Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• The city of Cincinnati has Survey for residents to complete. Please participate if you are in Cincinnati. This is a good way to speak up!
• OCALI and the Ohio Interagency Work Group on Autism (IWGA) want to hear what’s working, what’s not, and what matters most to you. That’s how we know we are building resources, trainings, and community connections that make a difference.  
  Take a few minutes today to help shape tomorrow click link for survey.
• Ohio DD Council Seeks Public Input on Draft 5-Year Plan on Developmental Disabilities
  The Ohio Developmental Disabilities Council has approved a draft 5-Year Plan on Developmental Disabilities at their October meeting. The Council now seeks public feedback on the Goals and Objectives the Council has created for 2027-2031. Additionally, the Council is proposing to provide funding for 19 different grant projects. Each of the proposed projects, along with goals and objectives, can be found at this link: https://ddc.ohio.gov/projects-and-grants/five-year-state-plan/five-year-state-plan
  The Council began working on the draft plan in 2024 when it published a public survey seeking input on the needs in Ohio. More than 1,000 survey responses were received from Ohioans with developmental disabilities, family members and system stakeholders. Starting in early 2025, Council began evaluating the needs identified by Ohioans in the survey and developing goals and objectives to address those needs.
  Now, the Council seeks feedback on the plan it has created. Anyone can submit comments or feedback on the draft plan by submitting a completed survey. Surveys can be found by this link: https://form.jotform.com/253015784369060
  The deadline for all surveys is Wednesday, December 31, 2025.

Events around Ohio to For November 10th, 2025 to November 15th, 2025

Tuesday November 11th, 2025

Veterans Day!

• DON’T FORGET! Save the Date for Tomorrow — November 11th!
  Brain Injury Association of Ohio, featuring our very own Just In Time Adaptive Wellness founder, Dana Spradling!
  We’ll be sharing insights and real-life experiences about shifting from managing the overwhelm of diagnosis to encouraging recovery through wellness — helping families move from “Now what?” to “We’ve got this.”
  Time: 6:00 – 7:00 PM
  Location: Online Webinar (Free to Attend!)
  Register here: https://zoom.us/meeting/register/eV2X5kHMR1mNDTmC_oOvaw
• Town Hall Solutions for Mental Health in Ohio/ Congressional Candidate Adam Miller 100 S Grant Ave, Columbus, OH 43215-4702, United States Meeting Room 2B at the Main Library
  We are hosting a Town Hall to listen, share with each other and hone our plan of action for improved federal support of Mental Health and Wellness. We are FOR:
  Young people with special needs and their families, Teens battling anxiety and depression
  Families impacted by substance abuse Adults struggling with heavy demands and fraying social ties
  Veterans who are losing access to mental health care
  Seniors living with loneliness or dementia
  https://adammillerforcongress.org/solutions-for-mental-health-in-ohio-event/
• Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
  Maria.Matzik@acils.com

Wednesday November 12th 2025

• OSDA at We Thrive Together 11:00-12:00pm click this link to join
• UCCEDD Youth Transition Expo at Sharonville Convention Center 9am-3pm
• Supported Decision Making Network of Ohio 12:00-1:30pm This is for anyone who is interested in knowing more about supported decision making. https://www.sdmno.org please check out their Facebook page for meeting information. Zoom link for this months meeting

Thursday November 13th 2025

• OSDA Creative Changemakers, Thursday, Nov 13 only will hold two meetings one from 1-2pm and 4:30–5:30 PM, Repeats every month on the second Thursday. Its a group of peers/self-advocates who meet once a month to hang out and talk about issues facing people with disabilities in Ohio This group supported by the Ohio Self-Determination Association. Change Makers was created by and is run by people with disabilities because they wanted to extend their advocacy conversations beyond the COOL meetings. Please Contact one of the emails listed clareschloemer.osda@gmail.com
  nrichards@clearwatercog.org
  osda2011@gmail.com
• Butler County Board of DD Board Meeting, Thursday, Nov 13 · 6–8 PM, Repeats every month on the second Thursday 282 N Fair Ave, Hamilton, OH 45011-4222, United States Our regularly scheduled board meeting is at the Janet Clemmons Center at 282 N. Fair Avenue, Hamilton, OH 45013.
  To download the agenda, click this link: https://www.butlerdd.org/events/board-meetings/

Friday November 14th, 2025

• Brunch4Brains – Ohio, Friday, Nov 14 · 11 AM–2 PM Dayton Convention Center, 22 E 5th St, Dayton, OH 45402 Join us for a powerful and heartwarming event hosted by Epilepsy Foundation Ohio! Enjoy brunch, connect with the community, and help us shine a light on epilepsy awareness and support.
  Source › https://facebook.com/events/s/brunch4brains-ohio/1352744433160315/
• We Thrive Together Advocacy Army 4:00pm-5:00pm click this link to join.

Helpful Information by National, State and County Agencies and Organizations for People to Read

• 2026 Managed Care Healthcare Comparison Guide
  It provides an overview of the services that all managed care plans offer as well as the specific value-added services available from each individual plan.
• Emergency Preparedness for Individuals with Rare Diseases
• Resources for Improving Respite Care for Caregivers
• Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
  Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
  Local jobs with openings at ow.ly/NGL050WqLmA.
• Did you know Summit County has a special database to help reunite lost individuals with communication difficulties with their families? The Take Me Home program is a countywide initiative that supports individuals with disabilities that impact their ability to communicate.
  How it works:
  📝 Families register their loved one’s information in a secure database
  👮‍♀️ Only law enforcement personnel can access the information
  🔍 Officers can search by name, phone number, or physical characteristics
  🤝 Quick identification helps reunite families safely
  You can learn more at: https://bit.ly/4mjbiMQ
  Thanks to the partnership between the Elliot Kolkovich, Summit County Prosecutor and Summit County Sheriff’s Office we have this vital safety net.
  TakeMeHomeProgram #SummitCounty #AutismSafety

November Awareness Month

• American Diabetes Month
• Lung Cancer Awareness Month
• National Family Caregivers Month
• National Family Literacy Month
• Long Term Care Awareness Month
• National Home Care & Hospice Month
• Epilepsy Awareness Month

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• Developmental Disability Office Website Usage Survey
  The University at Albany is working on a research project to better understand how people with developmental disabilities use their state’s developmental disability services website. The goal is to improve access to information and ensure these online tools meet the needs of the community. Individuals who are 18 years or older, have a developmental disability, use services from their state’s developmental disability office, can read, and are able to speak in a one-hour Zoom interview may be eligible to participate.
  Contact jmanganello@albany.edu for more information on how to participate.
  Image Description: A purple and white flyer from the University at Albany with the logo and text at the top. The heading reads: “Do you use services from your state developmental disability office?” A banner below notes that participants will receive a $40 Amazon card. The flyer explains that researchers want to hear about experiences using state websites to learn about services. Eligibility requirements are listed: must be an adult 18 or older, have a developmental disability, use services from the state developmental disability office, be able to talk in a Zoom interview for about an hour, and be able to read. Family members are also welcome to participate. A purple button says “Contact us for more information” with an email address below: jmanganello@albany.edu
• Ohioans can take the Ohio Department of Aging Statewide Needs Assessment Survey to enable the department to better understand what matters most to older Ohioans, adults with disabilities, and their caregivers. Feedback from those digital surveys will be used to further bolster the 2027-2030 State Plan on Aging. Click this link to do the survey.
• The 2026 Accessible Expressions Ohio Call for Art is officially OPEN!
  What is Accessible Expressions Ohio?
  Accessible Expressions Ohio is a statewide adjudicated exhibition featuring art from artists with disabilities from across the state. Artists can enter in the youth, emerging, or professional categories, and enter under a special theme category. Cash prizes are awarded in each category, including a Best in Show.
  Who can apply?
  Any Ohio artist living with a disability may apply.
  How do I apply?
  You can find the application link here: https://airtable.com/appdTSVjgoroKqru3/shrKexgk1FzKsHyMZ
  Upon request, applications are available both by email or mail.
  Have any questions?
  Contact Lina Stavrova at lina@ArtPossibleOhio.org
• PhD candidate Rahsaan DeLain is seeking volunteers to share their experience for a research study. Participants must identify as Black or African American and male, reside in Erie or Niagara County, and have a biological, adopted, or step child with autism under 18 years old. For those interested in participating, you can fill out a questionnaire at this link

Events around Ohio to For September 30th 2025, to October 11th 2025

Monday September 29th 2025

• Autism Parent/Caregiver Support Group 6-9pm Lake Erie College in Painesville, Ohio sign up through this link here.
• We Thrive Together Relationships Class: Being Respectful 3:00pm-4:00pm click this link to join.
• ✨ Calling all Stark County caregivers! ✨
  We’re excited to host our 2nd Caregiver Café on September 29th, designed just for families of children with Autism. Join us and connect with other parents, share experiences, and gain valuable insights.
  📅 September 29
  ⏰ 5–7 PM
  📍 Early Childhood Resource Center, Canton, OH
  Each session is limited to 25 participants — don’t wait to secure your spot! Register today and join us for meaningful conversation and community: https://bit.ly/3Vbuz83
  ASGAParentCafe #CaregiverSupport #FamilyConnection #CantonOH

Tuesday September 30th 2025

• Early Childhood Open Play, Tuesday, Sep 23 · 10:45–11:45 AM, Repeats weekly Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
  Sign up here: https://forms.office.com/Pages/ResponsePage.aspx?id=XVWFGg_k5k-kGn4tsvCQmtmZ9AEFDiZHtLlPpU9yYnBUOEtVS0JTWjdHVkhDWFRLREFLWElCMzFaNC4u
• We Thrive Together Tech Talk: Google Slides 11:00am-12:00pm click this link to join.
• Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
  Maria.Matzik@acils.com

Wednesday October 1st 2025

• OSDA at We Thrive Together 11:00-12:00pm click this link to join
• Synergy Conference in Sandusky, Ohio
• Ohio Olmsted Taskforce 1pm contact ohioolmstead@gmail.com to ask for meeting link.

Thursday October 2nd 2025

• Cincinnati Blue Ash Senior Lifestyle, Health and Home Expo 10am-1pm check out this link for more information
• Promoting Self-Determination: Building Community Supports
  October 02, 2025 11:00 AM – 12:00 PM check out this link to learn more. The purpose of this AAIDD webinar is to build upon the ideas presented in the new book 𝘗𝘳𝘰𝘮𝘰𝘵𝘪𝘯𝘨 𝘚𝘦𝘭𝘧-𝘋𝘦𝘵𝘦𝘳𝘮𝘪𝘯𝘢𝘵𝘪𝘰𝘯: 𝘉𝘶𝘪𝘭𝘥𝘪𝘯𝘨 𝘊𝘰𝘮𝘮𝘶𝘯𝘪𝘵𝘺 𝘚𝘶𝘱𝘱𝘰𝘳𝘵𝘴⁣ by Karrie A. Shogren and Evan E. Dean and highlight key community supports for promoting self-determination.
  
• Synergy Conference in Sandusky, Ohio
• Mahoning County Board of Developmental Disabilities is holding a Transition Fair 10am-1 & 4-6pm WHAT IS IT?
  If you are age 14 to 22 and have a disability, this INCLUSIVE EVENT is for YOU, your families, caregivers and teachers. It is open to ANYONE in the tri-county area!
  WHAT IS OFFERED?
  Learn about and gather information about what is available to you as you prepare for the next stage in life.
  WHO WILL BE THERE?
  Providers of services and agencies across the Mahoning Valley will be there to share information and connect you and your family to supports that can help you move from teenage years to adulthood.
  NEW THIS YEAR!
  Employers will be there, too, with applications and information about job opportunities in the community!
  For more info call Kim MCBDD at 330-799-3193 or go to kimberlee.jeswald@mahoningcountyoh.gov

Friday October 3rd 2025

• Synergy Conference In Sandusky, Ohio
• We Thrive Together Advocacy Army 4:00pm-5:00pm click this link to join.

Saturday October 4th 2025

• 🎤🎶 Blind Equality Achievement Month Celebration 🎶🎤
  Presented by the National Federation of the Blind of Cleveland
  Join us for an evening of fun, music, and empowerment!
  Celebrate Blind Equality Achievement Month with karaoke, fellowship, and community spirit—while learning how you can make a difference.
  📅 Date: October 4, 2025
  🕒 Time: 2:00 PM to 4:00PM EST.
  📍 Location: Martin Luther King Jr. Cuyahoga County Public Library
  10601 Euclid, Ave, Cleveland History Centerd Ohio
  The Table Of Brotherhood, First floor
  What to Expect:
  ● 🎵 Karaoke and entertainment
  ● 🤝 Meet and connect with NFB members
  ● 🌟 Learn about blind equality and advocacy
  ● 📢 Discover how YOU can join the movement
  Our Mission
  The National Federation of the Blind knows that blindness is not the characteristic that defines you or your future. Every day, we raise expectations so that blind people can live the lives we want.
  Why Join the NFB?
  ● Be part of a strong, supportive community
  ● Access resources, programs, and services
  ● Advocate for equality and opportunity
  ● Share your voice and help shape the future
  TOGETHER, WE CAN TRANSFORM DREAMS INTO REALITY.
  📞 FOR MORE INFORMATION, CONTACT: SUZANNE TURNER, PRESIDENT
  SMTurner.234@gmail.com
  (216) 990-6199
• L’Arche Rock the Boat 5K & 1 Mile Walk, Saturday, Oct 4 · 9 AM–1 PM sign up for the Walk through this link it is at the Edgewater Upper Pavilion, Upper Edgewater Dr, Cleveland, OH 44102

Sunday October 5th 2025

• No Known Events

Monday October 6th 2025

• We Thrive Together Wellness Group: Hobbies 11:00am- 12:00pm Click this link to join.
• We Thrive Together Relationships Class: Individual Well Being 3:00pm-4:00pm click this link to join.

Tuesday October 7th 2025

• We Thrive Together Tech Talk: Microsoft Word 11:00am-12:00pm click this link to join.

Wednesday October 8th 2025

• Supported Decision Making Network of Ohio Meeting, Wednesday, Oct 8 · 12–1:30 PM, Repeats every month on the second Wednesday This is for anyone who is interested in knowing more about supported decision making. https://www.sdmno.org
• OSDA at We Thrive Together 11:00-12:00pm click this link to join

Thursday October 9th 2025

• New Directions in Disability Studies Conference 2025 at University of Cincinnati
• Inclusion Seekers Summit 2025, Thursday, Oct 9 · 8:30 AM–3:30 PM Cincinnati Art Museum, 953 Eden Park Dr, Cincinnati, OH 45202
• Basketball Season is right around the corner! Ottawa County Special Olympics will be hosting a basketball sign-up day on Thursday October 9th!
  Any athlete interested in playing on either the traditional or skills teams must attend to sign their sports contracts and paperwork for the season. Questions? Call Ray at 567-262-3119.
  Stop by OCBDD anytime from 4:30-7:30.

Friday October 10th 2025

• #EveryoneCommunicates Art Show 6:00-9:00pm at Box Elder Community Room 4573 Hamilton Avenue Cincinnati, Ohio 45223 Disabled Artist Alicia Hopkins will be sharing art about different ways people communicate. This show benefits the Supported Decision Making Network of Ohio.
• New Directions in Disability Studies Conference 2025 at University of Cincinnati

Saturday October 11 2025

• New Directions in Disability Studies Conference 2025 at University of Cincinnati

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Emergency Preparedness for Individuals with Rare Diseases
• Families: Does your loved one need a nurse, home health aide, or home care? PCG Match can help connect you!
  PCG Match is a secure, web-based platform designed to help connect individuals receiving Ohio Home Care or MyCare Ohio Waiver services and/or Medicaid State Plan services with providers who may be able to support individuals’ service needs. PCG Match does not replace any existing processes used to vet and/or authorize providers prior to rendering services.
  Individuals receiving Ohio Home Care or MyCare Ohio Waiver services and/or Medicaid State Plan services and case managers who support them can easily post jobs and use the online provider search to find care.
  Find out more here: https://ohiohcbs.pcgus.com/pcg-match
• News Highlight: Bridging Aging and Disability Networks (BADN) Explains How to Better Support Aging Adults with IDD and Their Caregivers
  A new article called “Bridging Aging and Disability Networks to Support Aging Adults With Intellectual and Developmental Disabilities and Family Caregivers” was published in the Public Policy and Aging Report by the Gerontological Society of America.
  The article explains that people with intellectual and developmental disabilities (IDD) are living longer, and their needs — along with those of their aging family caregivers — are getting more complicated. Most still live at home with support from aging parents or relatives. Even though they have many of the same needs as other older adults, they are often overlooked because aging and disability services don’t always work together.
  You can read the full BADN article in the latest edition of NACDD’s Insight: https://nacdd.org/nacdd-insight-july-2025/#badn
• Resources for Improving Respite Care for Caregivers
• Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
  Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
  Local jobs with openings at ow.ly/NGL050WqLmA.
• Cleveland Sight Center Radio Network (CSCN) is now available on Alexa devices! This radio station is dedicated to providing information, news and entertainment to the blind and visually impaired community. To play it, say “Alexa, open Cleveland Sight Center Network skill.” Don’t forget to say skill at the end, or else a different news broadcast will open. Happy listening!
• Did you know Summit County has a special database to help reunite lost individuals with communication difficulties with their families? The Take Me Home program is a countywide initiative that supports individuals with disabilities that impact their ability to communicate.
  How it works:
  📝 Families register their loved one’s information in a secure database
  👮‍♀️ Only law enforcement personnel can access the information
  🔍 Officers can search by name, phone number, or physical characteristics
  🤝 Quick identification helps reunite families safely
  You can learn more at: https://bit.ly/4mjbiMQ
  Thanks to the partnership between the Elliot Kolkovich, Summit County Prosecutor and Summit County Sheriff’s Office we have this vital safety net.
  TakeMeHomeProgram #SummitCounty #AutismSafety

October Awareness Month

• AAC Awareness Month (Augmentative Alternative Communication)
• Gaucher Awareness Month
• Dysautonomia Awareness Month
• Blind Equality Achievement Month
• Breast Cancer Awareness Month
• National Disability Employment Awareness Month
• Down Syndrome Awareness Month
• National ADHD Awareness Month
• Spina Bifida Awareness Month
• Learning Disabilities Awareness Month
• Sudden Infant Death Syndrome (SIDS.) Awareness Month
• National Rett Syndrome Awareness Month
• Dyslexia Awareness Month
• Dwarfism Awareness Month
• Oct. 2. World Cerebral Palsy Day
• Oct. 5. American Veterans Disabled For Life Awareness Day
• Oct. 9. World Sight/blind Day
• Oct. 5-11. Mental Awareness Week
• Oct. 19-25. Invisibile Disabilities Week

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• There’s only two more weeks to submit to Issue 8 of Imagine the World as One: A Disability Lifestyle Magazine! Please send us your articles about
  “Submit articles at http://www.imaginetheworldasonemagazine.com or email them to imaginetheworldasonemagazine@gmail.com Fashion Employment Product reviews Money Accessibility Dating Relationships Advocacy Art Between 2000-3000 Words Please send us your articles about disability and…. Submit your article at imaginetheworldasonemagazine.com Due September 30, 2025
• Ohioans can take the Ohio Department of Aging Statewide Needs Assessment Survey to enable the department to better understand what matters most to older Ohioans, adults with disabilities, and their caregivers. Feedback from those digital surveys will be used to further bolster the 2027-2030 State Plan on Aging. Click this link to do the survey.
• Clermont County Board of DD is doing a survey to understand the challenges individuals face in achieving self-sufficiency, maintaining health, and ensuring safety. The information gathered will help inform programs and services designed to address these barriers in the community. Your responses are confidential and will be used only for the purposes of improving services.
  https://forms.office.com/g/GnZ6Uw35dz
• The 2026 Accessible Expressions Ohio Call for Art is officially OPEN!
  What is Accessible Expressions Ohio?
  Accessible Expressions Ohio is a statewide adjudicated exhibition featuring art from artists with disabilities from across the state. Artists can enter in the youth, emerging, or professional categories, and enter under a special theme category. Cash prizes are awarded in each category, including a Best in Show.
  Who can apply?
  Any Ohio artist living with a disability may apply.
  How do I apply?
  You can find the application link here: https://airtable.com/appdTSVjgoroKqru3/shrKexgk1FzKsHyMZ
  Upon request, applications are available both by email or mail.
  Have any questions?
  Contact Lina Stavrova at lina@ArtPossibleOhio.org

Events around Ohio to For September 22nd September 30 2025

Monday September 22nd 2025

• Trumbull County Board of DD Board Meeting 5pm at 45 North Bend Road Niles, Ohio 44446

Tuesday September 23 2025

• Early Childhood Open Play, Tuesday, Sep 23 · 10:45–11:45 AM, Repeats weekly Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
  Sign up here: https://forms.office.com/Pages/ResponsePage.aspx?id=XVWFGg_k5k-kGn4tsvCQmtmZ9AEFDiZHtLlPpU9yYnBUOEtVS0JTWjdHVkhDWFRLREFLWElCMzFaNC4u
• Cuyahoga County Advocacy Connections Group, Tuesday, Sep 23 · 10 AM–12 PM You’re invited to Advocacy Series: Health Connections!
  A medical advocacy event for people with developmental disabilities.
  At the event, you’ll hear from peers and medical professionals to learn:
  Why training for medical professionals makes a difference in your care
  Importance of speaking up for yourself in medical settings
  Tips on how to navigate healthcare
  Accessing Medicaid provided benefits
  And more!
  Snacks and a universal changing table will be provided. The event is free, registration is needed, and space is limited. Once we fill all the spots, a waitlist will open.
  Register at http://surveymonkey.com/r/6X22YTS
• Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
  Maria.Matzik@acils.com
• FAMILY UNIVERSITY
  FOR DEAF, HARD OF HEARING, DEAFBLIND
  Topic: Welcome to the Community
  Date: September 23, 2025
  Time: 6:30 to 7:30 pm
  Join us this month for a welcoming opportunity to connect, and discover topics of interest and resources for communication, language, lEPs, and more. Celebrate your family’s strengths while building community and exploring supports together!
  JOIN US
  Family University is an opportunity for families of children that are Deaf, Hard of Hearing or Deafblind (DHH/DB) to meet virtually with other families. Register here
  Email white@osdb.oh.gov with questions

Wednesday September 24th 2025

• OSDA at We Thrive Together 11:00-12:00pm click this link to join
• Delaware County Board of Developmental Disabilities Family Forum Help With Strategic Plan 6-7pm 1740 US-23, Delaware, OH 43015-2726, United States

Thursday September 25th 2025

• We’re thrilled to invite you to the Ability Matters Open House on Thursday, September 25th from 4:00 PM to 6:00 PM at our Dublin location!
  425 Metro Place North, Suite 100, Dublin, OH 43017
  This is a wonderful opportunity to:
  Meet our dedicated team
  Explore our services and programs
  Tour our new space
  Connect with other families and community members
  Whether you’re already part of the Ability Matters family or simply curious to learn more, we’d love to have you join us. Come celebrate the amazing individuals we serve—and see firsthand what makes our community so special!
  No RSVP needed—just stop by! See you there!
• 🌟 Join Autism Society Of Greater Akron at the Interactive Tech Expo! Discover the latest assistive technology, resources, and tools that support individuals with developmental disabilities and their families.
  📅 Date: September 25th
  📍 Location: Summit Mall
  Learn more: https://bit.ly/4pDjpqL
  ASGA will have a table at the event — stop by to learn more about our programs, resources, and how we’re working to support the Autism community in Greater Akron.
  Free and open to the public
  Hands-on demonstrations
  Expert exhibitors
  This event is presented by the Summit County Developmental Disabilities Board and Medina County Board of Developmental Disabilities. We hope to see you there!
  TechExpo #AssistiveTechnology #CommunityResources #AkronEvent

Friday September 26th 2025

• No known events

Saturday September 27th 2025

• Sensory Saturday Saturday, September 27, 9:30–11:30 a.m. This is at the Cincinnati Art Museum. FREE. Registration not required. This program is designed for families with children who have autism or other developmental disabilities.
  
• Envision’s Go the Extra Mile Walk/Roll, Saturday, Sep 27 · 11 AM–1 PM Winton Woods Kestrel Shelter.
  Envision’s Go the Extra Mile Walk- Run-Roll is a free community event that encourages individuals with disabilities while raising funding for our vital support services. Envision’s Go the Extra Mile Walk 2025 will be held on Saturday, September 27, from 10-1 at Winton Woods park, Kestrel Shelter in Cincinnati. The walk brings together local corporate teams, clients, staff, friends, family, neighbors, donors and community members to enjoy a scenic stroll (or optional 5K) around the lake followed by a small festival with games, activities, food, music, raffle baskets, mini therapy horses to pet, and a small vendor fair, a fantastic DJ, inflatable obstacle courses, and lunch by Outback Steakhouse.
  Proceeds from the walk are used help fund services that support over 600 kids and adults with developmental disabilities in Greater Cincinnati. Our services include group homes, family support, independent individual support, foster care, mental health care, CITE on site children’s therapies and support, and an adult day program.
  Check out Facebook link for sneak peeks into our fun new activities planned for the 2025 event!

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Emergency Preparedness for Individuals with Rare Diseases
• Sheriff Smith and the Athens County Sheriff’s Office would like to introduce the Peaceful Encounter Program (PEP); a new, voluntary and confidential program designed to help law enforcement respond more effectively and compassionately to individuals with mental or behavioral health conditions.
  This program allows individuals or their caregivers to share important information ahead of time (such as communication needs, known triggers, calming techniques, or other helpful notes) so that deputies are better prepared if a crisis should arise.
  Who can enroll?
  Anyone in Athens County living with: Autism Spectrum Disorder, PTSD, Anxiety, OCD, Schizophrenia, Bipolar Disorder, or any condition where advanced knowledge could improve our response.
  All information is kept private and is only accessed by law enforcement during calls involving the registered individual.
  How to sign up:
  Visit http://www.athenssheriff.com/pep and complete the questionnaire. It’s quick and secure!
  If you have questions or concerns about the program, please contact Deputy Zayne Preston at 740-566-4356 or zpreston@athenssheriff.com
  Let’s work together to promote safety, understanding, and peaceful outcomes for everyone in our community.
• News Highlight: Bridging Aging and Disability Networks (BADN) Explains How to Better Support Aging Adults with IDD and Their Caregivers
  A new article called “Bridging Aging and Disability Networks to Support Aging Adults With Intellectual and Developmental Disabilities and Family Caregivers” was published in the Public Policy and Aging Report by the Gerontological Society of America.
  The article explains that people with intellectual and developmental disabilities (IDD) are living longer, and their needs — along with those of their aging family caregivers — are getting more complicated. Most still live at home with support from aging parents or relatives. Even though they have many of the same needs as other older adults, they are often overlooked because aging and disability services don’t always work together.
  You can read the full BADN article in the latest edition of NACDD’s Insight: https://nacdd.org/nacdd-insight-july-2025/#badn
• Resources for Improving Respite Care for Caregivers
• Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
  Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
  Local jobs with openings at ow.ly/NGL050WqLmA.
• Supported Decision Making Network of Ohio shares a tool kit about supported decision making through their Facebook page. Please check it out!
• Families: Check out this new resource from OCALI:
  First Concerns About Child Development and Learning (Ages 3-21):
  What Parents Need To Know
  https://ocali.org/storage/ocali-ims-sites/ocali-ims-ocali/documents/What_Parents_Need_to_Know.pdf
• Cleveland Sight Center Radio Network (CSCN) is now available on Alexa devices! This radio station is dedicated to providing information, news and entertainment to the blind and visually impaired community. To play it, say “Alexa, open Cleveland Sight Center Network skill.” Don’t forget to say skill at the end, or else a different news broadcast will open. Happy listening!
• Cassel Care LLC put out this Facebook post ! 𝐖𝐚𝐭𝐜𝐡 𝐃𝐢𝐬𝐚𝐛𝐢𝐥𝐢𝐭𝐢𝐞𝐬: 𝐓𝐡𝐫𝐨𝐮𝐠𝐡 𝐚𝐧 𝐀𝐮𝐭𝐡𝐞𝐧𝐭𝐢𝐜 𝐋𝐞𝐧𝐬
  The extended version is also available on our YouTube Channel —click the link below to watch! 🎥
  https://youtu.be/7Z21aad0Jks
  Be part of the movement for disability inclusion by sharing this video and helping us amplify voices that matter.
• Lawrence County Board of Developmental Disabilities has put out a letter about their Contingency Plan that is must read on their social media.
• 📅 September is Fetal Alcohol Spectrum Disorder (FASD) Awareness Month.
  Did you know that up to 1 in 20 school-age children may have FASD? If you’re pregnant or planning to be, avoid alcohol. FASDs are 100% preventable by staying alcohol-free during pregnancy.
  Explore FASD resources here: https://bit.ly/41lK6Wq

September Awareness Month

• Dystonia Awareness Month
• Self Care Awareness Month
• National Suicide Prevention Awareness Month
• September 1st-6th is National Migraine Awareness Month
• Childhood Cancer Awareness Month
• September 6th is National Read a Book Day
• National Spinal Cord Injury Awareness Month
• National Library Card Sign Up Month

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• The Synergy Committee is seeking nominations for several awards that will be given out at the SYNERGY Conference in October. This is YOUR chance to nominate ANYONE who is making a difference! It is important to take the time to recognize outstanding people that go above and beyond. Who can be nominated in each of the award categories? EVERYONE! It can be an advocate, family member, person served, local partner, a provider or DSP, a county board staff person, a teacher, legislator, a community member, an employer, or anyone else who you think is deserving of one of these awards. DEADLINE FOR ALL NOMINATIONS IS JULY 31st.
  SUBMIT YOUR NOMINATION USING THE LINK BELOW:
  https://conta.cc/4jM40QK y.
• The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
  This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
  To SIGN UP: Call 1-833-678-7782
• Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.

Events around Ohio to check out week of July 14 2025 to July 19th 2025

Monday July 14th 2025

• There will be a wellness workshop from We Thrive Together on coping with stress and change from 11 AM. to noon. If you want to attend, click the link below:
  Join Event
• We Thrive Together will also be hosting a relationships workshop on laughter from 3-4 PM. Click the link below if you wish to astend.
  Join Event

Tuesday July 15th

• There will be an Early Child Playdate from 10:45 AM to 11:45 AM. 
  Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
  Sign up here: 
• We Thrive Together will host a life skills on shopping and discounts from 4-5 PM. You can click the following link to attend:
  Join Event
• Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday July 16th 2025

• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
• The Basics of Advocacy, Tuesday, Jul 8 · 2:30–3:30 PM Join us and our partners at the Ohio Developmental Disabilities Council and Ohio Statewide Independent Living Council for a three part Advocacy Training Series.
  We hope to see you at one or all three! Register here⬇️
  3️⃣ – July 16 – Engaging with Policymakers: https://bit.ly/ats3ewp
• Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
• Synergy Accessibility Committee 1215- 1:45pm
• The Butler County Board Of DD. will be having an annual provider meeting from 10 AM. to noon.
  
  Notes Join us for our regular provider meetings so you can stay up to date on the latest information.
  
  Meetings are currently all via Zoom. You can request the link by emailing Cathy Borders at  cmborders@butlerdd.org 
• NWD Webinar on Supporting Patients With Chronic Illness Across Care Settings, Wednesday, Jul 16 · 3–4 PM Registration: link https://lewin.zoom.us/meeting/register/NwwjO_u6TFK5UoVDBHM_Uw#/registration?os=ipad
• People First of Northeast Ohio, Wednesday, Jul 16 · 6:30–8 PM, Repeats every month on the third Wednesday People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday 17th 2025

• Carnival of Abilities, Thursday, Jul 17 · 10 AM–1 PM Easterseals Redwood’s Carnival of Abilities celebrating Disability Pride month. Games, food, music, and a visit from the Gapper and Mr. Redleg’s. 2901 Gilbert Ave Cinti. 45206
• Clermont County Superintendent Forum, Thursday, Jul 17 · 12–1 PM Register here: https://www.surveymonkey.com/r/2025ClermontDDSuperintendentForum

Friday July 18th 2025

No events known

Saturday July 19th 2025

No events known

Helpful Information by National, State and County Agencies and Organizations for People to Read

• ⛑️ Emergency and safety preparedness saves lives – and plans must include everyone.
  For people with disabilities, children, and older adults, accessible preparedness is critical. The United States Department of Justice outlines three key phases of emergency management: preparation, response, and recovery – and all must be accessible.
  ✅ Safety plans should clearly outline procedures.
  ✅ Use multiple alert formats (visual, tactile, etc.).
  ✅ Install accessible alarms and equipment.
  ✅ Train staff in disability etiquette and safety roles.
  ✅ Ensure service animals can evacuate with their owners.
  Tools like stair-climbing wheelchairs and communication aids can make all the difference. Together, we can build a culture of preparedness that protects everyone.
  ➡️ For more info, check out the #AccessibleOhio Safety & Emergency Management resource: link
  AllAboutAccessibility #SafetyFirst
• Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
  Read: http://aging.ohio.gov/AdultDayOhio
• Know Your Rights: Communication Disability Law
  People with a medically diagnosed communication disability can voluntarily enroll in a database linked to Ohio’s Law Enforcement Agencies Data System (LEADS). 
  This helps notify officers during traffic stops that someone in the vehicle may have difficulty communicating, promoting safer, more informed interactions. It’s free, optional, and designed to reduce misunderstandings. 
  Learn more about the Communication Disability Law and download the Communication Visor Card here.
• 📢 Thanks to recent grants awarded to Council on Aging, our home52 Transportation service is now offering no-cost rides for medical and other purposes to disabled Hamilton County residents age 18+ who meet income guidelines.
  home52 Transportation provides door-through-door services utilizing specialized vehicles and trained providers to ensure safe rides for adults with varying needs. 🚗
  Review requirements to qualify for this grant-funded transportation and download a registration form: https://bit.ly/3FmqyJF.
  Those who aren’t eligible for grant-funded rides may pay privately. Call our coordination center to get pricing for your ride at (855) 546-6352..
• Veterans who need nursing home care but prefer living at home can enroll in the Veterans Directed Care Program at WRAAA. This program lets veterans hire personal direct-care workers, giving them more control over their long-term care. More details here: https://bit.ly/3XcvbMT
  MDA held webinars in May to support assessors with completing the WLA on the new assessment platform. A recording of these webinars can be found on the current and immediate needs webpage. Click hereto access the recording.
   
  For questions, please email WLA@dodd.ohio.gov
• Ohio has announced its 2025 sales tax holiday, which will run for two weeks this year. https://nbc4i.co/43yipK1?utm_medium=social&utm_source=facebook_NBC4
• The Family Caregiver Support Program (FCSP) supports family and informal caregivers in caring for loved ones at home. You’re a family caregiver if you help care for an older relative, spouse, or loved one. For free information and referrals for in-home care, respite, adult day programs, and more, go to: https://bit.ly/3NN8Joa or give us a call at 216-586-3441.
• The 2025 WRAAA Five-County Transportation Guide helps older adults, individuals living with disabilities, and caregivers find transportation options for individuals from Cuyahoga, Geauga, Lake, Lorain and Medina counties. Order or download free copies today through this link .
• Here’s a video about a tool kit on supported decision making.
• Caring for a child with complex needs is 24/7. Respite care can make a difference. 💙
  Here is a fact sheet with helpful information.
  If you need help finding respite care for your child, please reach out to us at Ohio Family to Family.
  Email: Ohiof2f@cchmc.org
  Intake Form
• Want to Help Create Positive Change for Ohioans with Developmental Disabilities?
  Apply to Become an ODDC Council Member!
  ODDC wants members who have personal experience with DD and who understand the needs of their communities. As a Council member appointed by Ohio’s Governor, you will help plan advocacy efforts, support community programs, and work on changes that improve the lives of people with DD and their families.
  Learn more and apply here:
• Did you know you that 24/7 medical support provided by StationMD is a covered service for Ohioans enrolled in the Individual Options, SELF, or Level One waiver?
  StationMD has provided telehealth care for the I/DD community across 22 states since 2016. Their services ensure immediate, expert care without a trip to the ER. All clinicians are trained and specialized in the nuances of working with people with I/DD, including communication differences and co-occurring conditions.
  “They are respectful and value what the person is saying, regardless of how they’re saying it,” said StationMD Account Executive Sarah Davies. “They go the extra mile.”
  Read more about StationMD and the services available in our most recent newsletter: https://bit.ly/4g5ZRqc

This Month in Awareness

• Disability Pride Month
• National Cleft And Craniofacial Awareness And Prevention Month
• National Fragile X Syndrome Awareness Month
• Sarcoma Research Awareness Month
• National Minority Mental Health Awareness Month
• UV. Safety Month
• Juvenile Arthritis Awareness Month
• Blood Cord Awareness Month
• Healthy Vision Month
• National Wheelchair Beautification Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
• Ohio Department of Developmental Disabilities is asking people to take a survey on self direction for waiver participants. Click on this link to do the survey.
• Tell us: What are your favorite ways to relax or practice self-care? Share your stories here.
  If you need to use the form differently, feel free to send attachments, pictures, or videos to nathan.turner@dodd.ohio.gov
• The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
• The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
  This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
  To SIGN UP: Call 1-833-678-7782
• SHARE YOUR STORY, HELP FIGHT HUNGER! Poetry Is Life Publishing is compiling community poems and letters representing voices in our region from eight counties (Carroll, Holmes, Medina, Portage, Stark, Summit, Tuscarawas, and Wayne) who have experienced hunger. What do you crave from your community? Food, love, family, friendship, hope, peace, equality. Have you experienced hunger? What was it like? Submit your poem, letter or story for the opportunity to be included in the book. A portion of book sales will benefit the Akron-Canton Regional Foodbank. The deadline to submit is June 30, 2025.
  For more information please reach out by email at poetryislifepublishing@gmail.com
• 2025 Disability/Deaf and Abuse Survey
  This national survey seeks to enhance our understanding of the prevalence of abuse— including sexual abuse, physical assault, coercion, harassment, and exploitation—among individuals with disabilities, as well as those who are Deaf, Hard of Hearing, or Deaf-Blind.
  Your experience matters. The findings will help us develop research, interventions, and policy recommendations to advocate for strengthening protections against abuse and improving support for survivors. Click this link to take the survey.
• Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
• 5 Minutes. 3 Actions. 1 Voice for Disability Rights.
  Speak Up Now: Protect Disability Access Rights!
  https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
  There are TWO public comment opportunities that need the attention of the disability community.
  🌟 Public Comment One: Protect Disability Access Rights! – The U.S. Department of Energy is trying to eliminate important disability protections. The department is trying to change part of Section 504 of the Rehabilitation Act that ensures new buildings are accessible to people with disabilities. This move could set a dangerous precedent. If they succeed, other federal agencies might try to do the same. This will weaken protections that millions rely on.
  🌟 Public Comment Two: Direct final rule on nondiscrimination – The U.S. Department of Energy (DOE) wants to remove 12 civil rights rules. Part of these 12 are disability access protections. They say the rules are “unnecessary,” “outdated,” or not supported by law. They are using a fast-track process called a “direct final rule.”
  This is urgent! If thousands do not make comments, the rule will take effect July 15, 2025.
  The deadline to submit your comment(s) is Monday, June 16th at 11:59 PM EDT.
  Take Action Now!
  It only takes a few seconds: https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/

Events around Ohio to check out week of June 23 2025 to June 28 2025

Monday June 23rd 2025

• All-Abilities Adventure, Monday, Jun 23 · 11:00 AM–12:00 PM Dayton Metro Library – Miamisburg Branch, 545 E Linden Ave, Miamisburg, OH 45342
• We Thrive Together Wellness: Exercises for All Abilities 11:00-12:00pm click this link to join the event.
• The Electronic Visit Verification (EVV) Stakeholder Workgroup will meet virtually on Monday, June 23 from 2:30 – 4 p.m. This meeting is an opportunity to engage in meaningful discussion about enhancing and improving the EVV program in Ohio.
  During the June 23 meeting, we will:
  Highlight recent updates to the content and structure of the EVV website.
  Gather input on additional resources or improvements you’d like to see.
  Click the link to register!
• Building Personal Networks of Support(4) Week Workshop 4:00-5:00pm to Register for this workshop check out this link . This workshop is for self advocates and families. Description: BUILDING PERSONAL NETWORKS (BPN)
  Do you want to be more connected and supported, but aren’t sure where to start?
  Join us, roll up your sleeves, and let’s build your personal network together!
  WHAT IS BPN?
  BPN is about creating community.
  It is an opportunity to:
  Focus on relationships that foster connection and growth.
  Identify key individuals who can play supportive roles.
  Plan with your loved one at the center of the process.

Tuesday June 24th 2025

• We Thrive Together Tech Talk: Mainstream Accessible Technologies with Wood County DD 11:00am to 12:00pm click this link to join the event.
• ASPE State Policy Coffee Talk, Tuesday, Jun 24 · 3–4 PM, Repeats every month on the last Tuesday
• Nissonger-Family Resource Network Of Ohio CLTC. 1-hour Session, Tuesday, Jun 24 · 3:00-4:00pm Don’t miss our empowering 1-hour live session on Charting the LifeCourse! This event is a fantastic opportunity for individuals and families who want to explore how this framework can help achieve a good life. Spread the word and invite your friends and family too! There will be a 1-Hour CEU Available upon completion of the full 60-minute session.
  You can register for the session by clicking here:
  
• Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday June 25th 2025

• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
• Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
• Webinar: Issues Facing LGBTQ+ Older Adults in 2025 and Beyond, Wednesday, Jun 25 · 3:00-4:00pm click this link to Register for the event.

Thursday June 26th 2025

• Ohio ISP Statewide Gathering, Thursday, Jun 26 · 10:00-11:00am Attention: Qualified Intellectual Disability Professionals, Service and Support Administrators
  Join the OhioISP team for an informative and engaging statewide webinar on Thursday, June 26, at 10:00 AM. The OhioISP Team will provide an overview of the recent changes to the Major Unusual Incidents (MUI) rule and explore how these updates align with and connect to the OhioISP.
  Additionally, the team will highlight key accomplishments from the year so far and offer a preview of upcoming initiatives and priorities.
  Don’t miss this opportunity to stay informed and connected!
  Register for event through this link
  If you have any questions or need accommodations, please email OhioISP@dodd.ohio.gov
• Capital City Crusaders Advocacy Meeting, Thursday, Jun 26 · 11:00 AM–12:00 PM 167 W Main St
  Chillicothe, OH 45601, USA
• Tech Talk: Getting a Job Indeed Resume Builder Help 11:00am to 12:00 pm click this link to join the event.
• Medicare 101 Workshop 1:00-2:00 pm. Check out this eventbrite link for more information.

Friday June 27th 2025

• Services For Independent Living, Connect And Conversation, Friday, Jun 20 · 11 AM–12 PM Connect with Conversation June Topic: Assistive Technology that helps with Independent Living
  June 20th from 11:00am-12:00pm
  RSVP to Maddi Steimle at 216-903-2469 or msteimle@sil-oh.org

Saturday June 28 2025

• Summer Deaf Kids Events 10:00am-12:00pm 10397 Springfield Pike, Cincinnati, OH 45215-1117, United States check out this Facebook link to learn more

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY
• Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
  Read: http://aging.ohio.gov/AdultDayOhio
• Know Your Rights: Communication Disability Law
  People with a medically diagnosed communication disability can voluntarily enroll in a database linked to Ohio’s Law Enforcement Agencies Data System (LEADS). 
  This helps notify officers during traffic stops that someone in the vehicle may have difficulty communicating, promoting safer, more informed interactions. It’s free, optional, and designed to reduce misunderstandings. 
  Learn more about the Communication Disability Law and download the Communication Visor Card here.
• 📢 Thanks to recent grants awarded to Council on Aging, our home52 Transportation service is now offering no-cost rides for medical and other purposes to disabled Hamilton County residents age 18+ who meet income guidelines.
  home52 Transportation provides door-through-door services utilizing specialized vehicles and trained providers to ensure safe rides for adults with varying needs. 🚗
  Review requirements to qualify for this grant-funded transportation and download a registration form: https://bit.ly/3FmqyJF.
  Those who aren’t eligible for grant-funded rides may pay privately. Call our coordination center to get pricing for your ride at (855) 546-6352..
• Veterans who need nursing home care but prefer living at home can enroll in the Veterans Directed Care Program at WRAAA. This program lets veterans hire personal direct-care workers, giving them more control over their long-term care. More details here: https://bit.ly/3XcvbMT
• Updates to the Waiting List Assessment Rule
  Attention: All County Boards, Service and Support Administrators, Councils of Governments
  The DODD Medicaid Development and Administration (MDA) division has updated the Comprehensive Guide for Waiting List Assessmentto coordinate with updates to the waiting list assessment rule (OAC 5123-9-04). These updates will be effective July 1, 2025. 
   
  MDA held webinars in May to support assessors with completing the WLA on the new assessment platform. A recording of these webinars can be found on the current and immediate needs webpage. Click hereto access the recording.
   
  For questions, please email WLA@dodd.ohio.gov
• Registration is now open for The Arc of Ohio 2025 Summer Conference!
  Friday, July 25, 2025
  Sponsorships have made it possible for very affordable registration.
  Register Here: https://www.eventbrite.com/e/the-arc-of-ohio-2025-summer-conference-tickets-1371627588039?aff=oddtdtcreator
  The Agenda was created before the annoucement of Director Hauck’s retirement. We hope to introduce the new director at this conference.
  The Arc of Ohio Summer Conference
  Friday, July 25, 2025
  Hollywood Casino Event Center
  200 Georgesville Rd.
  Columbus, Ohio 43228
  9:00 – 10:00 am Registration – Breakfast Included
  10:00 am Fedderal Initiatives and Their Impact on Ohioans – Medicaid to Education
  Katy Neas, CEO – The Arc of the United States
  The current CEO of The Arc of the US, former Deputy Assistant Secretary of the US Department of Education and long-time federal lobbyist, will present the current state of what we can expect as Congress debates the future funding of Medicaid, Waivers and Special Education.
  11:00 am – Noon Ohio’s New State Budget – How does it affect Ohioans with Developmental Disabilities?
  Director- Ohio Department of Developmental Disabilities
  A new state budget begins on July 1, 2025. The new DODD Director and staff will provide insight into what this budget holds in store for Ohioans with developmental disabilities and their families.
  Noon LUNCH – Included in Registration
  1:00- 2:00 pm Rules and What’s Ahead
  Allan Showalter, Deputy Director – Medicaid Administration & Development, Ohio Department of DD & Team
  The Ohio Department of DD is required to issue administrative rules to implement both Home & Community Based Waivers and Intermediate Care Facilities. New rules became effective on July 1st and other rules are still in development for this year and next. The speakers will discuss these and be available to answer questions.
  2:00 – 3:00 pm Ohio Rise (Resilience through Integrated Systems & Excellence)
  Aetna Ohio Rise Leadership Team
  Ohio RISE and the specialized managed care program is making major strides in supporting more youth and families in need. More Ohio children than ever are being supported through a program that coordinates community resources to provide the best possible care for kids facing complex mental and behavioral health needs. The Aetna Ohio Rise Leadership Team will provide an overview of the program and provide an opportunity for feedback of what is working and not working.
• Ohio has announced its 2025 sales tax holiday, which will run for two weeks this year. https://nbc4i.co/43yipK1?utm_medium=social&utm_source=facebook_NBC4
• The Family Caregiver Support Program (FCSP) supports family and informal caregivers in caring for loved ones at home. You’re a family caregiver if you help care for an older relative, spouse, or loved one. For free information and referrals for in-home care, respite, adult day programs, and more, go to: https://bit.ly/3NN8Joa or give us a call at 216-586-3441.
• The 2025 WRAAA Five-County Transportation Guide helps older adults, individuals living with disabilities, and caregivers find transportation options for individuals from Cuyahoga, Geauga, Lake, Lorain and Medina counties. Order or download free copies today through this link .
• Step Into Autism Walk Stark County 10:00 check out this event link more through this Facebook post.

This Month in Awareness

• Pride Month
• Alzheimer’s & Brain Awareness Month
• National Migraine & Headache Awareness Month
• Men’s Health Awareness Month
• National Cancer Survivors Month
• National Age Without Apology Month
• PTSD Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
• Ohio Department of Developmental Disabilities is asking people to take a survey on self direction for waiver participants. Click on this link to do the survey.
• Tell us: What are your favorite ways to relax or practice self-care? Share your stories here.
  If you need to use the form differently, feel free to send attachments, pictures, or videos to nathan.turner@dodd.ohio.gov
• The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
• The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
  This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
  To SIGN UP: Call 1-833-678-7782
• SHARE YOUR STORY, HELP FIGHT HUNGER! Poetry Is Life Publishing is compiling community poems and letters representing voices in our region from eight counties (Carroll, Holmes, Medina, Portage, Stark, Summit, Tuscarawas, and Wayne) who have experienced hunger. What do you crave from your community? Food, love, family, friendship, hope, peace, equality. Have you experienced hunger? What was it like? Submit your poem, letter or story for the opportunity to be included in the book. A portion of book sales will benefit the Akron-Canton Regional Foodbank. The deadline to submit is June 30, 2025.
  For more information please reach out by email at poetryislifepublishing@gmail.com
• 2025 Disability/Deaf and Abuse Survey
  This national survey seeks to enhance our understanding of the prevalence of abuse— including sexual abuse, physical assault, coercion, harassment, and exploitation—among individuals with disabilities, as well as those who are Deaf, Hard of Hearing, or Deaf-Blind.
  Your experience matters. The findings will help us develop research, interventions, and policy recommendations to advocate for strengthening protections against abuse and improving support for survivors. Click this link to take the survey.
• Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
• 5 Minutes. 3 Actions. 1 Voice for Disability Rights.
  Speak Up Now: Protect Disability Access Rights!
  https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
  There are TWO public comment opportunities that need the attention of the disability community.
  🌟 Public Comment One: Protect Disability Access Rights! – The U.S. Department of Energy is trying to eliminate important disability protections. The department is trying to change part of Section 504 of the Rehabilitation Act that ensures new buildings are accessible to people with disabilities. This move could set a dangerous precedent. If they succeed, other federal agencies might try to do the same. This will weaken protections that millions rely on.
  🌟 Public Comment Two: Direct final rule on nondiscrimination – The U.S. Department of Energy (DOE) wants to remove 12 civil rights rules. Part of these 12 are disability access protections. They say the rules are “unnecessary,” “outdated,” or not supported by law. They are using a fast-track process called a “direct final rule.”
  This is urgent! If thousands do not make comments, the rule will take effect July 15, 2025.
  The deadline to submit your comment(s) is Monday, June 16th at 11:59 PM EDT.
  Take Action Now!
  It only takes a few seconds: https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/

Events around Ohio to check out week of June 16th 2025 to June 21 2025

Monday June 16th 2025

• Disability Rights Education Legal Clinic, Monday, Jun 16 · 12:00pm-1:00pm Join us Monday, June 16th, for a Free Education Legal Clinic: Addressing Bullying & Harassment of special education students. Learn more and register to attend at lawyers4students.com/legalclinic
• Building Personal Networks of Support(4) Week Workshop 4:00-5:00pm to Register for this workshop check out this link . This workshop is for self advocates and families. Description: BUILDING PERSONAL NETWORKS (BPN)
  Do you want to be more connected and supported, but aren’t sure where to start?
  Join us, roll up your sleeves, and let’s build your personal network together!
  WHAT IS BPN?
  BPN is about creating community.
  It is an opportunity to:
  Focus on relationships that foster connection and growth.
  Identify key individuals who can play supportive roles.
  Plan with your loved one at the center of the process.

Tuesday June 17th 2025

• Ohio Tech Ambassadors Regional Tech Summit, Tuesday, Jun 17 · 11:00am-12:00pm Ambassador Regional Tech Summit
  10 a.m. to Noon Tuesday, June 17, at the Deer Park Branch Library. 4020 E. Galbraith Road, Cincinnati, OH 45236. This event will feature tech ambassadors sharing how they use technology in the following categories: Tech for Independence, Tech for Advocacy, Tech for Employment, and Tech for Entertainment.
  Click here for more details. https://ohiotechambassadors.org
• Protecting Medicaid from Cuts in Congress: Updates for Aging Advocates, Tuesday, Jun 17 · 2:00-3:00 PM click this link to learn more and register for the event.
• Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday June 18th 2025

• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
• Safe Police Interactions: Guidance for People with Disabilities and Their Families, Wednesday, Jun 18 · 6:00-8:00pm Join us to understand what happens when someone with a disability meets a police officer. This presentation gives practical advice that both people with disabilities and their family members can use right away. You will learn:
  • What police officers do and what equipment they carry
  • How to make ID cards that explain your disability
  • What to do during traffic stops
  • How to make emergency calls
  • How to ask for specially trained officers
  • Your rights during police interactions
  • Ways to prevent problems
  use this link to register.
• D.A.D.S./Pathways for Pops Night Out, Wednesday, Jun 18 · 6–9 PM Join us for our monthly Night Out combining our D.A.D.S. & Pathways for Pops groups. In June we meet at one of our favorite hangouts – Schnitz Ale Brewery, located at 5729 Pearl Rd. in Parma! Feel free to bring your dad, brother, uncle or friend that is a part of your child’s life….just be there!
  RSVP to matt@dsaneo.org
• People First of Northeast Ohio, Wednesday, Jun 18 · 6:30–8 PM, Repeats every month on the third Wednesday People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday June 19th 2025

• Supported Decision Making of Ohio Meeting PR and Marketing Committee 12:00 -1:00pm contact amy.mordaunt@thearcofohio.org for more information to join

Friday June 20th 2025

• Services For Independent Living, Connect And Conversation, Friday, Jun 20 · 11 AM–12 PM Connect with Conversation June Topic: Assistive Technology that helps with Independent Living
  June 20th from 11:00am-12:00pm
  RSVP to Maddi Steimle at 216-903-2469 or msteimle@sil-oh.org
• FREE All-Abilities Sports Camp- Hall of Fame Area, Friday, Jun 20 at 5:45 PM –Saturday, Jun 21 at 2:00 PM Malone University, 2600 Cleveland Ave NW, Canton, OH 44709

Saturday June 21st 2025

• FREE All-Abilities Sports Camp- Hall of Fame Area, Friday, Jun 20 at 5:45 PM –Saturday, Jun 21 at 2:00 PM Malone University, 2600 Cleveland Ave NW, Canton, OH 44709

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Planning an accessible outdoor adventure just got easier!
  The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
  In the guide, you’ll find:
  ✅ Trail safety tips
  ✅ Accessible trails, fishing, boating, and Storybook Trails
  ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
  Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
• Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY
• Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
  Read: http://aging.ohio.gov/AdultDayOhio
• Know Your Rights: Communication Disability Law
  People with a medically diagnosed communication disability can voluntarily enroll in a database linked to Ohio’s Law Enforcement Agencies Data System (LEADS). 
  This helps notify officers during traffic stops that someone in the vehicle may have difficulty communicating, promoting safer, more informed interactions. It’s free, optional, and designed to reduce misunderstandings. 
  Learn more about the Communication Disability Law and download the Communication Visor Card here.
• Call for Nominations: Ohio Poet Laureate
  Nominations for Ohio Poet Laureate are now being accepted. The next Ohio Poet Laureate’s two-year term is scheduled to begin on January 1, 2026, and ends on December 31, 2027.
  
  The Ohio Poet Laureate has the opportunity to foster the art of poetry across the Buckeye State. This includes encouraging literacy and learning, addressing central issues related to the humanities and heritage, and encouraging the reading and writing of poetry across Ohio. 
  
  As part of the individual’s role, the Ohio Poet Laureate will be expected to undertake a significant cultural project, such as bringing poetry to people or to a region of the state that might otherwise be underserved in this regard. Additionally, The Ohio Poet Laureate will provide at least 20 public readings or other literacy-related events annually in urban, suburban, and rural settings throughout Ohio.
  
  The Ohio Poet Laureate is ultimately appointed by the Governor of Ohio, with recommendations provided by the Ohio Arts Council (OAC) as reviewed by OAC board members.
  
  Nomination requirements are available on the Ohio Arts Council’s website .
• Veterans who need nursing home care but prefer living at home can enroll in the Veterans Directed Care Program at WRAAA. This program lets veterans hire personal direct-care workers, giving them more control over their long-term care. More details here: https://bit.ly/3XcvbMT
• Updates to the Waiting List Assessment Rule
  Attention: All County Boards, Service and Support Administrators, Councils of Governments
  The DODD Medicaid Development and Administration (MDA) division has updated the Comprehensive Guide for Waiting List Assessmentto coordinate with updates to the waiting list assessment rule (OAC 5123-9-04). These updates will be effective July 1, 2025. 
   
  MDA held webinars in May to support assessors with completing the WLA on the new assessment platform. A recording of these webinars can be found on the current and immediate needs webpage. Click hereto access the recording.
   
  For questions, please email WLA@dodd.ohio.gov
• Registration is now open for The Arc of Ohio 2025 Summer Conference!
  Friday, July 25, 2025
  Sponsorships have made it possible for very affordable registration.
  Register Here: https://www.eventbrite.com/e/the-arc-of-ohio-2025-summer-conference-tickets-1371627588039?aff=oddtdtcreator
  The Agenda was created before the annoucement of Director Hauck’s retirement. We hope to introduce the new director at this conference.
  The Arc of Ohio Summer Conference
  Friday, July 25, 2025
  Hollywood Casino Event Center
  200 Georgesville Rd.
  Columbus, Ohio 43228
  9:00 – 10:00 am Registration – Breakfast Included
  10:00 am Fedderal Initiatives and Their Impact on Ohioans – Medicaid to Education
  Katy Neas, CEO – The Arc of the United States
  The current CEO of The Arc of the US, former Deputy Assistant Secretary of the US Department of Education and long-time federal lobbyist, will present the current state of what we can expect as Congress debates the future funding of Medicaid, Waivers and Special Education.
  11:00 am – Noon Ohio’s New State Budget – How does it affect Ohioans with Developmental Disabilities?
  Director- Ohio Department of Developmental Disabilities
  A new state budget begins on July 1, 2025. The new DODD Director and staff will provide insight into what this budget holds in store for Ohioans with developmental disabilities and their families.
  Noon LUNCH – Included in Registration
  1:00- 2:00 pm Rules and What’s Ahead
  Allan Showalter, Deputy Director – Medicaid Administration & Development, Ohio Department of DD & Team
  The Ohio Department of DD is required to issue administrative rules to implement both Home & Community Based Waivers and Intermediate Care Facilities. New rules became effective on July 1st and other rules are still in development for this year and next. The speakers will discuss these and be available to answer questions.
  2:00 – 3:00 pm Ohio Rise (Resilience through Integrated Systems & Excellence)
  Aetna Ohio Rise Leadership Team
  Ohio RISE and the specialized managed care program is making major strides in supporting more youth and families in need. More Ohio children than ever are being supported through a program that coordinates community resources to provide the best possible care for kids facing complex mental and behavioral health needs. The Aetna Ohio Rise Leadership Team will provide an overview of the program and provide an opportunity for feedback of what is working and not working.
• Ohio has announced its 2025 sales tax holiday, which will run for two weeks this year. https://nbc4i.co/43yipK1?utm_medium=social&utm_source=facebook_NBC4
• The Family Caregiver Support Program (FCSP) supports family and informal caregivers in caring for loved ones at home. You’re a family caregiver if you help care for an older relative, spouse, or loved one. For free information and referrals for in-home care, respite, adult day programs, and more, go to: https://bit.ly/3NN8Joa or give us a call at 216-586-3441.

This Month in Awareness

• Pride Month
• World Elder Abuse Day June 15th
• Alzheimer’s & Brain Awareness Month
• National Migraine & Headache Awareness Month
• Men’s Health Awareness Month
• National Cancer Survivors Month
• National Age Without Apology Month
• PTSD Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Every week we put out the Pulse and it’s filled with opportunities to use your voice alongside the current events happening in Ohio. This week we found that we had an over flow of opportunities to speak up and use your voice. This is our midweek post letting people know of ways you can speak up on policy and other areas where opinions and public comment are needed.,

• Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
• Ohio Department of Developmental Disabilities is asking people to take a survey on self direction for waiver participants. Click on this link to do the survey.
• Tell us: What are your favorite ways to relax or practice self-care? Share your stories here.
  If you need to use the form differently, feel free to send attachments, pictures, or videos to nathan.turner@dodd.ohio.gov
• The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
• The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
  This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
  To SIGN UP: Call 1-833-678-7782
• SHARE YOUR STORY, HELP FIGHT HUNGER! Poetry Is Life Publishing is compiling community poems and letters representing voices in our region from eight counties (Carroll, Holmes, Medina, Portage, Stark, Summit, Tuscarawas, and Wayne) who have experienced hunger. What do you crave from your community? Food, love, family, friendship, hope, peace, equality. Have you experienced hunger? What was it like? Submit your poem, letter or story for the opportunity to be included in the book. A portion of book sales will benefit the Akron-Canton Regional Foodbank. The deadline to submit is June 30, 2025.
  For more information please reach out by email at poetryislifepublishing@gmail.com
• 2025 Disability/Deaf and Abuse Survey
  This national survey seeks to enhance our understanding of the prevalence of abuse— including sexual abuse, physical assault, coercion, harassment, and exploitation—among individuals with disabilities, as well as those who are Deaf, Hard of Hearing, or Deaf-Blind.
  Your experience matters. The findings will help us develop research, interventions, and policy recommendations to advocate for strengthening protections against abuse and improving support for survivors. Click this link to take the survey.
• Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
• 5 Minutes. 3 Actions. 1 Voice for Disability Rights.
  Speak Up Now: Protect Disability Access Rights!
  https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
  There are TWO public comment opportunities that need the attention of the disability community.
  🌟 Public Comment One: Protect Disability Access Rights! – The U.S. Department of Energy is trying to eliminate important disability protections. The department is trying to change part of Section 504 of the Rehabilitation Act that ensures new buildings are accessible to people with disabilities. This move could set a dangerous precedent. If they succeed, other federal agencies might try to do the same. This will weaken protections that millions rely on.
  🌟 Public Comment Two: Direct final rule on nondiscrimination – The U.S. Department of Energy (DOE) wants to remove 12 civil rights rules. Part of these 12 are disability access protections. They say the rules are “unnecessary,” “outdated,” or not supported by law. They are using a fast-track process called a “direct final rule.”
  This is urgent! If thousands do not make comments, the rule will take effect July 15, 2025.
  The deadline to submit your comment(s) is Monday, June 16th at 11:59 PM EDT.
  Take Action Now!
  It only takes a few seconds: https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
• Call for Nominations: Ohio Poet Laureate Nominations for Ohio Poet Laureate are now being accepted. The next Ohio Poet Laureate’s two-year term is scheduled to begin on January 1, 2026, and ends on December 31, 2027. The Ohio Poet Laureate has the opportunity to foster the art of poetry across the Buckeye State. This includes encouraging literacy and learning, addressing central missues related to the humanities and heritage, and encouraging the reading and writing of poetry across Ohio. As part of the individual’s role, the Ohio Poet Laureate will be expected to undertake a significant cultural project, such as bringing poetry to people or to a region of the state that might otherwise be underserved in this regard. Additionally, The Ohio Poet Laureate will provide at least 20 public readings or other literacy-related events annually in urban, suburban, and rural settings throughout Ohio. The Ohio Poet Laureate is ultimately appointed by the Governor of Ohio, with recommendations provided by the Ohio Arts Council (OAC) as reviewed by OAC board members. Nomination requirements are available on the Ohio Arts Council’s website .
   
  

For more events check out our main website OhioAdvocacyHeartbeat.com

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
• Make your voice heard through public comment on Medicaid Proposed Rules in Federal Register Medicaid Program; Preserving Medicaid Funding for Vulnerable Populations-Closing a Health Care-Related Tax Loophole Proposed Rule click this link to read the rule and learn how to comment.
• Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
• The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
• (ODM) is seeking public comment on nursing facility-based level of care residential setting. The comment period is open from May 20th, 2025 through June 19th, 2025. Follow this link for more information: https://medicaid.ohio.gov/about-us/notices/heightened-scrutiny-notice-05192025
• The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
  This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
  To SIGN UP: Call 1-833-678-7782
• The City of Dayton is creating strategies to be an “age friendly” city—a place where all ages can enjoy each day and live their best life. If you are 55 years of age or older, please take a few minutes to provide your honest, confidential, and anonymous answers to this questionnaire. Please complete the survey at AgeFriendlySurvey.com
• SHARE YOUR STORY, HELP FIGHT HUNGER! Poetry Is Life Publishing is compiling community poems and letters representing voices in our region from eight counties (Carroll, Holmes, Medina, Portage, Stark, Summit, Tuscarawas, and Wayne) who have experienced hunger. What do you crave from your community? Food, love, family, friendship, hope, peace, equality. Have you experienced hunger? What was it like? Submit your poem, letter or story for the opportunity to be included in the book. A portion of book sales will benefit the Akron-Canton Regional Foodbank. The deadline to submit is June 30, 2025.
  For more information please reach out by email at poetryislifepublishing@gmail.com

Events around Ohio to check out week of June 9th 2025 to June 14th 2025

Monday June 9 2025

• Nisonger Institute 9am-12pm check out this event through Facebook link here.
• Coalition Of Human Needs (CHN.) Call With Sen. Moreno’s Legislative Correspondent On Reconciliation Cuts, Monday, Jun 9 · 1–1:30 PM The Coalition On Human Needs (CHN.) will be having a meeting with Senator Moreno’s Legislative Correspondent, Sophia Friguletto, and, said the more Ohio voices that are on the call, the better.
  You can click here to read the statement from CHN.
• Building Personal Networks of Support(4) Week Workshop 4:00-5:00pm to Register for this workshop check out this link . This workshop is for self advocates and families. Description: BUILDING PERSONAL NETWORKS (BPN)
  Do you want to be more connected and supported, but aren’t sure where to start?
  Join us, roll up your sleeves, and let’s build your personal network together!
  WHAT IS BPN?
  BPN is about creating community.
  It is an opportunity to:
  Focus on relationships that foster connection and growth.
  Identify key individuals who can play supportive roles.
  Plan with your loved one at the center of the process.

Tuesday June 10th 2025

• Wood County DD Twin Tech Open House, Tuesday, Jun 10 · 10 AM–12 PM Wood Lane – Wood County Board of Developmental Disabilities
  1921 E Gypsy Lane Rd, Bowling Green, OH 43402, USA
• National Caregiver Support Collaborative (NCSC) Training Opportunity: Introducing New Resources to Elevate Family Caregiver Programs, Tuesday, Jun 10 · 12:30–1:30 PM click on this link to register.
• Understanding Alzheimer’s & Dementia, Tuesday, Jun 10 · 3–4 PM Defiance Public Library Defiance, Ohio.
• Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.
• Parent Webinar: Down syndrome-Autism Connection, Tuesday, Jun 10 · 7–7 PM Topic: Down Syndrome – Autism Connection Parent Webinar
  Time: Jun 10, 2025 07:00 PM Eastern Time (US and Canada)
  RSVP to Lcifra-bean@dsaneo.org or join using the link for event

Wednesday June 11th 2025

• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
• Supported Decision Making Network of Ohio Meeting, Wednesday, Jun 11 · 12–1:30 PM, Repeats every month on the second Wednesday This is for anyone who is interested in knowing more about supported decision making. https://www.sdmno.org

Thursday June 12th 2025

• Supported Decision Making of Ohio Meeting PR and Marketing Committee 12:00 -1:00pm contact amy.mordaunt@thearcofohio.org for more information to join

Friday June 13th 2025

• AFTACON in Cincinnati, Ohio
• The Warren County Law Enforcement Torch Run for Special Olympics Ohio, Thursday, Jun 12 · 9 AM–1 PM 400 Anderson St
  Franklin, OH 45005, USA The Warren County Law Enforcement Torch Run for Special Olympics Ohio will be Thursday, June 12, 2025 at 9 am at the Franklin Police Department (400 Anderson St, Franklin, OH 45005) and end at the Austin Landing Kroger (10101 Landing Way, Miamisburg, OH 45342)!
  Donate or sign up here
  Questions? Contact Kennon Coleman kcoleman@warrencountyohio.gov
• Transitions LLC in Barberton, Ohio is hosting a Family Game night at 5pm check out this eventbrite link to learn more.

Saturday June 14th 2025

• Ohio Special Olympics, Friday, Jun 13 –Sunday, Jun 15 Special Olympics Ohio will be hosting the 2025 Summer Games in and around The Ohio State University June 13-15, 2025. There are many volunteer opportunities available! Volunteers must be 14+ years old (unless otherwise noted). Everyone will be given a volunteer t-shirt and anyone who signs up for a full day will have lunch provided. More details will be provided as the date approacheS
  https://lucasdd.org/events/2612/2025-06-13/special-olympics-ohio-state-games
• HOUSING
  EMPOWERMENT & RESOURCE AFFAIR JUNE 14, 2025
  11:00 AM – 2:00 PM
  WALNUT HILLS BRANCH LIBRARY
  2533 Kemper Ln, Cincinnati, OH 45206 • Get housing resources and assistance, empowerment, and info for legal assistance with housing.

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Planning an accessible outdoor adventure just got easier!
  The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
  In the guide, you’ll find:
  ✅ Trail safety tips
  ✅ Accessible trails, fishing, boating, and Storybook Trails
  ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
  Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
• Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY
• Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
  Read: http://aging.ohio.gov/AdultDayOhio
• Call for Nominations: Ohio Poet Laureate
  Nominations for Ohio Poet Laureate are now being accepted. The next Ohio Poet Laureate’s two-year term is scheduled to begin on January 1, 2026, and ends on December 31, 2027.
  
  The Ohio Poet Laureate has the opportunity to foster the art of poetry across the Buckeye State. This includes encouraging literacy and learning, addressing central issues related to the humanities and heritage, and encouraging the reading and writing of poetry across Ohio. 
  
  As part of the individual’s role, the Ohio Poet Laureate will be expected to undertake a significant cultural project, such as bringing poetry to people or to a region of the state that might otherwise be underserved in this regard. Additionally, The Ohio Poet Laureate will provide at least 20 public readings or other literacy-related events annually in urban, suburban, and rural settings throughout Ohio.
  
  The Ohio Poet Laureate is ultimately appointed by the Governor of Ohio, with recommendations provided by the Ohio Arts Council (OAC) as reviewed by OAC board members.
  
  Nomination requirements are available on the Ohio Arts Council’s website .

Free Things to do for fun around Ohio this month.

• Here’s when you have a chance to fish for free in Ohio: https://tinyurl.com/39u3kpkh

This Month in Awareness

• Pride Month
• World Elder Abuse Day June 15th
• Alzheimer’s & Brain Awareness Month
• National Migraine & Headache Awareness Month
• Men’s Health Awareness Month
• National Cancer Survivors Month
• National Age Without Apology Month
• PTSD Awareness Month
• World Heart Rhythm Week June 3rd-June 9th 2025
• World Day for Assisted Technology June 4th
• Tourette’s Awareness Day June 7th
• Transverse Myelitis Day June 7th

For more events check out our main website OhioAdvocacyHeartbeat.com

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
• Make your voice heard through public comment on Medicaid Proposed Rules in Federal Register Medicaid Program; Preserving Medicaid Funding for Vulnerable Populations-Closing a Health Care-Related Tax Loophole Proposed Rule click this link to read the rule and learn how to comment.
• Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
• The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
• (ODM) is seeking public comment on nursing facility-based level of care residential setting. The comment period is open from May 20th, 2025 through June 19th, 2025. Follow this link for more information: https://medicaid.ohio.gov/about-us/notices/heightened-scrutiny-notice-05192025

Events around Ohio to check out week of June 2nd 2025 to June 7th 2025

Monday June 2 2025

• We Thrive Together Wellness: Creative Wellness 11:00am-12:00pm click this link to join. 
• Accessibility Vs Usability: Making Voting Work for Voters, Monday, Jun 2 · 1–2 PM What’s the difference between accessibility and usability—and why does it matter for voters?
  Join Michelle Bishop, Whitney Quesenbery (Center for Civic Design), and Diane Golden (U.S. Election Assistance Commission ) at our Annual Conference to explore how we can make elections work for everyone. This must-attend session dives into legal standards, practical applications, and how voter-centered design improves access for all.
  📅 Don’t miss it—register today!
• Building Personal Networks of Support(4) Week Workshop 4:00-5:00pm to Register for this workshop check out this link . This workshop is for self advocates and families. Description: BUILDING PERSONAL NETWORKS (BPN)
  Do you want to be more connected and supported, but aren’t sure where to start?
  Join us, roll up your sleeves, and let’s build your personal network together!
  WHAT IS BPN?
  BPN is about creating community.
  It is an opportunity to:
  Focus on relationships that foster connection and growth.
  Identify key individuals who can play supportive roles.
  Plan with your loved one at the center of the process.

Tuesday June 3rd 2025

• Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.
• Neighbors in Action Advocacy Group 4-5pm check out this link to learn more.

Wednesday June 4th 2025

• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
• Promoting Social Connection Among Veterans
  Wednesday, June 4⋅1:00 – 2:00pm click this link to register.
• Ohio Olmsted Taskforce 1:00-3:00pm
• Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
  bmaddox@disabilityrightsohio.org

Thursday June 5th 2025

• Supported Decision Making of Ohio Meeting PR and Marketing Committee 12:00 -1:00pm contact amy.mordaunt@thearcofohio.org for more information to join

Friday June 6th 2025

• ADA Seminar: The Future of Community Integration, Friday, Jun 6 · 9 AM–3 PM at the Toledo Museum of Art. ADA SEMINAR
  THE FUTURE OF COMMUNITY INTEGRATION
  Join us for a conversation about the future of disability in our community, and help us celebrate the Community Partnership Award recipient, the Toledo Metropolitan Area Council of Governments (TMACOG).KEYNOTE Pamela Molina
  World Federation of the Deaf
  SPEAKER Dr. Kim Nielsen
  The Ability Center
  Endowed Chair of Disability Studies, University of Toledo
  PANELIST
  Valerie Fatica -City of Toledo
  PANELIST Jan Dougherty -Ohio APSE
  $25 per ticket
• P.A.L.S. Big Screen Sensory Friendly Movie
  Friday, June 6⋅11:00am – 1:00pm Parma-Snow Branch, 2121 Snow Rd, Parma, OH 44134
• All-Abilities Social Hour
  Friday, June 6⋅12:30 – 1:30pm Odom Boulevard Branch Library, 600 Vernon Odom Blvd Akron, Ohio

Saturday June 7th 2025

• Step Into Autism 10:00am in Cuyahoga Falls, Ohio check out the event though this Facebook link about the event.
• CABVI’s Fun Fest
  Saturday, June 7⋅11:00am – 3:00pm Washington Park Cincinnati, Ohio
  
  
  
  
  
  

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Planning an accessible outdoor adventure just got easier!
  The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
  In the guide, you’ll find:
  ✅ Trail safety tips
  ✅ Accessible trails, fishing, boating, and Storybook Trails
  ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
  Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
• Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY

This Month in Awareness

• Pride Month
• Alzheimer’s & Brain Awareness Month
• National Migraine & Headache Awareness Month
• Men’s Health Awareness Month
• National Cancer Survivors Month
• National Age Without Apology Month
• PTSD Awareness Month
• World Heart Rhythm Week June 3rd-June 9th 2025
• World Day for Assisted Technology June 4th
• Tourette’s Awareness Day June 7th
• Transverse Myelitis Day June 7th

For more events check out our main website OhioAdvocacyHeartbeat.com

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• Become an Advocate! The YAC allows for you to grow your advocacy skills and gain first-hand experience in creating change. Strength in advocacy is in numbers; so come make a difference with us!
  Find out more! Contact April at 216.731.1529 or ashaw@sil-oh.org here is a link to learn more about the youth council.
• Are you caring for a child or young adult with special needs in Montgomery County? We want to hear from YOU!
  In partnership with the Strong Families Safe Communities Grant, Montgomery County is conducting a confidential survey to better understand what respite care services caregivers need most. Respite care is short-term care that gives caregivers a break.
  📝 Your input will help improve services and support for families.
  The survey takes just 10–15 minutes and includes questions about:
  Your family and caregiving experience
  Your child(ren) with special needs
  The type of respite care that would help you most
  💬 Take the survey by June 9.
• Make your voice heard through public comment on Medicaid Proposed Rules in Federal Register Medicaid Program; Preserving Medicaid Funding for Vulnerable Populations-Closing a Health Care-Related Tax Loophole Proposed Rule click this link to read the rule and learn how to comment.

Events around Ohio to check out week of May 26th 2025 to May 31 2025

Monday May 26 2025

Happy Memorial Day!

All Public and Government Offices, County Boards and Area on Aging Offices Closed.

Tuesday May 27 2025

• Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.
• ASPE State Policy Coffee Talk, Tuesday, May 27 · 3–4 PM, Repeats every month on the last Tuesday Join ASPE on March 25 from 3:00-4:00pm for State Policy Coffee Talk! ☕
  They will be discussing the latest developments in state policy and their impact on our community. Don’t miss this opportunity to connect, learn, and engage in meaningful conversations.
  See you there!
  Click this link to register
• Taking the leap into adult healthcare is a big step for families and young adults with disabilities. Planning ahead is the key. Join Ohio F2F to learn how to make this move easier.
  Navigating the Move to Adult Healthcare Tuesday, May 27, 2025
  Time: 6:30-8pm
  Register here to receive the Zoom link
  Questions? Contact: Amy.Clawson@cchmc.org
• Southwest Ohio Advocacy Group 6:00pm -8:00pm at Down Syndrome Society of Cincinnati

Wednesday May 28 2025

• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event

Thursday May 29 2025

• Supported Decision Making of Ohio Meeting PR and Marketing Committee 12:00 -1:00pm contact amy.mordaunt@thearcofohio.org for more information to join

Friday May 30 2025

• Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
  bmaddox@disabilityrightsohio.org

Saturday May 31 2025

• Cleveland Sight Center 2025 White Cane Walk, Saturday, May 31 · 10:00AM–1:00PM Event schedule
  May 31 10:00 AM EDT – Check-In Opens
  May 31 10:30 AM EDT – Program
  May 31 10:45 AM EDT – Walk Kick-Off
  May 31 1:00 PM EDT – Event Ends
  See all event details at https://raceroster.com/events/2025/100902/2025-white-cane-walk
• Stepping Into Awareness, Saturday, May 31 · 1:00-7:00 pm 4633 Montgomery Rd. Cincinnati, OH 45212

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Planning an accessible outdoor adventure just got easier!
  The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
  In the guide, you’ll find:
  ✅ Trail safety tips
  ✅ Accessible trails, fishing, boating, and Storybook Trails
  ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
  Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
• If you or a loved one is facing a mental health or addiction crisis, you’re not alone. Call, text, or chat 988 to connect with a trained specialist ready to listen and offer free, confidential support 24/7.
  988 is a direct connection to compassionate, accessible care and support for anyone experiencing mental health-related distress.
  Learn more and find easy-to-read resources: https://dodd.ohio.gov/about-us/our-programs/988+Resourcesk
• Did you know the American Printing House for the Blind has partnered with Dolly Parton’s Imagination Library of Ohio to provide six free Print/Braille books a year to children with low vision or blindness until the child’s sixth birthday? The Braille Tales program is open to all U.S. residents and parents of children with low vision can learn more about the program at the following website. https://ow.ly/YBhA50VTZAY
• In honor of #MentalHealthAwarenessMonth, explore DODD’s Wellness Project, a collection of resources for EVERYONE, featuring tools for mindfulness, relaxation, and mental health support. Check out the information through this link put out by Ohio Department of Developmental Disabilities.

For more events check out our main website OhioAdvocacyHeartbeat.com

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
  You can access the survey by clicking this link to do the survey.
  If you any questions, please reach out:
     Phone:  1 (855) 556-6328
     Email:   healthsurvey@ku.edu
• The Ohio Department of Education and Workforce (ODEW) would like to invite you to participate in a short, 25 question survey about your involvement in your student’s education. Research suggests that parental involvement is a key predictor of positive educational outcomes. You may be eligible to participate if your child has an IEP and receives special education services. The purpose of collecting this information is to improve services for students with disabilities across Ohio. If you are eligible to participate and you enroll in the study, you will be entered in a drawing for a $50 gift card. Your chance of winning a gift card is approximately 2.0%. Please click on the link to find out more about the survey and if you are eligible.
• Access Center for Independent Living (ACIL) is looking for people in Champaign, Clark, Preble, Miami or Montgomery Counties to fill out their Needs Assessment Survey to help them find needs of the people with disabilities in their community.
• The Home and Community-Based Services Policy section at the Ohio Department of Medicaid is proposing to amend Ohio Administrative Code 5160-32-02 Electronic visit verification (EVV) data collection and 5160-32-03 Alternate electronic visit verification (EVV) vendor.
  These rules set forth data collection requirements for providers regarding electronic visit verification (EVV). The proposed change to these rules removes the term “agency” in describing the types of providers the rules apply to.
  View the proposed changes here. https://dam.assets.ohio.gov/image/upload/medicaid.ohio.gov/Providers/EVV/5160-32_EVV_Proposed.pdf?utm_medium=email&utm_source=govdelivery
  Submit your feedback to HCBSPolicy@medicaid.ohio.gov by May 12, 2025.
• ADA PARC: Help Us Measure The Impact of the ADA – 35 Years Later
  This July 26th marks the 35th anniversary of the Americans with Disabilities Act (ADA) of 1990. While progress has been made, the need to understand the ADA’s ongoing impact—and the barriers that still exist— is more urgent than ever.
  We invite you to take part in a brief, anonymous survey to help us assess how far we’ve come and how far we still need to go. The survey results will be used to inform and guide technical assistance and policy recommendations related to the ADA.
  

Events around Ohio to check out week of May 5th 2025 to May 10th 2025

Monday May 12th 2025

• Preparing for an Emergency:
  An Information Session for Individuals with Disabilities and their Caregivers, Monday, May 12 · 10 AM–12 PM Preparing for an Emergency:
  An Information Session for Individuals with Disabilities and their Caregivers
  Join us for this interactive session on how to best prepare for an emergency.
  Prepare for impacts of disasters
  Create an emergency plan with the assistance of a caregiver
  Create an emergency plan specific to an individual’s needs
  Understand the necessary steps for sheltering in place, community sheltering, and evacuation
  Monday, May 12, 2025 10am to 12noon
  Training Location: EasterSeals Redwood Ohio
  2901 Gilbert Avenue, Cincinnati, 45206
  To register: Jenise Brassell, Independent Living Specialist,
  E: Jenise@IndependenceAlliance.org P: 513-246-0319

Tuesday May 13 2025

• Community Integration and Employment Updates, Tuesday, May 13 · 10 AM–12 PM at Pioneer Center in Chillicothe, Ohio.
• BENEFITS FOR INDIVIDUALS: SS, SSI, JFS, PAYEE INFORMATION AND TIPS Event by Clearwater Council on Governments Tuesday May 13th 12:00pm-1:00pm Register though the link here.
• MCBDD Resource Fair 10:00-2:00pm at 3575 Maple Ave
  Zanesville, OH 43701, USA
• Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday May 14th 2025

• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
• Supported Decision Making Network of Ohio Meeting, Wednesday, May 14 · 12–1:30 PM, Repeats every month on the second Wednesday This is for anyone who is interested in knowing more about supported decision making. https://www.sdmno.org
• Region 4 DD Community Talks Chillicothe, Ohio Join the Ohio Department of Developmental Disabilities at their regional Community Talk on May 14th at the Adena PACCAR Center. Click this link to register for the event.
• Special Education Virtual Townhall 7:00pm-8:00pm DescriptionChaos, cuts, and disruption in D.C. are already harming Ohio kids. Special education programs are on the federal chopping block, and the Ohio House plans to shortchange special education in the state budget. Parents, educators, and advocates are ready to take action. Join Policy Matters Ohio for a virtual town hall to learn what you can do to stand up for special education in Ohio. Check out their event through this Facebook link.

Thursday May 15th 2025

• Ohio Statewide Independent Living Council Meeting, Thursday, May 15 · 2–4 PM Embassy Suites by Hilton Columbus Airport
  2886 Airport Dr, Columbus, OH 43219, USA Ohio Statewide Independent Living Council for more information check out this website https://ohiosilc.diligent.community/Portal/MeetingInformation.aspx?Org=Cal&Id=72
• WCBDD & Envision Toileting 101, Thursday, May 15 · 6–7:30 PM Join us for a virtual Learning Event for Parents and caregivers via live Teams video presentation to get an in-depth look at the multiple components involved in toileting!
  May 15 from 6 to 7:30 p.m.
  Register here by May 9

Friday May 16th 2025

• Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
  bmaddox@disabilityrightsohio.org

Saturday May 17th 2025

• Community Healthy Living Expo, Saturday, May 17 · 11 AM–3 PM Collinwood Recreation Center
  16300 Lakeshore Blvd, Cleveland, OH 44110, USA

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Planning an accessible outdoor adventure just got easier!
  The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
  In the guide, you’ll find:
  ✅ Trail safety tips
  ✅ Accessible trails, fishing, boating, and Storybook Trails
  ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
  Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
• If you or a loved one is facing a mental health or addiction crisis, you’re not alone. Call, text, or chat 988 to connect with a trained specialist ready to listen and offer free, confidential support 24/7.
  988 is a direct connection to compassionate, accessible care and support for anyone experiencing mental health-related distress.
  Learn more and find easy-to-read resources: https://dodd.ohio.gov/about-us/our-programs/988+Resources
• This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility
• In honor of #MentalHealthAwarenessMonth, explore DODD’s Wellness Project, a collection of resources for EVERYONE, featuring tools for mindfulness, relaxation, and mental health support. Check out the information through this link put out by Ohio Department of Developmental Disabilities.
• Ohio Family to Family on Navigating the IEP process can be overwhelming—here is a roadmap to help you become informed.

This Week in Awareness

May:
• Mental Health Awareness Month
• National Arthritis Awareness Month
• Disability Insurance Awareness Month
• ALSOS. Awareness Month
• National Stroke Awareness Month
• National Military Service Appreciation Month
• Allergy and Asthma Awareness Month
• Jewish American Heritage Month
• Better Speech–Language-Hearing Month
• Borderline Personality Disorder Awareness Month
• Brain Tumor Awareness Month
• Cystic Fibrosis Awares Month
• Public Service Recognition Week
• Guide Dog Month
• Hepatitis Awareness Month
• Hepatitis Awareness Month
• Lupus Awareness Month
• Pediatric Stroke Awareness Month
• Lyme Disease Awareness Month
• Mobility Awareness Month
• Older Americads Month
• Celiac Awareness Month
• Huntington’s Disease Awareness Month
• Ehler’s-Danlos Syndrome Awareness Month
• High Blood Pressure Awareness And Education Month
• Inherited Retinal Disease Genetic Sesting Month
• Health Vision Awareness Month
• Myositis Awareness Month
• National Ostioperosis Awareness And Prevention Month
• Prader-Willi Syndrome Awareness Month
• Neurofabromotis Awareness Month
• Williams Syndrome Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• Protection and Advocacy for Individuals with Mental Illness(PAIMI) Program
  Public Forum On May 6th, 2025, representatives from the United States Department of Health and Human Services, Substance Abuse and Mental Health Services (SAMHSA), Center for Mental Health Services (CMHS) will visit Disability Rights Ohio, the Protection & Advocacy System for the State of Ohio.
  SAMHSA/CMHS invites you to send comments about the
  PAIMI Program services and activities conducted by the Disability Rights Ohio.
  Please send your comments to SAMHSA/CMHS by email to PAIMI@samhsa.hhs.gov or mail to the PAIMI Program Coordinator, SAMHSA/CMHS, 5600 Fishers Lane, Suite 14E25D,
  Rockville, Maryland 20857
• The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
  You can access the survey by clicking this link to do the survey.
  If you any questions, please reach out:
     Phone:  1 (855) 556-6328
     Email:   healthsurvey@ku.edu

Events around Ohio to check out week of April 27th 2025 to May 3rd 2025

Monday April 28th

• We Thrive Together is hosting a workshop on social wellness from 11 AM. to noon. If you wish to attend, you can click the link for this event.

Tuesday April 29th 2025

• We Thrive Together will be hosting a tech talk about LinkedIn from 11 AM. to noon. You can click the link below to join:
  Join Event
• APSE. is hosting a State Policy Coffee Talk from 3-4 PM.
  
  Join ASPE on April 29 from 3:00-4:00pm for State Policy Coffee Talk! ☕
  
  They will be discussing the latest developments in state policy and their impact on our community. Don’t miss this opportunity to connect, learn, and engage in meaningful conversations.
  
  See you there!Register through link
  
  #StatePolicy #CoffeeChat #CommunityEngagement #PolicyDiscussion
• Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday April 30th

• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
• There will be a a MyCare And Self-Direction SubCommittee Breaking Silences Advocacy Committee meeting from 3-4 PM. on Zoom. If you’d like more information on Breaking Silences, you can contact Maria Matzik at: Maria.Matzik@acils.com

Thursday May 1

• The United States Access Board will have a general meeting from 1:30 PM. to 3 PM. This meeting will be open to the public, and you can attend on ZoomGov, dial in, in-person, or listen to the livestream. To learn more, you can click the link below:
  
  U.S. Access Board Meeting on April 30
  
  If you need more information, or, you have additional questions, you can contact Rose Marie Bunales at:
  
  events@access-board.gov

Friday May 2nd 2025

• We Thrive Together is hosting a tech talk about selling items online using Facebook Marketplace, Craigslist, and eBay from 11 AM. to noon. You can join by clicking this link:
  Join Event
• Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
  bmaddox@disabilityrightsohio.org

Saturday May 3rd 2025

No known events

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Artists with Disabilities Access Program: The Artists with Disabilities Access Program (ADAP) provides funding that gives individual artists with disabilities the resources they need to further their artistic development. Creative expression by artists of all abilities is essential to building dynamic and diverse communities throughout Ohio. ADAP awards help artists with disabilities advance their artistic practices, making Ohio a more accessible and inclusive place to build an artistic career. 
  Application Deadline: May 1, 2025
• This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility
  

This Week in Awareness

May:
• Mental Health Awareness Month
• National Arthritis Awareness Month
• Disability Insurance Awareness Month
• ALSOS. Awareness Month
• National Stroke Awareness Month
• Syringomyelia Awareness Month
• Allergy and Asthma Awareness Month
• Better Sleep Month
• Better Speech–Language-Hearing Month
• Borderline Personality Disorder Awareness Month
• Brain Tumor Awareness Month
• Cystic Fibrosis Awares Month
• Foot Health Month
• Guide Dog Month
• Hepatitis Awareness Month
• Hepatitis Awareness Month
• Lupus Awareness Month
• Huntington’s Disease Awareness Month
• Lyme Disease Awareness Month
• Mobility Awareness Month
• Older Americads Month
• Celiac Awareness Month
• Huntington’s Disease Awareness Month
• Ehler’s-Danlos Syndrome Awareness Month
• High Blood Pressure Awareness And Education Month
• Inherited Retinal Disease Genetic Sesting Month
• Health Vision Awareness Month
• Myositis Awareness Month
• National Ostioperosis Awareness And Prevention Month
• Prader-Willi Syndrome Awareness Month
• Neurofabromotis Awareness Month
• Williams Syndrome Awareness Month 




 

For more events check out our main website OhioAdvocacyHeartbeat.com

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• We Thrive Together a virtual social club is offering a coloring contest here is the link to learn more.
• Northeast Ohio Medical University is looking for people with disabilities to participate research study on gynecology services and how to improve them. If interested please click link here.

Events around Ohio to check out week of March 17th 2025 to March 22nd 2025

Monday March 31st 2025

• Autism Society of Greater Akron Information &
  Education and Medicaid Policy Changes Listening Session, Monday, Mar 31 · 6:30–8 PM to Register for event click on this link .

Tuesday April 1st 2025

• Policy With Coffee | Driven by Change: Transportation & Community Impact, Tuesday, Apr 1 · 8:30–9:30 AM in Cincinnati, Ohio.
• Salt Talks: Stable Accounts Vs Special Needs Trusts, Tuesday, Apr 1 · 6:00- 7:30 PM check out facebook event page

Wednesday April 2nd 2025

World Autism Awareness Day!

• Eastern Cuyahoga County Resource Fair, Wednesday, Apr 2 in Highland Hills, Ohio check out this link for more information.
• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
• Cincinnati Children’s Hospital Webinar Series Future Planning, Wednesday, Apr 2 · 11:30 AM–12:30 PM Speaker: Derek Graham please register this this link
• Ohio Olmsted Taskforce Meeting 1pm contact Ohioolmstead@gmail.com for more information and for zoom lin

Thursday April 3rd 2025

• Inclusive Storytelling, Thursday, Apr 3 · 10:00-11:00 AM at Kings Road Branch of Toledo Public Library

Friday April 4 2025

• No Known Events

Saturday April 5th 2025

• Special Needs Community Resource Fair, Saturday, Apr 5 · 10:00 AM–2:00 PM at 6900 Market Ave N
  Canton, OH 44721, USA

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Artists with Disabilities Access Program: The Artists with Disabilities Access Program (ADAP) provides funding that gives individual artists with disabilities the resources they need to further their artistic development. Creative expression by artists of all abilities is essential to building dynamic and diverse communities throughout Ohio. ADAP awards help artists with disabilities advance their artistic practices, making Ohio a more accessible and inclusive place to build an artistic career. 
  Application Deadline: May 1, 2025
• This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility
  

This Week in Awareness

• Autism Awareness Month
• National Poetry Month
• National Minority Health Month
• World Autism Awareness Day
• Sjogrens Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

• Please take 5-10 minutes to fill out the Regional Transportation Public Input Survey. Your feedback and input is valuable and important. This survey will help identify the transportation needs and barriers you face every day within your county and across county lines. Access to jobs, medical care and every day essentials continues to be a struggle for many people across Ohio. Your feedback will help address how we work toward filling those gaps and unmet needs.
  RCRPC is charged with developing a Regional Coordinated Transportation Plan for Region 5, an 8 county region that includes; Ashland, Crawford, Huron, Knox, Marion, Morrow, Richland and Seneca county. The Regional Coordinated Plan will focus on increasing transportation efficiency, coordination and collaboration from county to county. If you live, work or travel in/to/from any of these counties, use public transportation or work with individuals who use public transportation, we want your feedback!
  To access this survey, please click the link below. The survey will remain open until April 1. Please share!
  https://forms.gle/gFYZRZ5Cpx8KD6ct8
• Sign up to be part of Worlds Longest Virtual Aktion Club through We Thrive Together https://wethrivetogether.org/aktion-club/?gf_protect_submission
• We Thrive Together a virtual social club is offering a coloring contest here is the link to learn more.
• Northeast Ohio Medical University is looking for people with disabilities to participate research study on gynecology services and how to improve them. If interested please click link here.
• Ohio Department of Transportation ATTN: We are now accepting public comments on the draft 2026-2029 Statewide Transportation Improvement Program (STIP). The Draft STIP is available for review and comment online from March 11 to April 11. Help improve Ohio and let your voice be heard today!
  https://www.transportation.ohio.gov/programs/stip/26-29
• Down Syndrome Association of Greater Cincinnati is always looking for new and innovative ways to fulfill their mission. They are looking for feedback
  www.dsagc.com/survey

Events around Ohio to check out week of March 17th 2025 to March 22nd 2025

Monday March 24th 2025

• We Thrive Together Discussion on Anxiety and Depression 11:00am-12:00pm join thru this link check out their website for more events.
• We Thrive Together Discussion on Relationships: Self Confidence 3:00pm-4:00pmto join click Link
• Ohio Advocacy Heartbeat Meeting 4-5pm join by clicking this link to our zoom.

Tuesday March 25th 2025

• The Budget Is a Moral Document Advocacy Day, Tuesday, Mar 25 · 8:45 AM–3 PM at Ohio Statehouse in Columbus, Ohio.
• We Thrive Together Tech Talk: Wood County DD Technology for Fall Prevention 11:00am-12:00pm click this link to join.
• DODD Community Talks 1:00pm-4:00pm to Register click on this link the event is at Butler County ESC Butler County Educational Service Center
  400 N Erie Hwy Ste A.
  Hamilton, OH 45011
  
• Medicaid on the Chopping Block: Advocacy Updates, Tuesday, Mar 25 · 3–4 PM To register for the event click this link .
• Arc of Ohio Legislative Reception, Tuesday, Mar 25 · 4:30–6 PM at Columbus Statehouse Columbus, Ohio.

Wednesday March 26th 2025

• CJFS LONG-TERM CARE FORUM, Wednesday, Mar 26 · 9:30–11:30 AM to register Through this link .
• OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events

Thursday March 27th

• DD Awareness Proclamation Richland County check out more at this link this is from 9:30am-10:30am
• DD Awareness Rally in Ravenna, Ohio. 10:00am-11:00am
• We Thrive Together Tech Talk on Smart Home Security Cameras, Ring, Nest, Wyze join through this link it’s from 11:00am-12:00pm
• Area on Aging District 7 Advisory Council Meeting 1:00-3:00pm 1 Acy Ave Jackson, OH 45640, USA. For more information:
  1.800.582.7277
  info@aaa7.org
• Athens County Board of Developmental Disabilities Awareness Fest 6:00pm-8:00pm The annual Developmental Disability Awareness Fest at the Athens Community Center will be on Thursday, March 27, from 6 p.m. to 8 p.m.  The Athens County Community Singers will start the evening with a performance.  Join us for an evening celebrating community partners and friends!  If you would like to showcase your services,
  Flyer for reference Disability Awareness Fest 2025.pdf

Friday March 28th 2025

• Addiction and Policy Forum in Chillicothe, Ohio check out this link for more details.
• Disability Rights Ohio Budget Review 3:00pm please contact Brittanie Maddox at DRO for more information bmaddox@disabilityrightsohio.org

Saturday March 29th 2025

No Known Events

Helpful Information by National, State and County Agencies and Organizations for People to Read

• Ohio Department of Aging Put out an Adult Day Care guide please check out this link to read it.
• Artists with Disabilities Access Program: The Artists with Disabilities Access Program (ADAP) provides funding that gives individual artists with disabilities the resources they need to further their artistic development. Creative expression by artists of all abilities is essential to building dynamic and diverse communities throughout Ohio. ADAP awards help artists with disabilities advance their artistic practices, making Ohio a more accessible and inclusive place to build an artistic career. 
  Application Deadline: May 1, 2025
• Administration on Community Living has put out information on Nutrition for older adults check out the link to this information.
• Center for Family Involvement has made a post about accessibility in social media please check it out thru the link here.
• Central Ohio Area Agency on Aging will transition from operating within the City of Columbus’ Department of Recreation and Parks to a stand-alone Regional Council of Governments by 2026. This shift will enable COAAA to better serve its consumers — older adults and people with disabilities — within its eight-county region while expanding services and launching new programs.
  Learn more in today’s news release: https://bit.ly/3Fuz60M
• OSU Nisonger put out a video series on Smart Homes on this YouTube link for people learn about Smart Homes and Independence.
• This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility
  

This Week in Awareness

• March is DD Awareness Month wear Orange one day to show awareness and make social media post.
• It is Women’s History Month

For more events check out our main website OhioAdvocacyHeartbeat.com