Tag Archives: Ohio Advocacy

Ohio advocacy

The Pulse: What’s going on around Ohio October 13th, 2025 to October 31st 2025

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Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Developmental Disability Office Website Usage Survey
    The University at Albany is working on a research project to better understand how people with developmental disabilities use their state’s developmental disability services website. The goal is to improve access to information and ensure these online tools meet the needs of the community. Individuals who are 18 years or older, have a developmental disability, use services from their state’s developmental disability office, can read, and are able to speak in a one-hour Zoom interview may be eligible to participate.
    Contact jmanganello@albany.edu for more information on how to participate.
    Eligibility requirements are listed: must be an adult 18 or older, have a developmental disability, use services from the state developmental disability office, be able to talk in a Zoom interview for about an hour, and be able to read. Family members are also welcome to participate. A purple button says “Contact us for more information” with an email address below: jmanganello@albany.edu
  • Ohioans can take the Ohio Department of Aging Statewide Needs Assessment Survey to enable the department to better understand what matters most to older Ohioans, adults with disabilities, and their caregivers. Feedback from those digital surveys will be used to further bolster the 2027-2030 State Plan on Aging. Click this link to do the survey.
  • The 2026 Accessible Expressions Ohio Call for Art is officially OPEN!
    What is Accessible Expressions Ohio?
    Accessible Expressions Ohio is a statewide adjudicated exhibition featuring art from artists with disabilities from across the state. Artists can enter in the youth, emerging, or professional categories, and enter under a special theme category. Cash prizes are awarded in each category, including a Best in Show.
    Who can apply?
    Any Ohio artist living with a disability may apply.
    How do I apply?
    You can find the application link here: https://airtable.com/appdTSVjgoroKqru3/shrKexgk1FzKsHyMZ
    Upon request, applications are available both by email or mail.
    Have any questions?
    Contact Lina Stavrova at lina@ArtPossibleOhio.org

Events around Ohio to For October 13th, 2025 to October 31st, 2025

Monday October 13th 2025

  • Understanding Ohio’s DD Waivers Virtual Workshop on October 13th from our friends at Autism Society of Greater Akron. Do you support someone with developmental disabilities and want to better understand Ohio’s Medicaid waivers? This free virtual lunch-and-learn session will walk you through the basics of the three DD waivers offered in Ohio: the SELF Waiver, Level One Waiver, and Individual Options (IO) Waiver. Learn more and Register HERE — https://autismakron.org/waivers2025/
  • Ashtabula County Board of Developmental Disabilities REMINDER:
    Curious about working in the community and how it might impact your Social Security benefits? Join us for our Benefits Analysis Information Meetings to get the answers you need!
    Virtual Meetings are Monday, October 13th 10:00-11:00 AM & 2:00-3:00PM: https://tinyurl.com/49r56tc9
    In-Person Meetings are Tuesday, October 14th 11:00 AM – 12:00 PM & 5:00-6:00PM: https://tinyurl.com/yw8s6fsu
    EmploymentSupport #DisabilityServices #CommunityEmployment

Tuesday October 14th, 2025

  • Early Childhood Open Play 10:45am-11:45am Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
    Sign up through this link
  • Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com
  • Parents Only Special Needs Support Event 7-8pm 408 S Main St, Findlay, OH 45840-3210, United States Join Pierce’s Crew Foundation for our monthly Support Events.🥰 Visiting this time is a special guest from Awakening Minds.
    Come meet and connect with other community families just like yours. These events will be a safe and supportive space to play, chat and learn. Support events are open to all special needs families at no charge. Check our website and socials for any updates or changes. Check out there facebook event link for more information.

Wednesday October 15th 2025

  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • Developmental Disabilities Job and Resource Fair & Hiring Event on is coming up on October 15 from 11:00 AM to 12:30 PM at the Mentor Public Schools – Paradigm. We hope to see you there! #EmpowerEngageEnrich #NDEAM #StriveToThrive2025
  • Tech Fest, Wednesday, Oct 15 · 10 AM–1 PM Camden Falls Reception and Conference Center
    2460 OH-231, Tiffin, OH 44883, USA Tech Fest 2025 is coming!
    Join us for an exciting day dedicated to exploring supportive technology that helps you Live, Work, and Connect!
    🗓 Date: October 15, 2025
    🕙 Time: 10:00 AM – 1:00 PM
    📍 Location: Camden Falls Conference Center
    2460 OH-231, Tiffin, OH 44883
    This event is free and open to people of all abilities. Accommodations are available upon request.
    Brought to you by the Ohio Self Determination Association (OSDA) and Clearwater COG.
  • Butler County Board of Developmental Disabilities Board Meeting 10am-12pm Join us for our regular provider meetings so you can stay up to date on the latest information.
    Meetings are currently all via Zoom. You can request the link by emailing Cathy Borders at cmborders@butlerdd.org
  • People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They meet 6:30-8pm They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday October 16th 2025

  • 💻✨ Discover the power of technology!
    Join us at the Assistive Technology Fair, hosted by Stark County Board of Developmental Disabilities (Stark DD), to explore tools and resources that support individuals with disabilities in communication, daily living, education, and beyond.
    Families, caregivers, and professionals are invited to attend and learn about the latest innovations making independence possible.
    📅 October 16th | 11 AM – 1 PM
    📍 Belden Village Mall
    👉 Learn more and register here: https://bit.ly/46ZYLIH
    ASGA #Autism #AssistiveTechnology #Fair
  • Lunch & Learn: Social Security What You Need to Know 12:00pm-1:00pm 452 Washington Jackson Rd, Eaton, OH 45320-8699, United States 🥗 check out the link About the Event:
    Join us for an engaging Lunch & Learn on Social Security: What You Need to Know!
    Enjoy a complimentary lunch while you learn the latest updates on Social Security and how to make the most of your benefits.
    🌟 In this packed hour, you’ll learn:
    The latest news on Social Security
    Whether Social Security is viable for the future
    The best time to start collecting benefits
    How to optimize your benefits
    Whether you’ve exercised all of your available benefits
    Our guest speaker, Jim Chronister, Registered Social Security Analyst (RSSA), has specialized training to help individuals and families make informed retirement decisions.
    💲 Cost:
    💵 $10 for Members
    💵 $20 for Non-Members
    🍽️ Lunch is provided!
    PrebleCountyChamber #LunchAndLearn #SocialSecurity #EdisonState #CommunityConnections #PrebleCountyEvents
  • Disability Voters Forum at The Ability Center, Thursday, Oct 16 · 7:10–8:10 PM The Ability Center of Greater Toledo
    5605 Monroe St, Sylvania, OH 43560, USA
  • Join us on October 16 for our next Coffee & Conversations Event with our CEO, Ariel Simms. The topic is “The Importance of Training on Disability Inclusion in the Workplace.” The session will highlight why disability inclusion training is essential for building stronger, more equitable workplaces. Participants will learn how education programs that center lived experience help organizations move beyond compliance to build cultures of respect and belonging. The event is capped to 40 registrants, so secure your spot today: https://us02web.zoom.us/meeting/register/7dlpu3EDRJuYqkB6R–hLw

Friday October 17th, 2025

  • ASL Community Connections Event, Friday, Oct 17 · 12–4 PM Owens Community College, 30335 Oregon Rd, Perrysburg, OH 43551
  • We Thrive Together Advocacy Army 4:00pm-5:00pm click this link to join.

Saturday October 18th 2025

  • NATIONAL FEDERATION
    OF THE BLIND
    OHIO
    Live the life you want.
    SinteE Akon Chapter of the National Federation
    Presents:
    White cane awareness day as part of BEAM
    (Blind Equality Achievement Month)
    When: Saturday October 18, 2025
    Time: open House1 – 3:30 P.M.
    Where: cuyahoga Falls Public Library, Chambers Room, lower level (LL) , cuyahoga Falls, OH 44221
    Prizes, games, blindness technology showcase, and learn about the white cane.
    Come experience and learn how blind people navigate the world on a daily basis.
  • ReelAbilities Film Festival—Cleveland is on October 18 and 21.
    This festival promotes awareness of the lives, stories, and artistic expressions of people with diverse abilities through films created by and about individuals with disabilities.
    Learn more about the two events scheduled this month on our Facebook events section.
    ReelAbilities #CLE
    check out their event link on Facebook.
  • Register for the next More than Down Syndrome Workshop on 10-18 from 9:30-11am Central time. It is hosted by National Association for Adult Down Syndrome and the Adult Down Syndrome Center. MTDS is a free seminar for parents/family/caregivers of a person (any age) with a dual diagnosis of Down syndrome plus Autism Spectrum Disorder. http://weblink.donorperfect.com/MTDSOCT18

Monday October 20th 2025

  • Early Childhood Open Play 10:45am-11:45am Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend.
    Sign up through this link
  • Why Is Reading So Hard? 6:30pm at Willoughby Eastlake Library 35150 Lake Shore Blvd
    Eastlake, OH 44095
    United States to learn more about the event check out this link on Facebook .
  • 🚨 Emergency Preparedness & Autism
    Join ASGA and Ohio’s Mass Care Coordinator, Matt Sturgeon, for a virtual session on making Ohio’s emergency response systems more inclusive for the Autism community.
    📅 October 20, 2025
    🕡 6:30–7:30 PM
    💻 Online – Registration Required
    Learn how disaster response works in Ohio, how to support access and functional needs, and how you can get involved.
    📌 Register by clicking here: https://bit.ly/4gWUkTq
    Questions? Call 330-940-1441 x1
    ASGA #EmergencyPreparedness #Resources #Training
  • ReelAbilities Film Festival—Cleveland is on October 18 and 21.
    This festival promotes awareness of the lives, stories, and artistic expressions of people with diverse abilities through films created by and about individuals with disabilities.
    Learn more about the two events scheduled this month on our Facebook events section.
    ReelAbilities #CLE check out their event link on Facebook. The event is 10am-12pm
  • Wandering Workshop 6:00-7:00pm 🚨 Wandering, also known as elopement, is a serious safety concern for many individuals with Autism and their families.
    Join ASGA and the Medina County Board of Developmental Disabilities for a special workshop on Elopement & Safety, where we’ll share strategies, resources, and community supports to help keep loved ones safe. Families, caregivers, and professionals are all welcome to attend this important session.
    ✅ Registration is required: https://bit.ly/46H4cvU
    ASGA #Autism #Workshop

Tuesday October 21 2025

  • We Thrive Together Tech Talk: Microsoft Word 11:00am-12:00pm click this link to join.

Wednesday October 22nd 2025

  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • Sign up for the next Opportunities for Ohioans with Disabilities Employer Training webinar. This free webinar will offer actionable steps for businesses to attract and be inclusive of applicants with disabilities who are seeking employment.
    What: Employer Training for Disability-Inclusive Workplaces: Attracting Diverse Talent
    When: Wednesday, October 22, 10:00 AM – 11:00 AM ET
    Where: Virtual (Microsoft Teams link will be sent upon registration)
    Registration is required to attend. Click here to sign up: https://bit.ly/43ux4WL

Thursday October 23rd 2025

  • Join National Disability Institute’s benefits experts for a free webinar:
    Applying with Confidence: Your SSDI and SSI Roadmap
    Thursday, October 23, 2025 | 11:00 AM – 12:00 PM ET
    Applying for SSI (Supplemental Security Income) or SSDI (Social Security Disability Insurance) can feel overwhelming. These programs are vital sources of monthly financial support for millions of people and families nationwide.
    In this session, our experts will share practical guidance to help you understand and navigate the application process confidently.
    Topics include:
    SSA disability benefit programs
    Medicare and Medicaid
    Disability evaluation
    How to apply for benefits
    Expediting the application process
    Don’t miss this opportunity to learn how SSI and SSDI can strengthen your family’s financial health.
    Register today: https://us02web.zoom.us/webinar/register/WN_OQQuL9BnQbGlab48dCEP9w
    Benefits #DisabilityBenefits #SSI #SSDI #DisabilityInclusion #FinancialWellness

Friday October 24th 2025

  • 10th Annual Accessibility Symposium, Friday, Oct 24 · 8 AM–3:30 PM Shriver Center, 701 E Spring St, Oxford, OH 45056 Accessibility plays an essential role in creating inclusive experiences and removing barriers. The annual Access for All: Accessibility Symposium highlights current issues and trends in accessibility, …
    Source › https://events.miamioh.edu/event/10th-annual-accessibility-symposium

Sunday October 26th 2025

  • 5th Annual All Disabilities Fall Festival 1-5pm J H Ross Community Center, 907 Lexington Ave, Columbus, OH 43201

Monday October 27th 2025

  • All-Abilities Adventure, Monday, Oct 27 · 11 AM–12 PM Dayton Metro Library – Miamisburg Branch, 545 E Linden Ave, Miamisburg, OH 45342 Embark on an exciting journey with our All-Abilities Adventure program, where inclusivity, creativity, and community thrive. This adventure is designed for adults of all abilities.
    Source › https://dayton.bibliocommons.com/events/68324c278c90718765548832
  • Ohio Family to Family’s next virtual information session:
    Reducing Barriers to Advocacy in Education, Tips for Families
    October 27, 2025
    6-7pm
    Register: https://lp.constantcontactpages.com/ev/reg/e8r7f3q
    Questions? Contact Jena.Wells@cchmc.org

Tuesday October 28th 2025

  • The National Federation of the Blind posted this on their social media Are you a blind jobseeker ready for your next career opportunity? Sign up for our virtual career fair on October 28 from 1:00 to 4:00 p.m. Connect and network with employers.
    Register by Tuesday, October 14 at https://buff.ly/5jQ0fQO
  • Southwest Ohio Advocacy Group, Tuesday, Oct 28 · 6–8 PM, Repeats every month on the fourth Tuesday 4623 Wesley Ave
    Cincinnati, OH 45212, USA Southwest Ohio Advocacy Group sponsored by The Arc of Ohio. Contact this email for more information or to RSVP to attend jen.powersalge@thearcofohio.org
  • With the recent changes in workplace culture and DEI-related federal guidance, many companies are uncertain about the legal implications of investing in diversity within their work environments. On October 28th at 1 p.m. ET, join Craig Leen, a partner at K&L Gates, and Ariel Simms, President and CEO of Disability Belongs™, for a discussion that encourages employers to reinvest their DEI funds specifically in disability inclusion and accessibility efforts, rather than repurposing them.
    Learn more and register: https://www.disabilitybelongs.org/2025/09/evolving-landscape-workplace-diversity-conversation/

Wednesday October 29th 2025

  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • EmpowerYOUth October NDEAM Event, Wednesday, Oct 29 · 6–7:30 PM Columbus Metropolitan Library, 96 S Grant Ave, Columbus, OH 43215

Thursday October 30th 2025

  • Special Needs Family Build Night 6-8pm 5519 Bigger Rd, Dayton, OH 45440-2612, United States LAST ONE OF THE YEAR!!! (Will start back up in Jan 2026.)
    Our Special Need Family Build Night is a time designed for special needs families to come build LEGO in our Dayton Brick Shop Community Room. It’s a great opportunity for kids to work on social skills all while building their own masterpiece!
    LAST THURSDAY OF EVERY MONTH FROM 6-8pm through Oct 2025. Will start back up in Jan 2026.
    Upon arrival, there will be multiple tables with bulk Lego on each table, giving the kids space to build but also socialize.
    And, siblings can interact with other siblings who may have a special brother or sister of their own too!
    Our building is wheelchair accessible.
    Unfortunately, we do not have a way to dim or cover the lights.
    If you’d like to take your masterpiece home with you, it will only be $1 an ounce. Otherwise, we will just toss the Lego back into the bins to be sanitized!
    Also, your family is always welcome to our other FAMILY BUILD NIGHT that is available to all ages is always on the 2nd Thursday of the month from 6-8pm!
    https://facebook.com/events/s/special-needs-family-build-nig/25495341933388649/

Friday October 31st 2025

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Emergency Preparedness for Individuals with Rare Diseases
  • Ohio Department of Aging sent out an updated Memo about the Long Term Care Navigator Site how it Now includes assisted living facilities and our Care Quiz, the Long-Term Care Quality Navigator can help you or a loved-one explore the state’s long-term care options.
    Use the Navigator: http://aging.ohio.gov/navigator
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA.
  • Cleveland Sight Center Radio Network (CSCN) is now available on Alexa devices! This radio station is dedicated to providing information, news and entertainment to the blind and visually impaired community. To play it, say “Alexa, open Cleveland Sight Center Network skill.” Don’t forget to say skill at the end, or else a different news broadcast will open. Happy listening!
  • Did you know Summit County has a special database to help reunite lost individuals with communication difficulties with their families? The Take Me Home program is a countywide initiative that supports individuals with disabilities that impact their ability to communicate.
    How it works:
    📝 Families register their loved one’s information in a secure database
    👮‍♀️ Only law enforcement personnel can access the information
    🔍 Officers can search by name, phone number, or physical characteristics
    🤝 Quick identification helps reunite families safely
    You can learn more at: https://bit.ly/4mjbiMQ
    Thanks to the partnership between the Elliot Kolkovich, Summit County Prosecutor and Summit County Sheriff’s Office we have this vital safety net.
    TakeMeHomeProgram #SummitCounty #AutismSafety

October Awareness Month

  • AAC Awareness Month (Augmentative Alternative Communication)
  • Gaucher Awareness Month
  • Dysautonomia Awareness Month
  • Blind Equality Achievement Month
  • Breast Cancer Awareness Month
  • National Disability Employment Awareness Month
  • Down Syndrome Awareness Month
  • National ADHD Awareness Month
  • Spina Bifida Awareness Month
  • Learning Disabilities Awareness Month
  • Sudden Infant Death Syndrome (SIDS.) Awareness Month
  • National Rett Syndrome Awareness Month
  • Dyslexia Awareness Month
  • Dwarfism Awareness Month
  • Oct. 19-25. Invisibile Disabilities Week

Speaking is a Privilege: Dystonia Awareness and AAC Advocacy in the Disability Community in Ohio.

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September is Dystonia Awareness Month. As a person living with Dystonia I find it difficult to exist in many of my advocacy circles on the state level in Ohio.

It seems as though my National Advocacy groups accept me as I am but in Ohio it is lot different.

I thought a blog might help raise awareness and shine light on the fact that there are people use (AAC) Augmentative Alternative Communication to communicate intermittently and how we should be more inclusive as a community.

When someone uses a communication device it takes time to communicate and people should be given time to be heard thru their communication device.

When someone speaks but also uses AAC people should just respect them regardless of if they speak or use an assisted technology to communicate.

Ohio advocacy spaces aren’t truly inclusive. I find myself in a daily struggle whether to log on an advocacy group or to just skip a group because of lack of understanding. It is a privilege to speak. Often there are things people take for granted. We often don’t wait and give people time to speak. There is a lot ableism and lack of understanding about disability challenges that people face and especially for those who have speech or language based disabilities. It is difficult to be heard when someone’s speech might be great one day and the next it isn’t great.

This past week I found that some people don’t even know what AAC is. If you don’t use your voice in normal way people just don’t hear you. It is a struggle to be included.

I believe when people have the right tools and supports they can communicate and be active in their communities. That participation sometimes is affected by the communities that exist understanding and making way for a different way to communicate.

We advocate for technology and Ohio is a technology first state in promoting independence. At the same time, how many people do you meet in your advocacy groups who are actively using technology to help them speak or be heard in an advocacy space?

In my situation, people are also used to my strong advocacy voice that they don’t even recognize my computer generated voice even though I am the same person with same message. On days where my disability affects me more I am excluded.

My disabilities aren’t obvious. I have Autism I also have Dystonia a very complicated disability and the symptoms when I am In a full blown attack look like I am having a stroke. People have actually mistaken me in those moments. I have used AAC to advocate for my needs. I have had to fight to also keep my day going. Things people don’t realize. This being my day is not cancelled when I use my AAC to communicate.

Dystonia is a neurological condition that causes involuntary, uncontrolled muscle contractions/ movements.

This can result in repetitive twisting motions, tremors, and unusual, often painful, body postures. It affects speech and sometimes choking and vision issues. These symptoms happen because of bad signals from the brain, which affects how muscles are supposed to move.

These symptoms can happen at any time and I use AAC as my back up default way to communicate.

I have been patient but often my silence is just this mindset if you don’t speak up then you must not have anything to say.

I have a lot to say. Often it gets missed. My AAC device can help me send texts or copy text and paste to a chats on zoom or teams. I sometimes type in the chat to participate when I can type. My active voice in communities is often not there unless I raise my hand and try push my self to speak. The pause sometimes makes people uncomfortable or they think I am not there or they think the connection is bad. I want to be heard when I use my AAC too. I need time to push a button takes literally seconds. I don’t raise my hand until I can generate my communication to help people. Still then that 3 seconds of silence usually makes people move on.

It would be helpful if people recognize that there are AAC users among them that the 3 second pause is necessary for communication.

Not everyday is the same. My AAC device is my voice it is way of communicating when I don’t have physical words.

September is Dystonia Awareness Month. I chose to raise awareness to change outcomes in hopes my advocacy spaces will be more inclusive and accessible to me.

If you want to read more about Dystonia check out these resources

Cleveland Clinic

Dystonia Medical Research Foundation

National Organization on Rare Diseases

This is the only plain language resource I could locate from Care Pathways on Dystonia so much information out there but not very much in plain language.

All around Dystonia is treatable and for me 40 years of symptoms and I am finally on right pathway for treatment. Finding spaces that are going to be accessible for me to be included when my symptoms are intense is problem.

We should want to be a community welcomes anyone with any disability and in anyway that anyone communicates.

Being able to speak is a privilege that many people take for granted. Losing my ability to speak with my own voice has been a lot of struggle and the need to be included is important to me.

As someone who is a national advocate, I want to be included in state wide advocacy too. #EveryoneCommunicates and as a disability community we should be willing to learn about other disabilities and ways people communicate to make space for more people to be at the table.

To the person reading this who uses AAC all the time your voice is valuable at the tables of advocacy . Just as I don’t plan to stop communicating please don’t stop. Everyone has a seat in advocacy just Ohio must be more open to being a space that makes room for anyone to communicate and speak up!

The Pulse: What’s going on around Ohio September 15th 2025 to September 21st 2025

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Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • There’s only two more weeks to submit to Issue 8 of Imagine the World as One: A Disability Lifestyle Magazine! Please send us your articles about
    “Submit articles at http://www.imaginetheworldasonemagazine.com or email them to imaginetheworldasonemagazine@gmail.com Fashion Employment Product reviews Money Accessibility Dating Relationships Advocacy Art Between 2000-3000 Words Please send us your articles about disability and…. Submit your article at imaginetheworldasonemagazine.com Due September 30, 2025

Events around Ohio to For September 15th -September 20th 2025

Monday September 15th 2025

  • All-Abilities Adventure, Monday, Sep 15 · 11 AM–12 PM Dayton Metro Library – Miamisburg Branch, 545 E Linden Ave, Miamisburg, OH 45342
  • Advocating for your child with Autism means being a proactive, informed, and compassionate voice in ensuring they receive the support, services, and understanding they need to thrive—especially in educational settings.
    But – You don’t know what you don’t know!
    Join ASGA for the September VOICE Session with Marjorie Cook, OCFPS-Supervisor | PEERS Program Manager at Greenleaf Family Center.
    REGISTER NOW: https://tinyurl.com/fjcucubv

Tuesday September 16th 2025

  • Special Needs Social Hour, Tuesday, Sep 16 · 12–1 PM Medina County District Library, 210 S Broadway St, Medina, OH 44256
  • Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com
  • IEPs & 504s Empowered by an Advocate! 6-7pm Parents get Empowered! Looks like a great virtual webinar to learn more about IEPs and 504s. If you have an autistic child you need to be knowledgeable on basic educational rights. Thank you ASPIES for hosting! Register HERE — https://docs.google.com/forms/d/e/1FAIpQLSeQYixoD1fof4jQZ8hhiuhPcCqrjx8b77z0e6ohT5RsmoyQSA/viewform

Wednesday September 17th 2025

  • Healthy Aging Expo 10am-2pm 🌟 Get ready — the 513Relief Bus Healthy Aging Remix is making its return! 693 FRESNO RD. 45240
    link to more information.
  • Sign up for the next Opportunities for Ohioans with Disabilities Employer Training webinar. This free webinar will provide organizational leadership best practices for creating a workplace inclusive of individuals with disabilities.
    What: Employer Training: Disability-Inclusive Workplaces: Inclusive Leadership
    When: Wednesday, September 17th 10:00 AM – 11:00 AM ET
    Where: Virtual (Microsoft Teams link will be sent upon registration)
    Registration is required to attend. Click here to sign up: https://bit.ly/43ux4WL
  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • 🚔 Calling all Summit County Law Enforcement! 🚔
    Join us for the Safety on the Spectrum™ Training – essential education for first responders working with the Autism community. Two upcoming sessions available:
    📅 September 17th
    📅 November 12th
    In this training, you’ll learn:
    ✅ The Stop. Assess. Support. framework
    ✅ Common characteristics of Autism
    ✅ How to offer Autism-informed support
    ✅ Critical safety information about wandering and drowning risks
    You can learn more or register for one of the sessions at: https://bit.ly/48gOgmv
    SafetyOnTheSpectrum #LawEnforcementTraining #AutismAwareness #FirstResponders #SummitCounty
  • Butler County Board DD provider Meeting, Wednesday, Sep 17 · 10 AM–12 PM, Repeats every month on the third Wednesday Join us for our regular provider meetings so you can stay up to date on the latest information. Meetings are currently all via Zoom. You can request the link by emailing Cathy Borders at cmborders@butlerdd.org
  • Save the Date for the Inclusive Opporunity Fair on Wednesday, September 17th from 6–8 PM at the Westerville Community Center. 350 N. Cleveland Ave.
    This is a free event and no registration is required. Various local organizations will provide information about opportunities, products and programs for individuals with developmental, physical or invisible disabilities.
  • Special Needs Family Support Event, Wednesday, Sep 17 · 6–7 PM Children’s Museum of Findlay, 1800 Tiffin Ave # 201, Findlay, OH 45840 Join Pierce’s Crew Foundation for our monthly Support Events.🥰 (SUBJECT TO CHANGE DUE TO THEIR MOVE) Come meet and connect with other community families just like yours. These events will be a safe and supportive space to play, chat and learn. Support events are open to all special needs families.
  • People First of Northeast Ohio, Wednesday, Sep 17 · 6:30–8 PM, Repeats every month on the third Wednesday People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday September 18th 2025

  • No known Events

Friday September 19th 2025

  • Silent Sensory Lab, Friday, Sep 19 · 9:30–10:30 AM Troy-Miami County Public Library, 419 W Main St, Troy, OH 45373

Saturday September 20th 2025

  • 4th Annual March for Access, Saturday, Sep 20 · 10 AM–12:30 PM Join NOCDO for our 4th annual March for Access!
    The March for Access will take place from 10 am – 12:30 pm on Saturday, September 20, (rain or shine). This is a FREE event.
    March theme and purpose:
    Accessible and inclusive transportation options. This is to honor and build on the 40th anniversary of the Cleveland Transportation Protests.
    Schedule:
    Saturday, September 20, 2025
    10:00 am: Visit resource tables and make posters
    11:00 am: Rally and March
    12:00 pm: March photo and resource tables Accessibility:
    Masking encouraged
    Captioning and ASL interpretation of rally
    Wheelchair accessible restrooms and route
    Wheelchair charging station
    Location and Transportation:
    Rally location: 127 Public Square, Cleveland
    From 9:45 – 12:45 pm: Free parking and ADA shuttle transportation provided by Youth Challenge between County Board of Developmental Disability Lakeside parking lot and Public Square.
    CCBDD parking lot address: 1275 Lakeside Avenue East, Cleveland OH 44114
  • Drive Through BBQ Fundraiser 11 am 950 Webster St, Defiance, OH 43512-1682, United States DASH will be holding its 3rd annual Drive-Thru BBQ Fundraiser @St. Johns UCC on September 20th from 11am-1pm. All proceeds help those living with disabilities.
    Choice of hamburger or hotdog: with chips, macaroni salad and a dessert.
    FREE WILL DONATION check out facebook event link here.

Sunday September 21 2025

  • Step Up to Prevent Suicide Community Walk, Sunday, Sep 21 · 8–9 AM Medina Public Square Historic District, Public Square, Medina, OH 44256

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Emergency Preparedness for Individuals with Rare Diseases
  • Sheriff Smith and the Athens County Sheriff’s Office would like to introduce the Peaceful Encounter Program (PEP); a new, voluntary and confidential program designed to help law enforcement respond more effectively and compassionately to individuals with mental or behavioral health conditions.
    This program allows individuals or their caregivers to share important information ahead of time (such as communication needs, known triggers, calming techniques, or other helpful notes) so that deputies are better prepared if a crisis should arise.
    Who can enroll?
    Anyone in Athens County living with: Autism Spectrum Disorder, PTSD, Anxiety, OCD, Schizophrenia, Bipolar Disorder, or any condition where advanced knowledge could improve our response.
    All information is kept private and is only accessed by law enforcement during calls involving the registered individual.
    How to sign up:
    Visit http://www.athenssheriff.com/pep and complete the questionnaire. It’s quick and secure!
    If you have questions or concerns about the program, please contact Deputy Zayne Preston at 740-566-4356 or zpreston@athenssheriff.com
    Let’s work together to promote safety, understanding, and peaceful outcomes for everyone in our community.
  • News Highlight: Bridging Aging and Disability Networks (BADN) Explains How to Better Support Aging Adults with IDD and Their Caregivers
    A new article called “Bridging Aging and Disability Networks to Support Aging Adults With Intellectual and Developmental Disabilities and Family Caregivers” was published in the Public Policy and Aging Report by the Gerontological Society of America.
    The article explains that people with intellectual and developmental disabilities (IDD) are living longer, and their needs — along with those of their aging family caregivers — are getting more complicated. Most still live at home with support from aging parents or relatives. Even though they have many of the same needs as other older adults, they are often overlooked because aging and disability services don’t always work together.
    You can read the full BADN article in the latest edition of NACDD’s Insight: https://nacdd.org/nacdd-insight-july-2025/#badn
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA.
  • Supported Decision Making Network of Ohio shares a tool kit about supported decision making through their Facebook page. Please check it out!
  • Families: Check out this new resource from OCALI:
    First Concerns About Child Development and Learning (Ages 3-21):
    What Parents Need To Know
    https://ocali.org/storage/ocali-ims-sites/ocali-ims-ocali/documents/What_Parents_Need_to_Know.pdf
  • Cleveland Sight Center Radio Network (CSCN) is now available on Alexa devices! This radio station is dedicated to providing information, news and entertainment to the blind and visually impaired community. To play it, say “Alexa, open Cleveland Sight Center Network skill.” Don’t forget to say skill at the end, or else a different news broadcast will open. Happy listening!

September Awareness Month

  • Dystonia Awareness Month
  • Self Care Awareness Month
  • National Suicide Prevention Awareness Month
  • September 1st-6th is National Migraine Awareness Month
  • Childhood Cancer Awareness Month
  • September 6th is National Read a Book Day
  • National Spinal Cord Injury Awareness Month
  • National Library Card Sign Up Month

OHID what is it and why is it important?

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OHID is the online portal for accessing all of Ohio benefits and state agencies. OHID gives you a single, secure account to log into State of Ohio websites and services. To learn more about it and why it is important check out this link.

If you once used the online benefits portal on its own you need to listen up! The new system requires you to create an OHID account then log in and search the App Store within the portal. It requires you to link your Ohio Benefits Portal to your OHID to access the application portal for benefits such as Ohio Medicaid, SNAP, and other assistance programs.

This is critical information especially if you file or report changes for your Medicaid or SNAP interim reports or yearly renewal of benefits. Don’t lose access! Create an OHID account today and Log in today to connect these critical apps and portals so you can stay connected to your services, supports and Medicaid benefits,

The Pulse: What’s going on around Ohio September 1st 2025 to September 6th 2025

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Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Participate in Public Comment is for background check rules for employment for Ohio Developmental Disabilities Services Providers read more through this link to learn how to participate in public comment.
  • Research participants wanted for The Lurie Institute for Disability Policy.
    The study is about the sexual and reproductive health needs and experiences of young people with disabilities.
    To participate, people must:
    Have been born in the United States
    Live in the United States
    Be between 15 and 25 years old
    Have a health condition or disability, such as a vision, hearing, physical, intellectual, or developmental disability.
    Be able to talk in English, Spanish, or American Sign Language over a Zoom call
    Participants will be asked to do a 1-hour Zoom call to talk about their experiences. American Sign Language interpretation and accommodations will be provided on request.
    Why is this study important? Why should you care or share this information?
    People do not know a lot about young people with disabilities’ experiences with sexual and reproductive health.
    The study will help the researchers create a website for young people with disabilities that will teach them about taking care of their sexual and reproductive health.
    Our findings could be used to help advocate for youth with disabilities.
    Why should participants tell their story?
    They get a $50 gift card.
    Their stories will help us create a website that will teach people with disabilities about sexual health.
    Their voice will help inform and add to the little research on this important topic.
    Contact information
    Anyone who is interested can email YouthStudy@Brandeis.edu or call Janelle Mills, at 781-736-3928. More information is on our website.
  • Brandeis University is conducting a research study focused on the experiences of disabled people of color transitioning from institutions back into the community. They’re seeking staff from health plans, aging care organizations, providers, state agencies, CILs, and other support organizations to participate in a 90-minute virtual focus group.
    Participants will receive a $50 gift card. Insights will help shape future policy.
    Sign up: https://buff.ly/QMEn889
    Questions: hcbsaccess@brandeis.edu
  • Do you have an intellectual disability and identify as obese?
    We want to hear from you!
    Deakin University is running a research project about how relationships impact weight and physical activity for people with intellectual disability.
    You’ll be invited to take part in 1–2 interviews using art to help us communicate.
    You’ll receive a $50 gift voucher for taking part. Co-designed with people with intellectual disability and their supporters.
    Interested? Contact Sam Lilly: slilly@deakin.edu.au
  • The Yale Disability Research Lab is recruiting US adults (age 18 or older) who identify as Black/African American and part of the disability community to participate in a research study.
    Participants will be asked to share their experiences of racism, ableism, and other daily life challenges in an interview. This information will help them to develop a questionnaire measure which we will use to capture the experiences of Black people with disabilities.
    This questionnaire will be an important tool to help us understand how the unique lived experiences of Black people with disabilities might impact their health and well-being.
    You might be eligible to participate:
    18 years or older
    Self-identify as Black/African American with a disability
    Fluent in English
    Reliable access to the Internet and videoconferencing equipment (i.e., a computer, tablet, or smartphone with webcam and microphone)
    https://medicine.yale.edu/ycci/clinicaltrials/trial/exemption-intersectional-stigma-measure-development/
    Image Description: AAHD logo and Yale logo. Outline background image of people silhouettes in different colors with and without disabilities. Text overlaid says “Seeking Research Participants! Do you have a disability? Do you identify as Black/African American?

Events around Ohio to For September 1st -September 6th 2025

Monday September 1st 2025

  • 3rd Annual Mental Health Matters 5K 8am-9am The Rotary Club of Cambridge is hosting their 3rd annual Menthal Health Matters 5k walk/run on Monday, September 1st at the Cambridge City Park sign up for run
  • We Thrive Together History of Labor Day Event 11:00-12;00pm click this link to join.
  • Adaptive Pickleball, Tuesday, Sep 2 · 5–6:30 PM Athens Community Center, 701 E State St, Athens, OH 45701

Tuesday September 2nd 2025

  • Early Childhood Open Play, Tuesday, Sep 2 · 10:45–11:45 AM, Repeats weekly Please join us for open play time on our playground! Children birth to age 6 enrolled in WCBDD services and their parents/caregivers are welcome to attend. Siblings under age 6 may also attend. Sign up here:
  • We Thrive Together Tech Talk 11:00am-12:00pm click this link to join.
  • Breaking Silences Advocacy Committee meeting will take place on Zoom from 3-4 PM. If you’d like more information, contact Maria Matzik at:
    Maria.Matzik@acils.com
  • Neighbors in Action : A self Advocacy group out of Hamilton County meets virtually at 4pm. Click on this link to learn more.
  • SALT TALKS Topic: Transition Planning 101 6:00-7:00pm click this link to learn more.

Wednesday September 3rd 2025

  • Domestic Violence Advocacy Fundamentals (DVAF) for Seasoned Advocates, Wednesday, Sep 3 · 9:00 AM–4:00 PM (Pre Registration required) in Columbus, Ohio
  • OSDA at We Thrive Together 11:00-12:00pm click this link to join
  • Parents and Caregivers Join for a Discussion about Disability Services in Ohio. 10:00-2:00pm at Herbert Wescot Memorial Library 120 N Market street MCArthur, Ohio. To register please call 740-384-6245 extension 2107
  • Ohio Olmstead Taskforce Meets 1pm virtually please contact ohioolmstead@gmail.com for zoom link to the meeting.
  • Raising Our Kids w/ Disabilities to Lead Bright, Happy Lives, Wednesday, Sep 3 · 7:00-8:00pm at Beachwood Branch, 25501 Shaker Blvd, Beachwood, OH 44122
  • NAMI: Hearts+Minds, Wednesday, Sep 3 at 10:00 AM –
    Wednesday, Oct 1 at 11:30 AM SourcePoint, 800 Cheshire Rd, Delaware, OH 43015

Thursday September 4th 2025

  • The Alphabet Soup of SSI & SSDI Webinar Registration, Thursday, Sep 4 · 12:00-1:00 PM Virtual Workshop
    Thursday, September 4
    12:00 pm – 1:00 pm
    What’s the difference between SSDI and SSI? Can you receive both? Do you need a lawyer to apply? How does Medicare fit into the picture—and what happens when a parent retires? Navigating the world of Social Security disability benefits can feel overwhelming—but you’re not alone. Join the ASGA community for a special lunchtime session that breaks down the differences between SSI and SSDI and answers the big questions families often face:
    Does a parent’s income affect eligibility?
    What changes when a parent retires and begins collecting Social Security themselves?
    How do we ensure that benefits continue if something happens to the caregiver?
    Whether your individual is currently receiving benefits or you’re just beginning to explore your options, this session will equip you with the foundational knowledge to make informed decisions.
    WHAT TO EXPECT
    During this session, you’ll learn how to: Understand the key differences between Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI)
    Determine who qualifies for each program and how parental income and assets may impact eligibility
    Learn what happens to your child’s benefits when you retire, become disabled, or pass away
    Navigate the application process—and decide if legal assistance is necessary
    Understand how Medicare and Medicaid interact with disability benefits
    Access helpful SSA resources and starter kits for both children and adults
    WHO SHOULD ATTEND
    Parents and caregivers of individuals with disabilities
    Families preparing for future transitions, such as retirement, estate planning, or guardianship
    Anyone looking for clear, practical guidance on maintaining and protecting Social Security benefits
    DO I HAVE TO REGISTER?
    Registration is required to receive the virtual meeting link.

    QUESTIONS
    If you have questions or need additional assistance, contact Theresa Maier, ASGA Support Specialist 330-940-1441 ext 1
  • Mind/Body/Art, Thursday, Sep 4 · 6–7 PM at Cincinnati Art Museum Cincinnati, Ohio

Friday September 5th 2025

  • Little Hands Sensory Group at Perry Cook Memorial Public Library in Mt Gilead, Ohio from 10:00-11:00 am Join us for Little Hands Sensory Group, provided by the YWCA Child Care Resource and Referral Department. Little Hands Sensory Group is designed for families with children 3-10 years of age.
  • We Thrive Together Advocacy Army 4:00-5:00pm click this link to join
  • The Big Living Room 6-9pm The Big Love Living Room is a sensory-inclusive space that has soft music, seats, crafts, and healthy snacks. Sponsored by The Big Love Network, Akron’s environmental health equity organization. Kenmore Branch Library, 969 Kenmore Blvd, Akron, OH 44314

Saturday September 6th 2025

  • Blind, Deaf, and DeafBlind Accessibility Day, Saturday, Sep 6 · 8:00 -8:00 Pm Columbus Zoo and Aquarium, 4850 W Powell Rd, Powell, OH 43065
  • Empowering Epilepsy, 23500 Mercantile Rd suite d, Beachwood, OH 44122 1-3pm
  • Ability Censer Family Fun Day, Saturday, Sep 6 · 12–3 PM REGISTRATION IS OPEN!!! 🥳
    We’re thrilled to announce that registration is now open for our 4th Annual Family Fun Day! Join us on Saturday, September 6th, from noon to 3pm on our campus at 5605 Monroe Street for a fun, inclusive, and accessible event designed for the whole community.
    From FREE food and inflatables to adaptive sports, games and crafts, this beloved event is a highlight of the year. It’s highly anticipated by past attendees and is sure to create lasting memories for you and your family.
    Mark your calendars and register for FREE today:
    This event is proudly sponsored in part by the Toledo Mud Hens Helping Hens Foundation
  • Art Show for Mental Health Awareness featuring Original Artwork, Live Artists and Local Music, Saturday, Sep 6 · 4:00-8:00pm Artspace Hamilton Lofts and The Strauss Gallery, Hamilton Center, 222 High St, Hamilton, OH 45011

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • CITY OF
    • CHILLICOTHE
    TRANSIT SYSTEM
    Coming September Ist
    ADA PARATRANSIT SERVICE
    In accordance with ODOT compliance and under ADA guidelines, Chillicothe Transit System is implementing Complementary ADA Paratransit Service.
    Individuals who are unable to use the fixed route service because of disability will be provided with complementary ADA paratransit service that is comparable to the fixed route service in service availability and quality. Complementary ADA paratransit service will be available Monday through Friday between the hours of 7am and 6pm.
    To obtain eligibility for the service, the passenger must submit a properly filled out ADA Paratransit Eligibility Application. Applications will be reviewed and eligibility status determined within 21 days of submission. Beginning September st
    *, 2025, in order to schedule a ride for the ADA Complementary
    Service, eligible passengers will have an ID card issued to them by CTS.
    The ADA Paratransit Policy and a fillable PDF
    ADA Paratransit Application with instructions are available at http://www.chillicotheoh.gov by navigating to the Transit page, then the ADA Paratransit menu, or scan the QR code below.
    Applications may also be picked up from the Transit Hub at 575 E. 71h St.
  • Emergency Preparedness for Individuals with Rare Diseases
  • Cuyahoga Board of Developmental Disabilities Serves Get your exercise on at an inclusive event in the community.
    Visit link to find an event in our Online Resource Guide.
  • INTRODUCING THE ‘BURG BUS
    For Reynoldsburg Residents 65+ and Individuals with Disabilities Enjoy free, door-to-door rides to your favorite spots around the city!
    Whether it’s shopping, dining, medical appointments, entertainment, parks, or places of worship – the Burg Bus will get you there safely and comfortably.
    HOW TO RIDE
    Call 833-742-7333 Opt. 1
    RIDES AVAILABLE
    Hours of operation
    M-F 9 a.m – 4 p.m.
    WHERE YOU CAN RIDE?
    Anywhere within Reynoldsburg!
    Let us take you to:
    Medical Appointments
    Grocery Stores & Shopping Centers
    Restaurants & Entertainment
    Parks & Recreation Areas
    …and more!
    Call to schedule
    M-F 8:30 a.m – 4 p.m.
    BENEFITS OF RIDING THE BURG BUS
    The rides are free.
    Vehicles are wheelchair accessible.
    Drivers are licensed professionals.
    Share rides with your friends to your favorite places around town.
    And sharing rides is good for the environment!
    ReynoIdsburg, 0H
  • News Highlight: Bridging Aging and Disability Networks (BADN) Explains How to Better Support Aging Adults with IDD and Their Caregivers
    A new article called “Bridging Aging and Disability Networks to Support Aging Adults With Intellectual and Developmental Disabilities and Family Caregivers” was published in the Public Policy and Aging Report by the Gerontological Society of America.
    The article explains that people with intellectual and developmental disabilities (IDD) are living longer, and their needs — along with those of their aging family caregivers — are getting more complicated. Most still live at home with support from aging parents or relatives. Even though they have many of the same needs as other older adults, they are often overlooked because aging and disability services don’t always work together.
    You can read the full BADN article in the latest edition of NACDD’s Insight: https://nacdd.org/nacdd-insight-july-2025/#badn
  • Resources for Improving Respite Care for Caregivers
  • Ready to get out into the workforce? Our teams will support you to find the best-fitting job!
    Cuyahoga DD’s Online Resource Guide has local job opportunities for the people we serve.
    Local jobs with openings at ow.ly/NGL050WqLmA
  • Guide to Employment for People with Disabilities 2025

September Awareness Month

  • Self Care Awareness Month
  • National Suicide Prevention Awareness Month
  • September 1st-6th is National Migraine Awareness Month
  • Childhood Cancer Awareness Month
  • September 6th is National Read a Book Day
  • National Spinal Cord Injury Awareness Month
  • National Library Card Sign Up Month

The Pulse: Special Edition What’s going on around Ohio June 30th to July 13th 2025!

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Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • The Synergy Committee is seeking nominations for several awards that will be given out at the SYNERGY Conference in October. This is YOUR chance to nominate ANYONE who is making a difference! It is important to take the time to recognize outstanding people that go above and beyond. Who can be nominated in each of the award categories? EVERYONE! It can be an advocate, family member, person served, local partner, a provider or DSP, a county board staff person, a teacher, legislator, a community member, an employer, or anyone else who you think is deserving of one of these awards. DEADLINE FOR ALL NOMINATIONS IS JULY 31st.
    SUBMIT YOUR NOMINATION USING THE LINK BELOW:
    https://conta.cc/4jM40QK
  • Disability Rights Ohio Is doing their annual survey of needs click this link to take the survey.
  • Ohio Department of Developmental Disabilities is asking people to take a survey on self direction for waiver participants. Click on this link to do the survey.
  • The Ohio Medicaid Matters Coalition is looking for personal stories by people who could be impacted by Medicaid cuts if this is you please check out this link to learn how to submit your story. https://www.ohiomedicaidmatters.org
  • The Ohio State University (OSU) Nisonger Center is doing research on the health, mental health, and wellness of adults with intellectual disability (ID). We need to learn more so that we can improve services.
    This study includes online interviews with adults with ID and their chosen study partners. The study should take about 3 hours. For doing the study, each participant and their study partner will each receive $100.
    To SIGN UP: Call 1-833-678-7782
  • 2025 Disability/Deaf and Abuse Survey
    This national survey seeks to enhance our understanding of the prevalence of abuse— including sexual abuse, physical assault, coercion, harassment, and exploitation—among individuals with disabilities, as well as those who are Deaf, Hard of Hearing, or Deaf-Blind.
    Your experience matters. The findings will help us develop research, interventions, and policy recommendations to advocate for strengthening protections against abuse and improving support for survivors. Click this link to take the survey.
  • Make your Voice Heard to share in a survey feedback about the PCA Match app through Public Consulting Group.
  • 5 Minutes. 3 Actions. 1 Voice for Disability Rights.
    Speak Up Now: Protect Disability Access Rights!
    https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/
    There are TWO public comment opportunities that need the attention of the disability community.
    🌟 Public Comment One: Protect Disability Access Rights! – The U.S. Department of Energy is trying to eliminate important disability protections. The department is trying to change part of Section 504 of the Rehabilitation Act that ensures new buildings are accessible to people with disabilities. This move could set a dangerous precedent. If they succeed, other federal agencies might try to do the same. This will weaken protections that millions rely on.
    🌟 Public Comment Two: Direct final rule on nondiscrimination – The U.S. Department of Energy (DOE) wants to remove 12 civil rights rules. Part of these 12 are disability access protections. They say the rules are “unnecessary,” “outdated,” or not supported by law. They are using a fast-track process called a “direct final rule.”
    This is urgent! If thousands do not make comments, the rule will take effect July 15, 2025.
    The deadline to submit your comment(s) is Monday, June 16th at 11:59 PM EDT.
    Take Action Now!
    It only takes a few seconds: https://nacdd.org/5-minutes-3-actions-1-voice-for-disability-rights/

Events around Ohio to check out week of June 30th 2025 to July 13th 2025

Monday June 30th 2025

  • DODD Announces Keeping Families Together: Stories of Family Resiliency Webinar, Monday, Jun 30th 12:00pm-1:00pm DODD Announces Keeping Families Together: Stories of Family Resiliency Webinar 
    Attention: County Boards, Councils of Government, Systems of Care Partners
    Learn more about how Governor DeWine’s ‘Keeping Families Together’ (KFT) initiative has impacted communities across Ohio through innovative solutions. Join DODD virtually on June 30 at noon to hear from local leadership and their creative partnerships with DODD. 

    Join the Teams meeting 
    Meeting ID: 239 306 445 048 0 
    Passcode: SU2Kv9Bg 

    Dial in by phone 
    +1 614-721-2972,,646450878# 
    Phone conference ID: 646 450 878# 

    Join on a video conferencing device
    Tenant key: 682042763@t.plcm.vc
    Video ID: 111 212 697 1
  • Mental Health Round Table 4:00-6:00pm 611 Walnut St
    Martins Ferry, OH 43935, USA

Tuesday June 1 2025

  • Disability Pride Flag Raising, Tuesday, Jul 1 · 11:00 AM–12:00 PM Join the City of Cincinnati as we proudly kick off Disability Pride Month with the Disability Pride Flag Raising Ceremony on Tuesday, July 1, 2025, from 11:00 a.m. to 12:00 p.m. at Cincinnati City Hall (801 Plum Street, Cincinnati, OH
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.
  • Neighbors in Action a group for people with disabilities in Hamilton County, Ohio will meet 4:00-5:00 pm they have a special guest Alex Lomicka from Ohio Association of County Boards of DD click this link to join the meeting.

Wednesday July 2 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
  • Synergy Accessibility Committee 1215- 1:45pm

July 3-6th

  • No Known Events

Monday July 7th 2025

  • Careers with Peers Council 6:00-7:30pm 776 N Main St
    Springboro, OH 45066, USA Join us for Careers with Peers Council at Doubleday’s in Springboro on Monday, July 7, from 6 to 7:30 p.m. for a conversation about Professionalism!
    To RSVP, contact Cheri Cummings at (513) 806-8591 or careerswithpeerscouncil@warrencountydd.org
  • Mental Health Round Table 4:00-6:00pm 130 Fair Street Barnesville, OH 43713

Tuesday July 8th 2025

  • The Basics of Advocacy, Tuesday, Jul 8 · 2:30–3:30 PM Join us and our partners at the Ohio Developmental Disabilities Council and Ohio Statewide Independent Living Council for a three part Advocacy Training Series.
    We hope to see you at one or all three! Register here⬇️
    1️⃣ – July 8 – The Basics of Advocacy: https://bit.ly/ats1basics
    2️⃣ – July 9 – The Legislative Process: https://bit.ly/ats2leg
    3️⃣ – July 16 – Engaging with Policymakers: https://bit.ly/ats3ewp
  • Celebrating the Americans with Disabilities Act (ADA): How Assistive Technology (AT) Supports Daily Life and Work, Tuesday, Jul 8 · 3:00-4:00PM DescriptionJoin the Disability Employment Technical Assistance Center (DETAC) for a special webinar in honor of the 35th anniversary of the Americans with Disabilities Act (ADA), with a focus on how technology is shaping the future of accessibility. The ADA affirms a simple but powerful principle: Individuals with disabilities who want to work should be able to work. In today’s fast-paced technology-driven world, there have been advancements made with tools to increase accessibility. At the same time, there are basic assistive technology (AT) tools that continue to be overlooked as a solution. The webinar panel from the Assistive Technology Act Technical Assistance and Training Center (AT3 Center) will focus on increasing access to and acquisition of AT tools across the lifespan. The panel will share examples of how AT is that critical bridge to helping break down barriers and provide innovative approaches for one to be more independent within the workplace and the broader community.
    Register through this link for the event.
  • SARTEC Plain Language Webinar, Tuesday, Jul 8 · 4:00-5:00pm This is a Webinar for Government and Non-Profits Agencies. Plain language writing makes your work better — and it’s more accessible for people with disabilities and English language learners. Learn the ins and outs of plain language in this webinar. Click on the link to register.
  • Disability Q*mmunity, Tuesday, Jul 8 · 6:00- 7:30 PM contact Independence Alliance for more information.

Wednesday July 9th 2025

  • Ohio Domestic Violence Network is offering a workshop called Beyond Shelter: Advancing Housing Advocacy for Survivors, Wednesday, Jul 9 · 9:30 AM–3:30 PM please click this link to learn more. There is a fee for the workshop .
  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-event
  • Supported Decision Making Network of Ohio 12:00-1:30pm click this link to join the meeting
  • Time2Thrive, Wednesday, Jun 25 · 12:30–2:30 PM, Repeats every week, until Wednesday, Aug 6 FREE! Summer education enrichment for ages 13-16; Developed and led by an Intervention Specialist & an Occupational Therapist, this program offers your child engaging educational activities aimed at acquiring and strengthening essential skills. Time2Thrive is designed to combat “summer learning loss” and fosters continuous development for a lifetime of learning. This program is offered on Tuesdays and Wednesdays from 12:30-2:30 pm for 8 weeks. Siblings 11 and older are welcome to attend, too. RSVP to gina@dsaneo.org
  • The Legislative Process, Wednesday, Jul 9 · 4:00-5:00pm (See links from previous day. )
  • Mental Health Round Table 4-6pm 11:30-1:00pm 155 Clark St.
    Powhatan Point, OH 43942

Thursday July 10th 2025

  • First Annual Youth/Young Adults with Disabilities – One Day Event, Thursday, Jul 10 · 12:30–4:00pm Ritter Public Library, 5680 Liberty Ave, Vermilion, OH 44089
  • OSDA Creative Changemakers, Thursday, Jul 10 · 4:30–5:30 PM, Repeats every month on the second Thursday ts a group of peers/self-advocates who meet once a month to hang out and talk about issues facing people with disabilities in Ohio This group supported by the Ohio Self-Determination Association. Change Makers was created by and is run by people with disabilities because they wanted to extend their advocacy conversations beyond the COOL meetings. Please Contact one of the emails listed clareschloemer.osda@gmail.com
    nrichards@clearwatercog.org
    osda2011@gmail.com
  • Neurodiversity Social for Adults, Thursday, Jul 10 · 4:00 -6:00 PM 519 Wall St
    Cairo, OH 45820, USA
  • Disability Rights Peer Support Group, Thursday, Jul 10 · 6:00-7:30 PM contact Independence Alliance for more information.

Friday July 11th 20245

  • 35th Anniversary Celebration
    of the Americans with Disabilities Act, Friday, Jul 11 · 6:00-9:00pm Columbus Museum of Art
    480 E Broad St, Columbus, OH 43215, USA SAVE THE DATE
    35th Anniversary Celebration
    of the Americans with Disabilities Act Friday July 11, 2025, 6:00-9PM
    The Columbus Museum of Art,
    480 E. Broad St., Columbus 43215
    Drinks and Hors d’oeuvres
    All are welcome.
    There is no charge for attending this event,however, registration will be required.
    Keynote Speaker:
    Rebecca Cokley,
    Program Officer
    Ford Foundation’s first-ever
    U.S. Disability Rights program
    Link to full bio:

Saturday July 12th 2025

  • First Annual Disability Pride Month Picnic, Saturday, Jul 12 · 12:00pm-4:00pm Lake Shore Park
    Lakeshore Dr, Ashtabula, OH 44004, USA
  • SALUTE Storytellers Live!, Saturday, Jul 12 · 2:00- 3:00 PM The University of Toledo, 2801 Bancroft St, Toledo, OH 43606
  • You’re invited to MAKE ‘m SMILE Ohio – the BIGGEST party celebrating kids and adults with disabilities… our VIPs! – and the people who love them!
    ✅ Free fun for the whole family
    ✅ Games, characters, activities, and more
    ✅ Resources, giveaways, and smiles for days!
    📍 Location: Hartville Memorial Park (Hartville, OH)
    📅 Date: Saturday, July 12
    🕘 Time: 11 AM – 3 PM
    Don’t miss this unforgettable day of fun and resources!
    Register your VIP family today: https://nathanielshope.org/our-programs/make-m-smile/ohio/

Sunday July 13th

  • 11th Annual All Disabilities Festival, Sunday, Jul 13 · 1:00-5:00pm Columbus, Ohio check out this link to learn more.

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • ⛑️ Emergency and safety preparedness saves lives – and plans must include everyone.
    For people with disabilities, children, and older adults, accessible preparedness is critical. The United States Department of Justice outlines three key phases of emergency management: preparation, response, and recovery – and all must be accessible.
    ✅ Safety plans should clearly outline procedures.
    ✅ Use multiple alert formats (visual, tactile, etc.).
    ✅ Install accessible alarms and equipment.
    ✅ Train staff in disability etiquette and safety roles.
    ✅ Ensure service animals can evacuate with their owners.
    Tools like stair-climbing wheelchairs and communication aids can make all the difference. Together, we can build a culture of preparedness that protects everyone.
    ➡️ For more info, check out the #AccessibleOhio Safety & Emergency Management resource: link
    AllAboutAccessibility #SafetyFirst
  • Are you a caregiver for an older Ohioan? Are you familiar with Adult Day services? Visit the new website http://AdultDayOhio.org to learn about how Adult Day services can support you and your loved one.
    Read: http://aging.ohio.gov/AdultDayOhio
  • Know Your Rights: Communication Disability Law
    People with a medically diagnosed communication disability can voluntarily enroll in a database linked to Ohio’s Law Enforcement Agencies Data System (LEADS). 
    This helps notify officers during traffic stops that someone in the vehicle may have difficulty communicating, promoting safer, more informed interactions. It’s free, optional, and designed to reduce misunderstandings. 
    Learn more about the Communication Disability Law and download the Communication Visor Card here.
  • 📢 Thanks to recent grants awarded to Council on Aging, our home52 Transportation service is now offering no-cost rides for medical and other purposes to disabled Hamilton County residents age 18+ who meet income guidelines.
    home52 Transportation provides door-through-door services utilizing specialized vehicles and trained providers to ensure safe rides for adults with varying needs. 🚗
    Review requirements to qualify for this grant-funded transportation and download a registration form: https://bit.ly/3FmqyJF.
    Those who aren’t eligible for grant-funded rides may pay privately. Call our coordination center to get pricing for your ride at (855) 546-6352..
  • Veterans who need nursing home care but prefer living at home can enroll in the Veterans Directed Care Program at WRAAA. This program lets veterans hire personal direct-care workers, giving them more control over their long-term care. More details here: https://bit.ly/3XcvbMT
  • Updates to the Waiting List Assessment Rule
    Attention: All County Boards, Service and Support Administrators, Councils of Governments
    The DODD Medicaid Development and Administration (MDA) division has updated the Comprehensive Guide for Waiting List Assessmentto coordinate with updates to the waiting list assessment rule (OAC 5123-9-04). These updates will be effective July 1, 2025. 
     
    MDA held webinars in May to support assessors with completing the WLA on the new assessment platform. A recording of these webinars can be found on the current and immediate needs webpage. Click hereto access the recording.
     
    For questions, please email WLA@dodd.ohio.gov
  • Ohio has announced its 2025 sales tax holiday, which will run for two weeks this year. https://nbc4i.co/43yipK1?utm_medium=social&utm_source=facebook_NBC4
  • The Family Caregiver Support Program (FCSP) supports family and informal caregivers in caring for loved ones at home. You’re a family caregiver if you help care for an older relative, spouse, or loved one. For free information and referrals for in-home care, respite, adult day programs, and more, go to: https://bit.ly/3NN8Joa or give us a call at 216-586-3441.
  • The 2025 WRAAA Five-County Transportation Guide helps older adults, individuals living with disabilities, and caregivers find transportation options for individuals from Cuyahoga, Geauga, Lake, Lorain and Medina counties. Order or download free copies today through this link .
  • Here’s a video about a tool kit on supported decision making.
  • Caring for a child with complex needs is 24/7. Respite care can make a difference. 💙
    Here is a fact sheet with helpful information.
    If you need help finding respite care for your child, please reach out to us at Ohio Family to Family.
    Email: Ohiof2f@cchmc.org
    Intake Form
  • Want to Help Create Positive Change for Ohioans with Developmental Disabilities?
    Apply to Become an ODDC Council Member!
    ODDC wants members who have personal experience with DD and who understand the needs of their communities. As a Council member appointed by Ohio’s Governor, you will help plan advocacy efforts, support community programs, and work on changes that improve the lives of people with DD and their families.
    Learn more and apply here:
  • Did you know you that 24/7 medical support provided by StationMD is a covered service for Ohioans enrolled in the Individual Options, SELF, or Level One waiver?
    StationMD has provided telehealth care for the I/DD community across 22 states since 2016. Their services ensure immediate, expert care without a trip to the ER. All clinicians are trained and specialized in the nuances of working with people with I/DD, including communication differences and co-occurring conditions.
    “They are respectful and value what the person is saying, regardless of how they’re saying it,” said StationMD Account Executive Sarah Davies. “They go the extra mile.”
    Read more about StationMD and the services available in our most recent newsletter: https://bit.ly/4g5ZRqc

This Month in Awareness

  • Disability Pride Month
  • National Cleft And Craniofacial Awareness And Prevention Month
  • National Fragile X Syndrome Awareness Month
  • Sarcoma Research Awareness Month
  • National Minority Mental Health Awareness Month
  • UV. Safety Month
  • Juvenile Arthritis Awareness Month
  • Blood Cord Awareness Month
  • Healthy Vision Month
  • National Wheelchair Beautification Awareness Month


For more events check out our main website OhioAdvocacyHeartbeat.com

The Pulse: What’s going on around Ohio May 19th to May 24th 2025!

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Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Please Share Share Share !!!
    Join us in creating a documentary-style video series that showcases the everyday lives and diverse contributions of people with disabilities. This project aims to challenge misconceptions, highlight inclusion in action, and amplify authentic voices from the disability community.
    Our goal is to create compelling, authentic content that helps reshape public perceptions by emphasizing that people with disabilities are integral, contributing members of our communities in every aspect of life.
    We’re seeking self-advocates who are comfortable sharing their experiences on camera to help create this important educational resource. Calling All
    Disability Self-Advocates!
    Join our video project to help educate others and make a difference. We value real voices and different perspectives. This is a paid opportunity.
    Interested? Call or Text us today!
    419-901-0688
  • Become an Advocate! The YAC allows for you to grow your advocacy skills and gain first-hand experience in creating change. Strength in advocacy is in numbers; so come make a difference with us!
    Find out more! Contact April at 216.731.1529 or ashaw@sil-oh.org here is a link to learn more about the youth council
  • The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
    You can access the survey by clicking this link to do the survey.
    If you any questions, please reach out:
       Phone:  1 (855) 556-6328
       Email:   healthsurvey@ku.edu
  • Are you the family member of a child or adult with a disability in the Cincinnati area? Would you like to take your advocacy skills to the next level?
    Consider applying to the LEND Program!
    The application deadline for the 2025-2026 academic year is June 20.
    For questions and application information, contact Sarah at lendtraining@cchmc.org
  • The Ohio Department of Education and Workforce (ODEW) would like to invite you to participate in a short, 25 question survey about your involvement in your student’s education. Research suggests that parental involvement is a key predictor of positive educational outcomes. You may be eligible to participate if your child has an IEP and receives special education services. The purpose of collecting this information is to improve services for students with disabilities across Ohio. If you are eligible to participate and you enroll in the study, you will be entered in a drawing for a $50 gift card. Your chance of winning a gift card is approximately 2.0%. Please click on the link to find out more about the survey and if you are eligible.
  • ADA PARC: Help Us Measure The Impact of the ADA – 35 Years Later
    This July 26th marks the 35th anniversary of the Americans with Disabilities Act (ADA) of 1990. While progress has been made, the need to understand the ADA’s ongoing impact—and the barriers that still exist— is more urgent than ever.
    We invite you to take part in a brief, anonymous survey to help us assess how far we’ve come and how far we still need to go. The survey results will be used to inform and guide technical assistance and policy recommendations related to the ADA.
  • The National Leadership Consortium on Developmental Disabilities, in partnership with the Ohio Developmental Disabilities Council, is conducting a Giving Voices to LGBTQ+ People with Disabilities Study
    This study aims to contribute to knowledge about people with intellectual and developmental disabilities (IDD) who are lesbian, gay, bisexual, transgender, queer, and more (LGBTQ+) in Ohio by collecting information about their experiences in a survey, interviews, and focus groups. This study will investigate what helps and what gets in the way of LGBTQ+ people with IDD receiving services, including their experiences accessing services and treatment by service providers. Check out this link for the survey.

Events around Ohio to check out week of May 19th 2025 to May 24th 2025

Monday May 19th 2025

  • We Thrive Together will be hosting a workshop on environmental wellness from 11 AM. to 12:00 PM. To join, click the link below:
    Join Event
  • We Thrive Together will be hosting a workshop on criticism in relationships from 3:00-4:00PM. You can join by clicking the link below:
    Join Event
  • We Thrive Together will also host an advanced virtual event training from 6-7 PM. You can click the link below to join:
    Join Event
  • Want to learn more about the John Romer Advocacy Award? Join us for one of our virtual sessions: 1 p.m. Tuesday, May 13, or 11:30 a.m. Monday, May 19.
    Register at HamiltonDDSOhio.gov/award

Tuesday May 20th 2025

  • Statewide Behavior Support Workshop, Tuesday, May 20 · 10:30 AM–12:00 PM Licking County Board Of Developmental Disabilities
    116 N 22nd St, Newark, OH 43055
  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday May 21 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • People First of Ohio 6:00pm-8:00pm People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday May 22 2025

  • Supported Decision Making of Ohio Meeting PR and Marketing Committee 11:00-12:00 contact amy.mordaunt@thearcofohio.org for more information to join
  • Allen County Board of Developmental Disabilities is hosting the Caregiver Connection from 1:00-2:00pm in Lima, Ohio. Join us for Caregiver Connection this Thursday! Leann Unverferth from Area Agency on Aging will be at the session to discuss transportation concerns.

Friday May 23 2025

  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday May 24 2025

  • No Known Events

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Planning an accessible outdoor adventure just got easier!
    The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
    In the guide, you’ll find:
    ✅ Trail safety tips
    ✅ Accessible trails, fishing, boating, and Storybook Trails
    ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
    Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
  • If you or a loved one is facing a mental health or addiction crisis, you’re not alone. Call, text, or chat 988 to connect with a trained specialist ready to listen and offer free, confidential support 24/7.
    988 is a direct connection to compassionate, accessible care and support for anyone experiencing mental health-related distress.
    Learn more and find easy-to-read resources: https://dodd.ohio.gov/about-us/our-programs/988+Resourcesk
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility
  • In honor of #MentalHealthAwarenessMonth, explore DODD’s Wellness Project, a collection of resources for EVERYONE, featuring tools for mindfulness, relaxation, and mental health support. Check out the information through this link put out by Ohio Department of Developmental Disabilities.
  • Ohio Family to Family on Navigating the IEP process can be overwhelming—here is a roadmap to help you become informed.

This Week in Awareness


May:
• Mental Health Awareness Month
• National Arthritis Awareness Month
• Disability Insurance Awareness Month
• ALSOS. Awareness Month
• National Stroke Awareness Month
• National Military Service Appreciation Month
• Allergy and Asthma Awareness Month
• Jewish American Heritage Month
• Better Speech–Language-Hearing Month

• Lupus Awareness Month
• Pediatric Stroke Awareness Month
• Lyme Disease Awareness Month
• Mobility Awareness Month
• Older Americads Month
• Celiac Awareness Month
• Huntington’s Disease Awareness Month
• Ehler’s-Danlos Syndrome Awareness Month
• National Ostioperosis Awareness And Prevention Month
• Prader-Willi Syndrome Awareness Month
• Neurofabromotis Awareness Month
• Williams Syndrome Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

The Pulse: What’s going on around Ohio May 5th to May 10th 2025!

Leave a reply

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
    You can access the survey by clicking this link to do the survey.
    If you any questions, please reach out:
       Phone:  1 (855) 556-6328
       Email:   healthsurvey@ku.edu
  • The Ohio Department of Education and Workforce (ODEW) would like to invite you to participate in a short, 25 question survey about your involvement in your student’s education. Research suggests that parental involvement is a key predictor of positive educational outcomes. You may be eligible to participate if your child has an IEP and receives special education services. The purpose of collecting this information is to improve services for students with disabilities across Ohio. If you are eligible to participate and you enroll in the study, you will be entered in a drawing for a $50 gift card. Your chance of winning a gift card is approximately 2.0%. Please click on the link to find out more about the survey and if you are eligible.
  • Access Center for Independent Living (ACIL) is looking for people in Champaign, Clark, Preble, Miami or Montgomery Counties to fill out their Needs Assessment Survey to help them find needs of the people with disabilities in their community.
  • The Home and Community-Based Services Policy section at the Ohio Department of Medicaid is proposing to amend Ohio Administrative Code 5160-32-02 Electronic visit verification (EVV) data collection and 5160-32-03 Alternate electronic visit verification (EVV) vendor.
    These rules set forth data collection requirements for providers regarding electronic visit verification (EVV). The proposed change to these rules removes the term “agency” in describing the types of providers the rules apply to.
    View the proposed changes here. https://dam.assets.ohio.gov/image/upload/medicaid.ohio.gov/Providers/EVV/5160-32_EVV_Proposed.pdf?utm_medium=email&utm_source=govdelivery
    Submit your feedback to HCBSPolicy@medicaid.ohio.gov by May 12, 2025.

Events around Ohio to check out week of May 5th 2025 to May 10th 2025

Monday May 5th 2025

  • Join BCBDD Community Outreach Advocate, Courtney Hineman, and Family Engagement Coordinator for the Hamilton County Developmental Disabilities Services, Sean Bostic, for a University of Cincinnati Regional Autism Advisory Council 3-Part Training Series focused on supporting people with intellectual and developmental disabilities in the workplace on Monday, May 5 from 11:30 a.m. – 1:00 p.m! Register now to see Courtney speak virtually on Monday:
    UC IDD Education Center
  • We Thrive Together Relationship: Trust/Lying Discussion 3:00-4:00pm check out this link to join
  • Adulting 101: Making Friends and Staying Connected Over The Summer 5:30pm-8:30pm Link to register
    Adulting 101 Workshops are a fun way for teens and young adults to learn about and practice various life skills that are important to being an adult. This month we will be learning about staying connect with friends and family who we don’t see everyday. This event will involve working on practice conversations, getting connected to the ACTeens GroupMe, Speed Friending, making signs of affirmation and more!
    For questions, contact Jordan Slutsky, Teen Services Coordinator, at jslutsky@abilitycenter.org

Tuesday May 6th 2025

National Nurses Day!

  • Breaking Silences Advocacy Meeting 3pm contact Maria.Matzik@acils.com for more information.

Wednesday May 7th 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • Ohio Olmsted Taskforce 1-3pm The Ohio Olmstead Task Force (OOTF) is a statewide grassroots coalition of Ohioans with disabilities of all ages, family members, advocates and organizations advocating for the right to live, work and participate in their communities. Formed in 2002, OOTF supports the Supreme Court decision that held unnecessary institutionalization is discrimination against people with disabilities.
    For more information or how to access meetings email ohioolmstead@gmail.com

Thursday May 8th 2025

  • OACBDD Spring Conference Please check out this link for more information on The Ohio Association of County Boards of DD Conference https://www.oacbdd.org/main/save-the-date/
  • OSDA Creative Changemakers, Thursday, May 8 · 4:30–5:30 PM, Repeats every month on the second Thursday contact clareschloemer.osda@gmail.com for more information on how to join.
  • Ohio Family to Family Information Session: Transition out of Early Intervention:
    What Families Need to Know, Thursday, May 8 · 7–8:30 PM To Register click this link

Friday May 9th 2025

  • OACBDD Spring Conference Please check out this link for more information on The Ohio Association of County Boards of DD Conference https://www.oacbdd.org/main/save-the-date/
  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday May 10th 2025

  • Ross County Sibs 10:00am – 1:00pm Register your child for our May Sibshop gathering on Saturday, May 10th at The Landrum Youth Empowerment Center. Contact krsmith@rossdd.org
  • Holmes County Developmental Disabilities Annual Spring Festival and Auction read more about it here

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Planning an accessible outdoor adventure just got easier!
    The Ohio Department of Natural Resources has launched a new Accessible Trails Guide — your go-to resource for finding parks and outdoor spaces that meet your needs.
    In the guide, you’ll find:
    ✅ Trail safety tips
    ✅ Accessible trails, fishing, boating, and Storybook Trails
    ✅ Lodges, campgrounds, cabins, inclusive playgrounds, and more!
    Start exploring today: https://ohiodnr.gov/go-and-do/outdoor/accessible-activities-facilities/accessible-trails
  • If you or a loved one is facing a mental health or addiction crisis, you’re not alone. Call, text, or chat 988 to connect with a trained specialist ready to listen and offer free, confidential support 24/7.
    988 is a direct connection to compassionate, accessible care and support for anyone experiencing mental health-related distress.
    Learn more and find easy-to-read resources: https://dodd.ohio.gov/about-us/our-programs/988+Resources
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility
  • In honor of #MentalHealthAwarenessMonth, explore DODD’s Wellness Project, a collection of resources for EVERYONE, featuring tools for mindfulness, relaxation, and mental health support. Check out the information through this link put out by Ohio Department of Developmental Disabilities.
  • Ohio Family to Family on Navigating the IEP process can be overwhelming—here is a roadmap to help you become informed.
  • The Long-Term Care Ombudsman program (LTCOP) advocates for individuals residing in nursing facilities and residential care communities, such as assisted living facilities and board and care homes. They resolve problems that impact residents’ rights, quality of life, and quality of care, and work to improve policies at the local, state, and national levels. The Long-Term Care Ombudsman program is the only federal program mandated to advocate with, and for residents of long-term care facilities. Learn more in our new fact sheet:https://theconsumervoice.org/wp-content/uploads/2025/04/Ombudsman-Fact-Sheet.pdf
  • Qualifying older adults can now apply for the 2025 edition of the Senior Farmers Market Nutrition Program!
    Learn more: https://aging.ohio.gov/sfmnp2025
    Sign up: https://portal.homegrownbenefits.com/apply/ohio

This Week in Awareness


May:
• Mental Health Awareness Month
• National Arthritis Awareness Month
• Disability Insurance Awareness Month
• ALSOS. Awareness Month
• National Stroke Awareness Month
• National Military Service Appreciation Month
• Allergy and Asthma Awareness Month
• Jewish American Heritage Month
• Better Speech–Language-Hearing Month
• Borderline Personality Disorder Awareness Month
• Brain Tumor Awareness Month
• Cystic Fibrosis Awares Month
• Public Service Recognition Week
• Guide Dog Month
• Hepatitis Awareness Month
• Hepatitis Awareness Month
• Lupus Awareness Month
• Pediatric Stroke Awareness Month
• Lyme Disease Awareness Month
• Mobility Awareness Month
• Older Americads Month
• Celiac Awareness Month
• Huntington’s Disease Awareness Month
• Ehler’s-Danlos Syndrome Awareness Month
• High Blood Pressure Awareness And Education Month
• Inherited Retinal Disease Genetic Sesting Month
• Health Vision Awareness Month
• Myositis Awareness Month
• National Ostioperosis Awareness And Prevention Month
• Prader-Willi Syndrome Awareness Month
• Neurofabromotis Awareness Month
• Williams Syndrome Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Building a Supported Decision Making Team by Alicia

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Supported Decision Making has become a big topic in Ohio recently. Some people are curious about it and are asking what is it and how can it help people with disabilities? Some people have seen that it is an alternative to guardianship and have also wondered how it can help someone.

Supported Decision Making is something that empowers people with disabilities to make their own decisions and choices in life with the support of others. It is a way for people with disabilities to make informed decisions while understanding the pros and cons of a decision or different perspectives. It allows a person to make the best choice possible. This allows for person centered planning and involvement in directing a persons own care.

Here are a few resources to help you understand What Supported Decision Making is and isn’t.

Supported Decision Making has been super important to be able to self direction my care. I have a Supported Decision Making Team. Anyone can have people help them make decisions. I am sure that a lot of people are already using this tool without knowing it.

Sometimes people will poll their friends or consult family or others to help them decide common every day matters like what kind of car they should buy or even maybe a family dinner that is being planned.

Ultimately the person buying car decides the final final product. This is the same for people who use supported decision making ultimately they decide the choices for their life.

In April of 2024, I started my Supported Decision Making Team. When it came to choosing my team , I wanted to have a variety of people. It was important for me to build a team verses have one single person because of high complexity of my disabilities and needs. It is important to know you can chose just one person. It doesn’t need to be a team of people like I chose to do.

Some things that I took into consideration was my needs and the background of friends and others I knew in my community. My Supportive Decision Making team is diverse. It is important to know that people who support you do not have to live in the same community or even the same state as you do.

My Supportive Decision Making team meets on Zoom. I have people on my team who live in other parts of Ohio and also someone who lives in another state.

When I chose my team I thought about needing a person that was disabled, a person understood my home care services, someone was an ally but understood complex medical needs and rare diseases and someone who had nursing background. It was important for me to chose people who were my friends for a long time and people who have known me a short time.

At first the people I approached didn’t feel qualified for such an under taking what they didn’t know was they had all the qualifications I needed. The most important thing to me was finding people who would listen and then share their wisdom but ultimately let me decide.

I am a complex person and I am not afraid to admit it. I got a lot of rare diseases and also some more difficult things that I need support on than others.

Sometimes people see me as a strong advocate and they often miss my more intense needs for support. Building my team was about finding people who saw me and supported me through my challenges and who saw my abilities.

I formed a team of five women and we have had a long year. My team has helped me in a number of ways. They have supported me to make many decisions including day to day decisions. It is important to know that supportive decision making isn’t just for the harder decisions that need more thinking it also for the every day decisions.

I want to share some ways that my SDM team have helped me on some big decisions. Then I also like to share how my SDM team operates on every day decisions .

I have consulted my SDM team about helping me make decisions to coordinate a move to a new apartment with choosing a moving service to also decisions around coordinating movers.

My SDM team also has helped me with decisions around making food choices and selecting recipes to make with my direct support staff on a weekly basis. People often have this assumption that if you are in the advocacy space you don’t need support or someone is super high functioning that isn’t always accurate that’s why people shouldn’t judge a book by its cover or a persons abilities or needs by what’s spaces and places they are connected to. Everyone has needs and also needs support. To learn more about my story watch this video to understand a more detailed part of my story.

Supported Decision Making has been life changing. It saved me from guardianship and had helped me take back my life and to make informed decisions on my everyday needs. I have learned problem solving skills, how to work thru conflict and how to ask questions and direct my care.

There are people who have used it along side of guardianship to give people with disabilities choices and help them to make the best choice with support.

I have also seen people who considered guardianship decide to read up and look at supported decision making and decide it was a better option and chose to let the person drive own care with guidance and support. I think that it is important to read about supported decisions making and learn what your options are to help people live their best lives.

I believe that people with disabilities are capable of making choices when given the right supports to do so. Everyone has their own journey and this is a simple tool than can be help many people because it helps with person centered planning and helps people direct their care and make decisions with support that help them live their best lives..

The Pulse: What’s going on around Ohio April 6th to April 12th 2025!

Leave a reply

Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Protection and Advocacy for Individuals with Mental Illness(PAIMI) Program
    Public Forum On May 6th, 2025, representatives from the United States Department of Health and Human Services, Substance Abuse and Mental Health Services (SAMHSA), Center for Mental Health Services (CMHS) will visit Disability Rights Ohio, the Protection & Advocacy System for the State of Ohio.
    SAMHSA/CMHS invites you to send comments about the
    PAIMI Program services and activities conducted by the Disability Rights Ohio.
    Please send your comments to SAMHSA/CMHS by email to PAIMI@samhsa.hhs.gov or mail to the PAIMI Program Coordinator, SAMHSA/CMHS, 5600 Fishers Lane, Suite 14E25D,
    Rockville, Maryland 20857
  • April is National Poetry Month, and, we’re looking for Ohio advocates to submit poems about advocacy that are 100 words or less! If you wish to submit a poem, send it to:
    ohioadvocacyheartbeat@gmail.com
  • The 2025 National Health And Disability Survey is out now! this is for anyone who lives with a disability or chronic health condition. If you choose, you can enter for a chance to win one of 15 $100 gift cards! Drawings will be held weekly. You can also choose to be notified when the survey is availabble next year. Take this opportunity to stake your voice heard!
    You can access the survey by clicking this link to do the survey.
    If you any questions, please reach out:
       Phone:  1 (855) 556-6328
       Email:   healthsurvey@ku.edu

Events around Ohio to check out week of April 6th 2025 to April 12th 2025

Monday April 7th

World Health Day!

  • We Thrive Together: Emotional Wellness Workshop from 11:00am-12:00pm check out this link to join.
  • We Thrive Together: Relationships Empathy Chat 3:00-4:00pm check out this link to join.
  • Adulting 101: Discussion on Social Security Benefits with Lucas County Board of DD (ages 13 and up – parents also welcome!), Monday, 5:30–8:30 PM at The Ability Center of Greater Toledo 5605 Monroe St, Sylvania, OH 43560, USA
  • There will be a meeting with the Breaking Silences Accommodations committee on April 7, 2025 from 3-5 PM. If you’d like to attend, please email Maria Matzik at:
    Maria.Matzik@acils.com

Tuesday April 8th 2025

  • The Ohio Senior Health Insurance Information Program (OSHIIP), the state of Ohio’s official Medicare resource, is hosting a free “Welcome to Medicare” virtual educational event on April 8 from 11 a.m. to noon. The event is for Ohioans new to Medicare or those who need a Medicare refresher. Register today: https://bit.ly/4i1EWnR
  • The Disability Employment Tchnical Assistance Center will be hosting a webinar STABLE accounts on April 8, 2025 from 3 to 4:30 PM. The National Able Resource Center will give an overview of STABLE accounts, which allow people with disability to save and invest money without it affecting their benefits. The webinar will cover ellegibility requirements, contribution limits, and how funds can be used. The webinar will then talk about how Kansas increased adoption of STABLE accounts for people with disabilities, serving as a model for other states, and, an individual will talk about how she uses her STABLE. account to live independently in the community.
    Registration is required, and, attendees can list accommodation needs on the registation form. ASL. interpretation, Live Captioning, and Spanish Machine Translation will be available. To register, click this link:
    Webinar Registration – Zoom
  • Breaking Silences Advocacy Committee will have a meeting from 3:30 to 4:30 PM. Zoom. If you would like to attend, email Maria Matzik at: Maria.Matzik@acils.com
  • We Thrive Together: Life Skills Class on Washing Clothes to join click this link it is from 4:00-5:00pm.
  • Community Town Hall: Mental Health and Substance Use Services, Tuesday, Apr 8 · 5–6:30 PM at Huron County Community Library
    33 Pleasant St, Wakeman, OH 44889, USA
  • Breaking Barriers:
    Communication in the Criminal Justice System for Individuals with Disabilities
    Tuesday, April 8, 6-7:30 p.m.
    Madeira Library in Cincinnati
    Join us for an interactive workshop where we will explore:
    How communication impacts individuals with disabilities
    Strategies for improving communication when interacting with the criminal justice system
    Practical solutions to enhance accessibility and reduce barriers
    Presented by University of Cincinnati and The Arc.
    For Adults.

Wednesday April 9th 2025

  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events
  • Cincinnati Children’s Hospital Webinar Series Future Planning, Wednesday, Apr 2 · 11:30 AM–12:30 PM Speaker: Derek Graham please register this this link
  • Supported Decision Making Network of Ohio has a 12:00-1:30pm monthly meeting. Check out there website for more information.

Thursday April 10th

  • OSDA Creative Changemakers, Thursday, Apr 10 · 4:30–5:30 PM, Repeats every month on the second Thursday contact clareschloemer.osda@gmail.com for more information on how to join.

Friday April 11th 2025

  • Disability Rights Ohio Weekly Budget Debriefs will be from 3 to 4 PM. Disability Rights Ohio will give weekly updates on the Ohio Budget for people with disabilities and families. If you’re interested in attending, email Brittanie Maddox at:
    bmaddox@disabilityrightsohio.org

Saturday April 12th 2025

  • No Known Events

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Artists with Disabilities Access Program: The Artists with Disabilities Access Program (ADAP) provides funding that gives individual artists with disabilities the resources they need to further their artistic development. Creative expression by artists of all abilities is essential to building dynamic and diverse communities throughout Ohio. ADAP awards help artists with disabilities advance their artistic practices, making Ohio a more accessible and inclusive place to build an artistic career. 
    Application Deadline: May 1, 2025
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility

This Week in Awareness

  • April 8th, Cushing Disease Awareness Day
  • Stress Awareness Month
  • Autism Awareness Month
  • National Poetry Month
  • National Minority Health Month
  • World Autism Awareness Day
  • Sjogrens Awareness Month

For more events check out our main website OhioAdvocacyHeartbeat.com

The Pulse: What’s going on around Ohio March 17 to 22nd 2025!

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Upcoming things to sign up to get involved with or make your voice heard thru surveys and public comment!

  • Medicaid Waivers Posted for Public Comment
    Attention: Providers, Self-Advocates, Families 
    The SELF (Self Empowered Life Funding) waiver renewal and the Level 1 and Individual Options waiver amendments proposed for adoption on July 1, 2025, are a result of stakeholder engagement between the Department of Developmental Disabilities (DODD), the Ohio Department of Medicaid (ODM), people receiving services and families, advocates, and associations. DODD is seeking your input on these amendments; summary documents, the proposed amendments, and information on how to submit your comments can be found at: 
     
    https://dodd.ohio.gov/waivers-and-services/Waiver+Amendments/Waiver+Amendments+2025 
     
    As part of the waiver amendment process, the public can comment on the proposed amendments. The public comment period is March 4, 2025, to April 3, 2025. Comments must be received by midnight on April 3, 2025.
  • Please take 5-10 minutes to fill out the Regional Transportation Public Input Survey. Your feedback and input is valuable and important. This survey will help identify the transportation needs and barriers you face every day within your county and across county lines. Access to jobs, medical care and every day essentials continues to be a struggle for many people across Ohio. Your feedback will help address how we work toward filling those gaps and unmet needs.
    RCRPC is charged with developing a Regional Coordinated Transportation Plan for Region 5, an 8 county region that includes; Ashland, Crawford, Huron, Knox, Marion, Morrow, Richland and Seneca county. The Regional Coordinated Plan will focus on increasing transportation efficiency, coordination and collaboration from county to county. If you live, work or travel in/to/from any of these counties, use public transportation or work with individuals who use public transportation, we want your feedback!
    To access this survey, please click the link below. The survey will remain open until April 1. Please share!
    https://forms.gle/gFYZRZ5Cpx8KD6ct8
  • The Breaking Silences Advocacy Committee created a survey to understand the experiences and get personal stories of people with disabilities who have accessibility issues with online meetings. The goal is to use the stories to create a training program for businesses to help make meetings more accessible for everyone. All responses will be anonymous and no one outside of the Breaking Silences Training Materials Workgroup will see the results. Please fill out form linked here .
  • Sign up to be part of Worlds Longest Virtual Aktion Club through We Thrive Together https://wethrivetogether.org/aktion-club/?gf_protect_submission
  • We Thrive Together a virtual social club is offering a coloring contest here is the link to learn more.
  • Northeast Ohio Medical University is looking for people with disabilities to participate research study on gynecology services and how to improve them. If interested please click link here.
  • Ohio Department of Transportation ATTN: We are now accepting public comments on the draft 2026-2029 Statewide Transportation Improvement Program (STIP). The Draft STIP is available for review and comment online from March 11 to April 11. Help improve Ohio and let your voice be heard today!
    https://www.transportation.ohio.gov/programs/stip/26-29

Events around Ohio to check out week of March 17th 2025 to March 22nd 2025

Monday March 17th 2025

  • Happy St Patrick’s Day
  • Assistive Technology Resource Fair in Lancaster, Ohio hosted by Fairfield County DD. 10:00am- 2:00pm
  • Disability Rights Ohio Legal Clinic for parents of children with disabilities. The topic is- Attendance, Truancy, and Discipline: What Parents Need to Know.
    You can learn more and register to attend at lawyers4students.com/legalclinic
  • Charting the Life Course 1 page Learning Event with Self Advocates 12-1pm register through this link provided.
  • Wellness Managing Stress Workshop on We Thrive Together from 11:00am-12:00pm
  • Relationships Group: Courage on We Thrive Together from 3:00-4:00pm
  • Virtual Training: Creating and Signing into Accounts on We Thrive Together from 6:00pm to 7:00 pm

Tuesday March 18th 2025

  • What is Occupational Therapy? 10:30am in Jackson County Senior Center in Jackson, Ohio hosted by AAA7
  • Tech Talk: Wood County Board of DD Assistive Tech for Elopement on We Thrive Together from 11:00am to 12:00 pm
  • Family University Blind/Visually Impaired/DeafBlind Zoom Meeting on March 18 at 6:30 to 7:30pm
    Join us as we learn from Rachel Schulz, a member of the Center for Excellence, who will discuss
    Universal Design for Learning, (UDL), why it’s important, is your child receiving UDL, and why UDL is helpful for students. Part two of the session will include Dr. Al LaBarre sharing on chapter 7 of the book, “All About IEPs- Special Factors.” Register today: https://zoom.us/meeting/register/tJEucO-rrDMpHNYYXswBA_nG7nOTYPPiE5NQ#/registration
  • Don’t miss out on the upcoming Fair Housing Accessibility First training! The next virtual session is on Tuesday, March 18 at 10:00 am & 2:00 pm, and will cover the Fair Housing Act Requirement 2: Accessible Public and Common-Use Areas. https://www.hud.gov/program_offices/fair_housing_equal_opp/accessibility_first_training_calendar

Wednesday March 19th 2025

  • Utilizing ADA Tools Program by Opportunities for Ohioans with Disabilities 10:00am -11:00am. In this webinar, we will discuss how the 2010 ADA Standards for Accessible Design, the ADA Checklist for Existing Facilities, and the Guide to the ADA Accessibility Standards can assist you along your accessibility journey.
    To register please use this link https://events.gcc.teams.microsoft.com/event/feb0fbee-de68-4868-ad11-562414aa54f8@50f8fcc4-94d8-4f07-84eb-36ed57c7c8a2
  • OSDA at We Thrive Together 11am https://wethrivetogether.org/upcoming-events/
  • DD Community Talks Cuyahoga County 1:00pm-4:00pm 4415 Northfield Rd., Warrensville Heights, OH 44128 Register through this link https://reg.planetreg.com/E102214835173214
  • DD Community Talks Region 6 1:00pm-4:00pm 4325 S Green Rd, Highland Hills, OH 44128 Event Details
    Join us for the DD Community Talks – an exciting in-person event series held across Ohio! Hosted by the Ohio Department of Developmental Disabilities. These events provide an opportunity for people with disabilities, families, and community members to network, share experiences, and explore resources to support disability services in their regions.
    Agenda
    • 30 mins: Check-in/Networking
    • 30 mins: DODD Presentation
    • 90 mins: Table Talks
    • 20 mins: Wrap up & Next Steps
    Let’s connect for the disability community!
    Registration Link https://reg.planetreg.com/E102214835173214
  • Portage County Awards Ceremony for Direct Support Professional of Month 5-6pm in Portage County, Ohio.
  • Lucas County Board of DD Inclusion Resource Fair 5:30pm to 7:30pm in Toledo, Ohio. https://facebook.com/events/s/inclusion-resource-fair/631894382844884/
  • People First of Northeast Ohio meets 6:30pm to 8:00pm People First is a self advocacy group for Adults with IDD (Intellectual and Developmental Disabilities) in NE Ohio. They care about having our voices heard, empowering one another, nothing about us without us, Education, Equality and Inclusion. They meet virtually. For more information contact amy.mordaunt@thearcofohio.org

Thursday March 20th

  • OSDA Regional Meeting. At the Happy Day Services Building
    2500 Brady Lake Rd, Ravenna, OH 44266, USA Information: Registration required : email events@portagedd.org or call 330-296-2839 ext. 3148
  • Montgomery County Parents and Advocates Advisory Council 5:30pm-8:00pm Online Video Meeting https://www.mcbdds.org/Calendar.aspx?EID=7420&month=3&year=2025&day=24&calType=0
    MCBDDS hosts an online Parents & Advocates Advisory Council (PAAC) meeting regularly to provide people with developmental disabilities who receive services, their family members and guardians the opportunity to discuss issues of interest with MCBDDS leadership on a regular basis.

Friday March 21st 2025

  • Ohio Women’s Veterans Forum 11:00am-12:00pm for more information https://x.com/ohiovets/status/1897008087984378099?s=46
  • Threats to Medicaid Webinar 10:30-11:30 am Description Medicaid is a critical safety net in Ohio, providing essential health coverage to millions of Ohioans—including low-income families, older adults, and people with disabilities. As a joint federal-state partnership, Medicaid helps ensure that Ohioans can access primary care, prescription medications, and long-term services while stabilizing the state’s health care system by reducing uncompensated care costs. From proposed work requirements to possible funding reductions, Ohio’s Medicaid program could change drastically. Join Medicaid Policy Fellow Brandy Davis on March 21 at 10:30 to explore the threats to Medicaid.
    To Register https://us02web.zoom.us/webinar/register/WN_rHtp8U_1RMO9C0eKScKeqw#/registration
  • World Down Syndrome Day! Wear Cool socks and post photos on social media!
  • Disability Rights Ohio Budget Review 3:00pm please contact Brittanie Maddox at DRO for more information bmaddox@disabilityrightsohio.org

Saturday March 22nd 2025

No Known Events

Helpful Information by National, State and County Agencies and Organizations for People to Read

  • Ohio Department of Aging Put out an Adult Day Care guide please check out this link to read it.
  • Artists with Disabilities Access Program: The Artists with Disabilities Access Program (ADAP) provides funding that gives individual artists with disabilities the resources they need to further their artistic development. Creative expression by artists of all abilities is essential to building dynamic and diverse communities throughout Ohio. ADAP awards help artists with disabilities advance their artistic practices, making Ohio a more accessible and inclusive place to build an artistic career. 
    Application Deadline: May 1, 2025
  • Administration on Community Living has put out information on Nutrition for older adults check out the link to this information.
  • Center for Family Involvement has made a post about accessibility in social media please check it out thru the link here.
  • Central Ohio Area Agency on Aging will transition from operating within the City of Columbus’ Department of Recreation and Parks to a stand-alone Regional Council of Governments by 2026. This shift will enable COAAA to better serve its consumers — older adults and people with disabilities — within its eight-county region while expanding services and launching new programs.
    Learn more in today’s news release: https://bit.ly/3Fuz60M
  • OSU Nisonger put out a video series on Smart Homes on this YouTube link for people learn about Smart Homes and Independence.
  • Upcoming Ace! Information Session!
    Ace! is a program to help The Ohio State University students with autism or similar communication difficulties confidently navigate the college experience. This is done by coordinating services that foster self-determination, social communication, and campus connections. Ace! staff will assist students in achieving academic, social, and post-graduate goals at The Ohio State University.
    When – March 17th, 2025 at 7pm
    Where – In-person at the Nisonger Center OR virtually via Zoom (please fill out interest form)
    Questions? Email – aceprogram@osumc.edu
    Interest Form – https://bit.ly/3FnwsK7
    Visit our website here. https://bit.ly/4iFCUKJ
  • OSU Nisonger did a talk on Insomnia with Youth with Autism please check out video here of the talk.
  • This was shared by Butler County Board of Developmental Disabilities Kings Island ‘s accessibility guide has changed and we want to make sure you have all the details before visiting this summer! One of the major changes is the accessibility card! Individuals will now have to get prior approval from a third-party system that requires a doctor’s note. To make sure your prepared, please take a look at the Kings Island accessibility guide: http://www.visitkingsisland.com/accessibility

This Week in Awareness

  • World Down Syndrome Day on Friday wear cool socks and post to social media
  • March is DD Awareness Month wear Orange one day to show awareness and make social media post.
  • It is Women’s History Month

For more events check out our main website OhioAdvocacyHeartbeat.com

Saturday Weekly Advocacy Wins to Share!

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Each week we want to highlight advocacy wins of the week on our page that we see happening around Ohio. An advocacy win is something good that happens in the world of advocacy or self advocacy. If you want to share something that happened in the world of advocacy in Ohio please email us we will include it in our weekly wins in Advocacy Post next week.

  • The Dayton Institute of Art and Montgomery County Board of Developmental Disabilities partnered to add a changing table to the Dayton Institute of Art. check out the Facebook post about it.
  • A couple weeks ago, one of the cofounders of Ohio Advocacy Heartbeat Dawn asked for the state budget information in an accessible format and she received that . We want to give a shout out to the Ohio Legislative Service Commission Wendy Zhan and thank her for taking time to make sure that accommodations were available.
  • Quiet hours are expanding in 2025!
    The Columbus Zoo and Aquarium is proud to enhance our commitment to inclusion and sensory accessibility by now offering Quiet Hours the first Sunday of every month throughout the year starting March 2, 2025! For the first four hours of operation, guests will be able to enjoy a calmer, more sensory-friendly environment with reduced sounds, music, and visual stimuli.
    During Quiet Hours, the following options are also available:
    🎧 Sensory kits for rent with a refundable deposit
    🎢 Select attractions with reduced noise and visuals (seasonally available)
    In addition to Quiet Hours, the Zoo will also offer a few sensory-friendly events throughout the year, including:
    🔹Sensory-Friendly Easter Bunny Experience – April 13, 2025
    🔹Zoombezi Bay Quiet After Hours – August 22, 2025
    🔹Blind, Deaf, and DeafBlind Accessibility Day – September 7, 2025
    🔹Sensory-Friendly Light Stroll – November 18, 2025
    🔹Sensory-Friendly Santa Experience – December 7, 2025
    To plan a more sensory-friendly experience anytime of the year, visit https://www.columbuszoo.org/accessibility
  • The State of Ohio published an ADA Coordinators Directory with listings for each agencies ADA Director. https://das.ohio.gov/employee-relations/office-of-opportunity-and-accessibility/ada-coordinators-directory
  • We Thrive Together has secured a sponsor to build World’s Largest Virtual Acktion Club to check out their vision check out this link to participate.

The Pulse: What’s Happening in Ohio March 3rd to March 7th, 2025.

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The Pulse March 3rd to 8th, 2025

Upcoming things to sign up to get involved with or make your voice heard thru surveys. 

Advocacy & Disability Related Events week of March 3-7th around Ohio. 

Monday March 3rd

Tuesday March 4th

Wednesday March 5th

  • Tuscarwras County DD Awareness Month Proclamation Signing 10-11 am in New Philadelphia, Ohio
  • Ohio Self Determination Association at We Thrive Together at 11 am For more information please go to https://wethrivetogether.org/upcoming-events/&nbsp
  • Ohio Olmsted Taskforce Monthly Meeting 1pm for more information check out this link .

Thursday March 6th

  • Supported Decision Making Network of Ohio Padlet Meeting 11am

Friday March 7th

  • National Council on Disability March – Washington DC
  • Jackson County Board of Developmental Disabilities is holding a DD Awareness Month event from 10-2pm in Jackson, Ohio.
  • Athens County Board of Developmental Disabilities March on Court Street 10:30 am Athen, Ohio.
  • DD Walk for Awareness in Chillicothe, Ohio from 10:30am-2pm
  • Disability Rights Ohio Budget Debrief at 3pm. contact Brittanie Maddox -Community Engagement and Advocacy Specialist bmaddox@disabilityrightsohio.org

Saturday March 8th

  • No Known Events

March holds a lot of Awareness Month Campaigns

  • Developmental Disabilities Awareness Month
  • Trisomy Awareness Month
  • National Cerebral Palsy Awareness Month
  • Multiple System Atrophy Awareness Month
  • World Down Syndrome Awareness Day

Our full calendar is on our home page OhioAdvocacyHeartbeat.com

The 2025 Budget: One little-known Way To Survive The Storm by Dawn

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The 2025 Budget: One little-known Way To Survive The Storm


The beginning of the year is a time for many things to happen, such as goal setting, transitions, and so much more. This year is no different. Once again, it's time for budget season in Ohio, where we will be transitioning to the 2026-2027 fiscal year. This means writing and/or submitting testimony, attending many calls and meetings, and really ramping up advocacy efforts. It can also mean being volnerable, and sharing personal experiences and stories. On top of that, each budget cycle is different. Things such as self-care, and seeking support when needed are great tools to have in your advocacy toolbox. However, there is another way you can save your sanity, and, it's one of those lifehacks in advocacy that either isn't talked about, or, if it is, this particular aspect of it isn't.

That life hack is called ADA Accommodations , more specifically , getting a copy of the budget in a format that's accessible to you. Yes, you read that right. You have the right to make a request for ADA. accommodations for the budget bill... or, any piece of legislation for that matter, as well as any documents or materials such as written testimony. Don't worry, it's not as painful as you might think it will be. We'll cover the process, the response, and my experience. But, first, I'll give you a crash course on why you may need to ask for accommodations for the budget bill or any other bill, and any associated material such as documents, and written testimony.

 But, before we get into that, here's some things to keep in mind. First, the main operating budget bill has been introduced this week, which leads to the second thing. The sooner you request the accommodation(s) you need, the better, because they need time to process your request, get it into an alternative format, among other things. This way, you can be up-to-date with everything that's going on, and take action, whether that means submitting testimony, reaching out to legislators and representatives and senators, or something else. Also, everyone has different needs, abilities, and use-cases and daily set-ups, and, that's ok! That just means that we'll all need different accommodations, and, there's no one-size-fits-all approach to this. Now, let's get into the ADA Accommodations request process.

Let's start out with the reason(s) why I asked for accommodations, and why you might want to as well. For starters, the bills are posted on the My Ohio Legislature web site, which is not accessible for screenreaders users such as myself. Then, if you do manage to find the bill you want, for instance, the budget bill, guess what format it will be in? If you guessed PDF. then, you are correct. While the PDF. file extension stands for portable digital format, or picture digital format, for people with disabilities, especially screenreader users, such as myself, PDF. can and does stand for a myriad of other things. Some of which may not be appropriate to put in a blog post. For me, PDF. stands for picture digital frustration, among other things.
But, all kidding and jokes aside, PDF. files in my experience, do not play nice with screenreaders or braille devices. Or, if they were made to be accessible, typically, people didn't do it correctly, or, there were other elements in it such as images that either made it inaccessible, or the elements themselves were inaccessible, or, it wouldn't work on the device someone uses. I could tell you many horror stories about dealing with PDF. documents, and, I'm sure a lot of you have your own bad experiences. Then, there's the file size. To give you a baseline, HB. 33, the last budget bill was 9200 pages, or, 8 megabytes. The bigger the bill, the ligger the file size. Which could mean that you could have a hard time converting it into an alternative format, whether you do it yourself, or have someone else do it for you. Especially because a lot of conversion software and web sites have file size limitations. You may even have a hard time opening it on certain devices, or in certain apps, even with large storage thresholds. Or, if you have a device that has file size limits, and that's the only device you have, not to mention is part of your daily set-up, things could get dicey.
This is what happened in my case. When I tried opening the budget bill for last year, I ran up against file size limitations on my braille display that I use, and the application I normally use. Even opening it on my Ipad and Iphone which have more resources, it was still a struggle if not impossible. While I could've had it in hardcopy braille, that would take a long time, and they may have had to ship it here on a semi truck, not to mention it would take up a whole lot of space. Because braille is thicker than print.
There may be other reasons why you might want to ask for accommodations. Let's get into the request process.

Before you submit the request, think about what your needs are. While I know what I need, and do an ok job of expressing those nethes, I realize that might not be the same for everyone, especially if you've never went through this process before. Some people may know what they need but, don't know how to express it. Some people may not necisarily know what they need. I recommend writing your needs down on a piece of paper, or on your computer, tablet or phone. For instance, if you know what file formats work on your braille display, write that down. Then, go through those formats, and think about what's worked in the past, and what hasn't, then, jot that down too. Then, think about what other needs you have, such as if you need it in plain language, or, if you make notes to yourself on things you need to follow up on or watch closely, for instance. Then, think about what format(s) you prefer, and write them down in the order of preference. For me, I prefer: BRF. (braille reading/ready file/format) TXT. or, DOCX. I can read RTF. files, however, I only use this as a last resort.

Then, find who you need to contact. In this case, since we're requesting a copy of the budget bill in an accessible format, we'll go to the Ohio Legislative Services Commission web site. Then, you'll need to find a link that says "Key Contacts" and click on it. When requesting ADA. accommodations, a good general rule is to look for an ADA. cordinator, or Equal Opportunity Employment Coordinator, or something similar. The next best thing, is to find the director or head of whatever office, agency, commission, etc that are making the request to. In this case, you'd reach out to the director of the Ohio Legislative Services Commission, Wendy Zhan. Here is a link to the Key Contact page on the Ohio Legislative Services Commission's web site:


https://www.lsc.ohio.gov/about/key-contacts


Here is Director Wendy zhan's email:


Wendy.Zhan@lsc.ohio.gov


This page is accessible for screenreader users, you can navigate by heading to reach the contents of the page, by link to access the contact informan, and staff directors. For that, I want to give a lot of kudos to them, because their site is one of the very few government web sites both in the state, and nationally that are accessible.

Then, once you find the name of the person to contact, you can click on it to open your email program. You are now ready to write your request!
Here are some things to keep in mind and tips for this process.
Be kind, but firm, however, don't back down. As the old saying goes, you can catch more flies with honey than vinegar. I do understand the frustration, irritatation, etc that can come with advocacy, not getting your needs met, and all the shananigans we have to go through both in advocacy and as people with disabilities. However, it's always best to start out with kindness, and patience, among other things, but, you can also be firm. If you're coming up against obstacles, or barriers, then it's time to get firm. Also, don't give up! Lean on other people for support, file an ADA. claim if you have to, as a last resort.

Send your request in writing. While you can call the office, it's better to send an email. With emails, there's a paper trail, and, I also suggest making use of the blind carbon copy field as well. This way, you can have a copy of the email that's off-site, which will help in many situations.

I recommend having a few options if you can. While I prefer TXT. I'll also take a DOCX. file if TXT. isn't possible. I can also use RTF. files, however, due to formatting sometimes being iffy, I only use them as a last resort. then, if someone sends me a file in RTF. format, I send it to a friend of mine, who converts it to TXT. format. This way, I can get that converted down to a TXT. format. Another reason is if and when TXT. isn't possible or feasible, DOCX. has worked ok as an alternative in the past. Again, list the formats you want in order of preference. Although as a heads-up, the Ohio LSC. doesn't have the ability to produce files in BRF. format.

Let them know they can reach out and where and how they can contact you with any other questions is also a good idea too. When I was submitting my request, and, trying to figure out the best option that would work for everyone, I offered to set up a phone or Zoom call as well. I'm open to that, because they can give you a list of what resources they have, and, you can tell them what your needs are, and you can find a solution that will work for all parties. Plus, in the case of a bill, they might be able to tell you how things will be laid out, formatted, etc, which can and at times does factor into the equation. Also, it gives them an osportunity to learn about accessibility, and alternative formats, screenreaders and braille displays, and the like.
Keep an eye on your inbox. They may send you emails asking questions about your needs, etc. Be prepared to answer them. Also, if they find another way to convert the bill into an accessible format, that's great! Also, when they respond, they may copy another staff person on the reply. If they do this, I recommend hitting the resly all button. If you do this, it will go to everyone on the to field of the email, including those in the CC. field. Keep in mind it will not get sent to people you put in the blind carbon copy field. Although I recommend blind copying everyone on the replies you send, and forwarding anything that you get.


I will say, that for me, the process is ongoing. We had to work out some stuff related to file size limitations, as I stated earlier. However, I gave a couple schggestions/options, and, even offered to set up a phone or Zoom call to have further discussion if needed. It also doesn't hurt to let them know that these are the only device(s) you have. We were able to find a solution that will hopefully work, by breaking the budget bill into sections, with file sizes being no more than 1-2 MB. in size, and putting them in a zip folder. I should hear something and know more soon, !stce the operating budget bill has been released this week on February. I would like to publicly thank director Wendy Zhan, and her colleague, Megan Cummiskey for their assistance, and going above and beyond. They have been doing an awesome job, and, I'm more than greatful for their help, and willingness to work with me on this.

I know that this might seem overwhelming, especially if you've never had to do this before or very much. With that in mind, I've put together a couple of resources that may help you. One is a template that you can use when writing your email. You can customize it however you like, including what accommodations you need. I've also put together a little worksheet that you can fill out with different questions, such as what your needs are. You can also customize this however you like, and, you can write down your answers, or, type it on your computer, phone or tablet. Both documents will be in TXT. format to make things as accessible as possible.

If you have knowledge, experience, etc regarding this, I highly encourage you to share that with others in the advocacy community. I got my knowledge about this from another fellow advocate, and, I cannot thank her enough! Now, I'm paying it forward, by writing a blog post about this, and, passing on not only what I learned, but, my experience so far. Remember, you have the right to ask for accommodations under the Americans With Disabilities Act, and, there's nothing wrong with asking questions, and, asking for help. Asking for accommodations or help doesn't make you any less of an advocate or person. In fact, it does the opposite. Asking for accommodations, help, etc, is a sign of strength, guts and courage


I want to hear from you! Have you requested ADA Accommodations, and, is if so, what was your experience? Who and/or what agency or organization did you request accommodations from, and what materials did you request accommodations for? Did you get your accommodation(s) you needed? If not, what alternatives if any, did you utilize? Did you run into any barriers, and, if so, how did you overcome them? Do you have any other tips, knowledge, suggestions, etc to share?

Ohio Pulse: What’s Happening in Ohio January 27th to February 1st, 2025?

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Week of January 27th to February 1st, 2025

Every week Ohio Advocacy Heartbeat puts out a weekly what’s happening in Ohio and also we share one or two National Events to look forward to.

Upcoming Events for the week of January 27th to February 1st 2025. You can a calendar of events  on our main website OhioAdvocacyHeartbeat.com 

At the current moment there is a sign up for Ohio Developmental Disabilities Day at the statehouse and you can find it by clicking this link. Ohio DD Day is set for March 4th 2025 at the Ohio Statehouse Registration is required in advance for everyone including caregivers.

Monday January 27th 2025

Building an Inclusive 988 from 2-3pm register through this link

Tuesday January 28th, 2025 

Southwest Ohio Advocacy Group Meets in Cincinnati, Ohio. 6-8pm at 4623 Wesley Avenue Cincinnati, OH 45212, USA

Wednesday January 29th, 2025

Human Trafficking Prevention Advocacy Day at the Ohio Statehouse in Columbus, Ohio.

In recognition of Human Trafficking Prevention Month, the Collaborative to End Human Trafficking is hosting an advocacy day, along with its partners from across Ohio.
https://collabtoendht.networkforgood.com/events/78636-human-trafficking-prevention-statehouse-advocacy-day

Ohio Self Determination Association at We Thrive Together at 11 am For more information please go to https://wethrivetogether.org/upcoming-events/ 

Innovation in the Direct Care Workforce: Unlocking Success Through Peer Learning, Wednesday, Jan 29 · 2–3 PM

Please Register through this link.

Thursday January 30th, 2025

Pickaway County Provider Round Table 4-5pm at 200 E High Street Circleville, OH 43113, USA

Pickaway County is hosting a provider round table the topic is Compassion Fatigue. It is both in person and virtual. For questions or to receive the zoom link please contact aknotts@pickawaydd.org

Friday January 31st, 2025 

No known events 

Saturday February 1st 

No known events 

How I Use Braille by Dawn

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How I Use Braille



Recently, I wrote a post about why braille is beautiful. If you'd like to read it, you can click here:


https://ohioadvocacyheartbeat.com/2025/01/14/why-braille-is-beautiful-by-dawn/


For 200 years, braille is been a both a fixture and a mainstay in blind people's lives. It helps achieve independence, employment, and overall improves quality of life. There's a lot of uses for braille, including labeling things, reading religious materials, the list goes on. In honor of Braille Litwitheracy Month, I decided to write about how I use braille.
Sometimes, when someone mentions or suggests learning braille whether it's for someone who was born blind, or someone who became blind or visually impaired later in life, a common question is: "What would I use it for?"
Typically, when ever I get asked this, I always respond with some form of: "Well, what are some things you like to do, or liked to do before you lost your sight?" and listen to people's responses. Depending on what their answers are, I try and take some of their answers and tell them how braille applies to them. For instance, if someone tells me they love reading, then, I will tell them about how braille will open your world up, because you'll be able to read books in whatever genre you like, or, even read magazines and newspapers, and, I talk about various resources such as the NLS. (National Library Service For The Blind And Print Disabled.) I also talk about ways to read, such as getting harcopy braille books, or, even reading on a refreshable braille display. I know that every one's use case, situation, circumstances, etc will be different. However, I wanted to give some ideas. But, first, I want to share my braille journey with you all.


I have been blind since birth, due to underdeveloped optic nerves. I started learning braille when I was 6 months old, and, I'm 27 now. So, I've been reading and using braille for about 26 years give or take. When she found out I was blind, Mom had no help. That meant that she had to figure things out on her own, and find resources on her own. She taught herself braille, so that she could teach me. When the braille code changed from English Braille American Edition or, as we call it, old braille, to Unified English Braille or new braille as we call it, in 2016, I had to start from scratch. There have been periods in my life where I have had no access to braille, such as when my equipment needed repairs, or, when my BrailleNote was taken from me in 2016 2 weeks before graduating high school. I now have a refreshable braille display, and, I'm very happy to say, I'm reading and writing in the new braille code! I will also say that my refreshable braille display is a big cornerstone in my life. It gives me the ability to do many things that I otherwise either would not be able to do, or, that I wouldn't be able to do as well and effectively as I can do them now. With that in mind, here are some ways that I use braille, and incoporate it into my daily life.


1. Navigation using braille plates and signage
Under the Americans with Disabilities Act, public place are required to have braille plates and signage, including in the elevators. When I was in school, I often used the braille plates by each classroom to navigate. For example, if I needed to find my science class, I knew the room number was 208. So, I'd take my route, and, double-check to make sure I was at the right room! It also helps in the elevators. If I'm on another floor, and, I need to go to the lobby, I get in the elevator and look for the button that has a braille and tactile marker for the lobby, and press it!


2. Cooking

I love microwave meals for a variety of reasons. However, since microwaves are touchscreens, I'd need help finding the buttons to press, or I'd have to have someone heat up my meal for me. However, my microwave has braille labels on it for the number pad, the start and stop buttons, etc, which means that all I have to do is have someone read me the directions on the package for the meal.

Sadly, due to how the devices are being made now, such as having buttons on a touchscreen that are very close together, it's getting harder for these types of appliances to be brailled.

There are also braille measuring cups and spoons that you can buy to help with cooking as well. They're plastic, and the braille is molded into it, which means no danger of labels popping off when being washed! You can get them from various adaptive equipment companies such as MaxiAids.

As a bonus, if you have thermaform paper, you can write down recipes in braille! I recommend using this type of paper, because if you get stuff on it, you can just wipe it off. Whereas with regular braille paper, it can become damaged, and make the information hard if not impossible to read.



3. Financial Management


You can get your bank statements in braille! This allows for greater financial independence, because you'll be able to keep track of your bank balance, transations and deposits etc. If you're not sure if your bank provides this, you can call them, or go to their website. For instance, if you do business with Huntington Bank, you can either call, go into a branch, or, fill out a form online to obtain your braille statements.
Also, check and see if you can get your bills in braille as well!


4. Keeping up with the news

I like to stay in the loop about events going on in my community, in Ohio, nationally, as well as internationally, plus, news surrounding advocacy and disability rights issues. If I want to read a national newspaper, or an Ohio newspaper such as the Dayton Daily News, I use a service called NFBNewsline, which is a free service available to people who are blind, or have other print disabilities. I can get any newspapers and magazines that they offer on my braille display. I can also navigate through the publication, and skip articles and sections that aren't of interest to me.
I can also look at social media such as Facebook to see what's going on in the disability and advocacy communities. I just pair my Iphone and Ipad with my braille display with bluetooth, and, I'm ready to go!


      

5. Reading books... otherwise known as keeping my sanity


Reading has been my main coping mechanism for years. I like all kinds of genres, however, my favorite genres are mystery, thriller, or suspense. I can go to Bookshare, a subscription-based service for people with print disabilities, or the Braille And Audio Reading Download or BARD. web site from the NLS. and browse the books they offer, or search for a book or author I want to read. If it's available on any of those services, I can download it directly to my braille display. From there, I can read it anywhere at any time! This saves on space and expense. Braille books are sometimes broken down into volumes because it's thicker than print. One print page is 3 braille pages. This means that space is at a premium. This also saves money, because, braille books can be expensive, especially if you read books like the Alex Cross series by James Patterson.


5. Communicating

I can write, read, receive and send things such as text messages or emails using braille. I just use my braille display which is paired to my IOS. device through bluetooth. So, if someone asks me if I need anything from the store, I can read the text, and reply back with my answer, all while using braille. It makes typing much faster, and much more accurate than using an onscreen keyboard, or dictation.

6. Learning and Education


When I was in scholl, my textbooks, assignments and so on were in braille. Nowadays, when I'm in a training, I will still have my materials in braille on my refreshable braille display. It helps me follow along with what's being taught, and, I can comprehend it better. It also allows me to do any worksheets that are associated with whatever workshop or training I attend. As a bonus, if it's provided ahead of time, I can look at a presentation that's being screenshared in a meeting. This is crucial for me because, as a screenreader user, visual content that is being screenshared is not accessible to me, due to the fact that it's essentially a video. The only way I get annthing out of screenshares, is if there's an audio component, or if people describe things in detail, or, if I can read the presentations. If I have the presentation they're reading, then I can follow along, and participate more in the discussion.



7. Notetaking and other secretarial work

For those who don't know, I'm a member of the National Federation of The Blind Ohio Greater Akron Chapter, and the NFB. Ohio Community Service Devision. I recently became the secretary for the devision. Which means I take notes in the meetings, and write out the minutes, and keep track of the member list. Braille is crucial to me being able to do this. With braille, I can be in the meeting, and writing in my shorthand, and then when I'm working on the minutes, I can look at my notes, and, type up the minutes that way. I can do all of this directly on my braille display. While recording meetings is essential, having notes you take down is another crucial component. I can even read the minutes on the braille display at the meeting.



8. Advocacy

As a disability rights advocate in Ohio, I do a lot, and wear many hats. I attend meetings, write letters, and, yes, I even write these blog posts using braille, for example. Writing and reading are big parts of advocacy. Whether it's writing an email asking for reasonable accommodations, or submitting written testimony, or reading changes to a rule, or any of the other laundry list of tasks we do as advocates, and, it helps me out a great deal with all of these things, and many others. I firmly believe that if I didn't have braille in my life, I either wouldn't be able to do all the things I do, or do them nearly as well or efficiently. More than likely, I'd have to make the difficult decision to step down from some of my roles and positions.


9. Organization and labeling


I also use braille to organize things. For instance, I have an extensive CD. collection. My albums are labeled so that I know what they are. This is especially helpful when I have multiple albums from the same artist.
You can use braille to organize in other ways as well. For example, you can label spice containers, or put a braille label on a magnet, and stick it to a canned food item.



10. Recording content for radio programs

I recently started volunteering and recording content for radio programs for Goodwill Youngstown Radio Reading Service. I have a list of books that I'd like to record. I recently recorded a set of books to honor Dr. Seuss's birthday. I downloaded the books to my braille display, and read them, and recorded them using my Ipad. I can go to NLS. BARD. and Bookshare to get books to read. I could also read magazines from NFBNewsline, or BARD.


11. You can draw with your perkins brailler

Yes, you read that right! You can draw with your perkins braillewriter! There's a book on Amazon by Kim Charlson called Drawing with your perkins brailler. There's also drawings online that you can find. Kim Charlson's books has several drawings in it, including a christmas tree, and shapes such as a triangle. 

This is by no means an extensive list of use cases for braille. However, I hope that I've given you some ideas on how to incorporate braille into your daily life. I'd love to hear how you use braille, and about your braille journey. Feel free to post a comment and share your thoughts!

Seen & Heard: Advocacy Series Part 3

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Advocacy Series Part 3. What can be done to support advocates

By: Dawn Bilpuch

We made it to the end! We talked about a lot of things, every thing from what advocacy is and what it means, to what people need to understand. Now, to wrap it up, we’re going to talk about what can be done to supmort advocates.
We love what we do. If we didn’t we wouldn’t be staying up til 3 AM. doing paperwork, or talking someone down and helping them through a crisis. This wasn’t meant to say bad things about advocacy. It was just meant to be educational and open people’s eyes. With that being said, let’s get into the things we can do to support advocates.

  1. Make accessibility a priority.
    Make your meetings, documents, etc accessible. That incbbudes Zoom captioning, converting documents into accessible formats, etc. Also, making our rules, laws and other websites we need to access them accessible. This includes federal rules and regulations and laws. Make info about getting accommodations accessible and easy to find. Put things in plain language. Put alt-text on graphics and photos. The list goes on and on. Also, offer virtual testimony. Some people including family members can’t always get out to the statehouse to testify, and still want to testify and submit written testimony. Virtual options give people that choice.
    In case you haven’t noticed, accessibility is one of those issues I could get on a soapbox about.
  2. Have an advocacy peer support network or group
    Advocacy can be very isolating. Not just because of the work, but, also, the nature of it, your disability(s) can play a part too, and where you live, and what you have to see and go through each day, along with many other factors, can play into this. As an advocate, you’re on your own, you have no backup, support etc. If things get to be too much or you need to vent, you’re on your own, and, if you have another advocate to go to, then that’s awesome! Creating a pwher support group or network for advocates both at a state and national level, will allow people to connect in whatever way is best for them, share what’s on their mind, bounce ideas off each other, and get and give support in a safe, nurturing, confidential space. People can then make friends and connections and talk outside the group if they want, and help each other.
  3. Be understanding and meet people where they’re at, give every one a seat at the table.
    Meeting people where they’re at, and helping them when they’re struggling and giving them grace when they fall on their face is crucial. Also, giving every one seats at the table. Also, give people plenty of opportunities to grow, as people and advocates! Take other new advocates under your wing. I had someone do that with and for me, and, let me tell you, that is one of the best things to ever happen to me. We’re alike in a lot of ways, and have connected in a lot of ways over various things. They are the same person whose life I saved. She took me under her wing, and, into her group that she ran, and, I’m so glad she did. She’s taught me and still teaching me about policy, rules, how to get accommodations, and so much more. I can’t thank her enough. We have become very close friends, and wouldn’t change it.
  4. Provide training
    One thing I think that’s lacking, is training on how to be an advocate, and surrounding all aspects of advocacy. Even if there’s training, it costs an arm and a leg, or you need college degrees. Not every one can afford or handle that. Offer plenty of free virtual and hybrid trainings, and, if they cost, offer ways for people to pay that can’t afford it, or find ways to reduce the cost if not eliminate it. Also, create some resources and have a resource hub for all things of this nature including places to go and get more spicific resources.
  5. Eliminate, reduce, or find ways to get around dues
    Not every one is made of money, and, if you’re disabled, that’s definitely the case. Because while benefits are great, you don’t make a lot to live on, especially with prices going up like they are. Some people can’t apply for benefits because of whatever circumstance. I think that if there’s organizations that have dues, they should find ways to help people that want to join, but can’t because of financial limitations. That could mean reducing or eliminating dues, offering assistance to people who can’t pay, offering a one-time payment for lifetime membership, or nixing dues altogether. The sky is the limit in some way on this one. Also, make sure that current members know that they can come to you if they have financial issues at any point.

What do you think needs to be done to support advocates? Are there any resources you know of? Whatever your thoughts, please feel free to share them.

Seen and Heard Advocacy Series Introduction

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Seen and Heard: Advocacy Series Introduction

By: Dawn Bilpuch

Advocacy. It’s a word you hear a lot, and, it’s something you do a lot more than you realize. Whether you’re disabled or not, you advocate every day. Whether you are a person with low vision who asks for a document in larger font, or, a single parent asking for a different shift, so that you can take your kiddo to school the pick them up. Or trying to get a law changed or passed in your state, city, county or township, or even in the country, or giving testimony, you’re advocacting.

This is what I do every single day. Whether I’m asking for braille menus, or an accessible document, or trying to get rules or laws changed.

My name is Dawn Bilpuch, and, I’m a disability rights advocate, and a person with a disability. I have been blind since birth.
This is an introduction to a multi-part series that I’m going to be writing about and for advocacy and advocates.
This series will cover:

  • What advocacy means, what it means to me, and what it means to you
  • What advocates wish people knew and understood
  • What can be done to support advocates

Why I Chose To Do This

I have several reasons that motivated me work on this. The first reason, the original firestarter, came in December 2023. A friend of mine whose a fellow advocate, was being abused, and, was denied aid in a medical crisis, and, I had to bet the aides to give her water and oxygen. I ⊦ to save her life, because if I hadn’t been there, she may not be here today.
That triggered some past trauma involving a family member’s medical emergency, and as a result, I deteriorated mentally and emotionally’like . It caused a serious if not severe mental breakdown. As a result, my work performance was effected. While I’m in a somewhat better place now, in some ways I’m still recovering.
Regardless of how I felt and how it affected me, I’m glad I was there, and would do it all over again.

Then, earlier in 2024, I was (and still am) secretary for an ad?ocacy group in Ohio, a friend of mine and fellow colleague who was chair, was pushed out, and I experienced mistreatment, and, I began to think about it again.
Fast forw4 to now, and, the person who took the chair position abruptly resigned, before a big event, and, I had to step away to take care of my mental health for 2 months. The response I got was not what I expected. Plus, a bill that I support called Lauren’s Law was introduced, and, that made the climate colder than what it already was.
It’s left me with a lot of feelings of hurt, exhaustion, shame, to name a few, and, I have also been dealing with self-blame and self-doubt. So, I feel that one of the ways I can work through this is to write this series.
This is an unflinching, uncensored account of and look at advocacy, and, what it means to be an advocate.