Tag Archives: Mental Health

The Pulse: What’s going on around Ohio September 1st 2025 to September 6th 2025

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Participate in Public Comment is for background check rules for employment for Ohio Developmental Disabilities Services Providers read more through this link to learn how to participate in public comment.
  • Research participants wanted for The Lurie Institute for Disability Policy.
    The study is about the sexual and reproductive health needs and experiences of young people with disabilities.
    To participate, people must:
    Have been born in the United States
    Live in the United States
    Be between 15 and 25 years old
    Have a health condition or disability, such as a vision, hearing, physical, intellectual, or developmental disability.
    Be able to talk in English, Spanish, or American Sign Language over a Zoom call
    Participants will be asked to do a 1-hour Zoom call to talk about their experiences. American Sign Language interpretation and accommodations will be provided on request.
    Why is this study important? Why should you care or share this information?
    People do not know a lot about young people with disabilities’ experiences with sexual and reproductive health.
    The study will help the researchers create a website for young people with disabilities that will teach them about taking care of their sexual and reproductive health.
    Our findings could be used to help advocate for youth with disabilities.
    Why should participants tell their story?
    They get a $50 gift card.
    Their stories will help us create a website that will teach people with disabilities about sexual health.
    Their voice will help inform and add to the little research on this important topic.
    Contact information
    Anyone who is interested can email YouthStudy@Brandeis.edu or call Janelle Mills, at 781-736-3928. More information is on our website.
  • Brandeis University is conducting a research study focused on the experiences of disabled people of color transitioning from institutions back into the community. They’re seeking staff from health plans, aging care organizations, providers, state agencies, CILs, and other support organizations to participate in a 90-minute virtual focus group.
    Participants will receive a $50 gift card. Insights will help shape future policy.
    Sign up: https://buff.ly/QMEn889
    Questions: hcbsaccess@brandeis.edu
  • Do you have an intellectual disability and identify as obese?
    We want to hear from you!
    Deakin University is running a research project about how relationships impact weight and physical activity for people with intellectual disability.
    You’ll be invited to take part in 1–2 interviews using art to help us communicate.
    You’ll receive a $50 gift voucher for taking part. Co-designed with people with intellectual disability and their supporters.
    Interested? Contact Sam Lilly: slilly@deakin.edu.au
  • The Yale Disability Research Lab is recruiting US adults (age 18 or older) who identify as Black/African American and part of the disability community to participate in a research study.
    Participants will be asked to share their experiences of racism, ableism, and other daily life challenges in an interview. This information will help them to develop a questionnaire measure which we will use to capture the experiences of Black people with disabilities.
    This questionnaire will be an important tool to help us understand how the unique lived experiences of Black people with disabilities might impact their health and well-being.
    You might be eligible to participate:
    18 years or older
    Self-identify as Black/African American with a disability
    Fluent in English
    Reliable access to the Internet and videoconferencing equipment (i.e., a computer, tablet, or smartphone with webcam and microphone)
    https://medicine.yale.edu/ycci/clinicaltrials/trial/exemption-intersectional-stigma-measure-development/
    Image Description: AAHD logo and Yale logo. Outline background image of people silhouettes in different colors with and without disabilities. Text overlaid says “Seeking Research Participants! Do you have a disability? Do you identify as Black/African American?

Events around Ohio to For September 1st -September 6th 2025

Monday September 1st 2025

  • 3rd Annual Mental Health Matters 5K 8am-9am The Rotary Club of Cambridge is hosting their 3rd annual Menthal Health Matters 5k walk/run on Monday, September 1st at the Cambridge City Park sign up for run
  • We Thrive Together History of Labor Day Event 11:00-12;00pm click this link to join.
  • Adaptive Pickleball, Tuesday, Sep 2 · 5–6:30 PM Athens Community Center, 701 E State St, Athens, OH 45701

Tuesday September 2nd 2025

  • Early Childhood Open Play, Tuesday, Sep 2 · 10:45–11:45 AM, Repeats weekly Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend. Sign up here:
  • We Thrive Together Tech Talk 11:00am-12:00pm click this link to join.
  • Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com
  • Neighbors in Action : A self Advocacy group out of Hamilton County meets virtually at 4pm. Click on this link to learn more.
  • SALT TALKS Topic: Transition Planning 101 6:00-7:00pm click this link to learn more.

Wednesday September 3rd 2025

  • Domestic Violence Advocacy Fundamentals (DVAF) for Seasoned Advocates, Wednesday, Sep 3 · 9:00 AM–4:00 PM (Pre Registration required) in Columbus, Ohio
  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • Parents and Caregivers Join for a Discussion about Disability Services in Ohio. 10:00-2:00pm at Herbert Wescot Memorial Library 120 N Market street MCArthur, Ohio. To register please call 740-384-6245 extension 2107
  • Ohio Olmstead Taskforce Meets 1pm virtually please contact ohioolmstead@gmail.com for zoom link to the meeting.
  • Raising Our Kids w/ Disabilities to Lead Bright, Happy Lives, Wednesday, Sep 3 · 7:00-8:00pm at Beachwood Branch, 25501 Shaker Blvd, Beachwood, OH 44122
  • NAMI: Hearts+Minds, Wednesday, Sep 3 at 10:00 AM –
    Wednesday, Oct 1 at 11:30 AM SourcePoint, 800 Cheshire Rd, Delaware, OH 43015

Thursday September 4th 2025

  • The Alphabet Soup of SSI & SSDI Webinar Registration, Thursday, Sep 4 · 12:00-1:00 PM Virtual Workshop
    Thursday, September 4
    12:00 pm – 1:00 pm
    What’s the difference between SSDI and SSI? Can you receive both? Do you need a lawyer to apply? How does Medicare fit into the picture—and what happens when a parent retires? Navigating the world of Social Security disability benefits can feel overwhelming—but you’re not alone. Join the ASGA community for a special lunchtime session that breaks down the differences between SSI and SSDI and answers the big questions families often face:
    Does a parent’s income affect eligibility?
    What changes when a parent retires and begins collecting Social Security themselves?
    How do we ensure that benefits continue if something happens to the caregiver?
    Whether your individual is currently receiving benefits or you’re just beginning to explore your options, this session will equip you with the foundational knowledge to make informed decisions.
    WHAT TO EXPECT
    During this session, you’ll learn how to: Understand the key differences between Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI)
    Determine who qualifies for each program and how parental income and assets may impact eligibility
    Learn what happens to your child’s benefits when you retire, become disabled, or pass away
    Navigate the application process—and decide if legal assistance is necessary
    Understand how Medicare and Medicaid interact with disability benefits
    Access helpful SSA resources and starter kits for both children and adults
    WHO SHOULD ATTEND
    Parents and caregivers of individuals with disabilities
    Families preparing for future transitions, such as retirement, estate planning, or guardianship
    Anyone looking for clear, practical guidance on maintaining and protecting Social Security benefits
    DO I HAVE TO REGISTER?
    Registration is required to receive the virtual meeting link.

    QUESTIONS
    If you have questions or need additional assistance, contact Theresa Maier, ASGA Support Specialist 330-940-1441 ext 1
  • Mind/Body/Art, Thursday, Sep 4 · 6–7 PM at Cincinnati Art Museum Cincinnati, Ohio

Friday September 5th 2025

  • Little Hands Sensory Group at Perry Cook Memorial Public Library in Mt Gilead, Ohio from 10:00-11:00 am Join us for Little Hands Sensory Group, provided by the YWCA Child Care Resource and Referral Department. Little Hands Sensory Group is designed for families with children 3-10 years of age.
  • We Thrive Together Advocacy Army 4:00-5:00pm click this link to join
  • The Big Living Room 6-9pm The Big Love Living Room is a sensory-inclusive space that has soft music, seats, crafts, and healthy snacks. Sponsored by The Big Love Network, Akron’s environmental health equity organization. Kenmore Branch Library, 969 Kenmore Blvd, Akron, OH 44314

Saturday September 6th 2025

  • Blind, Deaf, and DeafBlind Accessibility Day, Saturday, Sep 6 · 8:00 -8:00 Pm Columbus Zoo and Aquarium, 4850 W Powell Rd, Powell, OH 43065
  • Empowering Epilepsy, 23500 Mercantile Rd suite d, Beachwood, OH 44122 1-3pm
  • Ability Censer Family Fun Day, Saturday, Sep 6 · 12–3 PM REGISTRATION IS OPEN!!! 🥳
    We’re thrilled to announce that registration is now open for our 4th Annual Family Fun Day! Join us on Saturday, September 6th, from noon to 3pm on our campus at 5605 Monroe Street for a fun, inclusive, and accessible event designed for the whole community.
    From FREE food and inflatables to adaptive sports, games and crafts, this beloved event is a highlight of the year. It’s highly anticipated by past attendees and is sure to create lasting memories for you and your family.
    Mark your calendars and register for FREE today:
    This event is proudly sponsored in part by the Toledo Mud Hens Helping Hens Foundation
  • Art Show for Mental Health Awareness featuring Original Artwork, Live Artists and Local Music, Saturday, Sep 6 · 4:00-8:00pm Artspace Hamilton Lofts and The Strauss Gallery, Hamilton Center, 222 High St, Hamilton, OH 45011

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • CITY OF
    • CHILLICOTHE
    TRANSIT SYSTEM
    Coming September Ist
    ADA PARATRANSIT SERVICE
    In accordance with ODOT compliance and under ADA guidelines, Chillicothe Transit System is implementing Complementary ADA Paratransit Service.
    Individuals who are unable to use the fixed route service because of disability will be provided with complementary ADA paratransit service that is comparable to the fixed route service in service availability and quality. Complementary ADA paratransit service will be available Monday through Friday between the hours of 7am and 6pm.
    To obtain eligibility for the service, the passenger must submit a properly filled out ADA Paratransit Eligibility Application. Applications will be reviewed and eligibility status determined within 21 days of submission. Beginning September st
    *, 2025, in order to schedule a ride for the ADA Complementary
    Service, eligible passengers will have an ID card issued to them by CTS.
    The ADA Paratransit Policy and a fillable PDF
    ADA Paratransit Application with instructions are available at http://www.chillicotheoh.gov by navigating to the Transit page, then the ADA Paratransit menu, or scan the QR code below.
    Applications may also be picked up from the Transit Hub at 575 E. 71h St.
  • Emergency Preparedness for Individuals with Rare Diseases
  • Cuyahoga Board of Developmental Disabilities Serves Get your exercise on at an inclusive event in the community.
    Visit link to find an event in our Online Resource Guide.
  • INTRODUCING THE ‘BURG BUS
    For Reynoldsburg Residents 65+ and Individuals with Disabilities Enjoy free, door-to-door rides to your favorite spots around the city!
    Whether it’s shopping, dining, medical appointments, entertainment, parks, or places of worship – the Burg Bus will get you there safely and comfortably.
    HOW TO RIDE
    Call 833-742-7333 Opt. 1
    RIDES AVAILABLE
    Hours of operation
    M-F 9 a.m – 4 p.m.
    WHERE YOU CAN RIDE?
    Anywhere within Reynoldsburg!
    Let us take you to:
    Medical Appointments
    Grocery Stores & Shopping Centers
    Restaurants & Entertainment
    Parks & Recreation Areas
    …and more!
    Call to schedule
    M-F 8:30 a.m – 4 p.m.
    BENEFITS OF RIDING THE BURG BUS
    The rides are free.
    Vehicles are wheelchair accessible.
    Drivers are licensed professionals.
    Share rides with your friends to your favorite places around town.
    And sharing rides is good for the environment!
    ReynoIdsburg, 0H
  • News Highlight: Bridging Aging and Disability Networks (BADN) Explains How to Better Support Aging Adults with IDD and Their Caregivers
    A new article called “Bridging Aging and Disability Networks to Support Aging Adults With Intellectual and Developmental Disabilities and Family Caregivers” was published in the Public Policy and Aging Report by the Gerontological Society of America.
    The article explains that people with intellectual and developmental disabilities (IDD) are living longer, and their needs — along with those of their aging family caregivers — are getting more complicated. Most still live at home with support from aging parents or relatives. Even though they have many of the same needs as other older adults, they are often overlooked because aging and disability services don’t always work together.
    You can read the full BADN article in the latest edition of NACDD’s Insight: https://nacdd.org/nacdd-insight-july-2025/#badn
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA
  • Guide to Employment for People with Disabilities 2025

September Awareness Month

  • Self Care Awareness Month
  • National Suicide Prevention Awareness Month
  • September 1st-6th is National Migraine Awareness Month
  • Childhood Cancer Awareness Month
  • September 6th is National Read a Book Day
  • National Spinal Cord Injury Awareness Month
  • National Library Card Sign Up Month

The Pulse: Special Edition What’s going on around Ohio June 30th to July 13th 2025!

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • The Synergy Committee is seeking nominations for several awards that will be given out at the SYNERGY Conference in October. This is YOUR chance to nominate ANYONE who is making a difference! It is important to take the time to recognize outstanding people that go above and beyond. Who can be nominated in each of the award categories? EVERYONE! It can be an advocate, family member, person served, local partner, a provider or DSP, a county board staff person, a teacher, legislator, a community member, an employer, or anyone else who you think is deserving of one of these awards. DEADLINE FOR ALL NOMINATIONS IS JULY 31st.
    SUBMIT YOUR NOMINATION USING THE LINK BELOW:
    https://conta.cc/4jM40QK
  • Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
  • Ohio Department of Developmental Disabilities is asking people to take a survey on self direction for waiver participants. Click on this link to do the survey.
  • The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
  • The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
    This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
    To SIGN UP: Call 1-833-678-7782
  • 2025 Disability/Deaf and Abuse Survey
    This national survey seeks to enhance our understanding of the prevalence of abuse— including sexual abuse, physical assault, coercion, harassment, and exploitation—among individuals with disabilities, as well as those who are Deaf, Hard of Hearing, or Deaf-Blind.
    Your experience matters. The findings will help us develop research, interventions, and policy recommendations to advocate for strengthening protections against abuse and improving support for survivors. Click this link to take the survey.
  • Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
  • 5 Minutes. 3 Actions. 1 Voice for Disability Rights.
    Speak Up Now: Protect Disability Access Rights!
    https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
    There are TWO public comment opportunities that need the attention of the disability community.
    🌟 Public Comment One: Protect Disability Access Rights! – The U.S. Department of Energy is trying to eliminate important disability protections. The department is trying to change part of Section 504 of the Rehabilitation Act that ensures new buildings are accessible to people with disabilities. This move could set a dangerous precedent. If they succeed, other federal agencies might try to do the same. This will weaken protections that millions rely on.
    🌟 Public Comment Two: Direct final rule on nondiscrimination – The U.S. Department of Energy (DOE) wants to remove 12 civil rights rules. Part of these 12 are disability access protections. They say the rules are “unnecessary,” “outdated,” or not supported by law. They are using a fast-track process called a “direct final rule.”
    This is urgent! If thousands do not make comments, the rule will take effect July 15, 2025.
    The deadline to submit your comment(s) is Monday, June 16th at 11:59 PM EDT.
    Take Action Now!
    It only takes a few seconds: https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/

Events around Ohio to check out week of June 30th 2025 to July 13th 2025

Monday June 30th 2025

  • DODD Announces Keeping Families Together: Stories of Family Resiliency Webinar, Monday, Jun 30th 12:00pm-1:00pm DODD Announces Keeping Families Together: Stories of Family Resiliency Webinar 
    Attention: County Boards, Councils of Government, Systems of Care Partners
    Learn more about how Governor DeWine’s ‘Keeping Families Together’ (KFT) initiative has impacted communities across Ohio through innovative solutions. Join DODD virtually on June 30 at noon to hear from local leadership and their creative partnerships with DODD. 

    Join the Teams meeting 
    Meeting ID: 239 306 445 048 0 
    Passcode: SU2Kv9Bg 

    Dial in by phone 
    +1 614-721-2972,,646450878# 
    Phone conference ID: 646 450 878# 

    Join on a video conferencing device
    Tenant key: 682042763@t.plcm.vc
    Video ID: 111 212 697 1
  • Mental Health Round Table 4:00-6:00pm 611 Walnut St
    Martins Ferry, OH 43935, USA

Tuesday June 1 2025

  • Disability Pride Flag Raising, Tuesday, Jul 1 · 11:00 AM–12:00 PM Join the City of Cincinnati as we proudly kick off Disability Pride Month with the Disability Pride Flag Raising Ceremony on Tuesday, July 1, 2025, from 11:00 a.m. to 12:00 p.m. at Cincinnati City Hall (801 Plum Street, Cincinnati, OH
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.
  • Neighbors in Action a group for people with disabilities in Hamilton County, Ohio will meet 4:00-5:00 pm they have a special guest Alex Lomicka from Ohio Association of County Boards of DD click this link to join the meeting.

Wednesday July 2 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
  • Synergy Accessibility Committee 1215- 1:45pm

July 3-6th

  • No Known Events

Monday July 7th 2025

  • Careers with Peers Council 6:00-7:30pm 776 N Main St
    Springboro, OH 45066, USA Join us for Careers with Peers Council at Doubleday’s in Springboro on Monday, July 7, from 6 to 7:30 p.m. for a conversation about Professionalism!
    To RSVP, contact Cheri Cummings at (513) 806-8591 or careerswithpeerscouncil@warrencountydd.org
  • Mental Health Round Table 4:00-6:00pm 130 Fair Street Barnesville, OH 43713

Tuesday July 8th 2025

  • The Basics of Advocacy, Tuesday, Jul 8 · 2:30–3:30 PM Join us and our partners at the Ohio Developmental Disabilities Council and Ohio Statewide Independent Living Council for a three part Advocacy Training Series.
    We hope to see you at one or all three! Register here⬇️
    1️⃣ – July 8 – The Basics of Advocacy: https://bit.ly/ats1basics
    2️⃣ – July 9 – The Legislative Process: https://bit.ly/ats2leg
    3️⃣ – July 16 – Engaging with Policymakers: https://bit.ly/ats3ewp
  • Celebrating the Americans with Disabilities Act (ADA): How Assistive Technology (AT) Supports Daily Life and Work, Tuesday, Jul 8 · 3:00-4:00PM DescriptionJoin the Disability Employment Technical Assistance Center (DETAC) for a special webinar in honor of the 35th anniversary of the Americans with Disabilities Act (ADA), with a focus on how technology is shaping the future of accessibility. The ADA affirms a simple but powerful principle: Individuals with disabilities who want to work should be able to work. In today’s fast-paced technology-driven world, there have been advancements made with tools to increase accessibility. At the same time, there are basic assistive technology (AT) tools that continue to be overlooked as a solution. The webinar panel from the Assistive Technology Act Technical Assistance and Training Center (AT3 Center) will focus on increasing access to and acquisition of AT tools across the lifespan. The panel will share examples of how AT is that critical bridge to helping break down barriers and provide innovative approaches for one to be more independent within the workplace and the broader community.
    Register through this link for the event.
  • SARTEC Plain Language Webinar, Tuesday, Jul 8 · 4:00-5:00pm This is a Webinar for Government and Non-Profits Agencies. Plain language writing makes your work better — and it’s more accessible for people with disabilities and English language learners. Learn the ins and outs of plain language in this webinar. Click on the link to register.
  • Disability Q*mmunity, Tuesday, Jul 8 · 6:00- 7:30 PM contact Independence Alliance for more information.

Wednesday July 9th 2025

  • Ohio Domestic Violence Network is offering a workshop called Beyond Shelter: Advancing Housing Advocacy for Survivors, Wednesday, Jul 9 · 9:30 AM–3:30 PM please click this link to learn more. There is a fee for the workshop .
  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • Supported Decision Making Network of Ohio 12:00-1:30pm click this link to join the meeting
  • Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
  • The Legislative Process, Wednesday, Jul 9 · 4:00-5:00pm (See links from previous day. )
  • Mental Health Round Table 4-6pm 11:30-1:00pm 155 Clark St.
    Powhatan Point, OH 43942

Thursday July 10th 2025

  • First Annual Youth/Young Adults with Disabilities – One Day Event, Thursday, Jul 10 · 12:30–4:00pm Ritter Public Library, 5680 Liberty Ave, Vermilion, OH 44089
  • OSDA Creative Changemakers, Thursday, Jul 10 · 4:30–5:30 PM, Repeats every month on the second Thursday ts a group of peers/self-advocates who meet once a month to hang out and talk about issues facing people with disabilities in Ohio This group supported by the Ohio Self-Determination Association. Change Makers was created by and is run by people with disabilities because they wanted to extend their advocacy conversations beyond the COOL meetings. Please Contact one of the emails listed clareschloemer.osda@gmail.com
    nrichards@clearwatercog.org
    osda2011@gmail.com
  • Neurodiversity Social for Adults, Thursday, Jul 10 · 4:00 -6:00 PM 519 Wall St
    Cairo, OH 45820, USA
  • Disability Rights Peer Support Group, Thursday, Jul 10 · 6:00-7:30 PM contact Independence Alliance for more information.

Friday July 11th 20245

  • 35th Anniversary Celebration
    of the Americans with Disabilities Act, Friday, Jul 11 · 6:00-9:00pm Columbus Museum of Art
    480 E Broad St, Columbus, OH 43215, USA SAVE THE DATE
    35th Anniversary Celebration
    of the Americans with Disabilities Act Friday July 11, 2025, 6:00-9PM
    The Columbus Museum of Art,
    480 E. Broad St., Columbus 43215
    Drinks and Hors d’oeuvres
    All are welcome.
    There is no charge for attending this event,however, registration will be required.
    Keynote Speaker:
    Rebecca Cokley,
    Program Officer
    Ford Foundation’s first-ever
    U.S. Disability Rights program
    Link to full bio:

Saturday July 12th 2025

  • First Annual Disability Pride Month Picnic, Saturday, Jul 12 · 12:00pm-4:00pm Lake Shore Park
    Lakeshore Dr, Ashtabula, OH 44004, USA
  • SALUTE Storytellers Live!, Saturday, Jul 12 · 2:00- 3:00 PM The University of Toledo, 2801 Bancroft St, Toledo, OH 43606
  • You’re invited to MAKE ‘m SMILE Ohio – the BIGGEST party celebrating kids and adults with disabilities… our VIPs! – and the people who love them!
    ✅ Free fun for the whole family
    ✅ Games, characters, activities, and more
    ✅ Resources, giveaways, and smiles for days!
    📍 Location: Hartville Memorial Park (Hartville, OH)
    📅 Date: Saturday, July 12
    🕘 Time: 11 AM – 3 PM
    Don’t miss this unforgettable day of fun and resources!
    Register your VIP family today: https://nathanielshope.org/our-programs/make-m-smile/ohio/

Sunday July 13th

  • 11th Annual All Disabilities Festival, Sunday, Jul 13 · 1:00-5:00pm Columbus, Ohio check out this link to learn more.

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • ⛑️ Emergency and safety preparedness saves lives – and plans must include everyone.
    For people with disabilities, children, and older adults, accessible preparedness is critical. The United States Department of Justice outlines three key phases of emergency management: preparation, response, and recovery – and all must be accessible.
    ✅ Safety plans should clearly outline procedures.
    ✅ Use multiple alert formats (visual, tactile, etc.).
    ✅ Install accessible alarms and equipment.
    ✅ Train staff in disability etiquette and safety roles.
    ✅ Ensure service animals can evacuate with their owners.
    Tools like stair-climbing wheelchairs and communication aids can make all the difference. Together, we can build a culture of preparedness that protects everyone.
    ➡️ For more info, check out the #AccessibleOhio Safety & Emergency Management resource: link
    AllAboutAccessibility #SafetyFirst
  • Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
    Read: http://aging.ohio.gov/AdultDayOhio
  • Know Your Rights: Communication Disability Law
    People with a medically diagnosed communication disability can voluntarily enroll in a database linked to Ohio’s Law Enforcement Agencies Data System (LEADS). 
    This helps notify officers during traffic stops that someone in the vehicle may have difficulty communicating, promoting safer, more informed interactions. It’s free, optional, and designed to reduce misunderstandings. 
    Learn more about the Communication Disability Law and download the Communication Visor Card here.
  • 📢 Thanks to recent grants awarded to Council on Aging, our home52 Transportation service is now offering no-cost rides for medical and other purposes to disabled Hamilton County residents age 18+ who meet income guidelines.
    home52 Transportation provides door-through-door services utilizing specialized vehicles and trained providers to ensure safe rides for adults with varying needs. 🚗
    Review requirements to qualify for this grant-funded transportation and download a registration form: https://bit.ly/3FmqyJF.
    Those who aren’t eligible for grant-funded rides may pay privately. Call our coordination center to get pricing for your ride at (855) 546-6352..
  • Veterans who need nursing home care but prefer living at home can enroll in the Veterans Directed Care Program at WRAAA. This program lets veterans hire personal direct-care workers, giving them more control over their long-term care. More details here: https://bit.ly/3XcvbMT
  • Updates to the Waiting List Assessment Rule
    Attention: All County Boards, Service and Support Administrators, Councils of Governments
    The DODD Medicaid Development and Administration (MDA) division has updated the Comprehensive Guide for Waiting List Assessmentto coordinate with updates to the waiting list assessment rule (OAC 5123-9-04). These updates will be effective July 1, 2025. 
     
    MDA held webinars in May to support assessors with completing the WLA on the new assessment platform. A recording of these webinars can be found on the current and immediate needs webpage. Click hereto access the recording.
     
    For questions, please email WLA@dodd.ohio.gov
  • Ohio has announced its 2025 sales tax holiday, which will run for two weeks this year. https://nbc4i.co/43yipK1?utm_medium=social&utm_source=facebook_NBC4
  • The Family Caregiver Support Program (FCSP) supports family and informal caregivers in caring for loved ones at home. You’re a family caregiver if you help care for an older relative, spouse, or loved one. For free information and referrals for in-home care, respite, adult day programs, and more, go to: https://bit.ly/3NN8Joa or give us a call at 216-586-3441.
  • The 2025 WRAAA Five-County Transportation Guide helps older adults, individuals living with disabilities, and caregivers find transportation options for individuals from Cuyahoga, Geauga, Lake, Lorain and Medina counties. Order or download free copies today through this link .
  • Here’s a video about a tool kit on supported decision making.
  • Caring for a child with complex needs is 24/7. Respite care can make a difference. 💙
    Here is a fact sheet with helpful information.
    If you need help finding respite care for your child, please reach out to us at Ohio Family to Family.
    Email: Ohiof2f@cchmc.org
    Intake Form
  • Want to Help Create Positive Change for Ohioans with Developmental Disabilities?
    Apply to Become an ODDC Council Member!
    ODDC wants members who have personal experience with DD and who understand the needs of their communities. As a Council member appointed by Ohio’s Governor, you will help plan advocacy efforts, support community programs, and work on changes that improve the lives of people with DD and their families.
    Learn more and apply here:
  • Did you know you that 24/7 medical support provided by StationMD is a covered service for Ohioans enrolled in the Individual Options, SELF, or Level One waiver?
    StationMD has provided telehealth care for the I/DD community across 22 states since 2016. Their services ensure immediate, expert care without a trip to the ER. All clinicians are trained and specialized in the nuances of working with people with I/DD, including communication differences and co-occurring conditions.
    “They are respectful and value what the person is saying, regardless of how they’re saying it,” said StationMD Account Executive Sarah Davies. “They go the extra mile.”
    Read more about StationMD and the services available in our most recent newsletter: https://bit.ly/4g5ZRqc

This Month in Awareness

  • Disability Pride Month
  • National Cleft And Craniofacial Awareness And Prevention Month
  • National Fragile X Syndrome Awareness Month
  • Sarcoma Research Awareness Month
  • National Minority Mental Health Awareness Month
  • UV. Safety Month
  • Juvenile Arthritis Awareness Month
  • Blood Cord Awareness Month
  • Healthy Vision Month
  • National Wheelchair Beautification Awareness Month


For more events check out our main website OhioAdvocacyHeartbeat.com

Seen and Heard : Advocacy Series Part 2

Advocacy Series Part 2. What advocates wish people knew and understood

By: Dawn Bilpuch

Here’s part 2 of my advocacy series. This time, we’ll focus on what advocates wish people knew and understood about their profession.

We’ve all had this happen. There’s always one or some friends or family that don’t understand what you do, or why you do it, or both, or they don’t understand the life you live, etc.
In the last entry, we covered what advocacy and being an advocate means, and what it means to me, and asked what it means to you. While we may touch on some of the things covered in that part, we’ll also be covering some new areas.

Sadly, you’ll have people in your life as an advocate or other type of job especially public servants, that just do not understand what you do, why you have to do the things you do, and why you can’t just “leave work at the office” etc. What you have to do depends on the person and your situation. If you can distance yourself, that’s ideal. But, if not, things can get more complex. Also, while people may understand some things, they will never understand it fully. Because they aren’t doing the work, they aren’t living your life, etc. You’re the one doing the work, living the life, and every thing in between. I’ll be covering some things, but, I also want to hear from you.

We’re public servants, in some ways, similar to first responders. While we aren’t police, fire or EMS. and do not claim so be, we’re on-call 24/7 365 pretty much. Whether it’s for peer support, or dealing with unexpected crises in people’s lives, or any of a number of things. Yes, there’s still paperwork to do, emails to check and manage, the list goes on.
Plans will change on a dime. It has happened. Sometimes, it may mean missing family events, or meals etc. That means you have to be flexible with us too. Realize that our work is very demanding time-wise, and we just have to go with it.
The stuff we see, and, how it affects us, and what we have to do because of it.
This one’s a tough one. We see a huge amount of abuse, negelect, depravity, broken lives, and so forth. We see people that have either slipped through the cracks or are slipping. We see people that continue to slip through the cracks for numerous reasons. The system in their county is broken, every one passes blame, not enough resources to go around, the list goes on. It’s rampant, and it’s constant. Trust me when I tell you, that this stuff changes you. It changes your psyche. It drains you mentally and emotionally. If you have mental health chaklenges, it can exacerbate them. Or you’re at risk of developing them. Or, if you have your own past trauma and bd experiences, (which, sadly, is quite common,) things can get even more intense, and draining, among other things Sometimes, we just don’t talk about it because you wouldn’t get it, or it’s too painful, or whatever reason. Sometimes, we just need to talk to people to vent, cry boeak down, whatever we have to do.
Our day doesn’s end at 5 PM. Advocates don’t keep regular office hours. It’s near impossible. There’s sometimes there’s calls at 6 PM. or 9 PM. for instance, and things get quirky when other timezones are at play. Contrary to what people think, we can’t leave work at the office. Even when there’s no calls, you’re still keeping up with and managing emails, and, also, doing paperwork. Or sometimes helping people when their tech breaks down. The list is endless!

We’re not always extroverted. As I said before, we see a lot of crap. The inside of our heads looks like a crime scene sometimes. We are on calls, and the like all day long, around people. Plus, if you’re a caregiver as I am, things can get more intense. But, at the end of the day, the last thing I want to do, is talk on the phone with just anyone, or be around a bunch of people. It’s like what a tech or customer service rep feels like. They’re on the phone all day, dealing with the public. When they get done, the last thing they want to do is be on the phone 24/7 on off-hours. It’s the same thing. For me this is especially impoortant. If I talk to you it’s because either I need to vent, or I’m helping someone, or it’s a phone call I had to make when I had time, or, some other reason. Please respect that. When we say we don’t want to do something, go somewhere, etc, it’s not because we don’t love you. It’s because we’re peopled out, mentally, emotionally drained, and yes, physically too.
Taking time off isn’t as easy as it sounds. The planning that goes into it for us advocates is intense. Even with our planning, we may not get that day off.
It’s a weird profession. There’s people that get paid for it, and, others who do it as a volunteer thing. Then there’s people that would love to get paid for at least some of what they do. Do I want volunteer work? Yes. But, I’d also love to get paid for what I do also, and make a living from it. I’d even accept barter-and-trade, and I have in the past.
Advocacy is a huge part of your being and identity, and who you are as a person. If we didn’t love what we did, we wouldn’t be doing it.

There’s a lot of other things that I want people to understand, but, I have a hard time finding words for them. I think that’s one other thing I want so to understand. Is that sometimes, as advocates, we want to talk or need to talk. But, sometimes, we just can’t put what we want to say to words. Sometimes we can write it better, and sometimes, we can say it better and sometimes it’s both. Other times, we have to find other ways to say what we want to say, such as sharing songs with people . So, with that being said, what would you want people to understand about being an advocate and advocacy? I’d love to hear your thoughts! Stay tuned for the last entry in this series, which will cover things that can be done to help advocates