difficult for people to understand the information and content shared when people use these three or four letter abbreviations.. It is better to say a full name of an organization or policy being referenced when first mentioning an organization or policy. It is also helpful if you are in a virtual meeting to put both abbreviations and whole title of group in the chat.

Here’s a good read about how Acronyms hurt efforts towards inclusion.

7. Use of Calendar invites

When possible make content available on your website to save in both ICal for Apple and for Google Calendar. This will help people who need assistance to get content in there calendars about an event.

8. Hashtags

When creating hashtags capitalize the first letter of each word so it’s easier to be read for example #BudgetWithCare or #AdvocacyMatters

9. QR Codes and Accessibility

QR Codes are amazing for some people and for others it’s a love hate relationship. It is important that when using a QR code that flyers and advertising also contain a clickable link for people to access the content in another manner. Sometimes it’s difficult for people to line a phone up against a QR code to scan and sometimes it’s a challenge to figure out what QR code is for. While QR codes help many people and make things faster it’s important to understand the benefits and risks of using QR codes with in your group or organization.

Here’s some information on QR codes and accessibility for you to read more .

10. Use image descriptions in virtual meetings and in person

I recently attended a National Arts Conference where every speaker used a visual description of themselves. You don’t know who is in the room that might need to know what you look like or the content in your slides.

Every time I make a video about my art or use art in a presentation I work to describe what It looks like. It adds time to my presentation but it makes people aware of what my art is representing and includes everyone in conversation.

Please work on making sure when you introduce yourself you visually describe yourself when possible.

All around we need to be more inclusive and accessible and stop holding meetings on whether your organization can be accessible or not because simple ways you can improve your content in this blog and even just asking people are in your spaces how can you be more inclusive or accessible goes along way.

Here are some additional resources could help people understand accessibility.

In the News Around Ohio

Here are some news articles related to advocacy, disabilities and events in Ohio in the last 30 days.

Check out the Facebook group Disability News and Events Around Ohio for more news articles

The Pulse: What’s going on around Ohio June 23rd to June 28th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
  • Ohio Department of Developmental Disabilities is asking people to take a survey on self direction for waiver participants. Click on this link to do the survey.
  • Tell us: What are your favorite ways to relax or practice self-care? Share your stories here.
    If you need to use the form differently, feel free to send attachments, pictures, or videos to nathan.turner@dodd.ohio.gov
  • The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
  • The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
    This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
    To SIGN UP: Call 1-833-678-7782
  • SHARE YOUR STORY, HELP FIGHT HUNGER! Poetry Is Life Publishing is compiling community poems and letters representing voices in our region from eight counties (Carroll, Holmes, Medina, Portage, Stark, Summit, Tuscarawas, and Wayne) who have experienced hunger. What do you crave from your community? Food, love, family, friendship, hope, peace, equality. Have you experienced hunger? What was it like? Submit your poem, letter or story for the opportunity to be included in the book. A portion of book sales will benefit the Akron-Canton Regional Foodbank. The deadline to submit is June 30, 2025.
    For more information please reach out by email at poetryislifepublishing@gmail.com
  • 2025 Disability/Deaf and Abuse Survey
    This national survey seeks to enhance our understanding of the prevalence of abuse— including sexual abuse, physical assault, coercion, harassment, and exploitation—among individuals with disabilities, as well as those who are Deaf, Hard of Hearing, or Deaf-Blind.
    Your experience matters. The findings will help us develop research, interventions, and policy recommendations to advocate for strengthening protections against abuse and improving support for survivors. Click this link to take the survey.
  • Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
  • 5 Minutes. 3 Actions. 1 Voice for Disability Rights.
    Speak Up Now: Protect Disability Access Rights!
    https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
    There are TWO public comment opportunities that need the attention of the disability community.
    🌟 Public Comment One: Protect Disability Access Rights! – The U.S. Department of Energy is trying to eliminate important disability protections. The department is trying to change part of Section 504 of the Rehabilitation Act that ensures new buildings are accessible to people with disabilities. This move could set a dangerous precedent. If they succeed, other federal agencies might try to do the same. This will weaken protections that millions rely on.
    🌟 Public Comment Two: Direct final rule on nondiscrimination – The U.S. Department of Energy (DOE) wants to remove 12 civil rights rules. Part of these 12 are disability access protections. They say the rules are “unnecessary,” “outdated,” or not supported by law. They are using a fast-track process called a “direct final rule.”
    This is urgent! If thousands do not make comments, the rule will take effect July 15, 2025.
    The deadline to submit your comment(s) is Monday, June 16th at 11:59 PM EDT.
    Take Action Now!
    It only takes a few seconds: https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/

Events around Ohio to check out week of June 23 2025 to June 28 2025

Monday June 23rd 2025

  • All-Abilities Adventure, Monday, Jun 23 · 11:00 AM–12:00 PM Dayton Metro Library – Miamisburg Branch, 545 E Linden Ave, Miamisburg, OH 45342
  • We Thrive Together Wellness: Exercises for All Abilities 11:00-12:00pm click this link to join the event.
  • The Electronic Visit Verification (EVV) Stakeholder Workgroup will meet virtually on Monday, June 23 from 2:30 – 4 p.m. This meeting is an opportunity to engage in meaningful discussion about enhancing and improving the EVV program in Ohio.
    During the June 23 meeting, we will:
    Highlight recent updates to the content and structure of the EVV website.
    Gather input on additional resources or improvements you’d like to see.
    Click the link to register!
  • Building Personal Networks of Support(4) Week Workshop 4:00-5:00pm to Register for this workshop check out this link . This workshop is for self advocates and families. Description: BUILDING PERSONAL NETWORKS (BPN)
    Do you want to be more connected and supported, but aren’t sure where to start?
    Join us, roll up your sleeves, and let’s build your personal network together!
    WHAT IS BPN?
    BPN is about creating community.
    It is an opportunity to:
    Focus on relationships that foster connection and growth.
    Identify key individuals who can play supportive roles.
    Plan with your loved one at the center of the process.

Tuesday June 24th 2025

  • We Thrive Together Tech Talk: Mainstream Accessible Technologies with Wood County DD 11:00am to 12:00pm click this link to join the event.
  • ASPE State Policy Coffee Talk, Tuesday, Jun 24 · 3–4 PM, Repeats every month on the last Tuesday
  • Nissonger-Family Resource Network Of Ohio CLTC. 1-hour Session, Tuesday, Jun 24 · 3:00-4:00pm Don’t miss our empowering 1-hour live session on Charting the LifeCourse! This event is a fantastic opportunity for individuals and families who want to explore how this framework can help achieve a good life. Spread the word and invite your friends and family too! There will be a 1-Hour CEU Available upon completion of the full 60-minute session.
    You can register for the session by clicking here:
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday June 25th 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
  • Webinar: Issues Facing LGBTQ+ Older Adults in 2025 and Beyond, Wednesday, Jun 25 · 3:00-4:00pm click this link to Register for the event.

Thursday June 26th 2025

  • Ohio ISP Statewide Gathering, Thursday, Jun 26 · 10:00-11:00am Attention: Qualified Intellectual Disability Professionals, Service and Support Administrators
    Join the OhioISP team for an informative and engaging statewide webinar on Thursday, June 26, at 10:00 AM. The OhioISP Team will provide an overview of the recent changes to the Major Unusual Incidents (MUI) rule and explore how these updates align with and connect to the OhioISP.
    Additionally, the team will highlight key accomplishments from the year so far and offer a preview of upcoming initiatives and priorities.
    Don’t miss this opportunity to stay informed and connected!
    Register for event through this link
    If you have any questions or need accommodations, please email OhioISP@dodd.ohio.gov
  • Capital City Crusaders Advocacy Meeting, Thursday, Jun 26 · 11:00 AM–12:00 PM 167 W Main St
    Chillicothe, OH 45601, USA
  • Tech Talk: Getting a Job Indeed Resume Builder Help 11:00am to 12:00 pm click this link to join the event.
  • Medicare 101 Workshop 1:00-2:00 pm. Check out this eventbrite link for more information.

Friday June 27th 2025

  • Services For Independent Living, Connect And Conversation, Friday, Jun 20 · 11 AM–12 PM Connect with Conversation June Topic: Assistive Technology that helps with Independent Living
    June 20th from 11:00am-12:00pm
    RSVP to Maddi Steimle at 216-903-2469 or msteimle@sil-oh.org

Saturday June 28 2025

  • Summer Deaf Kids Events 10:00am-12:00pm 10397 Springfield Pike, Cincinnati, OH 45215-1117, United States check out this Facebook link to learn more

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY
  • Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
    Read: http://aging.ohio.gov/AdultDayOhio
  • Know Your Rights: Communication Disability Law
    People with a medically diagnosed communication disability can voluntarily enroll in a database linked to Ohio’s Law Enforcement Agencies Data System (LEADS). 
    This helps notify officers during traffic stops that someone in the vehicle may have difficulty communicating, promoting safer, more informed interactions. It’s free, optional, and designed to reduce misunderstandings. 
    Learn more about the Communication Disability Law and download the Communication Visor Card here.
  • 📢 Thanks to recent grants awarded to Council on Aging, our home52 Transportation service is now offering no-cost rides for medical and other purposes to disabled Hamilton County residents age 18+ who meet income guidelines.
    home52 Transportation provides door-through-door services utilizing specialized vehicles and trained providers to ensure safe rides for adults with varying needs. 🚗
    Review requirements to qualify for this grant-funded transportation and download a registration form: https://bit.ly/3FmqyJF.
    Those who aren’t eligible for grant-funded rides may pay privately. Call our coordination center to get pricing for your ride at (855) 546-6352..
  • Veterans who need nursing home care but prefer living at home can enroll in the Veterans Directed Care Program at WRAAA. This program lets veterans hire personal direct-care workers, giving them more control over their long-term care. More details here: https://bit.ly/3XcvbMT
  • Updates to the Waiting List Assessment Rule
    Attention: All County Boards, Service and Support Administrators, Councils of Governments
    The DODD Medicaid Development and Administration (MDA) division has updated the Comprehensive Guide for Waiting List Assessmentto coordinate with updates to the waiting list assessment rule (OAC 5123-9-04). These updates will be effective July 1, 2025. 
     
    MDA held webinars in May to support assessors with completing the WLA on the new assessment platform. A recording of these webinars can be found on the current and immediate needs webpage. Click hereto access the recording.
     
    For questions, please email WLA@dodd.ohio.gov
  • Registration is now open for The Arc of Ohio 2025 Summer Conference!
    Friday, July 25, 2025
    Sponsorships have made it possible for very affordable registration.
    Register Here: https://www.eventbrite.com/e/the-arc-of-ohio-2025-summer-conference-tickets-1371627588039?aff=oddtdtcreator
    The Agenda was created before the annoucement of Director Hauck’s retirement. We hope to introduce the new director at this conference.
    The Arc of Ohio Summer Conference
    Friday, July 25, 2025
    Hollywood Casino Event Center
    200 Georgesville Rd.
    Columbus, Ohio 43228
    9:00 – 10:00 am Registration – Breakfast Included
    10:00 am Fedderal Initiatives and Their Impact on Ohioans – Medicaid to Education
    Katy Neas, CEO – The Arc of the United States
    The current CEO of The Arc of the US, former Deputy Assistant Secretary of the US Department of Education and long-time federal lobbyist, will present the current state of what we can expect as Congress debates the future funding of Medicaid, Waivers and Special Education.
    11:00 am – Noon Ohio’s New State Budget – How does it affect Ohioans with Developmental Disabilities?
    Director- Ohio Department of Developmental Disabilities
    A new state budget begins on July 1, 2025. The new DODD Director and staff will provide insight into what this budget holds in store for Ohioans with developmental disabilities and their families.
    Noon LUNCH – Included in Registration
    1:00- 2:00 pm Rules and What’s Ahead
    Allan Showalter, Deputy Director – Medicaid Administration & Development, Ohio Department of DD & Team
    The Ohio Department of DD is required to issue administrative rules to implement both Home & Community Based Waivers and Intermediate Care Facilities. New rules became effective on July 1st and other rules are still in development for this year and next. The speakers will discuss these and be available to answer questions.
    2:00 – 3:00 pm Ohio Rise (Resilience through Integrated Systems & Excellence)
    Aetna Ohio Rise Leadership Team
    Ohio RISE and the specialized managed care program is making major strides in supporting more youth and families in need. More Ohio children than ever are being supported through a program that coordinates community resources to provide the best possible care for kids facing complex mental and behavioral health needs. The Aetna Ohio Rise Leadership Team will provide an overview of the program and provide an opportunity for feedback of what is working and not working.
  • Ohio has announced its 2025 sales tax holiday, which will run for two weeks this year. https://nbc4i.co/43yipK1?utm_medium=social&utm_source=facebook_NBC4
  • The Family Caregiver Support Program (FCSP) supports family and informal caregivers in caring for loved ones at home. You’re a family caregiver if you help care for an older relative, spouse, or loved one. For free information and referrals for in-home care, respite, adult day programs, and more, go to: https://bit.ly/3NN8Joa or give us a call at 216-586-3441.
  • The 2025 WRAAA Five-County Transportation Guide helps older adults, individuals living with disabilities, and caregivers find transportation options for individuals from Cuyahoga, Geauga, Lake, Lorain and Medina counties. Order or download free copies today through this link .
  • Step Into Autism Walk Stark County 10:00 check out this event link more through this Facebook post.

This Month in Awareness

  • Pride Month
  • Alzheimer’s & Brain Awareness Month
  • National Migraine & Headache Awareness Month
  • Men’s Health Awareness Month
  • National Cancer Survivors Month
  • National Age Without Apology Month
  • PTSD Awareness Month


For more events check out our main website OhioAdvocacyHeartbeat.com

Medicaid funds the arts

Last week i attended AFTACON. It is the American for the Arts Conference. It was held in Cincinnati, Ohio. While I was there Arts Administrators, Artists, and Arts Advocates gathered and discussed important issues around the arts and funding.

One thing that struck me was how there is an intersection between Medicaid funding and access to the arts.

Food for Thought…Medicaid cuts impact the arts community and access to art .

Medicaid funds arts employment opportunities and arts related day programs for people for intellectual and developmental disabilities and older adults.

Medicaid funds Art Therapy

Medicaid funds Healing Arts for people with substance abuse and addiction

Medicaid funds access to social determinants of health that help people with disabilities access the arts like transportation services for people who use home and community based services and supports.

Medicaid cuts hurt the arts communities they hurt art access .

When you talk about #ArtsFunding and #ArtAccess SAY No to Cuts to Medicaid. Cuts to Medicaid dismantle programs that provide access to the arts.

This week I want to challenge you to really dive into idea that Medicaid funds critical access to the arts. Without the ability to create it will impact mental and physical health of people from variety of backgrounds and could block access to employment and services for people with disabilities and older adults so we need to tell Legislators and Congress #HandsOffMedicaid

#MedicaidMattersForTheArts

#FundHealthcareFundTheArts

#ArtIsHealthcare

#AccessToArtsIsAccessToCare

#AFTACON2025

#HandsOffMedicaid

#MedicaidMatters

#MedicaidFundsTheArts

#AFTACON

The Pulse: What’s going on around Ohio June 16th to June 21st 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
  • Ohio Department of Developmental Disabilities is asking people to take a survey on self direction for waiver participants. Click on this link to do the survey.
  • Tell us: What are your favorite ways to relax or practice self-care? Share your stories here.
    If you need to use the form differently, feel free to send attachments, pictures, or videos to nathan.turner@dodd.ohio.gov
  • The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
  • The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
    This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
    To SIGN UP: Call 1-833-678-7782
  • SHARE YOUR STORY, HELP FIGHT HUNGER! Poetry Is Life Publishing is compiling community poems and letters representing voices in our region from eight counties (Carroll, Holmes, Medina, Portage, Stark, Summit, Tuscarawas, and Wayne) who have experienced hunger. What do you crave from your community? Food, love, family, friendship, hope, peace, equality. Have you experienced hunger? What was it like? Submit your poem, letter or story for the opportunity to be included in the book. A portion of book sales will benefit the Akron-Canton Regional Foodbank. The deadline to submit is June 30, 2025.
    For more information please reach out by email at poetryislifepublishing@gmail.com
  • 2025 Disability/Deaf and Abuse Survey
    This national survey seeks to enhance our understanding of the prevalence of abuse— including sexual abuse, physical assault, coercion, harassment, and exploitation—among individuals with disabilities, as well as those who are Deaf, Hard of Hearing, or Deaf-Blind.
    Your experience matters. The findings will help us develop research, interventions, and policy recommendations to advocate for strengthening protections against abuse and improving support for survivors. Click this link to take the survey.
  • Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
  • 5 Minutes. 3 Actions. 1 Voice for Disability Rights.
    Speak Up Now: Protect Disability Access Rights!
    https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
    There are TWO public comment opportunities that need the attention of the disability community.
    🌟 Public Comment One: Protect Disability Access Rights! – The U.S. Department of Energy is trying to eliminate important disability protections. The department is trying to change part of Section 504 of the Rehabilitation Act that ensures new buildings are accessible to people with disabilities. This move could set a dangerous precedent. If they succeed, other federal agencies might try to do the same. This will weaken protections that millions rely on.
    🌟 Public Comment Two: Direct final rule on nondiscrimination – The U.S. Department of Energy (DOE) wants to remove 12 civil rights rules. Part of these 12 are disability access protections. They say the rules are “unnecessary,” “outdated,” or not supported by law. They are using a fast-track process called a “direct final rule.”
    This is urgent! If thousands do not make comments, the rule will take effect July 15, 2025.
    The deadline to submit your comment(s) is Monday, June 16th at 11:59 PM EDT.
    Take Action Now!
    It only takes a few seconds: https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/

Events around Ohio to check out week of June 16th 2025 to June 21 2025

Monday June 16th 2025

  • Disability Rights Education Legal Clinic, Monday, Jun 16 · 12:00pm-1:00pm Join us Monday, June 16th, for a Free Education Legal Clinic: Addressing Bullying & Harassment of special education students. Learn more and register to attend at lawyers4students.com/legalclinic
  • Building Personal Networks of Support(4) Week Workshop 4:00-5:00pm to Register for this workshop check out this link . This workshop is for self advocates and families. Description: BUILDING PERSONAL NETWORKS (BPN)
    Do you want to be more connected and supported, but aren’t sure where to start?
    Join us, roll up your sleeves, and let’s build your personal network together!
    WHAT IS BPN?
    BPN is about creating community.
    It is an opportunity to:
    Focus on relationships that foster connection and growth.
    Identify key individuals who can play supportive roles.
    Plan with your loved one at the center of the process.

Tuesday June 17th 2025

  • Ohio Tech Ambassadors Regional Tech Summit, Tuesday, Jun 17 · 11:00am-12:00pm Ambassador Regional Tech Summit
    10 a.m. to Noon Tuesday, June 17, at the Deer Park Branch Library. 4020 E. Galbraith Road, Cincinnati, OH 45236. This event will feature tech ambassadors sharing how they use technology in the following categories: Tech for Independence, Tech for Advocacy, Tech for Employment, and Tech for Entertainment.
    Click here for more details. https://ohiotechambassadors.org
  • Protecting Medicaid from Cuts in Congress: Updates for Aging Advocates, Tuesday, Jun 17 · 2:00-3:00 PM click this link to learn more and register for the event.
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday June 18th 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • Safe Police Interactions: Guidance for People with Disabilities and Their Families, Wednesday, Jun 18 · 6:00-8:00pm Join us to understand what happens when someone with a disability meets a police officer. This presentation gives practical advice that both people with disabilities and their family members can use right away. You will learn:
    • What police officers do and what equipment they carry
    • How to make ID cards that explain your disability
    • What to do during traffic stops
    • How to make emergency calls
    • How to ask for specially trained officers
    • Your rights during police interactions
    • Ways to prevent problems
    use this link to register.
  • D.A.D.S./Pathways for Pops Night Out, Wednesday, Jun 18 · 6–9 PM Join us for our monthly Night Out combining our D.A.D.S. & Pathways for Pops groups. In June we meet at one of our favorite hangouts – Schnitz Ale Brewery, located at 5729 Pearl Rd. in Parma! Feel free to bring your dad, brother, uncle or friend that is a part of your child’s life….just be there!
    RSVP to matt@dsaneo.org
  • People First of Northeast Ohio, Wednesday, Jun 18 · 6:30–8 PM, Repeats every month on the third Wednesday People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday June 19th 2025

  • Supported Decision Making of Ohio Meeting PR and Marketing Committee 12:00 -1:00pm contact amy.mordaunt@thearcofohio.org for more information to join

Friday June 20th 2025

  • Services For Independent Living, Connect And Conversation, Friday, Jun 20 · 11 AM–12 PM Connect with Conversation June Topic: Assistive Technology that helps with Independent Living
    June 20th from 11:00am-12:00pm
    RSVP to Maddi Steimle at 216-903-2469 or msteimle@sil-oh.org
  • FREE All-Abilities Sports Camp- Hall of Fame Area, Friday, Jun 20 at 5:45 PM –Saturday, Jun 21 at 2:00 PM Malone University, 2600 Cleveland Ave NW, Canton, OH 44709

Saturday June 21st 2025

  • FREE All-Abilities Sports Camp- Hall of Fame Area, Friday, Jun 20 at 5:45 PM –Saturday, Jun 21 at 2:00 PM Malone University, 2600 Cleveland Ave NW, Canton, OH 44709

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Planning an accessible outdoor adventure just got easier!
    The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
    In the guide, you’ll find:
    ✅ Trail safety tips
    ✅ Accessible trails, fishing, boating, and Storybook Trails
    ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
    Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
  • Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY
  • Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
    Read: http://aging.ohio.gov/AdultDayOhio
  • Know Your Rights: Communication Disability Law
    People with a medically diagnosed communication disability can voluntarily enroll in a database linked to Ohio’s Law Enforcement Agencies Data System (LEADS). 
    This helps notify officers during traffic stops that someone in the vehicle may have difficulty communicating, promoting safer, more informed interactions. It’s free, optional, and designed to reduce misunderstandings. 
    Learn more about the Communication Disability Law and download the Communication Visor Card here.
  • Call for Nominations: Ohio Poet Laureate
    Nominations for Ohio Poet Laureate are now being accepted. The next Ohio Poet Laureate’s two-year term is scheduled to begin on January 1, 2026, and ends on December 31, 2027.

    The Ohio Poet Laureate has the opportunity to foster the art of poetry across the Buckeye State. This includes encouraging literacy and learning, addressing central issues related to the humanities and heritage, and encouraging the reading and writing of poetry across Ohio. 

    As part of the individual’s role, the Ohio Poet Laureate will be expected to undertake a significant cultural project, such as bringing poetry to people or to a region of the state that might otherwise be underserved in this regard. Additionally, The Ohio Poet Laureate will provide at least 20 public readings or other literacy-related events annually in urban, suburban, and rural settings throughout Ohio.

    The Ohio Poet Laureate is ultimately appointed by the Governor of Ohio, with recommendations provided by the Ohio Arts Council (OAC) as reviewed by OAC board members.

    Nomination requirements are available on the Ohio Arts Council’s website .
  • Veterans who need nursing home care but prefer living at home can enroll in the Veterans Directed Care Program at WRAAA. This program lets veterans hire personal direct-care workers, giving them more control over their long-term care. More details here: https://bit.ly/3XcvbMT
  • Updates to the Waiting List Assessment Rule
    Attention: All County Boards, Service and Support Administrators, Councils of Governments
    The DODD Medicaid Development and Administration (MDA) division has updated the Comprehensive Guide for Waiting List Assessmentto coordinate with updates to the waiting list assessment rule (OAC 5123-9-04). These updates will be effective July 1, 2025. 
     
    MDA held webinars in May to support assessors with completing the WLA on the new assessment platform. A recording of these webinars can be found on the current and immediate needs webpage. Click hereto access the recording.
     
    For questions, please email WLA@dodd.ohio.gov
  • Registration is now open for The Arc of Ohio 2025 Summer Conference!
    Friday, July 25, 2025
    Sponsorships have made it possible for very affordable registration.
    Register Here: https://www.eventbrite.com/e/the-arc-of-ohio-2025-summer-conference-tickets-1371627588039?aff=oddtdtcreator
    The Agenda was created before the annoucement of Director Hauck’s retirement. We hope to introduce the new director at this conference.
    The Arc of Ohio Summer Conference
    Friday, July 25, 2025
    Hollywood Casino Event Center
    200 Georgesville Rd.
    Columbus, Ohio 43228
    9:00 – 10:00 am Registration – Breakfast Included
    10:00 am Fedderal Initiatives and Their Impact on Ohioans – Medicaid to Education
    Katy Neas, CEO – The Arc of the United States
    The current CEO of The Arc of the US, former Deputy Assistant Secretary of the US Department of Education and long-time federal lobbyist, will present the current state of what we can expect as Congress debates the future funding of Medicaid, Waivers and Special Education.
    11:00 am – Noon Ohio’s New State Budget – How does it affect Ohioans with Developmental Disabilities?
    Director- Ohio Department of Developmental Disabilities
    A new state budget begins on July 1, 2025. The new DODD Director and staff will provide insight into what this budget holds in store for Ohioans with developmental disabilities and their families.
    Noon LUNCH – Included in Registration
    1:00- 2:00 pm Rules and What’s Ahead
    Allan Showalter, Deputy Director – Medicaid Administration & Development, Ohio Department of DD & Team
    The Ohio Department of DD is required to issue administrative rules to implement both Home & Community Based Waivers and Intermediate Care Facilities. New rules became effective on July 1st and other rules are still in development for this year and next. The speakers will discuss these and be available to answer questions.
    2:00 – 3:00 pm Ohio Rise (Resilience through Integrated Systems & Excellence)
    Aetna Ohio Rise Leadership Team
    Ohio RISE and the specialized managed care program is making major strides in supporting more youth and families in need. More Ohio children than ever are being supported through a program that coordinates community resources to provide the best possible care for kids facing complex mental and behavioral health needs. The Aetna Ohio Rise Leadership Team will provide an overview of the program and provide an opportunity for feedback of what is working and not working.
  • Ohio has announced its 2025 sales tax holiday, which will run for two weeks this year. https://nbc4i.co/43yipK1?utm_medium=social&utm_source=facebook_NBC4
  • The Family Caregiver Support Program (FCSP) supports family and informal caregivers in caring for loved ones at home. You’re a family caregiver if you help care for an older relative, spouse, or loved one. For free information and referrals for in-home care, respite, adult day programs, and more, go to: https://bit.ly/3NN8Joa or give us a call at 216-586-3441.

This Month in Awareness

  • Pride Month
  • World Elder Abuse Day June 15th
  • Alzheimer’s & Brain Awareness Month
  • National Migraine & Headache Awareness Month
  • Men’s Health Awareness Month
  • National Cancer Survivors Month
  • National Age Without Apology Month
  • PTSD Awareness Month


For more events check out our main website OhioAdvocacyHeartbeat.com

Opportunities to Make your Voice heard On Important Disability and Advocacy Issues

Every week we put out the Pulse and it’s filled with opportunities to use your voice alongside the current events happening in Ohio. This week we found that we had an over flow of opportunities to speak up and use your voice. This is our midweek post letting people know of ways you can speak up on policy and other areas where opinions and public comment are needed.,

  • Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
  • Ohio Department of Developmental Disabilities is asking people to take a survey on self direction for waiver participants. Click on this link to do the survey.
  • Tell us: What are your favorite ways to relax or practice self-care? Share your stories here.
    If you need to use the form differently, feel free to send attachments, pictures, or videos to nathan.turner@dodd.ohio.gov
  • The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
  • The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
    This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
    To SIGN UP: Call 1-833-678-7782
  • SHARE YOUR STORY, HELP FIGHT HUNGER! Poetry Is Life Publishing is compiling community poems and letters representing voices in our region from eight counties (Carroll, Holmes, Medina, Portage, Stark, Summit, Tuscarawas, and Wayne) who have experienced hunger. What do you crave from your community? Food, love, family, friendship, hope, peace, equality. Have you experienced hunger? What was it like? Submit your poem, letter or story for the opportunity to be included in the book. A portion of book sales will benefit the Akron-Canton Regional Foodbank. The deadline to submit is June 30, 2025.
    For more information please reach out by email at poetryislifepublishing@gmail.com
  • 2025 Disability/Deaf and Abuse Survey
    This national survey seeks to enhance our understanding of the prevalence of abuse— including sexual abuse, physical assault, coercion, harassment, and exploitation—among individuals with disabilities, as well as those who are Deaf, Hard of Hearing, or Deaf-Blind.
    Your experience matters. The findings will help us develop research, interventions, and policy recommendations to advocate for strengthening protections against abuse and improving support for survivors. Click this link to take the survey.
  • Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
  • 5 Minutes. 3 Actions. 1 Voice for Disability Rights.
    Speak Up Now: Protect Disability Access Rights!
    https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
    There are TWO public comment opportunities that need the attention of the disability community.
    🌟 Public Comment One: Protect Disability Access Rights! – The U.S. Department of Energy is trying to eliminate important disability protections. The department is trying to change part of Section 504 of the Rehabilitation Act that ensures new buildings are accessible to people with disabilities. This move could set a dangerous precedent. If they succeed, other federal agencies might try to do the same. This will weaken protections that millions rely on.
    🌟 Public Comment Two: Direct final rule on nondiscrimination – The U.S. Department of Energy (DOE) wants to remove 12 civil rights rules. Part of these 12 are disability access protections. They say the rules are “unnecessary,” “outdated,” or not supported by law. They are using a fast-track process called a “direct final rule.”
    This is urgent! If thousands do not make comments, the rule will take effect July 15, 2025.
    The deadline to submit your comment(s) is Monday, June 16th at 11:59 PM EDT.
    Take Action Now!
    It only takes a few seconds: https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
  • Call for Nominations: Ohio Poet Laureate Nominations for Ohio Poet Laureate are now being accepted. The next Ohio Poet Laureate’s two-year term is scheduled to begin on January 1, 2026, and ends on December 31, 2027. The Ohio Poet Laureate has the opportunity to foster the art of poetry across the Buckeye State. This includes encouraging literacy and learning, addressing central missues related to the humanities and heritage, and encouraging the reading and writing of poetry across Ohio. As part of the individual’s role, the Ohio Poet Laureate will be expected to undertake a significant cultural project, such as bringing poetry to people or to a region of the state that might otherwise be underserved in this regard. Additionally, The Ohio Poet Laureate will provide at least 20 public readings or other literacy-related events annually in urban, suburban, and rural settings throughout Ohio. The Ohio Poet Laureate is ultimately appointed by the Governor of Ohio, with recommendations provided by the Ohio Arts Council (OAC) as reviewed by OAC board members. Nomination requirements are available on the Ohio Arts Council’s website .
     


For more events check out our main website OhioAdvocacyHeartbeat.com

In the News Around Ohio

Here are some news articles related to advocacy, disabilities and events in Ohio in the last 30 days.

Check out the Facebook group Disability News and Events Around Ohio for more news articles

The Pulse: What’s going on around Ohio June 9th to June 14th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
  • Make your voice heard through public comment on Medicaid Proposed Rules in Federal Register Medicaid Program; Preserving Medicaid Funding for Vulnerable Populations-Closing a Health Care-Related Tax Loophole Proposed Rule click this link to read the rule and learn how to comment.
  • Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
  • The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
  • (ODM) is seeking public comment on nursing facility-based level of care residential setting. The comment period is open from May 20th, 2025 through June 19th, 2025. Follow this link for more information: https://medicaid.ohio.gov/about-us/notices/heightened-scrutiny-notice-05192025
  • The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
    This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
    To SIGN UP: Call 1-833-678-7782
  • The City of Dayton is creating strategies to be an “age friendly” city—a place where all ages can enjoy each day and live their best life. If you are 55 years of age or older, please take a few minutes to provide your honest, confidential, and anonymous answers to this questionnaire. Please complete the survey at AgeFriendlySurvey.com
  • SHARE YOUR STORY, HELP FIGHT HUNGER! Poetry Is Life Publishing is compiling community poems and letters representing voices in our region from eight counties (Carroll, Holmes, Medina, Portage, Stark, Summit, Tuscarawas, and Wayne) who have experienced hunger. What do you crave from your community? Food, love, family, friendship, hope, peace, equality. Have you experienced hunger? What was it like? Submit your poem, letter or story for the opportunity to be included in the book. A portion of book sales will benefit the Akron-Canton Regional Foodbank. The deadline to submit is June 30, 2025.
    For more information please reach out by email at poetryislifepublishing@gmail.com

Events around Ohio to check out week of June 9th 2025 to June 14th 2025

Monday June 9 2025

  • Nisonger Institute 9am-12pm check out this event through Facebook link here.
  • Coalition Of Human Needs (CHN.) Call With Sen. Moreno’s Legislative Correspondent On Reconciliation Cuts, Monday, Jun 9 · 1–1:30 PM The Coalition On Human Needs (CHN.) will be having a meeting with Senator Moreno’s Legislative Correspondent, Sophia Friguletto, and, said the more Ohio voices that are on the call, the better.
    You can click here to read the statement from CHN.
  • Building Personal Networks of Support(4) Week Workshop 4:00-5:00pm to Register for this workshop check out this link . This workshop is for self advocates and families. Description: BUILDING PERSONAL NETWORKS (BPN)
    Do you want to be more connected and supported, but aren’t sure where to start?
    Join us, roll up your sleeves, and let’s build your personal network together!
    WHAT IS BPN?
    BPN is about creating community.
    It is an opportunity to:
    Focus on relationships that foster connection and growth.
    Identify key individuals who can play supportive roles.
    Plan with your loved one at the center of the process.

Tuesday June 10th 2025

  • Wood County DD Twin Tech Open House, Tuesday, Jun 10 · 10 AM–12 PM Wood Lane – Wood County Board of Developmental Disabilities
    1921 E Gypsy Lane Rd, Bowling Green, OH 43402, USA
  • National Caregiver Support Collaborative (NCSC) Training Opportunity: Introducing New Resources to Elevate Family Caregiver Programs, Tuesday, Jun 10 · 12:30–1:30 PM click on this link to register.
  • Understanding Alzheimer’s & Dementia, Tuesday, Jun 10 · 3–4 PM Defiance Public Library Defiance, Ohio.
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.
  • Parent Webinar: Down syndrome-Autism Connection, Tuesday, Jun 10 · 7–7 PM Topic: Down Syndrome – Autism Connection Parent Webinar
    Time: Jun 10, 2025 07:00 PM Eastern Time (US and Canada)
    RSVP to Lcifra-bean@dsaneo.org or join using the link for event

Wednesday June 11th 2025

Thursday June 12th 2025

  • Supported Decision Making of Ohio Meeting PR and Marketing Committee 12:00 -1:00pm contact amy.mordaunt@thearcofohio.org for more information to join

Friday June 13th 2025

  • AFTACON in Cincinnati, Ohio
  • The Warren County Law Enforcement Torch Run for Special Olympics Ohio, Thursday, Jun 12 · 9 AM–1 PM 400 Anderson St
    Franklin, OH 45005, USA The Warren County Law Enforcement Torch Run for Special Olympics Ohio will be Thursday, June 12, 2025 at 9 am at the Franklin Police Department (400 Anderson St, Franklin, OH 45005) and end at the Austin Landing Kroger (10101 Landing Way, Miamisburg, OH 45342)!
    Donate or sign up here
    Questions? Contact Kennon Coleman kcoleman@warrencountyohio.gov
  • Transitions LLC in Barberton, Ohio is hosting a Family Game night at 5pm check out this eventbrite link to learn more.

Saturday June 14th 2025

  • Ohio Special Olympics, Friday, Jun 13 –Sunday, Jun 15 Special Olympics Ohio will be hosting the 2025 Summer Games in and around The Ohio State University June 13-15, 2025. There are many volunteer opportunities available! Volunteers must be 14+ years old (unless otherwise noted). Everyone will be given a volunteer t-shirt and anyone who signs up for a full day will have lunch provided. More details will be provided as the date approacheS
    https://lucasdd.org/events/2612/2025-06-13/special-olympics-ohio-state-games
  • HOUSING
    EMPOWERMENT & RESOURCE AFFAIR JUNE 14, 2025
    11:00 AM – 2:00 PM
    WALNUT HILLS BRANCH LIBRARY
    2533 Kemper Ln, Cincinnati, OH 45206 • Get housing resources and assistance, empowerment, and info for legal assistance with housing.

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Planning an accessible outdoor adventure just got easier!
    The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
    In the guide, you’ll find:
    ✅ Trail safety tips
    ✅ Accessible trails, fishing, boating, and Storybook Trails
    ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
    Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
  • Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY
  • Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
    Read: http://aging.ohio.gov/AdultDayOhio
  • Call for Nominations: Ohio Poet Laureate
    Nominations for Ohio Poet Laureate are now being accepted. The next Ohio Poet Laureate’s two-year term is scheduled to begin on January 1, 2026, and ends on December 31, 2027.

    The Ohio Poet Laureate has the opportunity to foster the art of poetry across the Buckeye State. This includes encouraging literacy and learning, addressing central issues related to the humanities and heritage, and encouraging the reading and writing of poetry across Ohio. 

    As part of the individual’s role, the Ohio Poet Laureate will be expected to undertake a significant cultural project, such as bringing poetry to people or to a region of the state that might otherwise be underserved in this regard. Additionally, The Ohio Poet Laureate will provide at least 20 public readings or other literacy-related events annually in urban, suburban, and rural settings throughout Ohio.

    The Ohio Poet Laureate is ultimately appointed by the Governor of Ohio, with recommendations provided by the Ohio Arts Council (OAC) as reviewed by OAC board members.

    Nomination requirements are available on the Ohio Arts Council’s website .

Free Things to do for fun around Ohio this month.

This Month in Awareness

  • Pride Month
  • World Elder Abuse Day June 15th
  • Alzheimer’s & Brain Awareness Month
  • National Migraine & Headache Awareness Month
  • Men’s Health Awareness Month
  • National Cancer Survivors Month
  • National Age Without Apology Month
  • PTSD Awareness Month
  • World Heart Rhythm Week June 3rd-June 9th 2025
  • World Day for Assisted Technology June 4th
  • Tourette’s Awareness Day June 7th
  • Transverse Myelitis Day June 7th


For more events check out our main website OhioAdvocacyHeartbeat.com

The Pulse: What’s going on around Ohio June 2nd to June 7th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
  • Make your voice heard through public comment on Medicaid Proposed Rules in Federal Register Medicaid Program; Preserving Medicaid Funding for Vulnerable Populations-Closing a Health Care-Related Tax Loophole Proposed Rule click this link to read the rule and learn how to comment.
  • Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
  • The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
  • (ODM) is seeking public comment on nursing facility-based level of care residential setting. The comment period is open from May 20th, 2025 through June 19th, 2025. Follow this link for more information: https://medicaid.ohio.gov/about-us/notices/heightened-scrutiny-notice-05192025

Events around Ohio to check out week of June 2nd 2025 to June 7th 2025

Monday June 2 2025

  • We Thrive Together Wellness: Creative Wellness 11:00am-12:00pm click this link to join. 
  • Accessibility Vs Usability: Making Voting Work for Voters, Monday, Jun 2 · 1–2 PM What’s the difference between accessibility and usability—and why does it matter for voters?
    Join Michelle Bishop, Whitney Quesenbery (Center for Civic Design), and Diane Golden (U.S. Election Assistance Commission ) at our Annual Conference to explore how we can make elections work for everyone. This must-attend session dives into legal standards, practical applications, and how voter-centered design improves access for all.
    📅 Don’t miss it—register today!
  • Building Personal Networks of Support(4) Week Workshop 4:00-5:00pm to Register for this workshop check out this link . This workshop is for self advocates and families. Description: BUILDING PERSONAL NETWORKS (BPN)
    Do you want to be more connected and supported, but aren’t sure where to start?
    Join us, roll up your sleeves, and let’s build your personal network together!
    WHAT IS BPN?
    BPN is about creating community.
    It is an opportunity to:
    Focus on relationships that foster connection and growth.
    Identify key individuals who can play supportive roles.
    Plan with your loved one at the center of the process.

Tuesday June 3rd 2025

  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.
  • Neighbors in Action Advocacy Group 4-5pm check out this link to learn more.

Wednesday June 4th 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • Promoting Social Connection Among Veterans
    Wednesday, June 4⋅1:00 – 2:00pm click this link to register.
  • Ohio Olmsted Taskforce 1:00-3:00pm
  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Thursday June 5th 2025

  • Supported Decision Making of Ohio Meeting PR and Marketing Committee 12:00 -1:00pm contact amy.mordaunt@thearcofohio.org for more information to join

Friday June 6th 2025

  • ADA Seminar: The Future of Community Integration, Friday, Jun 6 · 9 AM–3 PM at the Toledo Museum of Art. ADA SEMINAR
    THE FUTURE OF COMMUNITY INTEGRATION
    Join us for a conversation about the future of disability in our community, and help us celebrate the Community Partnership Award recipient, the Toledo Metropolitan Area Council of Governments (TMACOG).KEYNOTE Pamela Molina
    World Federation of the Deaf
    SPEAKER Dr. Kim Nielsen
    The Ability Center
    Endowed Chair of Disability Studies, University of Toledo
    PANELIST
    Valerie Fatica -City of Toledo
    PANELIST Jan Dougherty -Ohio APSE
    $25 per ticket
  • P.A.L.S. Big Screen Sensory Friendly Movie
    Friday, June 6⋅11:00am – 1:00pm Parma-Snow Branch, 2121 Snow Rd, Parma, OH 44134
  • All-Abilities Social Hour
    Friday, June 6⋅12:30 – 1:30pm Odom Boulevard Branch Library, 600 Vernon Odom Blvd Akron, Ohio

Saturday June 7th 2025

  • Step Into Autism 10:00am in Cuyahoga Falls, Ohio check out the event though this Facebook link about the event.
  • CABVI’s Fun Fest
    Saturday, June 7⋅11:00am – 3:00pm Washington Park Cincinnati, Ohio





Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Planning an accessible outdoor adventure just got easier!
    The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
    In the guide, you’ll find:
    ✅ Trail safety tips
    ✅ Accessible trails, fishing, boating, and Storybook Trails
    ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
    Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
  • Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY

This Month in Awareness

  • Pride Month
  • Alzheimer’s & Brain Awareness Month
  • National Migraine & Headache Awareness Month
  • Men’s Health Awareness Month
  • National Cancer Survivors Month
  • National Age Without Apology Month
  • PTSD Awareness Month
  • World Heart Rhythm Week June 3rd-June 9th 2025
  • World Day for Assisted Technology June 4th
  • Tourette’s Awareness Day June 7th
  • Transverse Myelitis Day June 7th


For more events check out our main website OhioAdvocacyHeartbeat.com

The Pulse: What’s going on around Ohio May 26th to May 31st 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Become an Advocate! The YAC allows for you to grow your advocacy skills and gain first-hand experience in creating change. Strength in advocacy is in numbers; so come make a difference with us!
    Find out more! Contact April at 216.731.1529 or ashaw@sil-oh.org here is a link to learn more about the youth council.
  • Are you caring for a child or young adult with special needs in Montgomery County? We want to hear from YOU!
    In partnership with the Strong Families Safe Communities Grant, Montgomery County is conducting a confidential survey to better understand what respite care services caregivers need most. Respite care is short-term care that gives caregivers a break.
    📝 Your input will help improve services and support for families.
    The survey takes just 10–15 minutes and includes questions about:
    Your family and caregiving experience
    Your child(ren) with special needs
    The type of respite care that would help you most
    💬 Take the survey by June 9.
  • Make your voice heard through public comment on Medicaid Proposed Rules in Federal Register Medicaid Program; Preserving Medicaid Funding for Vulnerable Populations-Closing a Health Care-Related Tax Loophole Proposed Rule click this link to read the rule and learn how to comment.

Events around Ohio to check out week of May 26th 2025 to May 31 2025

Monday May 26 2025

Happy Memorial Day!

All Public and Government Offices, County Boards and Area on Aging Offices Closed.

Tuesday May 27 2025

  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.
  • ASPE State Policy Coffee Talk, Tuesday, May 27 · 3–4 PM, Repeats every month on the last Tuesday Join ASPE on March 25 from 3:00-4:00pm for State Policy Coffee Talk! ☕
    They will be discussing the latest developments in state policy and their impact on our community. Don’t miss this opportunity to connect, learn, and engage in meaningful conversations.
    See you there!
    Click this link to register
  • Taking the leap into adult healthcare is a big step for families and young adults with disabilities. Planning ahead is the key. Join Ohio F2F to learn how to make this move easier.
    Navigating the Move to Adult Healthcare Tuesday, May 27, 2025
    Time: 6:30-8pm
    Register here to receive the Zoom link
    Questions? Contact: Amy.Clawson@cchmc.org
  • Southwest Ohio Advocacy Group 6:00pm -8:00pm at Down Syndrome Society of Cincinnati

Wednesday May 28 2025

Thursday May 29 2025

  • Supported Decision Making of Ohio Meeting PR and Marketing Committee 12:00 -1:00pm contact amy.mordaunt@thearcofohio.org for more information to join

Friday May 30 2025

  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday May 31 2025

  • Cleveland Sight Center 2025 White Cane Walk, Saturday, May 31 · 10:00AM–1:00PM Event schedule
    May 31 10:00 AM EDT – Check-In Opens
    May 31 10:30 AM EDT – Program
    May 31 10:45 AM EDT – Walk Kick-Off
    May 31 1:00 PM EDT – Event Ends
    See all event details at https://raceroster.com/events/2025/100902/2025-white-cane-walk
  • Stepping Into Awareness, Saturday, May 31 · 1:00-7:00 pm 4633 Montgomery Rd. Cincinnati, OH 45212

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Planning an accessible outdoor adventure just got easier!
    The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
    In the guide, you’ll find:
    ✅ Trail safety tips
    ✅ Accessible trails, fishing, boating, and Storybook Trails
    ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
    Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
  • If you or a loved one is facing a mental health or addiction crisis, you’re not alone. Call, text, or chat 988 to connect with a trained specialist ready to listen and offer free, confidential support 24/7.
    988 is a direct connection to compassionate, accessible care and support for anyone experiencing mental health-related distress.
    Learn more and find easy-to-read resources: https://dodd.ohio.gov/about-us/our-programs/988+Resourcesk
  • Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY
  • In honor of #MentalHealthAwarenessMonth, explore DODD’s Wellness Project, a collection of resources for EVERYONE, featuring tools for mindfulness, relaxation, and mental health support. Check out the information through this link put out by Ohio Department of Developmental Disabilities.


For more events check out our main website OhioAdvocacyHeartbeat.com

In the News Around Ohio

Here are some news articles related to advocacy, disabilities and events in Ohio in the last 30 days.

Check out the Facebook group Disability News and Events Around Ohio for more news articles

The Pulse: What’s going on around Ohio May 19th to May 24th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Please Share Share Share !!!
    Join us in creating a documentary-style video series that showcases the everyday lives and diverse contributions of people with disabilities. This project aims to challenge misconceptions, highlight inclusion in action, and amplify authentic voices from the disability community.
    Our goal is to create compelling, authentic content that helps reshape public perceptions by emphasizing that people with disabilities are integral, contributing members of our communities in every aspect of life.
    We’re seeking self-advocates who are comfortable sharing their experiences on camera to help create this important educational resource. Calling All
    Disability Self-Advocates!
    Join our video project to help educate others and make a difference. We value real voices and different perspectives. This is a paid opportunity.
    Interested? Call or Text us today!
    419-901-0688
  • Become an Advocate! The YAC allows for you to grow your advocacy skills and gain first-hand experience in creating change. Strength in advocacy is in numbers; so come make a difference with us!
    Find out more! Contact April at 216.731.1529 or ashaw@sil-oh.org here is a link to learn more about the youth council
  • The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
    You can access the survey by clicking this link to do the survey.
    If you any questions, please reach out:
       Phone:  1 (855) 556-6328
       Email:   healthsurvey@ku.edu
  • Are you the family member of a child or adult with a disability in the Cincinnati area? Would you like to take your advocacy skills to the next level?
    Consider applying to the LEND Program!
    The application deadline for the 2025-2026 academic year is June 20.
    For questions and application information, contact Sarah at lendtraining@cchmc.org
  • The Ohio Department of Education and Workforce (ODEW) would like to invite you to participate in a short, 25 question survey about your involvement in your student’s education. Research suggests that parental involvement is a key predictor of positive educational outcomes. You may be eligible to participate if your child has an IEP and receives special education services. The purpose of collecting this information is to improve services for students with disabilities across Ohio. If you are eligible to participate and you enroll in the study, you will be entered in a drawing for a $50 gift card. Your chance of winning a gift card is approximately 2.0%. Please click on the link to find out more about the survey and if you are eligible.
  • ADA PARC: Help Us Measure The Impact of the ADA – 35 Years Later
    This July 26th marks the 35th anniversary of the Americans with Disabilities Act (ADA) of 1990. While progress has been made, the need to understand the ADA’s ongoing impact—and the barriers that still exist— is more urgent than ever.
    We invite you to take part in a brief, anonymous survey to help us assess how far we’ve come and how far we still need to go. The survey results will be used to inform and guide technical assistance and policy recommendations related to the ADA.
  • The National Leadership Consortium on Developmental Disabilities, in partnership with the Ohio Developmental Disabilities Council, is conducting a Giving Voices to LGBTQ+ People with Disabilities Study
    This study aims to contribute to knowledge about people with intellectual and developmental disabilities (IDD) who are lesbian, gay, bisexual, transgender, queer, and more (LGBTQ+) in Ohio by collecting information about their experiences in a survey, interviews, and focus groups. This study will investigate what helps and what gets in the way of LGBTQ+ people with IDD receiving services, including their experiences accessing services and treatment by service providers. Check out this link for the survey.

Events around Ohio to check out week of May 19th 2025 to May 24th 2025

Monday May 19th 2025

  • We Thrive Together will be hosting a workshop on environmental wellness from 11 AM. to 12:00 PM. To join, click the link below:
    Join Event
  • We Thrive Together will be hosting a workshop on criticism in relationships from 3:00-4:00PM. You can join by clicking the link below:
    Join Event
  • We Thrive Together will also host an advanced virtual event training from 6-7 PM. You can click the link below to join:
    Join Event
  • Want to learn more about the John Romer Advocacy Award? Join us for one of our virtual sessions: 1 p.m. Tuesday, May 13, or 11:30 a.m. Monday, May 19.
    Register at HamiltonDDSOhio.gov/award

Tuesday May 20th 2025

  • Statewide Behavior Support Workshop, Tuesday, May 20 · 10:30 AM–12:00 PM Licking County Board Of Developmental Disabilities
    116 N 22nd St, Newark, OH 43055
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday May 21 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • People First of Ohio 6:00pm-8:00pm People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday May 22 2025

  • Supported Decision Making of Ohio Meeting PR and Marketing Committee 11:00-12:00 contact amy.mordaunt@thearcofohio.org for more information to join
  • Allen County Board of Developmental Disabilities is hosting the Caregiver Connection from 1:00-2:00pm in Lima, Ohio. Join us for Caregiver Connection this Thursday! Leann Unverferth from Area Agency on Aging will be at the session to discuss transportation concerns.

Friday May 23 2025

  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday May 24 2025

  • No Known Events

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Planning an accessible outdoor adventure just got easier!
    The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
    In the guide, you’ll find:
    ✅ Trail safety tips
    ✅ Accessible trails, fishing, boating, and Storybook Trails
    ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
    Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
  • If you or a loved one is facing a mental health or addiction crisis, you’re not alone. Call, text, or chat 988 to connect with a trained specialist ready to listen and offer free, confidential support 24/7.
    988 is a direct connection to compassionate, accessible care and support for anyone experiencing mental health-related distress.
    Learn more and find easy-to-read resources: https://dodd.ohio.gov/about-us/our-programs/988+Resourcesk
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility
  • In honor of #MentalHealthAwarenessMonth, explore DODD’s Wellness Project, a collection of resources for EVERYONE, featuring tools for mindfulness, relaxation, and mental health support. Check out the information through this link put out by Ohio Department of Developmental Disabilities.
  • Ohio Family to Family on Navigating the IEP process can be overwhelming—here is a roadmap to help you become informed.

This Week in Awareness


May:
• Mental Health Awareness Month
• National Arthritis Awareness Month
• Disability Insurance Awareness Month
• ALSOS. Awareness Month
• National Stroke Awareness Month
• National Military Service Appreciation Month
• Allergy and Asthma Awareness Month
• Jewish American Heritage Month
• Better Speech–Language-Hearing Month

• Lupus Awareness Month
• Pediatric Stroke Awareness Month
• Lyme Disease Awareness Month
• Mobility Awareness Month
• Older Americads Month
• Celiac Awareness Month
• Huntington’s Disease Awareness Month
• Ehler’s-Danlos Syndrome Awareness Month
• National Ostioperosis Awareness And Prevention Month
• Prader-Willi Syndrome Awareness Month
• Neurofabromotis Awareness Month
• Williams Syndrome Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Thoughts On New Accessibility Features Coming To Apple by Dawn 
Thoughts On New Accessibility Features Coming To Apple


Anyone who knows me knows that three of my passions are advocacy, accessibility, and technology. Anyone who has sat with me at the various advocacy tables knows that accessibility is something that I fiercely advocate for. They also know how much I rely on my Apple devices, in my personal and professional life. In fact, my Iphone and Ipad are 2 of the devices I use to write my blogs. I use Apple products in my personal life too for things such as web browsing, and listening to and reading books for instance. With all of this in mind, I wanted to take some time to share my thoughts on a recent announcement that Apple shared about upcoming accessibility features on several of its prroducts.


To honor and observe Global Accessibility Awareness Day or GAAD. various tech companies, assistive tech companies, and other companies/businesses, agencies, disability and advocacy organizations, etc will do or announce different accessibility-related things, features, and so forth. Apple is no exception. In fact, Apple has made it a tradition over the last few years to make announcements about different upcoming accessibility-related features for its various products on Global Accessibility Awareness Day. This year was no different, with Apple giving us a sneak peek at some upcoming accessibiity features that will be released later this year. This year, Iphones and Ipads, Apple Watches, Macs, and the Apple Vision Pro, Apple's virtual reality headset, will all get some accessibility love. In turn, various segments of the disability population will get some accessibility love from Apple, including people that are visually impaired, deaf/hard-of-hearing individuals, individuals with mobility challenges, people with reading disabilities such as dyslexia, and individuals with intellectual and developmental disabilities will also get some accessibility love from Apple.
This announcement was jam-packed with features and enhancements, including accessibility nutrition labels, updates to Apple's Live Caption feature, enhancements for people with mobility challenges, several enhancements for people with visual impairments, and more! If you'd like to read the full article talking about these accessibibility features on AppleVis, you can click the link below:



https://applevis.com/blog/apple-previews-new-accessibility-features-coming-later-year-accessibility-nutrition-labels



First, here is a short list of some of the features and updates:


• For deaf and hard-of-hearing individuals, sound regogonition will gain the ability to recigonize when your name is being called.
• Accessibility Reader, which will improve the legibility of text by allowing for customization of fonts and spacing, and colors, and integration with the Magnifier app.
• The ability to control your Iphone and Ipad with head movements.
• Personal Voice will sound more natural, and the creation process will be faster.
• Accessibility nutrition labels in the App Store, which are similar to the privacy nutrition labels introduced in 2020.


Now, I want to take a deeper dive into some of these features, and, give my thoughts on them as well.



Accessibility Reader


This feature is a reading mode that seeks to improve the legibility of text, and will allow for the customization of colors, spacing and fonts. This feature will be available system-wide, on IOS. and Ipad-OS. Mac-OS. and Vision-OS. and, as a bonus, it will integrate with the Magnifier app, which will allow you to read text in your physical environment. This feature will be useful to people with vision impairments, and people with reading disabilities such as dyslexia.

As a totally blind person, I don't think this feature will be useful to me. Also, if I didn't explain this one well, I do appologize, because I'm looking at this from a blindness perspective. With that being said, I can see this being useful for things such as reading an electronic document that's in an unreadable font, or, maybe even having an easier time reading a package. While this feature may not fit my spicific use case, I'm sure there will be plenty of other individuals who will benefit from this.




Magnifier's Power Will Be... Well... Magnified


The magnifier app for Mac will allow you to use either your phone's camera, or another camera hooked up to your Mac to zoom in on your surroundings. If you have to attend or be a panelist on a Zoom meeting for instance, you can have multiple sessions going on at once, using your Mac's camera for the meeting, and also having the ability to read your presentation, or look at your notes on your phone.

While this feature wouldn't have any benefits for me as a blind person, I think that low-vision individuals will be making use of it. They surely will be able to find many scenarios, situations, etc where this would be useful, more than I could.




A Bird's Eye View Through Apple's Eyes


Apple's virtual reality headset, and its operating system will be getting some new accessibility enhancements as well. However, the most notable one, and the one that sticks out to me at least, is the new "Trusted Apps" API. or automatic programming interface that apps such as Be My Eyes will be able to take advantage of, and offer visual person-to-person interpretation.

This type of technology is still in its infanccy, and, so far, has not been made accessible to people with disabilities, especially the blind and low-vision community. These devices and their capabilities have not been really considered of much if any use to the disabled community. However, Apple is pushing the envelope, by offering a real-world example of how this can be used. I could think of several scenarios where this would be helpful beyond words. For instance, let's say that you need to go shopping, and, you are craving cereal, more spicfically, Honey Combs. From here, you could use a service such as Be My Eyes, on your headset, and all you'd need to do is turn your head from left to right. Apple has opened a door that has until now, remained locked and closed. I hope that other companies will also walk through that door, and start exploring the possibble and potential benefits of these devices for the disabled community.




"Are you talking to me?"

One enhancement that the dead/hard-of-hearing community will get, is that sound recofonition, which is a feature that was introduced a couple years ago, that identifies certain sounds such as the smoke alarm, will now be able to detect when someone's calling your name. This will definitely help in crowded or noisey spaces, where it can be hard to isolate sounds.





Your Phone Can Read Your Mind... Sort Of


Your phone will be able to track your head movements, and, you will be able to control your Ipad or Iphone with head movements. This will be great for those with mobility impairments. I think one task this will prove useful is checking your email.
Sometimes, managing your email inbox can seem like a full-time job. According to Venngage, the averafe person receives 121 emails per day, and the number continues to rise! If you're an advocate, or, if you have and/or manage multiple accounts, this number can be even higher! If you have mobility challenges, when you check your email, you could nod your head to open and read the ones you need or are interested in, and shake your head to delete the rest. I'm going to be very honest, the more I think about this particular use-case, the more I smile!








Braille Notetakers In A New Form


One other notable feature is the Braille Access mode, which seeks to emulate a BrailleNote. In this mode, you will be able to take notes, do calculations using the Nemith Braille Code, and, most notably, read documents in Braille Ready Format, or BRF.
For context, a BrailleNote is like a laptop, the chief difference is that it has braille on it instead of print.

I'm chomping at the bit to get my hands on this for two reasons. First, I got my first BrailleNote when I was 7 years old, and in second grade, and, I used them in my school and home lives. I browsed the web, sent and received emails, read books, and did homework, and so much more. Braille was and still is a crucial part of my life, and, it was an equally important part of my education. Sadly, my BrailleNose was taken away from me 2 weeks before my high school graduation, and, my quality of life suffered. To add to this, these devices are between 8-9 grand. This means that these procucts are unaffordable for people and families like me and mine. I think that if this mode was available at that time, things would have been a little better.
While I have a Brailliant BI. 40X now, sometimes I still miss my BrailleNote, especially for notetaking.
Another reason I can't wait to sink my teeth into this feature, is to see how it does with reading files in Braille Ready Format, or BRF. because, I had a recent experience that was not pleasant. A family member ordered me some braille ebooks in BRF. format, and, I was reading one very recently on my Brailliant. Unfortunately, the book cut off midway through, and in the midst of a sentence! Right now, the only way to read BRF. files on the Iphone or Ipad, is to use the bard. Mobile app from the National Library Service For The Blind And Print Disabled. The problem with that, is that the app does not backtranslate. That means that if you're reading a file that's in BRF. format, then, you have to switch your braille input and output tables to eight-dot braille. This can be problematic for a lot of reasons, the main one being that it changes how your braille display works, very drastically, including your ability to type.




Not All Apples Are Good For You Or Your Device


The last feature I'm going to cover here is the introduction for Accessibility Nutrition Labels for the App Store. In 2020, Apple introduced privacy nutrition labels to the App Store. These labels are submitted by the app developers, and gave information such as what data the developer and the app collect and why. The accessibility nutrition labels are similar to this.
These labels will be submitted by the app developer, and have information about what accessibility features are supported by and tested for their apps. These labels will be voluntary at first, to give developers ample time to evaluate their app's accessibility, and will become a requirement in the future.


For a long time, this is something that a lot of people have said is much-needed. I did and still do agree with them. However, there were challenges and different factors that always had to be considered, that made the logistics of this tricky. First, everybody's access needs are different. For instance, I need to be able to use an app with my screenreader, whereas someone else may need magnicfication software, or they need to use switch control to operate their devices, and use apps. So, if an app works with switch control, but, doesn't work with Voiceover, then, it's inaccessible.
Another tricky part of this, is that some developer's definitions of accessibility are very different, and contrast or conflict with what a user's definition of accessibility is. For instance, some companies and developers will make a mixture of large text, and dyslexic font and maybe some basic magnification, and sprinkle it over their app(s) and call it done. To me, that's just doing enough to make it look good, and definitely not what accessibility is!
There's also developers who either don't know about accessibility, or how to make their app accessible, or, they think that something's accessible when it isn't, and others who may want to make their apps accessible, but, have no idea where to start. For these types of situations, education, understanding, patience, grace, and advocacy, among other things can go a long way.
Of course, sadly, there are some developers who don't care, and have no entention of caring. In that case, all we can do is keep advocating, and do our best to find alternative solutions.

However, I think that this will be a good thing, because, it will get the conversation started, and, open the door for developers to learn about app accessibilility, and maybe even engage with and learn from their users. This will benefit everyone because, the developer will be open to new markets, that means more money in their pocket, more downloads, and people will be talking about and recommending their app. They will also be helping to build a more inclusive and accessible world for people with disabilities, and who knows, they could even become allies!

I think this will benefit users as well for several reasons. First, it will help us make more informed decisions about where and how we spend our money. For me, I've always used caution when purchasing apps, or subscriptions to services, both because of limited resources, and because getting a refund is not guaranteed, and hard to get. A lot of times, I have tried looking for demos and walkthroughs of apps. This way, I could make sure it was going to be accessible before pulling out my wallet. However, demos are not always available, or, if they are, they're done through a sighted users lens. The only other options that I and other users had, was to ask if an app was accessible on forums, email listservs, and Facebook groups. That was and still is a crap shoot, because, there's no guaransee that in those places have used or even heard of that app.
Another reason I think that this is a much-needed and welcome improvement, is that this could add to or compliment something similar to this. AppleVis, which is a site for blind and low-vision users of Apple products has an app directory section on their page. This directory contains apps for IOS. devices, Macs, Apple Watches, and Apple TV. and, each directory can be sorted/browsed through by app name, category, device, and latest entries. Each app has several sections dedicated to accessibility. There's a place to say how accessible the app is, say how clearly voiceover reads page elements, button labeling, and a space to leave accessibility comments. Every time I hear about a new app, or I'm thinking about downloading or purchasing an app, the first place I go to is AppleVis. I'll admit, that I try to visit AppleVis to see what new apps have been submitted to the IOS. app directory. To my knowledge, this is the only thing I've found that's similar to the accessibility nutrition labels. They will be a great help to me, and if an app isn't listed in the AppreVis directory, I'll still be able to have some sense of how accessibile an app is.



Final Thoughts

At the time of this writing, there's no information about availablility, and spicfic dates/timeframes on when feasures will be released, or which devices they will be available on. I hope that at least some of these features, especially the Braille Access Mode will be available on recent but older devices. I want to hear from all of you. What feature are you looking forward to the most? How do you think it will be useful to you? What is your favorite, or do you have more than one? What feature are you hoping Apple will implement at some point? Whas do you think of these features in general?
Which feature (or features) do you think are my favorite? Hint: one of them has to do with braille.

The Pulse: What’s going on around Ohio May 12th to May 17th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
    You can access the survey by clicking this link to do the survey.
    If you any questions, please reach out:
       Phone:  1 (855) 556-6328
       Email:   healthsurvey@ku.edu
  • The Ohio Department of Education and Workforce (ODEW) would like to invite you to participate in a short, 25 question survey about your involvement in your student’s education. Research suggests that parental involvement is a key predictor of positive educational outcomes. You may be eligible to participate if your child has an IEP and receives special education services. The purpose of collecting this information is to improve services for students with disabilities across Ohio. If you are eligible to participate and you enroll in the study, you will be entered in a drawing for a $50 gift card. Your chance of winning a gift card is approximately 2.0%. Please click on the link to find out more about the survey and if you are eligible.
  • Access Center for Independent Living (ACIL) is looking for people in Champaign, Clark, Preble, Miami or Montgomery Counties to fill out their Needs Assessment Survey to help them find needs of the people with disabilities in their community.
  • The Home and Community-Based Services Policy section at the Ohio Department of Medicaid is proposing to amend Ohio Administrative Code 5160-32-02 Electronic visit verification (EVV) data collection and 5160-32-03 Alternate electronic visit verification (EVV) vendor.
    These rules set forth data collection requirements for providers regarding electronic visit verification (EVV). The proposed change to these rules removes the term “agency” in describing the types of providers the rules apply to.
    View the proposed changes here. https://dam.assets.ohio.gov/image/upload/medicaid.ohio.gov/Providers/EVV/5160-32_EVV_Proposed.pdf?utm_medium=email&utm_source=govdelivery
    Submit your feedback to HCBSPolicy@medicaid.ohio.gov by May 12, 2025.
  • ADA PARC: Help Us Measure The Impact of the ADA – 35 Years Later
    This July 26th marks the 35th anniversary of the Americans with Disabilities Act (ADA) of 1990. While progress has been made, the need to understand the ADA’s ongoing impact—and the barriers that still exist— is more urgent than ever.
    We invite you to take part in a brief, anonymous survey to help us assess how far we’ve come and how far we still need to go. The survey results will be used to inform and guide technical assistance and policy recommendations related to the ADA.

Events around Ohio to check out week of May 5th 2025 to May 10th 2025

Monday May 12th 2025

  • Preparing for an Emergency:
    An Information Session for Individuals with Disabilities and their Caregivers, Monday, May 12 · 10 AM–12 PM Preparing for an Emergency:
    An Information Session for Individuals with Disabilities and their Caregivers
    Join us for this interactive session on how to best prepare for an emergency.
    Prepare for impacts of disasters
    Create an emergency plan with the assistance of a caregiver
    Create an emergency plan specific to an individual’s needs
    Understand the necessary steps for sheltering in place, community sheltering, and evacuation
    Monday, May 12, 2025 10am to 12noon
    Training Location: EasterSeals Redwood Ohio
    2901 Gilbert Avenue, Cincinnati, 45206
    To register: Jenise Brassell, Independent Living Specialist,
    E: Jenise@IndependenceAlliance.org P: 513-246-0319

Tuesday May 13 2025

  • Community Integration and Employment Updates, Tuesday, May 13 · 10 AM–12 PM at Pioneer Center in Chillicothe, Ohio.
  • BENEFITS FOR INDIVIDUALS: SS, SSI, JFS, PAYEE INFORMATION AND TIPS Event by Clearwater Council on Governments Tuesday May 13th 12:00pm-1:00pm Register though the link here.
  • MCBDD Resource Fair 10:00-2:00pm at 3575 Maple Ave
    Zanesville, OH 43701, USA
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday May 14th 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • Supported Decision Making Network of Ohio Meeting, Wednesday, May 14 · 12–1:30 PM, Repeats every month on the second Wednesday This is for anyone who is interested in knowing more about supported decision making. https://www.sdmno.org
  • Region 4 DD Community Talks Chillicothe, Ohio Join the Ohio Department of Developmental Disabilities at their regional Community Talk on May 14th at the Adena PACCAR Center. Click this link to register for the event.
  • Special Education Virtual Townhall 7:00pm-8:00pm DescriptionChaos, cuts, and disruption in D.C. are already harming Ohio kids. Special education programs are on the federal chopping block, and the Ohio House plans to shortchange special education in the state budget. Parents, educators, and advocates are ready to take action. Join Policy Matters Ohio for a virtual town hall to learn what you can do to stand up for special education in Ohio. Check out their event through this Facebook link.

Thursday May 15th 2025

  • Ohio Statewide Independent Living Council Meeting, Thursday, May 15 · 2–4 PM Embassy Suites by Hilton Columbus Airport
    2886 Airport Dr, Columbus, OH 43219, USA Ohio Statewide Independent Living Council for more information check out this website https://ohiosilc.diligent.community/Portal/MeetingInformation.aspx?Org=Cal&Id=72
  • WCBDD & Envision Toileting 101, Thursday, May 15 · 6–7:30 PM Join us for a virtual Learning Event for Parents and caregivers via live Teams video presentation to get an in-depth look at the multiple components involved in toileting!
    May 15 from 6 to 7:30 p.m.
    Register here by May 9

Friday May 16th 2025

  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday May 17th 2025

  • Community Healthy Living Expo, Saturday, May 17 · 11 AM–3 PM Collinwood Recreation Center
    16300 Lakeshore Blvd, Cleveland, OH 44110, USA

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Planning an accessible outdoor adventure just got easier!
    The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
    In the guide, you’ll find:
    ✅ Trail safety tips
    ✅ Accessible trails, fishing, boating, and Storybook Trails
    ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
    Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
  • If you or a loved one is facing a mental health or addiction crisis, you’re not alone. Call, text, or chat 988 to connect with a trained specialist ready to listen and offer free, confidential support 24/7.
    988 is a direct connection to compassionate, accessible care and support for anyone experiencing mental health-related distress.
    Learn more and find easy-to-read resources: https://dodd.ohio.gov/about-us/our-programs/988+Resources
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility
  • In honor of #MentalHealthAwarenessMonth, explore DODD’s Wellness Project, a collection of resources for EVERYONE, featuring tools for mindfulness, relaxation, and mental health support. Check out the information through this link put out by Ohio Department of Developmental Disabilities.
  • Ohio Family to Family on Navigating the IEP process can be overwhelming—here is a roadmap to help you become informed.

This Week in Awareness


May:
• Mental Health Awareness Month
• National Arthritis Awareness Month
• Disability Insurance Awareness Month
• ALSOS. Awareness Month
• National Stroke Awareness Month
• National Military Service Appreciation Month
• Allergy and Asthma Awareness Month
• Jewish American Heritage Month
• Better Speech–Language-Hearing Month
• Borderline Personality Disorder Awareness Month
• Brain Tumor Awareness Month
• Cystic Fibrosis Awares Month
• Public Service Recognition Week
• Guide Dog Month
• Hepatitis Awareness Month
• Hepatitis Awareness Month
• Lupus Awareness Month
• Pediatric Stroke Awareness Month
• Lyme Disease Awareness Month
• Mobility Awareness Month
• Older Americads Month
• Celiac Awareness Month
• Huntington’s Disease Awareness Month
• Ehler’s-Danlos Syndrome Awareness Month
• High Blood Pressure Awareness And Education Month
• Inherited Retinal Disease Genetic Sesting Month
• Health Vision Awareness Month
• Myositis Awareness Month
• National Ostioperosis Awareness And Prevention Month
• Prader-Willi Syndrome Awareness Month
• Neurofabromotis Awareness Month
• Williams Syndrome Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

In the News Around Ohio

Here are some news articles related to advocacy, disabilities and events in Ohio in the last 30 days.

The Pulse: What’s going on around Ohio May 5th to May 10th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
    You can access the survey by clicking this link to do the survey.
    If you any questions, please reach out:
       Phone:  1 (855) 556-6328
       Email:   healthsurvey@ku.edu
  • The Ohio Department of Education and Workforce (ODEW) would like to invite you to participate in a short, 25 question survey about your involvement in your student’s education. Research suggests that parental involvement is a key predictor of positive educational outcomes. You may be eligible to participate if your child has an IEP and receives special education services. The purpose of collecting this information is to improve services for students with disabilities across Ohio. If you are eligible to participate and you enroll in the study, you will be entered in a drawing for a $50 gift card. Your chance of winning a gift card is approximately 2.0%. Please click on the link to find out more about the survey and if you are eligible.
  • Access Center for Independent Living (ACIL) is looking for people in Champaign, Clark, Preble, Miami or Montgomery Counties to fill out their Needs Assessment Survey to help them find needs of the people with disabilities in their community.
  • The Home and Community-Based Services Policy section at the Ohio Department of Medicaid is proposing to amend Ohio Administrative Code 5160-32-02 Electronic visit verification (EVV) data collection and 5160-32-03 Alternate electronic visit verification (EVV) vendor.
    These rules set forth data collection requirements for providers regarding electronic visit verification (EVV). The proposed change to these rules removes the term “agency” in describing the types of providers the rules apply to.
    View the proposed changes here. https://dam.assets.ohio.gov/image/upload/medicaid.ohio.gov/Providers/EVV/5160-32_EVV_Proposed.pdf?utm_medium=email&utm_source=govdelivery
    Submit your feedback to HCBSPolicy@medicaid.ohio.gov by May 12, 2025.

Events around Ohio to check out week of May 5th 2025 to May 10th 2025

Monday May 5th 2025

  • Join BCBDD Community Outreach Advocate, Courtney Hineman, and Family Engagement Coordinator for the Hamilton County Developmental Disabilities Services, Sean Bostic, for a University of Cincinnati Regional Autism Advisory Council 3-Part Training Series focused on supporting people with intellectual and developmental disabilities in the workplace on Monday, May 5 from 11:30 a.m. – 1:00 p.m! Register now to see Courtney speak virtually on Monday:
    UC IDD Education Center
  • We Thrive Together Relationship: Trust/Lying Discussion 3:00-4:00pm check out this link to join
  • Adulting 101: Making Friends and Staying Connected Over The Summer 5:30pm-8:30pm Link to register
    Adulting 101 Workshops are a fun way for teens and young adults to learn about and practice various life skills that are important to being an adult. This month we will be learning about staying connect with friends and family who we don’t see everyday. This event will involve working on practice conversations, getting connected to the ACTeens GroupMe, Speed Friending, making signs of affirmation and more!
    For questions, contact Jordan Slutsky, Teen Services Coordinator, at jslutsky@abilitycenter.org

Tuesday May 6th 2025

National Nurses Day!

  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday May 7th 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • Ohio Olmsted Taskforce 1-3pm The Ohio Olmstead Task Force (OOTF) is a statewide grassroots coalition of Ohioans with disabilities of all ages, family members, advocates and organizations advocating for the right to live, work and participate in their communities. Formed in 2002, OOTF supports the Supreme Court decision that held unnecessary institutionalization is discrimination against people with disabilities.
    For more information or how to access meetings email ohioolmstead@gmail.com

Thursday May 8th 2025

  • OACBDD Spring Conference Please check out this link for more information on The Ohio Association of County Boards of DD Conference https://www.oacbdd.org/main/save-the-date/
  • OSDA Creative Changemakers, Thursday, May 8 · 4:30–5:30 PM, Repeats every month on the second Thursday contact clareschloemer.osda@gmail.com for more information on how to join.
  • Ohio Family to Family Information Session: Transition out of Early Intervention:
    What Families Need to Know, Thursday, May 8 · 7–8:30 PM To Register click this link

Friday May 9th 2025

  • OACBDD Spring Conference Please check out this link for more information on The Ohio Association of County Boards of DD Conference https://www.oacbdd.org/main/save-the-date/
  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday May 10th 2025

  • Ross County Sibs 10:00am – 1:00pm Register your child for our May Sibshop gathering on Saturday, May 10th at The Landrum Youth Empowerment Center. Contact krsmith@rossdd.org
  • Holmes County Developmental Disabilities Annual Spring Festival and Auction read more about it here

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Planning an accessible outdoor adventure just got easier!
    The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
    In the guide, you’ll find:
    ✅ Trail safety tips
    ✅ Accessible trails, fishing, boating, and Storybook Trails
    ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
    Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
  • If you or a loved one is facing a mental health or addiction crisis, you’re not alone. Call, text, or chat 988 to connect with a trained specialist ready to listen and offer free, confidential support 24/7.
    988 is a direct connection to compassionate, accessible care and support for anyone experiencing mental health-related distress.
    Learn more and find easy-to-read resources: https://dodd.ohio.gov/about-us/our-programs/988+Resources
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility
  • In honor of #MentalHealthAwarenessMonth, explore DODD’s Wellness Project, a collection of resources for EVERYONE, featuring tools for mindfulness, relaxation, and mental health support. Check out the information through this link put out by Ohio Department of Developmental Disabilities.
  • Ohio Family to Family on Navigating the IEP process can be overwhelming—here is a roadmap to help you become informed.
  • The Long-Term Care Ombudsman program (LTCOP) advocates for individuals residing in nursing facilities and residential care communities, such as assisted living facilities and board and care homes. They resolve problems that impact residents’ rights, quality of life, and quality of care, and work to improve policies at the local, state, and national levels. The Long-Term Care Ombudsman program is the only federal program mandated to advocate with, and for residents of long-term care facilities. Learn more in our new fact sheet:https://theconsumervoice.org/wp-content/uploads/2025/04/Ombudsman-Fact-Sheet.pdf
  • Qualifying older adults can now apply for the 2025 edition of the Senior Farmers Market Nutrition Program!
    Learn more: https://aging.ohio.gov/sfmnp2025
    Sign up: https://portal.homegrownbenefits.com/apply/ohio

This Week in Awareness


May:
• Mental Health Awareness Month
• National Arthritis Awareness Month
• Disability Insurance Awareness Month
• ALSOS. Awareness Month
• National Stroke Awareness Month
• National Military Service Appreciation Month
• Allergy and Asthma Awareness Month
• Jewish American Heritage Month
• Better Speech–Language-Hearing Month
• Borderline Personality Disorder Awareness Month
• Brain Tumor Awareness Month
• Cystic Fibrosis Awares Month
• Public Service Recognition Week
• Guide Dog Month
• Hepatitis Awareness Month
• Hepatitis Awareness Month
• Lupus Awareness Month
• Pediatric Stroke Awareness Month
• Lyme Disease Awareness Month
• Mobility Awareness Month
• Older Americads Month
• Celiac Awareness Month
• Huntington’s Disease Awareness Month
• Ehler’s-Danlos Syndrome Awareness Month
• High Blood Pressure Awareness And Education Month
• Inherited Retinal Disease Genetic Sesting Month
• Health Vision Awareness Month
• Myositis Awareness Month
• National Ostioperosis Awareness And Prevention Month
• Prader-Willi Syndrome Awareness Month
• Neurofabromotis Awareness Month
• Williams Syndrome Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Building a Supported Decision Making Team by Alicia

Supported Decision Making has become a big topic in Ohio recently. Some people are curious about it and are asking what is it and how can it help people with disabilities? Some people have seen that it is an alternative to guardianship and have also wondered how it can help someone.

Supported Decision Making is something that empowers people with disabilities to make their own decisions and choices in life with the support of others. It is a way for people with disabilities to make informed decisions while understanding the pros and cons of a decision or different perspectives. It allows a person to make the best choice possible. This allows for person centered planning and involvement in directing a persons own care.

Here are a few resources to help you understand What Supported Decision Making is and isn’t.

Supported Decision Making has been super important to be able to self direction my care. I have a Supported Decision Making Team. Anyone can have people help them make decisions. I am sure that a lot of people are already using this tool without knowing it.

Sometimes people will poll their friends or consult family or others to help them decide common every day matters like what kind of car they should buy or even maybe a family dinner that is being planned.

Ultimately the person buying car decides the final final product. This is the same for people who use supported decision making ultimately they decide the choices for their life.

In April of 2024, I started my Supported Decision Making Team. When it came to choosing my team , I wanted to have a variety of people. It was important for me to build a team verses have one single person because of high complexity of my disabilities and needs. It is important to know you can chose just one person. It doesn’t need to be a team of people like I chose to do.

Some things that I took into consideration was my needs and the background of friends and others I knew in my community. My Supportive Decision Making team is diverse. It is important to know that people who support you do not have to live in the same community or even the same state as you do.

My Supportive Decision Making team meets on Zoom. I have people on my team who live in other parts of Ohio and also someone who lives in another state.

When I chose my team I thought about needing a person that was disabled, a person understood my home care services, someone was an ally but understood complex medical needs and rare diseases and someone who had nursing background. It was important for me to chose people who were my friends for a long time and people who have known me a short time.

At first the people I approached didn’t feel qualified for such an under taking what they didn’t know was they had all the qualifications I needed. The most important thing to me was finding people who would listen and then share their wisdom but ultimately let me decide.

I am a complex person and I am not afraid to admit it. I got a lot of rare diseases and also some more difficult things that I need support on than others.

Sometimes people see me as a strong advocate and they often miss my more intense needs for support. Building my team was about finding people who saw me and supported me through my challenges and who saw my abilities.

I formed a team of five women and we have had a long year. My team has helped me in a number of ways. They have supported me to make many decisions including day to day decisions. It is important to know that supportive decision making isn’t just for the harder decisions that need more thinking it also for the every day decisions.

I want to share some ways that my SDM team have helped me on some big decisions. Then I also like to share how my SDM team operates on every day decisions .

I have consulted my SDM team about helping me make decisions to coordinate a move to a new apartment with choosing a moving service to also decisions around coordinating movers.

My SDM team also has helped me with decisions around making food choices and selecting recipes to make with my direct support staff on a weekly basis. People often have this assumption that if you are in the advocacy space you don’t need support or someone is super high functioning that isn’t always accurate that’s why people shouldn’t judge a book by its cover or a persons abilities or needs by what’s spaces and places they are connected to. Everyone has needs and also needs support. To learn more about my story watch this video to understand a more detailed part of my story.

Supported Decision Making has been life changing. It saved me from guardianship and had helped me take back my life and to make informed decisions on my everyday needs. I have learned problem solving skills, how to work thru conflict and how to ask questions and direct my care.

There are people who have used it along side of guardianship to give people with disabilities choices and help them to make the best choice with support.

I have also seen people who considered guardianship decide to read up and look at supported decision making and decide it was a better option and chose to let the person drive own care with guidance and support. I think that it is important to read about supported decisions making and learn what your options are to help people live their best lives.

I believe that people with disabilities are capable of making choices when given the right supports to do so. Everyone has their own journey and this is a simple tool than can be help many people because it helps with person centered planning and helps people direct their care and make decisions with support that help them live their best lives..

The Pulse: What’s going on around Ohio April 27th to May 2nd 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Protection and Advocacy for Individuals with Mental Illness(PAIMI) Program
    Public Forum On May 6th, 2025, representatives from the United States Department of Health and Human Services, Substance Abuse and Mental Health Services (SAMHSA), Center for Mental Health Services (CMHS) will visit Disability Rights Ohio, the Protection & Advocacy System for the State of Ohio.
    SAMHSA/CMHS invites you to send comments about the
    PAIMI Program services and activities conducted by the Disability Rights Ohio.
    Please send your comments to SAMHSA/CMHS by email to PAIMI@samhsa.hhs.gov or mail to the PAIMI Program Coordinator, SAMHSA/CMHS, 5600 Fishers Lane, Suite 14E25D,
    Rockville, Maryland 20857
  • The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
    You can access the survey by clicking this link to do the survey.
    If you any questions, please reach out:
       Phone:  1 (855) 556-6328
       Email:   healthsurvey@ku.edu

Events around Ohio to check out week of April 27th 2025 to May 3rd 2025

Monday April 28th

  • We Thrive Together is hosting a workshop on social wellness from 11 AM. to noon. If you wish to attend, you can click the link for this event.

Tuesday April 29th 2025

  • We Thrive Together will be hosting a tech talk about LinkedIn from 11 AM. to noon. You can click the link below to join:
    Join Event
  • APSE. is hosting a State Policy Coffee Talk from 3-4 PM.

    Join ASPE on April 29 from 3:00-4:00pm for State Policy Coffee Talk! ☕

    They will be discussing the latest developments in state policy and their impact on our community. Don’t miss this opportunity to connect, learn, and engage in meaningful conversations.

    See you there!Register through link

    #StatePolicy #CoffeeChat #CommunityEngagement #PolicyDiscussion
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday April 30th

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • There will be a a MyCare And Self-Direction SubCommittee Breaking Silences Advocacy Committee meeting from 3-4 PM. on Zoom. If you’d like more information on Breaking Silences, you can contact Maria Matzik at: Maria.Matzik@acils.com

Thursday May 1

  • The United States Access Board will have a general meeting from 1:30 PM. to 3 PM. This meeting will be open to the public, and you can attend on ZoomGov, dial in, in-person, or listen to the livestream. To learn more, you can click the link below:

    U.S. Access Board Meeting on April 30

    If you need more information, or, you have additional questions, you can contact Rose Marie Bunales at:

    events@access-board.gov

Friday May 2nd 2025

  • We Thrive Together is hosting a tech talk about selling items online using Facebook Marketplace, Craigslist, and eBay from 11 AM. to noon. You can join by clicking this link:
    Join Event
  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday May 3rd 2025

No known events

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Artists with Disabilities Access Program: The Artists with Disabilities Access Program (ADAP) provides funding that gives individual artists with disabilities the resources they need to further their artistic development. Creative expression by artists of all abilities is essential to building dynamic and diverse communities throughout Ohio. ADAP awards help artists with disabilities advance their artistic practices, making Ohio a more accessible and inclusive place to build an artistic career. 
    Application Deadline: May 1, 2025
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility

This Week in Awareness


May:
• Mental Health Awareness Month
• National Arthritis Awareness Month
• Disability Insurance Awareness Month
• ALSOS. Awareness Month
• National Stroke Awareness Month
• Syringomyelia Awareness Month
• Allergy and Asthma Awareness Month
• Better Sleep Month
• Better Speech–Language-Hearing Month
• Borderline Personality Disorder Awareness Month
• Brain Tumor Awareness Month
• Cystic Fibrosis Awares Month
• Foot Health Month
• Guide Dog Month
• Hepatitis Awareness Month
• Hepatitis Awareness Month
• Lupus Awareness Month
• Huntington’s Disease Awareness Month
• Lyme Disease Awareness Month
• Mobility Awareness Month
• Older Americads Month
• Celiac Awareness Month
• Huntington’s Disease Awareness Month
• Ehler’s-Danlos Syndrome Awareness Month
• High Blood Pressure Awareness And Education Month
• Inherited Retinal Disease Genetic Sesting Month
• Health Vision Awareness Month
• Myositis Awareness Month
• National Ostioperosis Awareness And Prevention Month
• Prader-Willi Syndrome Awareness Month
• Neurofabromotis Awareness Month
• Williams Syndrome Awareness Month 




 

For more events check out our main website OhioAdvocacyHeartbeat.com

The Pulse: What’s going on around Ohio April 14th to April 19th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Protection and Advocacy for Individuals with Mental Illness(PAIMI) Program
    Public Forum On May 6th, 2025, representatives from the United States Department of Health and Human Services, Substance Abuse and Mental Health Services (SAMHSA), Center for Mental Health Services (CMHS) will visit Disability Rights Ohio, the Protection & Advocacy System for the State of Ohio.
    SAMHSA/CMHS invites you to send comments about the
    PAIMI Program services and activities conducted by the Disability Rights Ohio.
    Please send your comments to SAMHSA/CMHS by email to PAIMI@samhsa.hhs.gov or mail to the PAIMI Program Coordinator, SAMHSA/CMHS, 5600 Fishers Lane, Suite 14E25D,
    Rockville, Maryland 20857
  • April is National Poetry Month, and, we’re looking for Ohio advocates to submit poems about advocacy that are 100 words or less! If you wish to submit a poem, send it to:
    ohioadvocacyheartbeat@gmail.com
  • The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
    You can access the survey by clicking this link to do the survey.
    If you any questions, please reach out:
       Phone:  1 (855) 556-6328
       Email:   healthsurvey@ku.edu

Events around Ohio to check out week of April 6th 2025 to April 12th 2025

Monday April 14th

  • We Thrive Together: Spiritual Wellness class 11:00am-12:00pm click this link to join.
  • We Thrive Together: Healthy Relationship Qualities Class 3:00-4:00pm click this link to join.

Tuesday April 15th 2025

Happy Tax Day!

  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday April 16th

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • The Pacific ADA Center is having a webinar on ‘Your Rights as a Person with a Disability Under the ADA in Health Care Register here at this link.
  • People First of Northeast Ohio, Wednesday, Apr 16 · 6:30–8 PM, Repeats every month on the third Wednesday People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday April 17th

  • OOD: Service Animals Webinar In this webinar, we will discuss what a service animal is and how they are utilized in the workplace community. Best practices will be shared for interacting with service animals and their handlers in inclusive ways.
    Register through this link
  • Workshop: Accessible Electronic Communication in Healthcare, Thursday, Apr 17 · 2:30–3:30 PM ADA National Network is hosting a free webinar on ‘Accessible Electronic Communication in Healthcare Settings’ on April 17, 2025 at 2:30 p.m. EST. Register here:
  • Your Students Rights and Services at Risk: Changing the Landscape 1:00pm-2:00pm Join Matt Cohen on Zoom, Thursday, April 17th at 12:00 p.m. Central Time, as he discusses changes in US Department of Education Federal funding, laws, and enforcement that have already happened or are being considered, the impact, and what can be done about it at the national level for your child.
    Register through Zoom link.

Friday April 19th 2025

  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday April 19th 2025

  • Ohio Deaf Association Board Meeting, Saturday, Apr 19 · 10:00 AM–2:00PM Ohio Deaf Association Board Meeting
    10am-2pm https://www.facebook.com/share/1EmBWAomgx/?mibextid=wwXIfr
  • Adapted CrossFit in Cincinnati
  • Ohio Miss Amazing Pageant, Saturday, Apr 19 · 4:00-5:00pm at Barberton High School Barberton, Ohio $10 at the door.

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Artists with Disabilities Access Program: The Artists with Disabilities Access Program (ADAP) provides funding that gives individual artists with disabilities the resources they need to further their artistic development. Creative expression by artists of all abilities is essential to building dynamic and diverse communities throughout Ohio. ADAP awards help artists with disabilities advance their artistic practices, making Ohio a more accessible and inclusive place to build an artistic career. 
    Application Deadline: May 1, 2025
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility

This Week in Awareness

  • Stress Awareness Month
  • Autism Awareness Month
  • National Poetry Month
  • National Minority Health Month
  • Sjogrens Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

The Pulse: What’s going on around Ohio April 6th to April 12th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Protection and Advocacy for Individuals with Mental Illness(PAIMI) Program
    Public Forum On May 6th, 2025, representatives from the United States Department of Health and Human Services, Substance Abuse and Mental Health Services (SAMHSA), Center for Mental Health Services (CMHS) will visit Disability Rights Ohio, the Protection & Advocacy System for the State of Ohio.
    SAMHSA/CMHS invites you to send comments about the
    PAIMI Program services and activities conducted by the Disability Rights Ohio.
    Please send your comments to SAMHSA/CMHS by email to PAIMI@samhsa.hhs.gov or mail to the PAIMI Program Coordinator, SAMHSA/CMHS, 5600 Fishers Lane, Suite 14E25D,
    Rockville, Maryland 20857
  • April is National Poetry Month, and, we’re looking for Ohio advocates to submit poems about advocacy that are 100 words or less! If you wish to submit a poem, send it to:
    ohioadvocacyheartbeat@gmail.com
  • The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
    You can access the survey by clicking this link to do the survey.
    If you any questions, please reach out:
       Phone:  1 (855) 556-6328
       Email:   healthsurvey@ku.edu

Events around Ohio to check out week of April 6th 2025 to April 12th 2025

Monday April 7th

World Health Day!

  • We Thrive Together: Emotional Wellness Workshop from 11:00am-12:00pm check out this link to join.
  • We Thrive Together: Relationships Empathy Chat 3:00-4:00pm check out this link to join.
  • Adulting 101: Discussion on Social Security Benefits with Lucas County Board of DD (ages 13 and up – parents also welcome!), Monday, 5:30–8:30 PM at The Ability Center of Greater Toledo 5605 Monroe St, Sylvania, OH 43560, USA
  • There will be a meeting with the Breaking Silences Accommodations committee on April 7, 2025 from 3-5 PM. If you’d like to attend, please email Maria Matzik at:
    Maria.Matzik@acils.com

Tuesday April 8th 2025

  • The Ohio Senior Health Insurance Information Program (OSHIIP), the state of Ohio’s official Medicare resource, is hosting a free “Welcome to Medicare” virtual educational event on April 8 from 11 a.m. to noon. The event is for Ohioans new to Medicare or those who need a Medicare refresher. Register today: https://bit.ly/4i1EWnR
  • The Disability Employment Tchnical Assistance Center will be hosting a webinar STABLE accounts on April 8, 2025 from 3 to 4:30 PM. The National Able Resource Center will give an overview of STABLE accounts, which allow people with disability to save and invest money without it affecting their benefits. The webinar will cover ellegibility requirements, contribution limits, and how funds can be used. The webinar will then talk about how Kansas increased adoption of STABLE accounts for people with disabilities, serving as a model for other states, and, an individual will talk about how she uses her STABLE. account to live independently in the community.
    Registration is required, and, attendees can list accommodation needs on the registation form. ASL. interpretation, Live Captioning, and Spanish Machine Translation will be available. To register, click this link:
    Webinar Registration – Zoom
  • Breaking Silences Advocacy Committee will have a meeting from 3:30 to 4:30 PM. Zoom. If you would like to attend, email Maria Matzik at: Maria.Matzik@acils.com
  • We Thrive Together: Life Skills Class on Washing Clothes to join click this link it is from 4:00-5:00pm.
  • Community Town Hall: Mental Health and Substance Use Services, Tuesday, Apr 8 · 5–6:30 PM at Huron County Community Library
    33 Pleasant St, Wakeman, OH 44889, USA
  • Breaking Barriers:
    Communication in the Criminal Justice System for Individuals with Disabilities
    Tuesday, April 8, 6-7:30 p.m.
    Madeira Library in Cincinnati
    Join us for an interactive workshop where we will explore:
    How communication impacts individuals with disabilities
    Strategies for improving communication when interacting with the criminal justice system
    Practical solutions to enhance accessibility and reduce barriers
    Presented by University of Cincinnati and The Arc.
    For Adults.

Wednesday April 9th 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • Cincinnati Children’s Hospital Webinar Series Future Planning, Wednesday, Apr 2 · 11:30 AM–12:30 PM Speaker: Derek Graham please register this this link
  • Supported Decision Making Network of Ohio has a 12:00-1:30pm monthly meeting. Check out there website for more information.

Thursday April 10th

  • OSDA Creative Changemakers, Thursday, Apr 10 · 4:30–5:30 PM, Repeats every month on the second Thursday contact clareschloemer.osda@gmail.com for more information on how to join.

Friday April 11th 2025

  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday April 12th 2025

  • No Known Events

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Artists with Disabilities Access Program: The Artists with Disabilities Access Program (ADAP) provides funding that gives individual artists with disabilities the resources they need to further their artistic development. Creative expression by artists of all abilities is essential to building dynamic and diverse communities throughout Ohio. ADAP awards help artists with disabilities advance their artistic practices, making Ohio a more accessible and inclusive place to build an artistic career. 
    Application Deadline: May 1, 2025
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility

This Week in Awareness

  • April 8th, Cushing Disease Awareness Day
  • Stress Awareness Month
  • Autism Awareness Month
  • National Poetry Month
  • National Minority Health Month
  • World Autism Awareness Day
  • Sjogrens Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

The Real Truth about Social Security and the Closures and Phone Systems.

The importance of fact checking in today’s times is very critical so people don’t spread misinformation and create panic.. I myself have been on person to read something and share without checking. I want to set the record straight on a few things that are important.

It is really important to look through the .GOV sites to check out things people share with you. I understand there are a number of challenges with The Social Security Administration and I have experienced them. I also have duty to find up to date information and share what is most accurate.

For example some people have been sharing about Social Security closing some offices in different states. The Social Security Administration put out a memorandum about this to set the facts straight. For anyone wants information about day to day closings be state they also have some really great information on this as well.

Also been rumors that Social Security cut phone lines for people to verify information and to access services. While the SSA has made some changes they haven’t eliminated phone service. Here’s the scoop. The Social Security Administration actually has said they will no longer let people verify information around direct deposit over the phone. This is to prevent fraud. They also have added security for online accounts by adding two factor identification.

In a blog from March 26th, 2025 the SSA writes this

“If someone needs to change their bank account information on SSA’s record, they will need to either:

  • Use two-factor authentication with SSA’s “my Social Security” service; or
  • Visit a local Social Security office to prove their identity.

These methods align with most major banks.

All other SSA telephone services remain unchanged.”

You can read the blog yourself through this link .

The Pulse: What’s going on around Ohio March 31st to April 5th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • We Thrive Together a virtual social club is offering a coloring contest here is the link to learn more.
  • Northeast Ohio Medical University is looking for people with disabilities to participate research study on gynecology services and how to improve them. If interested please click link here.

Events around Ohio to check out week of March 17th 2025 to March 22nd 2025

Monday March 31st 2025

  • Autism Society of Greater Akron Information &
    Education and Medicaid Policy Changes Listening Session, Monday, Mar 31 · 6:30–8 PM to Register for event click on this link .

Tuesday April 1st 2025

  • Policy With Coffee | Driven by Change: Transportation & Community Impact, Tuesday, Apr 1 · 8:30–9:30 AM in Cincinnati, Ohio.
  • Salt Talks: Stable Accounts Vs Special Needs Trusts, Tuesday, Apr 1 · 6:00- 7:30 PM check out facebook event page

Wednesday April 2nd 2025

World Autism Awareness Day!

  • Eastern Cuyahoga County Resource Fair, Wednesday, Apr 2 in Highland Hills, Ohio check out this link for more information.
  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • Cincinnati Children’s Hospital Webinar Series Future Planning, Wednesday, Apr 2 · 11:30 AM–12:30 PM Speaker: Derek Graham please register this this link
  • Ohio Olmsted Taskforce Meeting 1pm contact Ohioolmstead@gmail.com for more information and for zoom lin

Thursday April 3rd 2025

  • Inclusive Storytelling, Thursday, Apr 3 · 10:00-11:00 AM at Kings Road Branch of Toledo Public Library

Friday April 4 2025

  • No Known Events

Saturday April 5th 2025

  • Special Needs Community Resource Fair, Saturday, Apr 5 · 10:00 AM–2:00 PM at 6900 Market Ave N
    Canton, OH 44721, USA

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Artists with Disabilities Access Program: The Artists with Disabilities Access Program (ADAP) provides funding that gives individual artists with disabilities the resources they need to further their artistic development. Creative expression by artists of all abilities is essential to building dynamic and diverse communities throughout Ohio. ADAP awards help artists with disabilities advance their artistic practices, making Ohio a more accessible and inclusive place to build an artistic career. 
    Application Deadline: May 1, 2025
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility

This Week in Awareness

  • Autism Awareness Month
  • National Poetry Month
  • National Minority Health Month
  • World Autism Awareness Day
  • Sjogrens Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Saturday Advocacy Wins to Share!

Each week we want to highlight advocacy wins of the week on our page that we see happening around Ohio. An advocacy win is something good that happens in the world of advocacy or self advocacy. If you want to share something that happened in the world of advocacy in Ohio please email us we will include it in our weekly wins in Advocacy Post next week.

  • Several advocacy groups in Ohio advocated to change the rules around paid family caregivers for minors. They got a victory which allows parents/family members to only have to search for a new provider once every year instead every four months.
  • Ohio Advocate Dawn shared a success about being able to get accommodations for a friend who was trying to get services through Opportunities for Ohioans with disabilities.
  • A women in Huron County, Ohio shared about advocating for genetic testing and getting insurance to cover it.